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This isn't good is it?
My DH oncologist called and told him that because his scans were mixed (some mets grew some shrunk) and his CEA levels are rising that she is changing treatment. He was on Folfox with avastain. Now switching to Folfri with Erbitux. There are no other lines of treatment are there? Isn't Folfri the second line of treatment?…
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Coffee and colon cancer?
I apologize if this has been discussed before but have come across several studies/articles regarding colon cancer and coffee. https://www.hsph.harvard.edu/news/features/coffee-colorectal-cancer/ "December 20, 2017 – People with colorectal cancer (CRC) who drank at least four cups of coffee per day after their diagnosis…
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Has anyone had a liver resection and omentum involvement or
any other tumor locations? Everything I know from the past resection says if it’s anyplace else no resection. So I feel going to Sloan Kettering is wasting our time. However it’s one tiny 4mm nodule that has not grown or changed since April of 2017 so there is no proof it is or isn’t cancer.
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The Woods
I had a CT scan last week (approximately 90 days after adjuvant chemo) and was counseled yesterday by my oncologist regarding the results. I am not out of the woods yet. The radiologist who read the scan detected some areas/items of interest. My oncologist is now in the process of coordinating a colonoscopy to better…
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Whining for no good reason
Hi Fellow Semi-colons! I have no reason to whine. Seriously. No reason at all. I'm 11.5 years NED for colon cancer which is a super, super blessing! But today I had my first colonoscopy in 5 years due to not having insurance for a while. Anyway, 6 polyps were found, two in the hepatic flexure, two in the splenic flexure,…
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Today is my husband’s last chemo!!
he made it through all 12 only the last two without Oxilipatin. He will be an getting appointment to plan his liver surgery as well. I am very cautiously looking towards the end! On another note my 15 year old daughter has ulcerative colitis and needs to have her second colonoscopy before she starts Entyvio, nothing is…
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Today I beat the 2 year recurrence wall
Hi all, I have been having all my blood work and scans this week. It has been a rough time since this was the 2 year mark since my last recurrence. Since being diagnosed 6 years and a few months ago, the tests at the 2 year mark have always found a recurrence. I have not been able to get past that point. So this week I was…
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It’s gotten out of control
My husband was diagnosed with stage IV colon cancer one year ago at age 37. We have two small children. I love my husband, and I’ve been by his side through everything this past year. But something has changed, I am wondering if it is the daily dose of dexamethasone added; aside from the IV dose of the steroid that he gets…
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New to Forum-So Many Questions
I am pleased to have found this forum and apologize for having so many questions. As I am sure most of you can understand, my brain is whirling with emotions and I am just trying to cope with something that I never thought could happen to me (fear, depressions, anger). I was diagnosed on October 31 with Rectal Cancer (age…
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Fostering a Dog!
I had to share this! Being unable to work due to unstable health issues, weakness, issues that crop up and make me miss work and now going back on the chemo that will make my face look like a pizza, means I'm at home most of the time and feeling useless. I feel like I contribute nothing and am just a drain. We have two…
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A new journey begins.....
I don't post on here much, but I do lurk quite often. Well it's offical my wife is officially 5 yrs NED. We (or she) has officially been told by our oncologist "no need to come back and see me." Thought I never would hear those words. She was diagnosed with Stage IIIB CRC. Went through all the "typical" treatment rad/chemo…
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Dandelion tea
I heard some good things about dandelion tea, I never us d it yet but I ordred sone. In the mean time I wonder anybody has already used dandelion tea. I need some feedback please.
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Next scan in a year
I made it to the yearly scan thing. My latest scan is Ned For the colon. Now for the kidney cancer removal on the 20th of this month. I have learned so much from this site and would like to thank everyone for all the knowledge and hope you have given me.
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Removing my port
since they will be taking my port out tomorrow morning does that mean I’m being deported? :-) seriously, I was surprised they said I don’t need a driver. I am going to ask to be blindfolded. I don’t want to see them cutting.
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Devastated by husbands stage IV
My husband (46) has been diagnosed with stage IV colon cancer with mets to liver (one primary and two smaller “satellites“- I may not have that right). This started out a year ago as stage 3, had the colon resection, chemo and was cancer free for several months until wham! All three lesions, spots whatever you want to call…
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Life time Chemotherapy treatment and Work
Hi just want to ask if anybody here is on for permanent treatment as in Life time Chemo every other week or something similar.. I would like to know how they are coping. How did this changed their lifestyle. Are they still able to work while on the regimen. What changed, what remains. I would like to know anyone who is…
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infusion pump/ N1 T3 Colon cancer Stage 3
I had a colon mass removed Jan 2018. Have been running tests for past two wks to determinine right chemo treatment and return back to Oncologist in 1 week. Doctor said to start tell her if I want infusion pump or pills of Oxaliplatin to start before chemo. I'm not understanding why need infusion pump or pills & what the…
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Stage 1 colon cancer, CEA and CT scans
HI, I have posted before regarding CEA's so I hope you all don't mind another question on the subject. I am so confused about CEA levels and follow up for my particular colon cancer. This is my history: Stage 1 Resection 9/26/16 CEA: 9/26/16 1.5 CT 9/13/16 Clear with 2mm node on lung low grade T2 tumor 0/28 lymph node's…
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TACE procedure, anyone have experience with this
My husband just completed 12 rounds of Folfox (?spelling?) and will now change to Folfiri due to numbness in hands and feet. He is also scheduled to meet with IR regarding TACE. I am wondering what the side effects of this would be, has anyone had this done? How long is it, is it an overnight thing or same day like his…
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Stage 4 colon, vomiting bile, dark urine
Hello everyone, My mother, 61, initially was diagonized eith Stage 3 colon cancer in 2016, and surgery and a chemo regimen. We were monitoring her health and levels after the chemo, and the levels were normal. Suddenly, in December 2017, she started having horrible stomach pain. We did MRI and CT scan and found that now…
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Recent Vitamin D article
Once again, this 2018 article is from the "for what it is worth" department. Personally, I am a vitamin D believer. http://ar.iiarjournals.org/content/38/2/1121.long While awaiting conclusive results on the role of UVB exposure and vitamin D in the risk of cancer incidence, progression, and mortality, individuals should…
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CT Scan Results
I got them today. Nothing exciting. My lung mets are a bit bigger since the last scan in October. My CEA came down a tiny bit, whatever. Unfortunately, the adhesions continue to be a problem and now both kidneys are being pinched off by adhesions that have encircled them. So I guess I'll have to have another stent put in.…
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Hiccups?
In the past couple of years or so I've had hiccups so often its crazy. I hold my breath and they stop pretty quickly but some days I've had them over and over. Today has been a good day, only 14 times so far, some days it's 5 or 6 times an hour. I have a bit of nausea pretty much all the time and when I get them I feel…
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Nuts, again
This has already been a topic on the board, but it bears repeating--a 42% reduction in recurrence for stage 3 people who eat tree nuts. New article, but I could only find it in abstract format, not the full text:…
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Memorial Sloan Kettering Cancer Center - My Experience
On December 29, 2017, a member of this forum posted their "honest review" of their experience at MSKCC. As someone who strongly believes I would not be here if I hadn't gone to MSKCC, I found the original post to be disturbing to say the least. While not everyone has good experiences at every hospital, I found that some of…
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Low dose aspirin--oops?
I take a daily low-dose aspirin. I don't expect to change this strategy. However, I found this study interesting: Low-dose aspirin use after colorectal cancer diagnosis was not associated with improved CRC-specific survival in this large Scottish population-based cohort study. Specifically, low-dose aspirin use was…
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DH has a maintenance plan for now
DH completed his 12 rounds of Folfox, 5fu pump,and Avastin about 1 month ago. He did really well and somehow has remained positive and so strong during all of this. He still has a little neuropathy in his hands, but hasn't really caused any day to day issues. The biggest pain for him now is the blood clot he developed in…
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Still unsure about ablation, Radiologist keeps changing plan
So I am still scheduled for the ablation of liver tumors on March 12th. Since my last post, I spoke with the Radiologist that I've been dealing with regarding this, he called after I cancelled my appointment with him for a 15 minute consultation. It was going to be between patients for him but I was sick that day and had…
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Stage 4, 30 mets on liver
My husband was diagnoised on Thanksgiving afternoon. No symptoms other than occassional constipation. His CEA after 3 treatments on FolFox & Avastain has gone from 375 to 170....which to us, sounds like good news. In 3 more treatments they will repeat scans. So far on the regime he has not had any ill effects. He is…
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Finally!!!!! (for now anyway)
Met with my oncologist this morning, to review the results of my recent CT Scan and blood work, which were the first since my treatments ended on November 8th. I am soooooooooooooooo happy and relieved to have heard the words "you're cancer free". I generally consider myself to be a strong individual, but I must say, this…