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Gallbadder damage due to Microwave ablation and Y90
I have been suffering from gallbladder problems since August of 2017. The surgeons were unable to remove my gallbladder due to scar tissue that had developed all around my gallbladder. A test in October showed that the cystic duct was blocked. My CT scans showed fluid in my gallbladder and doctors were concerned it could…
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Managing side effects from pain meds and the cancer.
Hi Im new to this site,, Ive made it past my experation date by 10 weeks.. I have signet cell ring cancer,, I thought I had it beat 3 1/2 years back with Surgery only, we found it early when was having my routine Colonosapy comming out of my apendex.... They took out quite a bit of parts, found 6 of the 12 nodes had the…
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One year--all clear
Today is the one year anniversary of my surgery (3b) and coincidentally today I got the results of the most recent CT scan saying I am all-clear for now. I've aged a decade in the past year (with chemo and all) but I am looking forward to a four month pause before my next CT scan. For now, I hope to live life to its…
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New member checking in!
Hi everyone! My name is Alan, and although I have been reading this forum for quite a while now, I just decided to sign up so I to can join in the fun! I was diagnosed with Stage 4colon cancer in October of 2016 after they found a rather large tumor blocking my intestines. I waited nearly a year before I started any…
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How high can cea levels go?
Can anyone tell me how high the cea levels can go. I have seen where some posts say they are in the 6000 range is that possible? just trying to understand the ranges ant find it on the net. Thanks, Patti
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I made it.
So far my reversal surgery has been without any incident, other than a couple of hours in the recovery room while we regained control of my pain. The surgeon said it all went well. My ostomy was closed up and I did not need a drain nor will I need to pack it with gauze, etc. I am now portless as well. Couldn't ask for…
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In the clear for 6 more months
I'm just back from my lastest scan and MRI at Sloan Kettering. I went back early because I have pain where I know that there is tumor growth, and was afraid that it had grown so much as to cause problems. The tumor has grown, but only minimally, and would not be causing my pain. As my surgeon (Dr. Paty) is convinced it is…
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Worried...
If you’ve been following my case I’ve been NED since 12/5/2014. I recently posted about being ”deported” as I had my port removed since all was going well. Before it was time to remove the bandage from the port removal I had an incident. I experienced irritable bowels shortly after eating a spicy lunch. Had to rush to a…
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Airborne72 and Surgery
Not sure if I'm able to post Monday but wishing you the very best in your surgery and hope all goes well. I'll be praying and thinking of you and your doctors/assistants for a successful outcome. Just let us know how you are doing when you can. Remember that after your surgery you are only a question away from someome that…
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immediate viagra use for colon cancer stage 4
Hi all, you likely have seen the recent news coverage of viagra's affects on reducing colon polyps by 1/2. There is also an NIH study that shows it reduces colon cancer tumor sizes and arrests growth in mice (this study was published in 2015 so the study was likely done in 2013-14). So it appears that this drug might…
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Drinking wine, is it okay?
I almost never drink. But, I went to friend's on the weekend and she had the most delicious moscato and I had two glasses. It's a sweet, white slightly sparkling wine. I had the best sleep that night. I'd love to get a bottle and have a small glass a bit before bed at night. I'm on the folfox5 right now and I see my…
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My Dismal Weekly Poop Count
It's been years since my ilestomy reversal and just recently took a count daily of how many times in a week that I'd went. This was a daily count and most days were 14 but one was only 5 but the total count was 75 in one week. It's nothing anything that I've eaten, nothing I've drank, nothing different. I'm going during…
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What really does help the immune system?
There's been lots of talk about it and there are plenty of articles on Facebook but I'm wondering if anyone has weeded out what actually works and what doesn't. I'm back on the chemo that I got sepsis while I was on last time. I'm taking antibiotics to prevent that happening again but I'd like to help my immune system as…
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For women only
i have a question for all the women so no peeking from men. Lol Has the chemo affected your menstral cycle? During my chemo treatment between September 2017 till my last one of February 2018, I have experienced some irregular cycles where I would be late in some months and the month of November and February were completely…
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Fare thee well, Sir John Sulston
http://www.bbc.com/news/science-environment-43349774 The unsung heros of our time. I'm also going to add this link. A female surgeon walked eight miles in blizzard conditions, to perform surgery on a CRC patient in Glasgow, Scotland. http://www.bbc.com/news/uk-scotland-43343056 Tru
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"Emerging treatment options for Braf-mutant crc"
posted today at https //www.dovepress.com/emerging-treatment-options-for-braf-mutant-colorectal-cancer-peer-reviewed-article-GICTT
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Sometimes cold sensitivity is due to cold
I had cold sensitivity this morning and asked my wife if her fingers were numb and she said yes. I guess it was cold and I cleaned the snow off the car. It's two weeks out from the infusion. I'm working very hard to avoid the Womens Only Thread.
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extreme dry mouth wile sleeping
Hello all, I have stage 4 colorectal cancer and have been going thru chemo. I have only three sessions to go. I’ve been very lucky and the side effects have been minimal. With that said the treatment team has switched me to Folfox 6 from Folfox 5, I had bad dry mouth on the 5 but now on six it’s 10 times worse and has…
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Extreme cold sensitivity
Hi y'all, Has anyone else had extrene cold sensitivity, after my first treatment, everything was fine for about 4 days and the it felt like brain freeze in my chest when I woke up. Now it is pretty consistant, I woke up last night in such pain, I started throwing up ( which actually helped, I guess the heat going through…
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5FU
i have 3 treatments of 5fU left. My hands and feet are killing me. My hair has thinned so I cut it really short. My family has not come around unless I have something for them to do. My daughter has not come for any treatment. We have only gone to our daughters house one time unannounced to tell her I had cancer. They live…
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Paranoia and Scar Tissue
Got the phone call from the nurse this morning who shared the path report from my colonoscopy biopsy last week. It seems that it was a little bit of benign, scar tissue and a lot of paranoia. Now I am focusing on my reversal surgery and port removal scheduled for next Monday. Sure hope that my intestines remember what to…
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Blood transfusion again??
Hello everyone! So this question may sound silly but I’m not too familiar with all the effects colon cancer can have on the body. My dad is constantly needing blood. He’s at his appointment as I type this. Is this part of having colon cancer or any cancer for that matter? He says he is not experiencing blood in his stool…
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Shingrix vaccine is now available
About one in three people in the US will develop shingles--a painful skin infection that affects people who had chicken pox as children. ( https://www.cdc.gov/shingles/about/overview.html ) People who have had cancer or chemotherapy have a 10-50% greater chance of developing shingles.…
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Surgery tomorrow
Tomorrow I will finally be having my kidney surgery. I think the wait is the worst. I will let you know whether or not it is better than a colon resection which I had 2 years ago. Been so busy this past week am looking forward to a rest. haha if Your so inclined please send prayers.
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New to the group
Hello Friends I am new to the board. I was pleased after reading the thread. It’s not the usual Debbie Downers and Whiners. I was diagnosed in 09/2014 and had surgery in 12/2014. The surgery removed the bottom 16” and Woke up with a colostomy bag. It was not for me and I had reversal in May 2015. I’ve accepted the…
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Brown spots
Has anyone else noticed any new brown spots on their face or arms since starting chemo. I know they are called age spots And I am getting older, but since starting folfox in Feb, I have gotten 3 on my face just below and to the right of my right eye. I have also heard of them being called liver spots and that is what…
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I feel like I just walked out the exit door
Through my going on and off of this forum during my colon cancer journey, I know that we all like to hear good news when it exists. I am happy to say that this morning I had my port removed, which was a very short surgical procedure. Physically I feel pretty good, but mentally I feel like I just walked out the exit door of…
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Taken off oxiplatin due to allergy, will be switched to irinotecan
Last week, I had a horrible reaction a few minutes into my infusion and ended up in the Emergency Dept for 9 hours. Today was the rescheduled chemo. This time, a person was assigned to just watch me as soon as they started the oxiplatin. I had an allergic reaction. Throat closing, itchy, face flushed, that kind of thing.…
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The Lowdown on Cannabis, Please
I know there have been many threads on this and there's two sides to it. I'm wondering if someone can just simplify it for me, please. It's the THC that helps us, right? We need just that in some form. It helps with what exactly? And what's the most effective and easy way to get it into the system? I've never smoked pot…
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Immune Therapy question ???
Howdy All Happy St. Patty’s Day I having been reading about immune Therapy for over a year. I’ve been hanging on and waiting for the drug for my diseases to come to market. To keep this short. I knew the one for Breast Cancer also was being used for like 8% of us that had the right gene. I have read where several of you…