Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Radioembolizatiom?
I have Stage 4 rectal cancer that has metaticized to lung and liver. I am terminal but taking chemo (5FU) to push things down the road a bit. Life expecrancy currently is in the 3-6 month range. My oncologist and radiologist want me to have radioembolization since most of my cancer is in the liver and I haven't yet decided…
No systemic chemo
thats what the oncologist told my husband today. So after reading the pathology report there were 3 tumors, one was ablated because of location, one was not a tumor but leftover fluids from his last resection, and the third ( I didn’t know about) but it was 95% necrotic and encapsulated. So the dr thinks the 12 rounds he…
Introduction
Hello Everyone! I finally officially joined after lurking here for almost a year. I've learned alot from reading different folks' posts and questions that have been asked. i see a recent post that I can add my $.02 to. So maybe I can help someone out with their decison-making. Hope everyone has a great weekend - whereever…
Liver Resection Question
Hello all, I am new to this forum and have enjoyed reading what people had to say. While wanting to participate, until now I’ve had no questions and little feedback to offer that hasn’t been offered already. Here’s my question: Has anyone been diagnosed with stage 4 colon cancer and gotten to the point where resection if…
Fatigue after liver resection
For those who had liver resection, how long did your fatigue last? I have to push myself to do every little physical thing. Butt.
Treatment Options for Stage 4 Colon Cancer?
Hello, My father was recently diagnosed with Stage 4 Colon Cancer that has also appeared in his liver. We have seen an oncologist in Maine who recommends that we take a low to medium dose of chemo because they think he is currently too weak for his body to handle a high dose. We are going to get a second opinion from the…
Anyone have a false positive cologuard test and taken a second?
Hi I'm feeling silly being so nervous about the colonoscopy because people on this site have really much more to deal with but I took a cologuard test and almost did not send in the sample because it was not a typical fecal sample. It was not during a time where I was shall we say 'smooth' LOL. Anyway, shockingly test was…
Newly Diagnosed 2018
Hi All! I'm a 43 year old mother of 2 newly diagnosed with colon cancer. It all started on the 7th when I had my colonoscopy. I managed to stay awake and saw the ugly that was hidden in my upper right quadrant of my large intestine. Afterwards, my doctor told me it was cancerous. My the 8th I informed my managers and…
Big day today!
As you may know, I finished my first round of chemo of April 26th. That was a long 12 weeks. 3 weeks out, I am feeling pretty great! I would say about 90% of where I was before all this started. Had blood work last Tuesday, scans last Friday ( which happened to be my 47th birthday), and now today I go see my Onc to find…
liver resection, pump, systematic chemo?
Hello, I have been reading your posts for months but it is actually my first post. I got diagnosed with stage 4 back in Fall. I had radiation on my scupular and removal of ovaries because cancer went to my right one. I had 12 Folfoxs. Now I am 3 weeks past a liver resection and installation of the pump. They think they…
Scar Tissue on Lungs
Hello all, Got my CT results on Monday. Everything was good except for a couple small spots on lungs. These were very small, about 2 mm. The onc. says he is not worried but ordered a CT scan in three months to see if anything changes. I have read it is not uncommon for people to have scar tissue on the lungs for any number…
Colvera, has anyone had this blood test done?
My mother just had this new blood test done in conjuction with the CEA. It's a new FDA approved blood test that shows cancer in your DNA I guess. Basically if it comes back at even a 1 it's not good, that means it's in her blood . Her past two CEA's were 25. She had a ressection on April 18th with no treatment yet. We are…
Severe pelvic pain, nerve damage issues from rectal cancer
My mum is still battling Squamous cell cancer of the schincter muscel rectal, she has had a full removal and hysterectomy, started with chemo radiation to shrink no luck, so all was removed. chemo & radiation didnt work as it travelled to nearby lymph nodes and lung metasis. however currently being treated with nivumolab…
Just joined, wanted to get some firsthand feedback
Nice to meet you all! First and foremost, I'm just really thankful a forum like this exists. I was pretty certain it was, but I wasn't certain, if that makes any sense. I've never searched for a forum for cancer survivors, after all. Although, I'm not sure why I hadn't. So, a bit of history. I just turned 30 last month,…
Chemo, what to eat and what not to eat?
Being the research guy I am, I've checked out allot of sites regarding food and chemo. I'll be taking pills by the way. Can any of you pass on some of your food/drink experiences? Good and bad! Like... definately eat this or stay away from that! Thanks guys!
Gas build up
my husband has been having major back issues for several months. Due to the chemo and everything else nothing has been done. The family doctor did an x ray and said it looks like gas build up. We are out of town for a few days and when we return they want to do an MRI w/ contrast. We will be having many test at the end of…
A reason to hit the gym?
A new study shows that loss of muscle mass is significantly related to mortality in stage I to III colorectal cancer. (see also, weight loss and mortality, https://csn.cancer.org/node/311659 ) https://onlinelibrary.wiley.com/doi/full/10.1002/jcsm.12305 In this large population‐based cohort study, we demonstrated that…
PolyPEPI1018 trial (cancer vaccine)
This is an immunotherapy trial for Tumor Infiltrating Lymphocytes targetting common CRC cancer genes. My guess is that this is follow-on work from NCI. This could be incredibly exciting stuff as this could cure common KRAS mutations in CRC. My guess is that it could cure other types of cancer as well with these mutations.…
Muscle spasms?
dows anyone get severe muscle spasms? My husband gets them in his side a lot tonight he got one on the right side low past his incision. It was pretty painful he was pacing and in agony. He got them before his surgery but they were getting worse, this I am guessing was more painful due to just having surgery. It ended up…
Vitamin D and its relationship to calcium
I have been re-researching my supplement regimine, and I have come across a troubling issue about the relationship of calcium to vitamin D. It appears that calcium supplements may counter the positive effects of vitamin D. I have been taking a calcium supplement, but as of now will discountiue it. I am hoping someone else…
Potatoes juice.
Another interesting information. Phytochemicals & Antioxidants in Potato Juice. http://www.thejuicenut.com/potato_juice_the_juice_nut.aspx During World War I, a group of German soldiers, near starvation, were forced to live on raw potatoes. The soldiers with gastric disorders were relieved and cured. After the war, Dr. J.…
Qigong in cancer care.
Just wanted to share this information and my sister (42 y, 4 stage CC) does qigong therapy and it helps her a lot. She feels good and energetic after every qigong exersices. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5597070/
Rectal cancer
help :( my husband has t4-n0m0.. he lost his 1/2 his bowel, his prostat, his bladder as the radiation went very wrong.. that was a year ago.. he had a massive surgery 7 drains in.. he has been having blood test and his cea has been normal 1.5-1.7 a rounti scan has showed up a abnormality.. I am hoping like made its scar…
Roll The Dice. We Are All Different...
We are all at different stages with this Cancer. Sort of at the beginning. Starting Second Week of Treatment after long delays from my anxieties and delayed tests. Newbie here with the Radiation side effects and chemo side effects. Nausea to me the worst so far from 1 week of Chemo Infusion pump.Finally a decent meal…
It’s just the craziest thing... I fart when I lay on my left side
It’s just the craziest thing but I’ve noticed that when I lay on my left side I have more wind come out of me the a 69 Dodge. I think I noticed it first sometime last week but I was still kind of in a fog from the pain pills to really pay to much attention. But this last few nights I’m telling ya it’s a fact. Yes I fart…
I'm tired, I'm pissed
I am s tired and so pissed off. I am 2 and a half years into this lifetimetime of chemo. I am so sick of being sick and tired. I want my energy back! I want a life that doesn't revolve around chemo, blood tests, scans and doctors appointments! I want to live a life that has energry, that has a meaning! I want my life…
Has anyone had a spot on CT show up “near colon”?
This is not for me but someone I know (stage 4 CRC) has just had a spot show up near colon and they will biopsy. has anyone had this and advice on what to possibly expect? thanks!
cancer recurrence
Hello, i am wondering if there are anyone here with recurrence. I am 8 years down the road and thinking that it might be back. I have been bleeding from my rectum for months, i saw a new doc in february at the cancer center and he blew it off. Wanted to see me in a year. I called again today and explained that I am having…
How to deal with side effects of chemo/rad
I wrote once before in regards to my Dad having been diagnosed with rectal cancer a few weeks ago. He is starting his 3rd week of radiation and chemo tomorrow in preparation for his surgery. Just the other day he started getting horrible mouth sores as well as an intense burning whenever he has a bowel movement. Is there…
Understanding How The Process Works
I'm trying to understand the next step. I was diagnosed with Stage IV Rectal cancer. I went to my Dr in December with bloody stool, weight loss, and fatigue. He sent me for a blood test on 12/21 (the only claim the insurance has denied) and it showed cancer in my blood. I had a colonoscopy on 1/15/18 and they found a…

Colorectal Cancer

Discussion List

Discussion Boards