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Once again, Caregiver's Bill of Rights...
I shared my life with 2 special needs daughters, one of which has since passed. But, as part of a program designed to support we caregivers, I was given this "Caregivers Bill of Rights". I have this posted on my fridge....it helps me, especially during my cancer caregiving with my mom and sister. For all the special…
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radiation treatments?
Hi, Has anyone ever had radiation done to the liver? My Onc says no.. its not an option..? I am stage 4 with a big tumor on the liver, and I dont see why radiation cant be used.. Thanks
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Colonoscopy on Oprah
Yesterday, Monday, Oprah had Dr. Oz on and he had a patient that had a colonoscopy. They showed the actually procedure and what the doctor's look for. Thought that was a good thing to do for awareness of colon cancer.
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Today's laugh
I got to work today, and when I dropped my keys and bent over to pick them up, I noticed that, not only did I have on shoes that didn't match, they weren't even similar! In my rush I hadn't even noticed before. I had to come in and endure plenty of ridicule while I waited for my husband to bring me another shoe, hopefully…
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Nanuk (Bud) is no longer in pain
We lost one of our dear semi-colon friends today at 1:30PM mountain time after a very long and courageous fight. Those that have been on the board for a while know him as our resident researcher. He was uncanny with finding neat and interesting articles on the internet and if you wanted to know what something was, you just…
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Tribute to Bud
Tribute to Bud Andy and I had the pleasure of meeting Bud last year in Austin at CP3. Bud was a very thoughtful and caring person. I'm sure he's with the good Lord above now and is dancing with Sweet Baby Girl Andrea who he always admired for her courage and bravery. Rest in peace Bud. Love, Lisa In Remembrance Of Bud…
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need good vibes
Hi everyone. I haven't been around too much lately, but have been battling this monster for years. I was diagnosed stage 3, but moved up to stage 4. I now have mets in lungs, bones, and a new dot in my liver. All is fine. I was on a study drug that is working well - been on it since 5/07. My only concern is that my right…
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Ileostomy Reversal
I was wondering if anyone knows of doctors in the Metro Denver area who specialize in ileostomy reversal
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My humerous surgery story
I'm using humor as one of my biggest battle weapons and one of the funniest things that happened was just minutes prior to my surgery. I was on the gurney, the nurse had put the funky cap over my hair, they were going over where the incision would be and making sure I knew exactly what to expect during surgery. The nurse…
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Colon Tumor - Please Help. New & Scared.
I am very sad to be here posting this. My mother turned 60 yesterday and had her colonoscopy this morning - the doctor found a tumor that was too big to remove during the procedure. He took a few samples and sent it off for biopsy. He told us that just by looking at it, he is unable to tell us whether it is benign or…
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massages
Went to get a massage today and they stopped it...they said they needed the approval from my onco because sometimes it can do more harm...estimulates the cells, lymph nodes ? something like that. I always heard that was good...now I am cunfused...any suggestions ?
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This Will Get Through The Day.....
Hello God, I called tonight To talk a little while I need a friend who'll listen To my anxiety and trial. You see, I can't quite make it Through a day just on my own... I need your love to guide me, So I'll never feel alone. I want to ask you please to keep, My family safe and sound. Come and fill their lives with…
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Cancer and HIGH stress
I did have a really bad time two days before my chemo pump was to be removed. I got urethra blockage from an accumulation of white blood cells and crystals caused by the radiation treatments, and could no longer pee. After some difficulty, they were able to put a catheter in, and the ER doctor came in to talk with me. He…
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All ok.
Hello all, my white cell count today was fine, so I am no longer thinking of a bone marrow biopsy. Still feel very ill but delighted with the news. Be well Virginia,
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Starting treatment soon
I will be starting chemo and radiation in a week. I have had two surgeries since July. I have faith but am still a little nervous and scared.
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Another Surgery
My huband was diagnosed with colon cancer in May 2006 when a large tumor was removed. Subsequently he received chemotherapy and, although his cancer was restaged from 3 to 4, he went into remission. He, however, developed several abdominal abscesses and infections. Last week, when the latest abscess was drained the…
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To Make You Smile
In his beautiful book, "I Shall Not Want," Robert Ketchum tells of a Sunday School teacher who asked her group of children if anyone could quote the entire 23rd Psalm. A golden-haired, four-and-a-half-year-old girl was among those who raised their hands. A bit skeptical, the teacher asked if she could really quote the…
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My father was just diagnosed with stage iv colon with many liver mets
Is there any hope? He is only 64 and he just had part of the colon removed and they said there are over a dozen mets all over his liver and even a small area on his left lung that looks like it could be related. We havent met with the onc yet but am looking for any sign of hope. Any thoughts or experiences?
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A little bit concerned
Hi Everyone, I have posted a message about my wife a a few months ago and I remember receiving great responses from lots of people and I am still very Thankful of all of you The reason I am starting a new topic is because I have a few concerns about myself: I have a history of Acid reflux GERD problems In fact I have…
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Bum Cream
Thank you all for your replies on my last question, they were really helpful! Seems that alot of us have gone back and forth between diahrrea and constipation which for me creates an excrutiating soreness to the point where I'm raw and bleeding when it comes to the diahhrea part. Can anyone recommend a cream that works as…
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What's left?
Anyone know what could be tried next? Had Folfox last year and 1/2 way through needed to cut dose in half due to side effects (besides CEA stopped moving after 4 treatments. Have mets now to liver and one pelvis node. Am on Fufiri with Avastin but had reaction to the Comptosar on my first treeatment (a major rash) and now…
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scope time!!!!
hello all semi's, it's that time again. it has been 2 years since my last scope. if you all could please send those positive vibes i would really appreciate it. for the newbies, dx may 04 stage 11 colon, chemo 6 months, colon resection, 2 hernia repairs and most important ned!!!. i found this wonderful site while in the…
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A Million Thanks!!!
Dear All, Without you all this journey would be a lot harder. I have had a couple of blue days and am trying to pull myself out. Just coming to this site makes me feel better. We all need each other and I appreciate each and everyone of you. I may not always reply to all but my prayers include everyone on this site. It is…
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Great story for future therapies
Use of Virus at Stanford http://www.wired.com/medtech/genetics/news/2007/10/cancer_virus This just came out in Wired Magazine. I know they also have a 12 patient trial with people in end stage colon cancer. Currrently 4 are doing well. I know that's not perfect but anything that advances potential options is great.…
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CP 6 - West Coast Swing!
WOW!! Colonpalooza 6 in San Francisco!! That's just a little south of Vancouver... too cool! I'm not into long-term planning mode yet but it would sure be fun to take it in. Pam and I have only been to the airport there and have promised each other we would make a return trip. October '08 sounds like a good time to do it!!…
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Friday Riddle / Teaser - ANSWER
This week's winner is Vinny3. He now has all the BRAGGING RIGHTS until next Friday. RIDDLE: An old lady has put her life savings in a safe place but she can never remember where it is. To remind herself, she has written the location down in a secret code. While she is out, a thief breaks into the house and finds the coded…
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delay of treatment
Hi All, Lots of good news out there. I am always happy to hear about NED and such, aniversaries, naked dancing, etc. Sorry to whine. My treatment was delayed this week, it really bummed me up. My WBC was 2,200. Guess that's too low. Is this pretty common?? How do you build it back up, my onc nurse said you couldnt do…
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NED 18 MONTHS OUT
Just got the results back 18 months out and still NED. Dx stage III 11/05 treatment xeloda (Capecitabine) /radiation then surgery followed by heavy doses xeloda. Only problem is a moderately low count of my platelets from radiation but Onc says that will improve. Wishing the same outcome for everyone fighting the beast.
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Another CEA question
Hi all, Summary: Dx with rectal cancer 4/05, treated with chemo/radiation and then local excision; recurrance 4/06, treated with AP resection/colostomy and 9 cycles of Folfox chemo ending 11/06. All my CEAs had been less than 1 or 1 until 4 weeks ago when it had risen to 3.5. CT scan had questionable area of markings but…
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Introduction
Hello everyone! My name is Jorie and I just had my second go-round with my second resection. my Cancer was a stage II. I'll be starting chemo and radiation in a few weeks. I'm having difficulties with this resection that I didn't have the first time around and I'm wondering if anyone had the same problems. My resection was…