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Blood transfusion again??
Hello everyone! So this question may sound silly but I’m not too familiar with all the effects colon cancer can have on the body. My dad is constantly needing blood. He’s at his appointment as I type this. Is this part of having colon cancer or any cancer for that matter? He says he is not experiencing blood in his stool…
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Shingrix vaccine is now available
About one in three people in the US will develop shingles--a painful skin infection that affects people who had chicken pox as children. ( https://www.cdc.gov/shingles/about/overview.html ) People who have had cancer or chemotherapy have a 10-50% greater chance of developing shingles.…
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Surgery tomorrow
Tomorrow I will finally be having my kidney surgery. I think the wait is the worst. I will let you know whether or not it is better than a colon resection which I had 2 years ago. Been so busy this past week am looking forward to a rest. haha if Your so inclined please send prayers.
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New to the group
Hello Friends I am new to the board. I was pleased after reading the thread. It’s not the usual Debbie Downers and Whiners. I was diagnosed in 09/2014 and had surgery in 12/2014. The surgery removed the bottom 16” and Woke up with a colostomy bag. It was not for me and I had reversal in May 2015. I’ve accepted the…
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Brown spots
Has anyone else noticed any new brown spots on their face or arms since starting chemo. I know they are called age spots And I am getting older, but since starting folfox in Feb, I have gotten 3 on my face just below and to the right of my right eye. I have also heard of them being called liver spots and that is what…
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I feel like I just walked out the exit door
Through my going on and off of this forum during my colon cancer journey, I know that we all like to hear good news when it exists. I am happy to say that this morning I had my port removed, which was a very short surgical procedure. Physically I feel pretty good, but mentally I feel like I just walked out the exit door of…
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Taken off oxiplatin due to allergy, will be switched to irinotecan
Last week, I had a horrible reaction a few minutes into my infusion and ended up in the Emergency Dept for 9 hours. Today was the rescheduled chemo. This time, a person was assigned to just watch me as soon as they started the oxiplatin. I had an allergic reaction. Throat closing, itchy, face flushed, that kind of thing.…
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The Lowdown on Cannabis, Please
I know there have been many threads on this and there's two sides to it. I'm wondering if someone can just simplify it for me, please. It's the THC that helps us, right? We need just that in some form. It helps with what exactly? And what's the most effective and easy way to get it into the system? I've never smoked pot…
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Immune Therapy question ???
Howdy All Happy St. Patty’s Day I having been reading about immune Therapy for over a year. I’ve been hanging on and waiting for the drug for my diseases to come to market. To keep this short. I knew the one for Breast Cancer also was being used for like 8% of us that had the right gene. I have read where several of you…
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Cyber Knife?
Hello All Has anyone had the procedure? Or, have any knowledge on this. They have recently came to St. Louis. I dropped off my last two CTscans on Friday and hoping to get good news that I’m a candidate for the procedur. Cause i feel like my doctor has quit on me. My last visit he told me I could try Lonsurf. Or, just go…
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Cancer Vaccine
I wonder anybody heard about new cancer vaccine that found in Israeli. It is on youtube I watched yesterday. It looks like it worked on o 7 patients. I appreciate if anybody put some more feedback about it to share. I don’t know about reliablity of that vaccine. Thanks for feedback.
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ACS and bad food advice
Food is medicine. So why does the American Cancer Society advocate these kind of snacks- Angel food cake, ice cream, and cookies? Scroll down to "quick and easy snacks": https://www.cancer.org/treatment/survivorship-during-and-after-treatment/staying-active/nutrition/nutrition-during-treatment/once-treatment-starts.html…
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Talked to Sloan today going in one week!
we have an appointment on the 26th with Dr Kingham who is a surgeon. I spoke with coordinator and the nurse who said she thought he would be able to help us. She said their surgeons were quite skilled and not afraid of resecting in the caudate lobe. They put us with the surgeon they felt was the best fit for my husband’s…
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You would think...
I have been awaiting a colonoscopy due to the questionable observations from a recent CT scan. Getting it scheduled has been a priority for me because I am suppose to have my ostomy take down surgery on 26 March. If I have "issues" in my rectum then it stands to reason that I should not prematurely take down my ostomy…
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18 Month Scan NED!
Hi All! I have not been on the Forum as much since healing after my ileostomy reversal, getting used to the new normal and going on the road to visit family and friends. Today was a "big deep breath day" going for the 18 month scan. My oncologist shared the results immediately and so grateful for NED... Thanks to all of…
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New to this site and slightly worried
A little background. I just completed treatment for tosil cancer back in late Nov. which I'm still recovering from and had my first PET scan last week to find out if the treatments worked or not. Good news they did but the bad news a place lit up on my ascending colon with a maximum SUV of 3.3 that had my radiation doctor…
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How to get into messages?
I saw that I had some new messages last night right before I shut off my computer. I intended to respond today. If the message isn't there that I have new messages, how do I find them? Sorry, I'm so simple when it comes to technology. Thanks! Jan
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And the news is in...
NED Partially blocked abdominal aorta. Fractured wrist. I'll take the NED and run with it . Will have to work on getting my cholesterol down with diet, as I am allergic to all Statins. And my wrist is braced and hopefully will heal soon. They think it was caused because the bones have been damaged by Chemo. Not surprised!…
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CEA level rising during chemotherapy
Hello, My mother diagnosed with colon cancer stage 3B, 5 months ago. Her 11th term of chemotherapy (out of 12) scheduled on this Wednesday. Something is not normal in her blood tests before each chemotherapy session. Her CEA level before surgery was 7 and after surgery has kept rising steadily. It has reached 16, last…
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A glimmer of hope
so my husband called the office today and said someone needed to call him back. So finally they did and he actually has an appointment with the surgeon. I still don’t know for sure if he will get surgery but he is willing to talk to him about options. He wants another scan which is the 21st. His concern is not the omentum…
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I have made my decision
I had my 6th treatment out of 8 of Oxaliplatin via IV drip yesterday. Since my 5th one 3 weeks ago I had been contemplating of stop my treatment after #6. Although I don't have numbness on my fingers and toes but I do feel somewhat numbness sensation go through my hands when I tap on any hard surface. I don't want to be…
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It's time for a coly...it's been close to a year
DH will have a coly early this week. This will technically be his first since the one that discovered the tumor didn't allow the first one to actually be completed. There have been scans, he is really worried since the last coly totally changed our world. He went into the test just Turning 38 and woke up to emergency stage…
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Nausea meds: What's your drug of choice?
I'm finishing up treatment #2 of FolFuri, Iriritecan + Avastc biggest sideeffects I'm having are consipation, gasy stomach, hick ups, along with the watery eyes, runny noses.... the usually. but the nauseaousness is somethinkg stronger than I expected. Vomiteding is also daily but doesn't seem to last long. I'm trying…
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worst news ever please help
I have been watching this omentum nodule since it suddenly appeared in a ct scan in April of 2017 they said a 6mm anterior abdomen nodule is stable. Like it’s been there but no mention of it. they don’t mention it in January of 2017. So in decrmber it says a 4mm nodule is unchanged, same thing on scan in February saying it…
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This isn't good is it?
My DH oncologist called and told him that because his scans were mixed (some mets grew some shrunk) and his CEA levels are rising that she is changing treatment. He was on Folfox with avastain. Now switching to Folfri with Erbitux. There are no other lines of treatment are there? Isn't Folfri the second line of treatment?…
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Coffee and colon cancer?
I apologize if this has been discussed before but have come across several studies/articles regarding colon cancer and coffee. https://www.hsph.harvard.edu/news/features/coffee-colorectal-cancer/ "December 20, 2017 – People with colorectal cancer (CRC) who drank at least four cups of coffee per day after their diagnosis…
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Has anyone had a liver resection and omentum involvement or
any other tumor locations? Everything I know from the past resection says if it’s anyplace else no resection. So I feel going to Sloan Kettering is wasting our time. However it’s one tiny 4mm nodule that has not grown or changed since April of 2017 so there is no proof it is or isn’t cancer.
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The Woods
I had a CT scan last week (approximately 90 days after adjuvant chemo) and was counseled yesterday by my oncologist regarding the results. I am not out of the woods yet. The radiologist who read the scan detected some areas/items of interest. My oncologist is now in the process of coordinating a colonoscopy to better…
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Whining for no good reason
Hi Fellow Semi-colons! I have no reason to whine. Seriously. No reason at all. I'm 11.5 years NED for colon cancer which is a super, super blessing! But today I had my first colonoscopy in 5 years due to not having insurance for a while. Anyway, 6 polyps were found, two in the hepatic flexure, two in the splenic flexure,…
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Today is my husband’s last chemo!!
he made it through all 12 only the last two without Oxilipatin. He will be an getting appointment to plan his liver surgery as well. I am very cautiously looking towards the end! On another note my 15 year old daughter has ulcerative colitis and needs to have her second colonoscopy before she starts Entyvio, nothing is…