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Headache
My dad developed a headache and he never has headaches. He's been extremely tired for 4 days now. He is stage iv. His pet ct from Nov. 1 came back with improvement. Can things change that quickly? Your advice is so appreciated.... Sue
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3 years nonsurgical remission (NED) now
Hi Everyone, I have had my annual colonoscopy and semi-annual testing the last few weeks and am tickled pink (hi Lee) to still be dancing with that hunk NED (no evidence of disease). If you want to learn more about my 4 year journey fighting stage IV rectal cancer, read my personal web page here (I'll update it over the…
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Problem with oxilaplatin?
My dad is on his second round of oxilaplatin and 5Fu. His first one was in Feb. 2006. He seems to be responding to it again but after the last infusion the doctor made him go to the ER because he lost oxygenation and was turning pale and had pain in his legs. He developed this after all the infusions were done and before…
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My Mom has been crying alot lately
I've been catching my mom crying alot lately, she has been using more pain medication lately and the oncologist said that this could mean that the chemo/avastin may not be working,and that the cancer could be getting more aggressive, my mom describes her pain like a funny feeling, not really a pain but weird feeling along…
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Yearly with my colon guy....
Well, my insurance must think I'm cured...I had to self-pay my yearly with my rad/onc who is following my colorectal cancer...lol.... He is Mr. Wonderful. He got so excited that he could still 'feel' my staples from my reenstamosis...ask if I do self exams...told him that's what HE was for, as well as supplying me with eye…
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After chemo??
Hi and thanks to all of you who have shared your victories, defeats and plain out scared feelings. My 2-month app't is tomorrow, an exam and bloodwork. My CT isn't until February. I completed my chemo the middle of September. The neuropathy did seem to improve immediately after the treatments ended. But, I'm now having…
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doing good
My CT scan from Friday came back all clear in the pelvic and stomach. My CEA is back down to 5.6 down from September's 18. Still taking Xeloda 2 times a day and off on the weekends. Still have lots of pain in my back and we don't know why. I just have to thank God for making people smart enough to make pain pills. I feel…
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newly diagnosed
I had no idea I had a problem. Was being treated for a bladder infection--surprise! Had surgery and diagnosed with metastic colon cancer on 10-30. I am waiting for my next visit to the oncologist, which is scheduled for Dec. 3 to allow me time to recover. I am so scared because I have never even been sick and now I don't…
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another post goes unanswered
Hi guys, I just wanted to let you know there is a post under "Rare cancers" that has gone unanswered. Could you all please take a look at it and see if you know anything about this form of cancer, or if you know anyone else who has had it? I always feel bad for people who post and do not get any response. It must be awful…
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Vit C
I e-mail a cancer survivor today tru a friend of mine that knew him. He had testicular cancer stage IV ( mets to kidney) and is in remission right know...do not know the whole story but he was given a few months to live a while ago....He is also from Puerto Rico..he mentioned that he went tru a MEGADOSIS of Vit C done by…
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update
So, I've been told that I can't have my stereotactic radiosurgery unless I can walk around on my own and unfortunately I can no longer get around on my own anymore. So, palliative care has been called in to help my hubby and daughter deal with all the things that need doing. I've filled out advanced directives, had 2…
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abdominal swelling
MOre freaking out, my husband, stage IV with liver mets has hada funky color and cat scan showed fluid in his abdomen, doctor did not appear to freak out about this, but after researching ascites, which is the medical term, I see horrible outcomes. My friends father had this, and looked like my hubby and did not live much…
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update again
well- my love Peter is still fighting the fight...he continues to get paracentesis for the ascites and blood for his low hemoglobin..(no more chemo) he has lost sooooo much weight- today after looking in the mirror he said by "looking at himself he should be dead".. I told him he was beautiful- and his looks are a mark of…
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bowel changes
Helo everyone, I am a seven year BC survivor and feel very fortunate to have found this site back in 2000 at my DX. Everyone here has had experience and has advice and understanding. I just had a colonospy for some bowel changes. Nothing was found, but my Dr still took 2 bioposies. I have been troubled with colitis a…
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Stage 4 in the peritoneum lining and 2 out of 16 limpth nodes.
Stage 4 in the peritoneum lining and 2 out of 16 limpth nodes. The Cancer has spread to the peritoneum lining. The Oncologist at Central Baptist in Lexington Ky. told us that in his 20 plus years, he has never seen anyone live more than five years with this. We are looking for anyone who has experience with this and,…
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radiation-chemo
Hi - I'm knew to both chat rooms and cancer. I was diagosed on 10/31/07. I have an appt with Radiology on Friday but was wondering if anyone can tell me what I have to look forward to. I would rather go in knowing something than nothing.
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just finished chemo...should I have colonoscopy?
I had metastatic colon cancer (mets to the liver and lung)and just finished my last round of chemo and I'm currently NED based on my last CT. My last colonoscopy was 2 years ago, should I go in for another one now?
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to "my other family"
Thank you so much from the bottom of my heart. I am feeling better....Went to my Chiro today...Like I told u before...he IS giving me hope. He is a very christian person. So the first thing I asked him today was..."what are you going to do to make me trust you ? How do I know you are right ? I wanted to asked him how do I…
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PET Scan
Does anyone know why you have to follow a low carb diet on the day before your PET scan? I have one tomorrow and they said low carb, no gum, no hard candy, no excercise of any kind the day before on my paper...just curious.. Thanks in advance!
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rash help & advise
I am preparing for battle, hubby had results of cat scan and we have 3 new mets to the liver and pounds of fluid in abdomen from disease progression to the liver? We are going on a different chemo that does the bad rash to the face and the bad diarrea. He will start this week. I want to find out the best creams to the face…
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not doing good
I am MAD, depressed, sad, lost...do not know what to believe...who to believe.. I need to vent..cry...scream....I look around and I have a nice home...but I dont want it...I have a wonderful husband...who;s suffering with me ( with out letting me know )2 good girls ( one told me the other day that I better get better cause…
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chemo protocols
Hi Everyone, Well, this may seem a little late asking this question because I only have one treatment left. In the beginning when the doctors were trying to figure out which chemo to give me they first decided on oxaliplatin, leuvocin, xeloda for six treatments. Then my oncologist changed his mind and decided because of my…
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Checking the neighbors
Hi All, You gave me much food for thought. It really didn't occur to me that some people would rather not participate in a neighborhood support group! How dumb is that? I guess I just thought everyone would like support from someone close by who knew what they were dealing with. Caregivers like my husband also need to have…
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Congrats
Looks like there's been a lot of good news while I was away. Congrats to everyone who's doing the happy dance and encouraging blessings and energy to those still fighting!! I just got out of the hospital. I had fluid build up around my intestinal and surgery site which required 5 days of 3 square meals, being legally…
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To all my female friends....
Hi all, Just wanted to share some info with all my female friends. This especially applies to any of you that have had pelvic radiation and were sent into premature menopause (also those already gone through menopause). My oncologist suggested that I get a bone density test since I am not taking hormones and am in full…
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update
A lot has happened since my last update. My lovely coworkers have decided that Mike, my everloving hubby needs help. I do agree that he needs help. He's been stuck here with me and I know work is suffering. So they've brought in palliative care. I've worked with the palliative care doc before I got sick so that makes it a…
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My Doc said the word CURED
I went for my check-up today and the Doc said I was CURED. He is the same one who so kindly reminded me that I was not out of the woods as I approached my 5 year of NED. I am doing the happy dance (naked and with clothes). I wanted to tell strangers on the way home. I nearly called my kids at school. I am here telling you.…
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Friday Riddle / Teaser - LATE
Sorry for being late, I was sooo busy at work on Friday, that I forgot. PEARS: There are a few trees in a garden. On one of them, a pear tree, there are pears. But after a strong wind blew, there were neither pears on the tree nor on the groud. How come?
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CEA Question/Doctor Issues
From June 07 to October 07, my dad's cea went from 128 to 14. He had a ct that showed slight increase in size of liver mets but decrease in lung mets. So, doctor swithced drugs. All of a sudden cea spiked. Tested on October 15 (132) then on October 19 (30). Went from 132 to 30 in four days. Our other doctor at hopkins said…
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NED>>>>Yeah..
Just got home,long day but worth it. NED once again. I still have tears of just whew...Brief update for those that do not know us, hubby diagnosed 1/5/06 Stage IV Colorectal, Met to Liver and Lymph Nodes. Chemo then 8/13/06 had a complete lower resection with perm colostomy and also a liver resection. Then more chemo, rads…