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Patricia - First time post
Cancer and death have left me alone and isolated. The emergency surgery/diagnosis was in March of 2002. Stage 3 colon and uterin cancer. They did a colonectomy and complete hysterectomy. Ten months later my husband died unexpectedly while I was going through chemotherapy. My church "family" has not been there for me which…
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With a heavy heart...
Hi all, Well, my girlfriend and I were planning to make a quick trip out to Vegas, but a dear friend of mine passed away from ovarian cancer. She was only 23 years old and fought the beast for 4 years. I met her almost 2 years ago and she was just a beautiful spirit... No other way to describe her. I am making plans to go…
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Help my brother
Reading this forum has been incredibly informative, and inspiring at times. My prayers and sympathy go to all those who are suffering and seeking solutions, and I would like to thank those many for providing moral support. I would also like to thank you for reading my story and appreciate very much you input, anything.....…
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skin sensitivity
I was diagnosed with anal cancer in May 2002. I went through chemo and 6 weeks of radiation. My skin is very sensitive now where the radiation burns were. I haven't found any underwear that doesn't cause irritation and I still have to wear loose pants. Is this a problem for anyone else? Does anyone know if this sensitivity…
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somethings wrong and i need help
Allright folks i have a few questions and was wondering if anyone can help me. I'm a little embarrased talking about this so please be gentle with me here. I am a 3 years testicular cancer survivor but recently ive been having some new problems. For about the last 8 months or so ive been been bleeding rectaly and i cant…
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New Caregiver
My 26 year old daughter is newly diagnosed with Squamous Cell Carcinoma. We haven't found out for sure what stage she is in. The tumor is 4 centimeters and located right at the outside of the sphincter. She's seen her Radiation Oncologist yesterday and will see her Medical Oncologist on May 10th. Can anyone tell me what to…
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Thanks
Hi all, I wanted to thank everyone who replied to my post. It really helped. I'm still a mess, but a bit calmer and ready to find out what comes next, ready to go back to battle! Take care and keep fighting! Jamie
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Lung met
Hi everyone, The biopsy results are back and the cancer has spread to my lung. It's a small lesion. I will see the oncologist Monday and get the details for the next round of treatment. My doctor was off today and I had to throw a fit to get his partner to give me the results. He wanted me to wait until Monday. After 15…
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what would you do?
Hiya all. I thought it was about time I asked a question and this one needs your replies guys n gals. I went to my doc today to get a referal for my next ultrasounds. I could not get an appt. with my normal gp( a lady) but got an intern. Ok..he was nice enough but nonetheless apart from my records does not really have the…
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Question for Stacy
Hi Stacy, I just read a post about your chemo (same as my father started 8 weeks ago)5 FU, Leucovorin, and camptosar and also Avastin. Just curious about how long you were on it and how long it took to see shrinkage. My father just had his first 8 week scan to see how he is responding and there was no change in his liver…
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Camposrar - High Blood Pressure
hello to all, need to know if anyone else has had high blood pressure from Chemo? My husband had his chemo changed from FOLFOX to FOLFIRI (sp) took out oxiplatin and replaced it with campostar the other chemos/meds remained the same 5FU and Leucovorin (sp) with Avastin. He had 6 treatments of FOLFOX before the change to…
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Alternative medicine?
I groped the internet and found the following article about David Walker, who was a biophysicist, using herbal regimen to treat cancers (including his own): http://www.sumeria.net/canc/walkerstory.html He is, according to the article, in Mexicao now. Does anyone know the credibility of this article or the story or has…
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My husband's story
Hi Everyone. I wanted to thank all of you for your many thoughts and prayers. I truly believe in the power of prayer. My husband ended up not even needing chemo after his surgery. The surgeon was great. Our GP did not think my husband would make it a year. Thanks to all the prayers and God he is cured. So, keep positive…
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neelieC
Hi. Just wanted to start a new post. I don't remember the name of the Chinese herbs - but I will check when I get home. My girlfriend gets them off the internet. I wanted to tell you, I am NOT taking xeloda with the CPT 11. That has reduced my memory of diarrhea a lot. Maybe that is part of the difference. I hope your next…
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Thank You
Hi all my ACS friends. Thank you for all your kind words. It has been a hell of a week. We had a viewing for Scott here in MD on Tuesday and in NJ on Wed. He had so many friends! People came that we haven't seen in years. Since Scott was a drummer, many of his friends brought drum sticks to put in his casket. He was loved…
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markatger?
Marie, haven't seen any posts from you recently. i hope all is well. drop us a line. we worry. mary
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Question with Treatment Change
Hi everyone, I just found out my fathers Dr took him off Oxaliplatin because he was getting rashes but I also found out by my mother that he never replaced it with anything else. Has anyone heard of this. I would think he should replace it with something else. Also can anyone tell me what other chemo besides oxaliplatin…
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thank you all!
Thanks for all your responses! I will ask the doc about calcium/magnesium infusions. I'm not looking forward to resuming chemo, but I sure do want to knock these cancer cells out of my lungs (everything else was clear on cat scan,whew!) and the camptosar was just keeping them in check. Hopefully the oxaliplatin will knock…
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Scott Whitman's Obituary
Just thought I would share this. Lisa ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Scott Joseph Whitman Sr., a golf club manager and motorcycle restorer, died of cancer Oct. 1 at Gilchrist Center for Hospice Care. The Parkville resident was 43. Mr.…
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to all who've tried oxaliplatin
yeah, yeah, i know...we all respond differently to the different meds...for instance, i see that neeliec and jana are dealing with diarrhea from camptosar. i had more issues with constipation from the camptosar. so anyway...with that disclaimer, can you tell me the most bothersome side effects that you all experienced with…
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Wedding Bells are In The Air.....
Hi Everyone, Just wanted to share with you all that littlejulie is getting married... The BIG DAY is this Saturday October 15th in Toronto, Ontario. The Happy Couple will honeymoon in Bora Bora with a side trip to Las Vegas during Palooza 2. So let's all join in and wish Julie & Steve all the " Best " as they become…
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lung biopsy tomorrow
Hi everyone, Hi Everyone, I had the ct scan and now my oncologist wants me to have a needle biopsy which will be done tomorrow. My nerves are shot. I just want to get it over with and get the results! To top it off, someone stole my mailbox with the mail in it last Saturday. Probably some kids messing around, but annoying…
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Holding On
Hello to everyone. I haven't posted in a while but have kept up on all the posts. My hubby was dx in Sept 03 w/ IV colon with mets to liver and lungs. He was doing fairly well with everything until last week. He has been on several protocols of chemo. Off and on (mostly on) since Oct 21, 03. He did a CAT scan a couple…
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Hello from Xena
Hi everyone. I'm sooo sorry that I haven't been here on CSN for a while. I do stay in touch with many of you on my personal e-mail, but need to be here to help support those that need it. I'm doing fine. I had some issues with camptosar so Dr took me off of it, and now I'm taking just Avastin, lucovorin and 5FU. My CEA is…
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Wanna be silly today?
How about we each add one line to a limerick? Just post one line and I'll write up the whole thing at the end of the day. I'll start it : There once was a fella who had cancer Barb
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I have a question (really is to do with sex!)
I know that when someone is on Chemo/Treatment they are told not to get pregnant and to use precautions. My question is this- I am on the pill and it's my boyfriend who's having treatment so we are covered from a birth control side. However- can his chemo affect me? I've read that mothers are not supposed to breast feed…
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Excited Oncologist.......
Hey all you Semi-colons!! I want to share some news and thoughts with you all..... First of all, my 4 year tests on Monday went well. I continue to have my affair with NED. Dang he's good! :-) He's sticking by me and that feels GREAT!! But I work really really hard at this relationship and I am happy that he and I are a…
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Follow up on my use of Neurontin
Hi everyone. a few weeks ago I mentioned that I was affraid to take Neurontin for my Neuropathy(sp) because of one of the side effects was seizures. Well I tried the medication, Doc put me on 300mg every 12hrs.(twice a day. My legs and knees became worse. My knees swoll up to the point when I tried to sit down to use the…
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Results!
Hi Friends, The PET/CT scan results that I took last Friday afternoon showed NED!!! Please know that each of you remain in my prayers as you await results, face surgery, or combat chemo. Love to all, Kay
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Jana 11 and camptosar/avastin
Hello Jana, How is it going with your treatment? I took the first round Wed and did ok on Wed but Th -Sat I was wiped out (play on words) from my frequent trips to the RR. Not having a colon made matters worse for I find myself fighting dehydration like crazy, and as you said, popping immodium right and left. Does it stay…