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Cyber Knife?
Hello All Has anyone had the procedure? Or, have any knowledge on this. They have recently came to St. Louis. I dropped off my last two CTscans on Friday and hoping to get good news that I’m a candidate for the procedur. Cause i feel like my doctor has quit on me. My last visit he told me I could try Lonsurf. Or, just go…
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Cancer Vaccine
I wonder anybody heard about new cancer vaccine that found in Israeli. It is on youtube I watched yesterday. It looks like it worked on o 7 patients. I appreciate if anybody put some more feedback about it to share. I don’t know about reliablity of that vaccine. Thanks for feedback.
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ACS and bad food advice
Food is medicine. So why does the American Cancer Society advocate these kind of snacks- Angel food cake, ice cream, and cookies? Scroll down to "quick and easy snacks": https://www.cancer.org/treatment/survivorship-during-and-after-treatment/staying-active/nutrition/nutrition-during-treatment/once-treatment-starts.html…
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Talked to Sloan today going in one week!
we have an appointment on the 26th with Dr Kingham who is a surgeon. I spoke with coordinator and the nurse who said she thought he would be able to help us. She said their surgeons were quite skilled and not afraid of resecting in the caudate lobe. They put us with the surgeon they felt was the best fit for my husband’s…
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You would think...
I have been awaiting a colonoscopy due to the questionable observations from a recent CT scan. Getting it scheduled has been a priority for me because I am suppose to have my ostomy take down surgery on 26 March. If I have "issues" in my rectum then it stands to reason that I should not prematurely take down my ostomy…
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18 Month Scan NED!
Hi All! I have not been on the Forum as much since healing after my ileostomy reversal, getting used to the new normal and going on the road to visit family and friends. Today was a "big deep breath day" going for the 18 month scan. My oncologist shared the results immediately and so grateful for NED... Thanks to all of…
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New to this site and slightly worried
A little background. I just completed treatment for tosil cancer back in late Nov. which I'm still recovering from and had my first PET scan last week to find out if the treatments worked or not. Good news they did but the bad news a place lit up on my ascending colon with a maximum SUV of 3.3 that had my radiation doctor…
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How to get into messages?
I saw that I had some new messages last night right before I shut off my computer. I intended to respond today. If the message isn't there that I have new messages, how do I find them? Sorry, I'm so simple when it comes to technology. Thanks! Jan
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And the news is in...
NED Partially blocked abdominal aorta. Fractured wrist. I'll take the NED and run with it . Will have to work on getting my cholesterol down with diet, as I am allergic to all Statins. And my wrist is braced and hopefully will heal soon. They think it was caused because the bones have been damaged by Chemo. Not surprised!…
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CEA level rising during chemotherapy
Hello, My mother diagnosed with colon cancer stage 3B, 5 months ago. Her 11th term of chemotherapy (out of 12) scheduled on this Wednesday. Something is not normal in her blood tests before each chemotherapy session. Her CEA level before surgery was 7 and after surgery has kept rising steadily. It has reached 16, last…
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A glimmer of hope
so my husband called the office today and said someone needed to call him back. So finally they did and he actually has an appointment with the surgeon. I still don’t know for sure if he will get surgery but he is willing to talk to him about options. He wants another scan which is the 21st. His concern is not the omentum…
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I have made my decision
I had my 6th treatment out of 8 of Oxaliplatin via IV drip yesterday. Since my 5th one 3 weeks ago I had been contemplating of stop my treatment after #6. Although I don't have numbness on my fingers and toes but I do feel somewhat numbness sensation go through my hands when I tap on any hard surface. I don't want to be…
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It's time for a coly...it's been close to a year
DH will have a coly early this week. This will technically be his first since the one that discovered the tumor didn't allow the first one to actually be completed. There have been scans, he is really worried since the last coly totally changed our world. He went into the test just Turning 38 and woke up to emergency stage…
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Nausea meds: What's your drug of choice?
I'm finishing up treatment #2 of FolFuri, Iriritecan + Avastc biggest sideeffects I'm having are consipation, gasy stomach, hick ups, along with the watery eyes, runny noses.... the usually. but the nauseaousness is somethinkg stronger than I expected. Vomiteding is also daily but doesn't seem to last long. I'm trying…
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worst news ever please help
I have been watching this omentum nodule since it suddenly appeared in a ct scan in April of 2017 they said a 6mm anterior abdomen nodule is stable. Like it’s been there but no mention of it. they don’t mention it in January of 2017. So in decrmber it says a 4mm nodule is unchanged, same thing on scan in February saying it…
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This isn't good is it?
My DH oncologist called and told him that because his scans were mixed (some mets grew some shrunk) and his CEA levels are rising that she is changing treatment. He was on Folfox with avastain. Now switching to Folfri with Erbitux. There are no other lines of treatment are there? Isn't Folfri the second line of treatment?…
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Coffee and colon cancer?
I apologize if this has been discussed before but have come across several studies/articles regarding colon cancer and coffee. https://www.hsph.harvard.edu/news/features/coffee-colorectal-cancer/ "December 20, 2017 – People with colorectal cancer (CRC) who drank at least four cups of coffee per day after their diagnosis…
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Has anyone had a liver resection and omentum involvement or
any other tumor locations? Everything I know from the past resection says if it’s anyplace else no resection. So I feel going to Sloan Kettering is wasting our time. However it’s one tiny 4mm nodule that has not grown or changed since April of 2017 so there is no proof it is or isn’t cancer.
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The Woods
I had a CT scan last week (approximately 90 days after adjuvant chemo) and was counseled yesterday by my oncologist regarding the results. I am not out of the woods yet. The radiologist who read the scan detected some areas/items of interest. My oncologist is now in the process of coordinating a colonoscopy to better…
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Whining for no good reason
Hi Fellow Semi-colons! I have no reason to whine. Seriously. No reason at all. I'm 11.5 years NED for colon cancer which is a super, super blessing! But today I had my first colonoscopy in 5 years due to not having insurance for a while. Anyway, 6 polyps were found, two in the hepatic flexure, two in the splenic flexure,…
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Today is my husband’s last chemo!!
he made it through all 12 only the last two without Oxilipatin. He will be an getting appointment to plan his liver surgery as well. I am very cautiously looking towards the end! On another note my 15 year old daughter has ulcerative colitis and needs to have her second colonoscopy before she starts Entyvio, nothing is…
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Today I beat the 2 year recurrence wall
Hi all, I have been having all my blood work and scans this week. It has been a rough time since this was the 2 year mark since my last recurrence. Since being diagnosed 6 years and a few months ago, the tests at the 2 year mark have always found a recurrence. I have not been able to get past that point. So this week I was…
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It’s gotten out of control
My husband was diagnosed with stage IV colon cancer one year ago at age 37. We have two small children. I love my husband, and I’ve been by his side through everything this past year. But something has changed, I am wondering if it is the daily dose of dexamethasone added; aside from the IV dose of the steroid that he gets…
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New to Forum-So Many Questions
I am pleased to have found this forum and apologize for having so many questions. As I am sure most of you can understand, my brain is whirling with emotions and I am just trying to cope with something that I never thought could happen to me (fear, depressions, anger). I was diagnosed on October 31 with Rectal Cancer (age…
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Fostering a Dog!
I had to share this! Being unable to work due to unstable health issues, weakness, issues that crop up and make me miss work and now going back on the chemo that will make my face look like a pizza, means I'm at home most of the time and feeling useless. I feel like I contribute nothing and am just a drain. We have two…
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A new journey begins.....
I don't post on here much, but I do lurk quite often. Well it's offical my wife is officially 5 yrs NED. We (or she) has officially been told by our oncologist "no need to come back and see me." Thought I never would hear those words. She was diagnosed with Stage IIIB CRC. Went through all the "typical" treatment rad/chemo…
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Dandelion tea
I heard some good things about dandelion tea, I never us d it yet but I ordred sone. In the mean time I wonder anybody has already used dandelion tea. I need some feedback please.
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Next scan in a year
I made it to the yearly scan thing. My latest scan is Ned For the colon. Now for the kidney cancer removal on the 20th of this month. I have learned so much from this site and would like to thank everyone for all the knowledge and hope you have given me.
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Removing my port
since they will be taking my port out tomorrow morning does that mean I’m being deported? :-) seriously, I was surprised they said I don’t need a driver. I am going to ask to be blindfolded. I don’t want to see them cutting.
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Devastated by husbands stage IV
My husband (46) has been diagnosed with stage IV colon cancer with mets to liver (one primary and two smaller “satellites“- I may not have that right). This started out a year ago as stage 3, had the colon resection, chemo and was cancer free for several months until wham! All three lesions, spots whatever you want to call…