-
Caregivers
Every so often I go through some of the other discussion groups and try to respond to some of the posts. Sadly, the "surviving caregivers" section is being neglected. There was a lady on there who lost her life parter of 9 years. The post was from 2 weeks ago and nobody had responded. There was also another person who had…
-
re starting chemo tomorrow
Hi all, I have been off chemo for a little over a month now waiting to quaify for a clinical trial. My last scan showed no shrinkage but little or no growth. Well, my tumor did not express the desired protien so I am booted out of the trial. I am really bummed about it. anyway, I start back on Avastin and Xeloda tomorrow.…
-
my moms cat scan results
my mom also got her results today, the oncologist said that some tumors grew and some shrunk, he didn't seem happy either way, he said he will give her a couple of more months treatment and do another cat scan to see if anything is happening and then he said if its not then we may want to consider stopping the…
-
platelet count is 80...is that bad?
I have treatment scheduled for tomorrow and did my labs this morning. My platelet count was 80 and I wondered if this is too low to do treatment? I know the nurse will call me later today about my labs, but just wondered if anyone else had a low platelet count and what the repercussions were?
-
My friend past away
my friend Maureen "Buffy"who was just 39, past away on saturday, she was diagnosed with colorectal cancer about a month ago, she has been in palliative care unit ever since, she was in soooo much pain, her pelvic bone broke also...anyways I thought I let you all know....so sad pray for her family (3 kids one as young as…
-
CT Jitters
Oh boy, it's that time again. CT Scan time. Dennis has his CT Scan tommrow and results on Thursday, it seems like the last scan was yesterday. The tension right beofre these scans is nerve racking. I try so hard as a caregiver not to show my emotions and keep positive in front of Dennis. I want to thank all of you for…
-
mixed results
Hello. Thanks to everyone who gave such nice words to me. :) My scan show complete stability!! Hurray. BUT (there always seems to be a but, especially in this darn disease) my CEA continues to rise. It went from 9 (4 months ago) to 14 (2 months ago) now at 25. Sigh. My onc thinks the bone mets are acting up, causing me my…
-
infected port
Hi everyone, Stepson has port and is on a 2 week maintenance chemo. This past week he started running a low grade temp. late afternoon and night. He is currently in route to hosp. to have blood drawn and tested and be put on antibiotics, supposedly for infected port. (diagnosed over phone) No redness around port. Anyone…
-
Overkill???
Hey, Well, I had treatment #3 with oxal and taking xeloda this week. The night before the infusion I got really scared and wanted to quit. I have had some really bad side effects. I know it has to be my decision but if anyone has an opinion I would appreciate the objectivity. My cancer is gone, the chemo is for…
-
If I were a Teletubby....
So I hope this isn't out of line.... I had my second colectomy a little over a week ago. After a CEA raising freak-out, I appear to be NED again (hurray!!) with the removal of a 4 cm recurrent mass in my colon - right were the first one was removed. Anyway, I am sure most of you can relate to the recovery from that…
-
Facebook
Hi ! Well, my dagthers finally convinced me to do it...so I have a page in Facebook ( its like my space). If you want to learn a little bit about me...look for my name Ileana Janer...You know what...it's fun....you can send cute stuff...motivational messages...beer ...jajaaj etc...If anyone else want to join lets do it...…
-
Friday Riddle / Teaser ANSWER
PGLGreg has BRAGGING RIGHTS this week. There seems to be too many intelligent people on this board, or the riddles / teasers I am using are way too easy. ANSWER 1652 = Lisa 0231 = Carl 5429 = Sean 3954 = Rose All the children's names are made up from the letters CLAIRESMOM. Each letter is assigned a number from 0-9
-
Dancing Naked and Happy!
Hey Friends!! Got my CT scan report yesterday... "No findings to suggest development of metastatic disease." WOO-HOOOOOOO!! Since I already had my repeat colonoscopy, and this too was negative, I can now wear the naked dancing crown! (Oh, oh!! Can I get arrested for this? Ah, who cares?) Just a word to all of you out there…
-
anemia
anyone out there have any advise for severe anemia. We are waiting for scan and dr.appt for tx options. Husband has severe anemia with fatigue, dizziness, big time grumpy (which is notlike him) He takes a multivitamin with 100% iron, but it is not being absorbed. Anyone been prescribed drugs for this or transfusions? How…
-
Hi Everyone
Sorry haven't been around in quite a while but have been working full time and going to school and just don't have any extra time! But I wanted to check in and say to all of you who supported me and my husband through his bout with colon cancer THANK YOU. It was 1 year ago on Halloween that he was dx and when I found this…
-
decision time
Some advise from the experienced people would help me. Basic background Stage 4 colon surgery in 9/06, chemo, pulmonary embolism 11/06, more chemo (Folfox)liver resection 2/07 chemo until 5/07. CT scan in Oct 07 discovered 2 spots on lung 3mm and 5mm. I spoke with the thoracic surgeon at Stanford today and he said: After…
-
More on stress and cancer
I'm trying so hard to work on the areas of my personality and life that cause me stress. I'm turning more towards Eastern philosophies of relaxation, aromatherapy, audiotherapy and controlled breathing using Neti. I don't know about any of you, but since my diagnosis, well, even before i was diagnosed, i was becoming less…
-
Mammo done, Ultrasound done...waiting...
Thank you all for your support! After 2 hours of waiting in a FREEZING room....and having my favorite appendages squished every which way, there was an ultrasound done, and now we wait for the results. My scan place has gone digital, so I could see the scans immediately, but, what do I know??? I'll keep you all posted, but…
-
Problem with chemo
I started chemo in mid-september - I ended up in the hospital for 7 days after the first round due to life threatening side effects. The tricky part is that the docs were not sure why I had such a bad reaction - they ruled out bacterial infection, something called a DPA deficiency and other things that were of concern. I…
-
One Year Anniversary!
Yesterday was the 1 year anniversary of my diagnosis. Had quite a "scare" last Halloween when my "routine" colonoscopy revealed a Stage III sigmoid tumor. This Halloween was MUCH better than last! I got to hand out candy to all the little Trick or Treaters, and had a candle-lit dinner with my husband on the "good" china,…
-
Friday Riddle / Teaser
Clare and Simon have four children. When Simon is away working, Clare writes to him about the children, but she always uses a code for their names in case they read the letters. What are their names? CODE NAMES 1652 0231 5429 3854
-
Nuts! New lump in 'good' breast!
Well, found a lump in the non-cancer breast....having an 'ememgency' mammo tomorrow...I will keep you posted....keep your fingers crossed (3rd time is the charm????) Hugs, Kathi
-
Any tricks to deal with neuropathy?
Dear friends, I had chemo #8 this week, and I was hit by several side effects big time. First I had an allergic reaction during the infusion. The nurse gave me 50 mg of benadryl and I slept like a baby. Then for the past 2 days my fingers are very sensitive to cold. When I am outside my eyelids and my nose are sensitive…
-
Eyesight Question
A little background. I have what some call Lazy Eye or wondering eye (right) and have had two surgeries way before I was DX with colon cancer. One when I was a very little girl and other when I was 17 yrs old. I have always wore glasses to read, watch TV and for computer work. I never had a problem with reading food labels…
-
Other categories?caregiver support
We have a tremendous support group here on this site. Being a "caregiver", I often check other categories on this site, because I sometimes feel a bit out of place (although you all have made me feel so welcome) such as the "caregiver" and "emotional support "categories .I'm urging other "caregivers" to do the same . No…
-
CEA-yea
Recap: Had the rise in CEA a month ago to 3.5 from previous level of 1. Pet scan negative. Did not want to wait 3 months to check again so had it drawn now and it has come back down to 0.6. I'm estatic. However, I wanted to pass along some information obtained from the book in our lab about CEA. I apologize for it being…
-
What's SUV ?
Yeah...I am not talking about the car Vinny !
-
what's the smallest size ?
what's the smallest size that a tumor has to measure to be seen on a pet scan ? Yeah I know...me and my complicated questions . The reason why I am asking is because the CT showed 3 nodules in my right lung, but 3 weeks later they don't show in the pet.The largest one was 9mm. Maybe my Ozone treatments and foot detox are…
-
erbituk ?
or what ever is called.....Has it worked for you ? tumors gone , shrinkage ?What cocktail are u taking with it ? What is the Mary K cream that some of u suggested ? Thanks again
-
going crazy
i do not know how to put this but my bowls are crazy. one day-- everything fine and normal -- then the next day i feel URGENT to "go" evey couple of hours. it is driving me crazy. i know there are side effects to the "meds" i am on, but this is rediculous. i cant say my diet has changed-- even since my surgry. is this…