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need good vibes

jana11
jana11 CSN Member Posts: 705
edited March 2014 in Colorectal Cancer #1
Hi everyone. I haven't been around too much lately, but have been battling this monster for years. I was diagnosed stage 3, but moved up to stage 4. I now have mets in lungs, bones, and a new dot in my liver.

All is fine. I was on a study drug that is working well - been on it since 5/07. My only concern is that my right leg is starting to "tingle" in the quad area. This sensation started when my bone mets were diagnosed about a year ago. I am VERY nervous. I am getting scanned next week. But with this new sensation I am quite scared. Please muster up all the extra prayers and good vibes to help get me through this next week until I find out what the problem is.

Thanks for listening, and always understanding. This group is tremendous!! jana
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Comments

  • mrsriderman
    mrsriderman CSN Member Posts: 48
    #2
    hey jana
    i havent been with this rowdy crowd long, but the one constant thing is do not dwell on it. the scannes are scarey. so give yourself 10 min to worry ( set a timer) then no more for the next 20, keep buzy and think good thoughts-- or about someone eles. keep doing that to you are so buzy that that you forget to worry.
    i know it sounds funny but it worked for me

    good luck and lots of good vibes are being sent your way

    lisa r
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  • sladich
    sladich CSN Member Posts: 429 Member
    #3
    Jana,

    I'm sending a whole bunch of prayers and good vibes your way!!!! I know, the waiting is the worse. When you find yourself drifting to bad thoughts, bring yourself back. Keep telling yourself:

    Life is so easy
    Life is so good
    All good things come to me!

    My thoughts and prayers are with you.

    Debbie
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  • goldfinch
    goldfinch CSN Member Posts: 733
    #4
    Oh Jana! I'm do sorry to hear your news. I know you have been dealing with this with your usual grace and strength. You will be in my thoughts and prayers. As Kangatoo used to say...Rainbows are coming your way.
    Mary
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  • vinny3
    vinny3 CSN Member Posts: 928 Member
    #5
    Jana, you've been missed. Sorry to hear about the problems you have been having. Is the feeling you get affected by movement? If so, it may just be muscular. Let's hope. We will pray that it is something simple. Keep us posted.

    ****
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  • rmap59
    rmap59 CSN Member Posts: 266
    #6
    Hi Jana,
    Good Vibes and Prayers coming your way!!!!

    Robin
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  • jerseysue
    jerseysue CSN Member Posts: 624 Member
    #7
    My prayers for good results are with you always!
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  • kerry
    kerry CSN Member Posts: 1,313 Member
    #8
    Jana,

    You are never far away from my thoughts and always in my prayers. I think of you often and I am wishing and hoping for good news next week. I just returned from MDA and Dr. Brown said to tell you hello. He just put in my new medi-port (the 4th one).

    If you need me, call.

    Love,

    Kerry
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  • hopefulone
    hopefulone CSN Member Posts: 1,043 Member
    #9
    Jana,
    Sending good vibes and thoughts your way. Keeping you in my prayers . Keep us posted and keep the faith.

    God Bless
    Diane
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  • Betsydoglover
    Betsydoglover CSN Member Posts: 1,248 Member
    #10
    Hi Jana - you are in my thoughts and prayers - sending good vibes your way. I'll never forget how helpful you were to me when it first looked like I might have lung mets.

    Take care,
    Betsy
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  • jams67
    jams67 CSN Member Posts: 925 Member
    #11
    I will definitely pray for you. The stress of waiting is so hard. Let us know what you find out.
    If it helps for you to know, my neuropathy seems to be creeping up my calves. Used to be just in my feet and hands. I have spinal stenosis also and maybe that is part of the problem. I started working out more and hope that will help. Has anyone else had their neuropathy continue to progress 18 mo. after chemo?
    Jo Ann
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  • MoonDragon
    MoonDragon CSN Member Posts: 183
    #12
    Jana,
    Positive energy and thoughts coming your way. Stay positive!
    Hugs!!

    Jorie
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  • scouty
    scouty CSN Member Posts: 1,965 Member
    #13
    Consider it done girlfriend!!!!!!!

    Extra, extra, extra prayers coming your way!!!!!

    Keep us posted. My love to Pete, the babies and of course to you.

    Lisa P.
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  • changing
    changing CSN Member Posts: 134
    #14
    See we're all here, praying for you!
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  • jana11
    jana11 CSN Member Posts: 705
    #15
    changing said:

    See we're all here, praying for you!

    Warm fuzzies all around. Thank you. :) j
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  • dash4
    dash4 CSN Member Posts: 303 Member
    #16
    You have been and will continue to be in my thoughts and prayers. It is nice to hear from you. Sending good thoughts and vibes your way...
    Mary Kay
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  • ccartwri
    ccartwri CSN Member Posts: 82
    #17
    jana, i am so glad to see you writing! i have been praying and sending you good energy as you have been in my thoughts contstantly for a couple of weeks. i am in ohio on vacation and not going back home until we figure some things out with my follow up. CT scans good but pericardial and pleural effusion (right lobe). no inflammation on CBC, C-reactive protein, ESR. CEA is very low at .7 (maybe even .07, cannot remember). Really praying not mets. i have asked for a PET but my onco says fluid would give a false positive. so waiting for another echo on the 6th and then we will see.

    i think about you and you give me so much strenght! love, claudia
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  • taraHK
    taraHK CSN Member Posts: 1,952 Member
    #18
    Sending positive vibes, prayers and good wishes your way. Please let us know the outcome of the scan. I'm certainly voting for some benign explanation. I think of you often -- I still think of us as "partners". I'm doing well these days -- finished my last round of chemo (my 3rd) in June -- more tests coming up but so far so good. Lots of love, Tara
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  • KierstenRx
    KierstenRx CSN Member Posts: 249
    #19
    Jana,
    I am sending you extra prayers for your upcoming scan. I want you to know that the advice you gave me for dealing with my surgery in February helped me so much. I'm sorry to hear of the difficulty you are going through. Your grace is an inspiration to us all.

    Kiersten
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  • crazylady
    crazylady CSN Member Posts: 543 Member
    #20
    Hi Jana,
    I'm sending positive thoughts your way for a good scan!
    Take care,
    Jamie
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  • Geoff_BBC
    Geoff_BBC CSN Member Posts: 1
    #21
    Jana

    I hope all is well. Best wishes from Northern Ireland.
    Geoff
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