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DH has a maintenance plan for now
DH completed his 12 rounds of Folfox, 5fu pump,and Avastin about 1 month ago. He did really well and somehow has remained positive and so strong during all of this. He still has a little neuropathy in his hands, but hasn't really caused any day to day issues. The biggest pain for him now is the blood clot he developed in…
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Still unsure about ablation, Radiologist keeps changing plan
So I am still scheduled for the ablation of liver tumors on March 12th. Since my last post, I spoke with the Radiologist that I've been dealing with regarding this, he called after I cancelled my appointment with him for a 15 minute consultation. It was going to be between patients for him but I was sick that day and had…
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Stage 4, 30 mets on liver
My husband was diagnoised on Thanksgiving afternoon. No symptoms other than occassional constipation. His CEA after 3 treatments on FolFox & Avastain has gone from 375 to 170....which to us, sounds like good news. In 3 more treatments they will repeat scans. So far on the regime he has not had any ill effects. He is…
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Finally!!!!! (for now anyway)
Met with my oncologist this morning, to review the results of my recent CT Scan and blood work, which were the first since my treatments ended on November 8th. I am soooooooooooooooo happy and relieved to have heard the words "you're cancer free". I generally consider myself to be a strong individual, but I must say, this…
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Husband ending chemo at 3 months
We found a study published online that's persuaded my husband that 3 months of chemo will be enough and 6 months will not be worth it. Has anyone seen this study? https://www.cancer.gov/news-events/cancer-currents-blog/2017/adjuvant-chemo-colorectal Almost 13,000 people in the study, several countries, no commercial…
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Lung metastasis - any suggestions or advice?
Hi all Greetings from Norway! I am researching options to what my oncologist has presented to me as treatment (which isn't the most promising). The only treatment I will be offered is more chemotherapy to hold the cancer back a long as possible. Not the best forecasts. Quick background on my cancer - Colorectal cancer with…
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CEA levels rapidly rising
Hello all! I'm new here as of today, and I'm very glad I found this forum! I have searched through the different topics and I have found a lot about CEA levels, although not yet any story that corresponds to my own. I was diagnosed with third stage colon cancer late 2016 and I had a colon resection in January of last year,…
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Folfiri: Hospitalized and losing hair after 1 treatment
I had my first infusion of Folfiri on January 26, 2018. I felt ill all weekend. Monday I started vomiting and running to bathroom with diarhea. Took Zofran and Imodium. Seemed to help. I continued takig the Zofran every 8 hours and took one Imodium tablet per day until Thursday. Then got constipated for 3 days. Satruday,…
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Tomorrow is my husbands 11th treatment
only one more after this! He is only getting 5FU now with avastin so it’s been much easier for him. Supposedly the dr is going to come talk to him about what she and the surgeon have decided after he is done. I have a feeling she won’t and we will have to wait two weeks until his last appointment. hoping The last two…
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Has anyone had a recurrence near the original site?
It seems like some of us get mets to the liver or lungs or even other areas but how often does anyone get another colon or rectal tumour? I had an MRI in September and they said there's nothing there. But for the past several weeks I've had a lot of rectal discomfort. It hurts to sit down and hurts even more if I stand for…
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Life Hack for Ostomy People (and others)
I saw this on Facebook. One of those ideas to make life easier they call life hacks. One of the things that's always bothered me with my ostomy is emptying my bag in a public place or at work. Sometimes it will do things like splash spots on the underside of the seat or even leave a brown drag mark down the inside of the…
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My dads first chemo treatment for Stage 4 colon cancer w/mets in liver and lung
My Dad finally started treatment after being diagnosed at the end of December 2017. He was told his heart was very weak but they went forward with Chemo anyway. I keep hearing negative things from different people like “Oh wow your Dad has stage 4 colon cancer and he decided to go through with chemo treatments?” Its almost…
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Stage 4 Colon Cancer with Mets to the Liver & Progression of Cirrhosis
My mom was diagnosed with Stage 4 Colon Cancer earlier this year with multiple advanced mets to the liver. She went through about 10 rounds of chemo and 2 rounds of Y90 and everything seemed to be getting better - the Y90 shrunk her liver tumors by half and her CEA level was down. However, then her platelets started to go…
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My mom
mom just diagnosed with colon cancer with spots on liver an lung. any helpful information would be much appreciated...
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Paste for ostomy?
I was changing my ostomy bag yesterday and was thinking about how some people have such a hard time with having to replace the bag often. I replace mine once a week now. I was able to get 5 to 7 days out of them previously while I was using a wax ring but it would eventually lift and seep and burn my skin. Without the wax…
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Time for CT Scan
Tomorrow 6:00 AM EST I will head out for a 1-1/2 hour ride to Ann Arbor MI for the quarterly CT Scan. And next Monday for the CEA test and doctors visit. Many of you know the feelings that come along with these checkups. Ugg.
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Phase III trial of Napabucasin-BBI-608-and FOLFIRI
info at: https://clinicaltrials.gov/ct2/show/study/NCT02753127
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If you're in the Northeast, get outside and walk!
Especially if you're on Oxy. It's low 60s here in New England and I've taken two outside already. Taking two more this afternoon. Tomorrow - may take an hour off to go walk in the woods.
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chemo port
I am way ahead of myself asking this since I have 8 infusions to go, but how long after the last infusion do they take the chemo port out? Do they do it right after, or do they wait a while to make sure no more chemo is needed? I really am looking forward to it out! I get so nervous about it.
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Diet impact on cancer therapy - Oncologist's Presentation
Here is a talk by oncologist Dr. Dawn Lemanne who incorporates dietary measures to enhance standard of care. https://www.youtube.com/watch?v=W_diITmOeCM&t=11s Consistent with research done by Dr. Seyfried and Dr. Longo who have shown how controlling the amounts and proportions of macronutrients can weaken cancer cells…
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High Dose Vit C
Hi Carla! Thank you for sharing your story. My mom had uterine cancer. How many times per week does your grandfather gets HDVC?
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CEA Rise, what does it mean
My CEA number was 2 when I finished chemo in december. It stayed at 2 in January but went to 3 Feb and now is 4.1 What the heck is going on ? My scan two months ago was fine, very good in fact. I have another one saturday but am freaked out.
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Sugar <<= the enemy ???
See the link for an interesting article... https://idmprogram.com/emerging-hallmarks-of-cancer-cancer-12/
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Husbands first Chemo today 5hrs came home with Pack for two days stage 4 colon cancer with liver met
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Sent to Tumor Board and Scared!
I'm so scared right now! Took my dh to the liver surgeon for the second time today to review the latest scans and also to talk about surgery. In my mind, I knew that there was a good chance they wouldn't schedule surgery today, but I didn't expect to be told what we were told. The surgeon wants to take my husband's case…
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It was twenty years ago today
That I was on the operating table and had an aggressive stage 3 c tumour removed from my transverse and descending colon. It was only moderate in size but it had invaded 6 nodes. My surgeon described it as frightfully aggresive and was very blunt with his prognosis. Three years at the most. I had 48 sessions of chemo , an…
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Anybody knows/has experience with OncoDNA or similar tests?
if yes, can you share thoughts. Is it worth it? Did you see value out of it? Did it help chose the right medication/clinical trial for you? Thanks a lot for feedback and thoughts if any! www.oncodna.com
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Cannabis Oil
Ok, so, i'm bringing this subject up again. I am confused - what is the differences between Hemp Seed Oil, Canabis Sativa, Hempotion Cannabidiol CBD and CBD Rich Oil? Can anyone explain to me which one is the right one?
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Husband Age 47 Stage IV Colon Cancer
My husband who is 47 was diagnosed with Colorectal cancer (Adenocarcinoma) in 2016. After surgery and chemo he had his ileostomy reversed and was given a status of NED in July of 2017. In January of this year, he had abdominal pain which we thought was a blockage in his intestine. When the doctors went in to fix it they…
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Birthday
Turned 59 today, one more trip around the sun...hard to believe it was 11.5 years ago that I was dx with stage 4.. There is hope out there for anyone newly dx. I am certainly not a model for eating right, exercising and constant prayer but I do my best whenI can...All my best to all and the caregivers who nourish them. Chip