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Colorectal Cancer

Removing my port
since they will be taking my port out tomorrow morning does that mean I’m being deported? :-) seriously, I was surprised they said I don’t need a driver. I am going to ask to be blindfolded. I don’t want to see them cutting.
Devastated by husbands stage IV
My husband (46) has been diagnosed with stage IV colon cancer with mets to liver (one primary and two smaller “satellites“- I may not have that right). This started out a year ago as stage 3, had the colon resection, chemo and was cancer free for several months until wham! All three lesions, spots whatever you want to call…
Life time Chemotherapy treatment and Work
Hi just want to ask if anybody here is on for permanent treatment as in Life time Chemo every other week or something similar.. I would like to know how they are coping. How did this changed their lifestyle. Are they still able to work while on the regimen. What changed, what remains. I would like to know anyone who is…
infusion pump/ N1 T3 Colon cancer Stage 3
I had a colon mass removed Jan 2018. Have been running tests for past two wks to determinine right chemo treatment and return back to Oncologist in 1 week. Doctor said to start tell her if I want infusion pump or pills of Oxaliplatin to start before chemo. I'm not understanding why need infusion pump or pills & what the…
Stage 1 colon cancer, CEA and CT scans
HI, I have posted before regarding CEA's so I hope you all don't mind another question on the subject. I am so confused about CEA levels and follow up for my particular colon cancer. This is my history: Stage 1 Resection 9/26/16 CEA: 9/26/16 1.5 CT 9/13/16 Clear with 2mm node on lung low grade T2 tumor 0/28 lymph node's…
TACE procedure, anyone have experience with this
My husband just completed 12 rounds of Folfox (?spelling?) and will now change to Folfiri due to numbness in hands and feet. He is also scheduled to meet with IR regarding TACE. I am wondering what the side effects of this would be, has anyone had this done? How long is it, is it an overnight thing or same day like his…
Stage 4 colon, vomiting bile, dark urine
Hello everyone, My mother, 61, initially was diagonized eith Stage 3 colon cancer in 2016, and surgery and a chemo regimen. We were monitoring her health and levels after the chemo, and the levels were normal. Suddenly, in December 2017, she started having horrible stomach pain. We did MRI and CT scan and found that now…
Recent Vitamin D article
Once again, this 2018 article is from the "for what it is worth" department. Personally, I am a vitamin D believer. http://ar.iiarjournals.org/content/38/2/1121.long While awaiting conclusive results on the role of UVB exposure and vitamin D in the risk of cancer incidence, progression, and mortality, individuals should…
CT Scan Results
I got them today. Nothing exciting. My lung mets are a bit bigger since the last scan in October. My CEA came down a tiny bit, whatever. Unfortunately, the adhesions continue to be a problem and now both kidneys are being pinched off by adhesions that have encircled them. So I guess I'll have to have another stent put in.…
Hiccups?
In the past couple of years or so I've had hiccups so often its crazy. I hold my breath and they stop pretty quickly but some days I've had them over and over. Today has been a good day, only 14 times so far, some days it's 5 or 6 times an hour. I have a bit of nausea pretty much all the time and when I get them I feel…
Nuts, again
This has already been a topic on the board, but it bears repeating--a 42% reduction in recurrence for stage 3 people who eat tree nuts. New article, but I could only find it in abstract format, not the full text:…
Memorial Sloan Kettering Cancer Center - My Experience
On December 29, 2017, a member of this forum posted their "honest review" of their experience at MSKCC. As someone who strongly believes I would not be here if I hadn't gone to MSKCC, I found the original post to be disturbing to say the least. While not everyone has good experiences at every hospital, I found that some of…
Low dose aspirin--oops?
I take a daily low-dose aspirin. I don't expect to change this strategy. However, I found this study interesting: Low-dose aspirin use after colorectal cancer diagnosis was not associated with improved CRC-specific survival in this large Scottish population-based cohort study. Specifically, low-dose aspirin use was…
DH has a maintenance plan for now
DH completed his 12 rounds of Folfox, 5fu pump,and Avastin about 1 month ago. He did really well and somehow has remained positive and so strong during all of this. He still has a little neuropathy in his hands, but hasn't really caused any day to day issues. The biggest pain for him now is the blood clot he developed in…
Still unsure about ablation, Radiologist keeps changing plan
So I am still scheduled for the ablation of liver tumors on March 12th. Since my last post, I spoke with the Radiologist that I've been dealing with regarding this, he called after I cancelled my appointment with him for a 15 minute consultation. It was going to be between patients for him but I was sick that day and had…
Stage 4, 30 mets on liver
My husband was diagnoised on Thanksgiving afternoon. No symptoms other than occassional constipation. His CEA after 3 treatments on FolFox & Avastain has gone from 375 to 170....which to us, sounds like good news. In 3 more treatments they will repeat scans. So far on the regime he has not had any ill effects. He is…
Finally!!!!! (for now anyway)
Met with my oncologist this morning, to review the results of my recent CT Scan and blood work, which were the first since my treatments ended on November 8th. I am soooooooooooooooo happy and relieved to have heard the words "you're cancer free". I generally consider myself to be a strong individual, but I must say, this…
Husband ending chemo at 3 months
We found a study published online that's persuaded my husband that 3 months of chemo will be enough and 6 months will not be worth it. Has anyone seen this study? https://www.cancer.gov/news-events/cancer-currents-blog/2017/adjuvant-chemo-colorectal Almost 13,000 people in the study, several countries, no commercial…
Lung metastasis - any suggestions or advice?
Hi all Greetings from Norway! I am researching options to what my oncologist has presented to me as treatment (which isn't the most promising). The only treatment I will be offered is more chemotherapy to hold the cancer back a long as possible. Not the best forecasts. Quick background on my cancer - Colorectal cancer with…
CEA levels rapidly rising
Hello all! I'm new here as of today, and I'm very glad I found this forum! I have searched through the different topics and I have found a lot about CEA levels, although not yet any story that corresponds to my own. I was diagnosed with third stage colon cancer late 2016 and I had a colon resection in January of last year,…
Folfiri: Hospitalized and losing hair after 1 treatment
I had my first infusion of Folfiri on January 26, 2018. I felt ill all weekend. Monday I started vomiting and running to bathroom with diarhea. Took Zofran and Imodium. Seemed to help. I continued takig the Zofran every 8 hours and took one Imodium tablet per day until Thursday. Then got constipated for 3 days. Satruday,…
Tomorrow is my husbands 11th treatment
only one more after this! He is only getting 5FU now with avastin so it’s been much easier for him. Supposedly the dr is going to come talk to him about what she and the surgeon have decided after he is done. I have a feeling she won’t and we will have to wait two weeks until his last appointment. hoping The last two…
Has anyone had a recurrence near the original site?
It seems like some of us get mets to the liver or lungs or even other areas but how often does anyone get another colon or rectal tumour? I had an MRI in September and they said there's nothing there. But for the past several weeks I've had a lot of rectal discomfort. It hurts to sit down and hurts even more if I stand for…
Life Hack for Ostomy People (and others)
I saw this on Facebook. One of those ideas to make life easier they call life hacks. One of the things that's always bothered me with my ostomy is emptying my bag in a public place or at work. Sometimes it will do things like splash spots on the underside of the seat or even leave a brown drag mark down the inside of the…
My dads first chemo treatment for Stage 4 colon cancer w/mets in liver and lung
My Dad finally started treatment after being diagnosed at the end of December 2017. He was told his heart was very weak but they went forward with Chemo anyway. I keep hearing negative things from different people like “Oh wow your Dad has stage 4 colon cancer and he decided to go through with chemo treatments?” Its almost…
Stage 4 Colon Cancer with Mets to the Liver & Progression of Cirrhosis
My mom was diagnosed with Stage 4 Colon Cancer earlier this year with multiple advanced mets to the liver. She went through about 10 rounds of chemo and 2 rounds of Y90 and everything seemed to be getting better - the Y90 shrunk her liver tumors by half and her CEA level was down. However, then her platelets started to go…
My mom
mom just diagnosed with colon cancer with spots on liver an lung. any helpful information would be much appreciated...
Paste for ostomy?
I was changing my ostomy bag yesterday and was thinking about how some people have such a hard time with having to replace the bag often. I replace mine once a week now. I was able to get 5 to 7 days out of them previously while I was using a wax ring but it would eventually lift and seep and burn my skin. Without the wax…
Time for CT Scan
Tomorrow 6:00 AM EST I will head out for a 1-1/2 hour ride to Ann Arbor MI for the quarterly CT Scan. And next Monday for the CEA test and doctors visit. Many of you know the feelings that come along with these checkups. Ugg.
Phase III trial of Napabucasin-BBI-608-and FOLFIRI
info at: https://clinicaltrials.gov/ct2/show/study/NCT02753127

Colorectal Cancer

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