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We know what it's NOT...The beast!!!!
Well, finally, after a very scary conversation with the gal from my primary care doc who said "I really can't tell you the results, I don't know how to read them...I'll send them to your oncologist...she will tell you"...(I KNOW these are an easy read...sigh...)... The results from both the mammo and the ultrasound came…
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Advice
Hi everyone, (history, stage 3 with spread to 6 out of 15 nodes, age 38, had surgery jun 07, IV chemo since July 07, now on radiation Oct 07 for 28 treatments plus taking Xeloda, then will have 5 more treatments of IV CHemo) I know most would say that overkill is just what it is and if it saves your life then so be it. I…
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after treatment
I have finished with treatment for rectal cancer...radiation continuous 5FU, rectal resection and 8 rounds of leukovorin and 5FU....wondering if anyone has experience with lasting side effects?? Neuropathy in hands and feet, weird taste in mouth, rectal pain and bloating. Any experiences or suggestions would be…
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All Clear!!!
Hi all, Had my colonoscopy this morning and I am all clear!!! (no polyps, no cancer, only healthy intestinal mucosa) My GI doctor was smiling from ear to ear with the results. He said I won't have to see his ugly mug until next year. Good day :) Kiersten
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prayers for a friend
Good morning to all, My daughter has a 26 yo friend since high school. Her name is Lindsey. Last year Lindsy was diagnosed with lymphoma. She had a port put in and chemo. She had a pet scan in Sept. and was NED per her doc. She was told this info on her 26th birthday. I was her nurse when her port was removed. Two weeks…
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A Hug from the Oncologist!
Hi All. Please forgive my lengthy post. Today was my husband's first appointment at the oncologist after his liver resection. She is not normally an extremely "upbeat" person if you know what I mean (very smart, knows her stuff, but not the most positive person in the world, very matter of fact and I usually have to "draw"…
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WORRIED ABOUT FRANTIC
HELLO EVERYONE, HAVE NOT POSTED IN A WHILE BUT HAVE CONTINUED TO CHECK ON EVERYONE. JUST A REMINDER OF WHO I AM. CAREGIVER FOR MY MOTHER WHO WAS DX WITH STAGE II COLON CANCER IN 05/06---SHE IS DOING WELL WITH A FEW EXCEPTIONS. WE HAVE ANOTHER CT SCAN IN DEC. BUT ANYWAY, WHAT I WAS WONDERING IS IF ANYONE HAS HEARD FROM…
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What a shock??
Hey everybody, I have good news. I posted about a week ago whining about chemo effects and thinking I might hang it up because I had 3 more treatments and just was very bummed. Well 8 wonderful ladies descended on my post and pumped me up so much that I thought I was Rocky Balboa. Today I went to my onc and he said to me,…
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Check your neighbors!
Hi All, Just wanted to share something. As we all know, even in small subdivisions it can be hard to know your neighbors. Busy schedules and 21st century suspicion keep us from getting to know those we live near. Anyway, my former next door neighbor is the exeption to the rule. She and her family got out and got to know…
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Advice 2
Thanks for all the responses and support. I couldnt figure out how to respond on that post so decided to start a new one. Again thanks for all the support, this site truly is a god sent..... I am not NED's as of yet, at least no one has said that. my pet scan was clean so says the onc, still undergoing treatment though. I…
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Below normal temp
Hi again, Stepson was running a high fever with chills, now it is below normal 95 - 97. It has been fluctuating for a week. First thought it was a bug. Finally Sunday they did lab work. Dr. has him on penicillin waiting for lab results. He is on maintenance chemo and avastin every 2 weeks. We;re into 3rd week now because…
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biopsy during colonoscopy
I had a "routine" follow-up colonoscopy today. As usual, I was awake but woozy. My doc took a biopsy of something she told me looked like an "abrasion". I asked her if it looked like a polyp and she said no. She said probably nothing and not to worry. I kind of saw it on the screen but of course I had my glasses off and…
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First post treatment colonoscopy!
Hi All, Hope everyone is doing well. I keep you all in my thoughts daily. Tomorrow night is the lovely bowel prep (will be catching up my reading). My colonoscopy is scheduled for Wednesday morning. This will be my first colonoscopy since diagnosis and treatment. After getting my NED results in September this is the next…
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Getting surgery Friday
Thanks to all who replied. I will have a left lobectomy on Friday at Stanford. Hopefully the spots turn out to be nothing but we doubt that. Thanks everyone. Impactzone
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Caregivers
Every so often I go through some of the other discussion groups and try to respond to some of the posts. Sadly, the "surviving caregivers" section is being neglected. There was a lady on there who lost her life parter of 9 years. The post was from 2 weeks ago and nobody had responded. There was also another person who had…
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re starting chemo tomorrow
Hi all, I have been off chemo for a little over a month now waiting to quaify for a clinical trial. My last scan showed no shrinkage but little or no growth. Well, my tumor did not express the desired protien so I am booted out of the trial. I am really bummed about it. anyway, I start back on Avastin and Xeloda tomorrow.…
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my moms cat scan results
my mom also got her results today, the oncologist said that some tumors grew and some shrunk, he didn't seem happy either way, he said he will give her a couple of more months treatment and do another cat scan to see if anything is happening and then he said if its not then we may want to consider stopping the…
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platelet count is 80...is that bad?
I have treatment scheduled for tomorrow and did my labs this morning. My platelet count was 80 and I wondered if this is too low to do treatment? I know the nurse will call me later today about my labs, but just wondered if anyone else had a low platelet count and what the repercussions were?
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My friend past away
my friend Maureen "Buffy"who was just 39, past away on saturday, she was diagnosed with colorectal cancer about a month ago, she has been in palliative care unit ever since, she was in soooo much pain, her pelvic bone broke also...anyways I thought I let you all know....so sad pray for her family (3 kids one as young as…
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CT Jitters
Oh boy, it's that time again. CT Scan time. Dennis has his CT Scan tommrow and results on Thursday, it seems like the last scan was yesterday. The tension right beofre these scans is nerve racking. I try so hard as a caregiver not to show my emotions and keep positive in front of Dennis. I want to thank all of you for…
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mixed results
Hello. Thanks to everyone who gave such nice words to me. :) My scan show complete stability!! Hurray. BUT (there always seems to be a but, especially in this darn disease) my CEA continues to rise. It went from 9 (4 months ago) to 14 (2 months ago) now at 25. Sigh. My onc thinks the bone mets are acting up, causing me my…
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infected port
Hi everyone, Stepson has port and is on a 2 week maintenance chemo. This past week he started running a low grade temp. late afternoon and night. He is currently in route to hosp. to have blood drawn and tested and be put on antibiotics, supposedly for infected port. (diagnosed over phone) No redness around port. Anyone…
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Overkill???
Hey, Well, I had treatment #3 with oxal and taking xeloda this week. The night before the infusion I got really scared and wanted to quit. I have had some really bad side effects. I know it has to be my decision but if anyone has an opinion I would appreciate the objectivity. My cancer is gone, the chemo is for…
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If I were a Teletubby....
So I hope this isn't out of line.... I had my second colectomy a little over a week ago. After a CEA raising freak-out, I appear to be NED again (hurray!!) with the removal of a 4 cm recurrent mass in my colon - right were the first one was removed. Anyway, I am sure most of you can relate to the recovery from that…
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Facebook
Hi ! Well, my dagthers finally convinced me to do it...so I have a page in Facebook ( its like my space). If you want to learn a little bit about me...look for my name Ileana Janer...You know what...it's fun....you can send cute stuff...motivational messages...beer ...jajaaj etc...If anyone else want to join lets do it...…
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Friday Riddle / Teaser ANSWER
PGLGreg has BRAGGING RIGHTS this week. There seems to be too many intelligent people on this board, or the riddles / teasers I am using are way too easy. ANSWER 1652 = Lisa 0231 = Carl 5429 = Sean 3954 = Rose All the children's names are made up from the letters CLAIRESMOM. Each letter is assigned a number from 0-9
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Dancing Naked and Happy!
Hey Friends!! Got my CT scan report yesterday... "No findings to suggest development of metastatic disease." WOO-HOOOOOOO!! Since I already had my repeat colonoscopy, and this too was negative, I can now wear the naked dancing crown! (Oh, oh!! Can I get arrested for this? Ah, who cares?) Just a word to all of you out there…
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anemia
anyone out there have any advise for severe anemia. We are waiting for scan and dr.appt for tx options. Husband has severe anemia with fatigue, dizziness, big time grumpy (which is notlike him) He takes a multivitamin with 100% iron, but it is not being absorbed. Anyone been prescribed drugs for this or transfusions? How…
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Hi Everyone
Sorry haven't been around in quite a while but have been working full time and going to school and just don't have any extra time! But I wanted to check in and say to all of you who supported me and my husband through his bout with colon cancer THANK YOU. It was 1 year ago on Halloween that he was dx and when I found this…
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decision time
Some advise from the experienced people would help me. Basic background Stage 4 colon surgery in 9/06, chemo, pulmonary embolism 11/06, more chemo (Folfox)liver resection 2/07 chemo until 5/07. CT scan in Oct 07 discovered 2 spots on lung 3mm and 5mm. I spoke with the thoracic surgeon at Stanford today and he said: After…