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Folfox
Hi everyone, I hope that you are all doing well! My brains still spinning from everything going on. I will be starting folfox soon. What are the side effects? Will I lose my hair? According to my oncologist I will, but I couldn't find anything on line that confirmed that so I'm confused. I'd appreciate any information that…
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So, what's the head count?
Greetings, all. Could everyone who plans on heading to Vegas for Colon Palooza II please respond to this message so I could get a head count? It's still not too late to make plans if you hadn't already done so... DATES: October 25 to October 28 LOCATION: Aladdin Hotel, Las Vegas Two weeks away!
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Been AWOL, catching up.....
My dear friends, I just read the board for the first time in a while (very busy lately) and cried, laughed, and then cried some more. Y'all are amazing people and I do not think I would be alive today without you all. To the "newbies". Bless you and I am so sorry you have to even be here with us but now that you are, you…
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Anal Cancer - Hip Pain/Back Pain and Early Menopause
I am a 42-year-old female who was diagnosed in October 2004 with Stage 2, squamous cell cancer of the anal canal - and so my journey began - had chemo (through an access port in my chest [yes that surgery hurt, which no one told me about until after]), 2 chemo treatments (4 weeks apart) lasting 96 hours on a continuous…
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little good news
Hi everyone... just wanted to share with you that my onc looked at the xray with me. My tumor in the right lung has faded some with only 2 wks of treatments.... thank god. I was so scared the chemo wouldn't work and I would have to wait for new drugs. WHEW!!! Unfortunately, I can't start avastin afterall. I had a TIA…
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Good Reads
Jana had a great idea about us posting some of our favorite books. I will start the thread and feel free to join in. Please add the title, author and something about the books that have helped you during your cancer experiences. "Beating Cancer With Nutrition" by Patrick Quillan. He is the Director of Nutrition for the…
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We didn't make it with treatment
I have written a few times and have always received much love and support from all of you. For that I say "Thank You". Yesterday my husband (stage IV colon w/ mets to liver and lung since Sept 03) began the new Erbitux and didn't get to take it. After about 30 minutes he broke out in a severe rash with welps and itching…
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Pa surgery/my nightmare
My pa was dx with rectal cancer June 2005. He went through a series of scans followed with 5 weeks of chemo and radiation. He is now finished and scheduled for surgery this Thursday. I have been so angry at my husband and siblings lately. I am very depressed too. I did not know why until last night. I had a nighmare that…
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off topic
Sorry to go off topic for a momnt but most of you know who my "angel" is.I just wanted to tell you that Jen is turning 50 on sund. 23rd Oct. I am throwing a party for her saturday. After the hell she has been thru in the past 2 years worrying about me I thought it was payback time.And you all know how much our carers mean…
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Time For Testing Again
Hey everyone. I'm still hanging around reading post and praying for us all every day. Glad to hear from those of you that are NED. My husband had his AAA surgery late last month. Did really well. A little history: Husband dx w/colorectal cancer Oct 03, rad/chemo, surgery, transanal excision, Feb 04, then more chemo…
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it's been awhile
hello to everyone.i haven't been on the board in awhile as i have been concentrating on my chemo and trying to get well.i truly hope that everyone is doing o.k. and i keep all of you in my prayers everyday.i continue to have my chemo every week and lately,my cea level has dropped from the high 90's to 16.my oncologist said…
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worse news
Hi everyone, I will see my oncologist tomorrow, but spoke with him on the phone today. Apparently I have 2 lesions in my lung. The second one did not show up on the pet scan, but showed up in the ct scan. He decided not to tell me about the second one because he thought it might not be cancer since it didn't show up in the…
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colorectal cancer update
This Sunday, the radio program The Group Room will have 2 esteemed colon docs on live for calls. 1-(800) 477-7666 1-3pm Pacific, 4-6 Eastern. CALL with your concerns!
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VEGAS and stuff.....
Hello all you semi-colons, I hope you know how much you all mean to me. For almost 4 years (it will be 4 in December) I have posting here and getting to know y'all. Some more than others. Lately I have not had as much time as before to spend on here getting to know some of the newbies. I feel bad about that. It's hard to…
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feeling more optimistic
Hi everyone, I saw my oncologist today. The reason that he said that it is inoperable is that there are 2 tumors in different lobes. The report also states that there are another 1-2 very small tumors that are probably cancer. As of tomorrow I am on disability. My hours at work aren't flexible and I work with infants so…
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update and a hello
well this friday i will go in for my 8th treatment of folfiri. my last blood work showed my cea dropped from 10.8to 7.4. my onc has not said a word about a scan yet. i am felling well just getting so tired of all of this. there have been some tuff goings on this board but also great news. i should post more and that is…
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TroVax Vaccine
Hi- has anyone heard about TroVax? I think it's still at trial stage but apparently it's very promising and effective in treating metastatic cancer (inc colon) J
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post-TEM, pre-treatment for rectal cancer
I am a 70 year old woman in excellent health who plays tennis regularly and is married to a retired oncologist. On sept 20,2005 I had a colonoscopy and a large polyp was found and removed.It looked benign. 6 days later we got the report that the entire polyp was a cancerous tumor right down to the stem where it was…
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Patricia - First time post
Cancer and death have left me alone and isolated. The emergency surgery/diagnosis was in March of 2002. Stage 3 colon and uterin cancer. They did a colonectomy and complete hysterectomy. Ten months later my husband died unexpectedly while I was going through chemotherapy. My church "family" has not been there for me which…
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With a heavy heart...
Hi all, Well, my girlfriend and I were planning to make a quick trip out to Vegas, but a dear friend of mine passed away from ovarian cancer. She was only 23 years old and fought the beast for 4 years. I met her almost 2 years ago and she was just a beautiful spirit... No other way to describe her. I am making plans to go…
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Help my brother
Reading this forum has been incredibly informative, and inspiring at times. My prayers and sympathy go to all those who are suffering and seeking solutions, and I would like to thank those many for providing moral support. I would also like to thank you for reading my story and appreciate very much you input, anything.....…
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skin sensitivity
I was diagnosed with anal cancer in May 2002. I went through chemo and 6 weeks of radiation. My skin is very sensitive now where the radiation burns were. I haven't found any underwear that doesn't cause irritation and I still have to wear loose pants. Is this a problem for anyone else? Does anyone know if this sensitivity…
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somethings wrong and i need help
Allright folks i have a few questions and was wondering if anyone can help me. I'm a little embarrased talking about this so please be gentle with me here. I am a 3 years testicular cancer survivor but recently ive been having some new problems. For about the last 8 months or so ive been been bleeding rectaly and i cant…
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New Caregiver
My 26 year old daughter is newly diagnosed with Squamous Cell Carcinoma. We haven't found out for sure what stage she is in. The tumor is 4 centimeters and located right at the outside of the sphincter. She's seen her Radiation Oncologist yesterday and will see her Medical Oncologist on May 10th. Can anyone tell me what to…
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Thanks
Hi all, I wanted to thank everyone who replied to my post. It really helped. I'm still a mess, but a bit calmer and ready to find out what comes next, ready to go back to battle! Take care and keep fighting! Jamie
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Lung met
Hi everyone, The biopsy results are back and the cancer has spread to my lung. It's a small lesion. I will see the oncologist Monday and get the details for the next round of treatment. My doctor was off today and I had to throw a fit to get his partner to give me the results. He wanted me to wait until Monday. After 15…
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what would you do?
Hiya all. I thought it was about time I asked a question and this one needs your replies guys n gals. I went to my doc today to get a referal for my next ultrasounds. I could not get an appt. with my normal gp( a lady) but got an intern. Ok..he was nice enough but nonetheless apart from my records does not really have the…
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Question for Stacy
Hi Stacy, I just read a post about your chemo (same as my father started 8 weeks ago)5 FU, Leucovorin, and camptosar and also Avastin. Just curious about how long you were on it and how long it took to see shrinkage. My father just had his first 8 week scan to see how he is responding and there was no change in his liver…
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Camposrar - High Blood Pressure
hello to all, need to know if anyone else has had high blood pressure from Chemo? My husband had his chemo changed from FOLFOX to FOLFIRI (sp) took out oxiplatin and replaced it with campostar the other chemos/meds remained the same 5FU and Leucovorin (sp) with Avastin. He had 6 treatments of FOLFOX before the change to…
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Alternative medicine?
I groped the internet and found the following article about David Walker, who was a biophysicist, using herbal regimen to treat cancers (including his own): http://www.sumeria.net/canc/walkerstory.html He is, according to the article, in Mexicao now. Does anyone know the credibility of this article or the story or has…