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surgery update
Here I had my laptop with me at Mayo and so grateful they have a good and easy connection. And then the dang laptop went out on me the night before!! So much for good planning, eh? The surgery went really well. Hernia repair at the old colostomy site. Some very strange things though that ended up making me feel more normal…
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New Rankings of the Best U.S. Hospitals
Useful information http://www.webmd.com/news/20090717/new-rankings-of-the-best-us-hospitals
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Hernia
Can anyone tell me how you get a hernia???? I did no heavy lifting....I have to have it repaired as soon as possible. They will also take out my gallbladder at the same time but it has to be open surgery.......So how bad will this surgery be??? Can hernias be cancerous???? Thanks for any help you can give…
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Question about Clinical Trials
Hi everyone, First, I'd like to thank everyone for the well-wishes before my scans. Unfortunately, after 10 rounds of FOLFIRI+Avastin, the tumors grew (albeit, marginally...but still). Anyway, I'm now erolled in a clinical trial for a MEK inhibitor drug called AZD6244. My question is - have any of you been involved in a…
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Friday Riddle Answer
This week goes to KarenS49. Taking a plane was correct, but the flight was 3 hours. RIDDLE:If a man can walk 2 miles per hour, and needs nine hours of sleep each day, what is the fastest he could travel the 3000 miles from New York to Los Angeles? ANSWER: Just about three hours in a plane. (or 100 days walking, but the…
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Lysine and chemo
Does taking Lysine for canker sores affect chemo with Folfiri and Erbitux? I saw a mouth gel made with lysine for cold sores and wonder if i could use that. I always have to run everything i take through the pharmacist, but i forgot. And i just got disconnected Friday and the canker sores are coming back already...I hope…
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Friday Riddle
NO GOOGLING OR SEARCHING THE INTERNET ALLOWED :) RIDDLE:If a man can walk 2 miles per hour, and needs nine hours of sleep each day, what is the fastest he could travel the 3000 miles from New York to Los Angeles?
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Any update on Donna?
Anyone know anything about Donna? I wrote her a letter, but from here it takes minimum of 7 days to reach her. I hope she is doing better and better day by day! I sooo want to hear from her, and it would be awesome to see her reappear on this forum and leave a note. Well, I hope everybody is hanging on the best they can!…
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chemo day 2 and 3 need help
Well,I can say all started out really well on the first day of chemo. Sean was hungry and ate some,however day two and the start of day three aren't not going as well. We have been dripping 5FU since about 12:30 Tuesday and by the end of day one going into day two thing have went down hill. He can no longer eat and…
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abdominal tenderness
HI EVERYONE, HOPE EVERYONE IS DOING OK.. I have a question. I had my resection and ileostomy 7 wks ago and my abdomen is still very tender. Has anyone else experience this. I thought I would be fully recovered by now.. Thanks.
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c-dff colitis
Hi everyone, I posted a message to pamysue in the semi-colon update post. Sorry, I meant to send it to her and it wound up there.
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6 weeks straight chemo
Where's that guy that posted recently about getting chemo for 4-6 weeks nonstop of folfox (i don't remember the exact time frame). How are things going, did it work? how were your side effects?
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CEA Marker Results...help w understanding?
I'm Bacccckkkk....dh's cea marker results came back today.067 (?). Dr. will call later to explain but can anyone help in the meantime? Not sure what that means...dh and I are restless waiting for the call.....thanks again
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rounds of chemo????
Well we had our visit with the cancer center - had our first real talk about chemo...as you have all experienced it has freaking scared us out of our minds - the final say will come with the surgery after they do the tests but for now they think it might be at least one round - so I was thinking ok 6-8 weeks not bad - then…
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Pain in abdomen after liver resection
I have an ultrasound scheduled this morning and wondering if I can have a cup of coffee, anyone know? Dr office is closed right now.
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2 mm lung nodule
I am a 3 yrs ned from IV . I had 8 tumors in liver and they are still dead from combo rfa and resection. This little nodule that showed up is being called a mucas plug anyone else have that happen. they say its not likely mets because its only one. Of course I just have to wait till next scan in sept. I also heard the lung…
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Please need some inspiration today
Hello all, I have been looking and looking for stage 4 ned or better and not having much luck. I am stage 4 with big mets to liver and looking for some inspiration today! feeling down and needing support. I find myself always asking for something on this sight instead of contributing. I hope to get to contributing soon!…
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More info
Stage IIa T3N0M0. Meeting with radiation onc tomorrow and the med onc on Monday. Looks as if we will be doing radiation and chemo before surgery. Don't know alot just yet as far as how often and how long but will post again.
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Avastin/booster shots
My dad has had three 46 hour rounds of chemo(5FU), then this last one was 54 hours. He had a platelet booster shot and a shot of neulasta. This was the first time he has had the platelet shot but he has had neulasta twice before. He has never been this ran down and it has been a week. He is not getting out of bed at all…
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4 chemo sessions and then PET scan... what to expect???
I am not having my 4th treatment for 2 more weeks but I was just wondering in that short amount of time will I see any changes or is that too soon to hope for something??? Just wondering if ya'll had seen any progress in that amount of time. Jennie
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CAPE-OX Chemo in my future
At today's visit to my Oncologist yht new plan is CAPE-OX for six months following my recent surgery to remove the lesion on my liver. This the Capecetibine taken orally for 14 days, seven days rest and Oxiliplatin every 21 days, resuming another 14 days of oral chemo. Anybody have experience with this one?
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loss of kidney function
Has anybody experienced a loss of kidney function post surgery. I never had problems, now since colon removal and temp illeostomy it is down 54%. Kidney Doc doesn't have a clear explanation, he just sends me in for test every couple of months and is slowly ruling out causes, he gave clearance for reversal and hopes that…
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Scanxiety
I was supposed to get a scan this week to see where I stand but the doctor decided to wait another month. I`ve been waiting for scan day and now it has been postponed. I have scanxiety but would like to know the results. My doctor says he thinks I am responding well to treatment. There is even the possibility that I may…
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#10 coming up Monday, with changes
I am getting ready for #10 on Monday, I had the oxy cut back 25% on #9, but the side effects have not eased up. My hands and feet are still numb. The first 7 treatments it only lasted a few days, but since # 8 it has been constant. The Dr and i discussed it last time when he cut the dosage. If it didn't go away, we would…
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Meeting New Onc
Yesterday I met my new Onc. He first began by telling me how both himself and his partner had been with the same group of Onc that I began with but left due to the fact they did not like the way patients were being treated, not that the treatment for cancer was not current and appropriate, but for patient management, the…
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ugh! Round 4 of 8 today!
Wish me luck...I am heading to round 4 of my Folfox plus Avastin today. I am enjoying an ice cold DR Pepper because I know I won't be able to for about 5 days. I swear I can already tast the metal and I am not even at the cancer center yet! Can I just say I dread this. I know I am 1/2 way done after today but I truely hate…
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Received some difficult news
Depressed household!! I took my husband to the ER last Friday to address a painful abscess he had. He was admitted. While in surgery to have the abscess removed the surgeon found a tumor. POSITIVE! All we know is that we have to call an ONCOLOGIST this AM to make an appointment, one of many i've been told.
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Possible New Health Care Plan
Is anyone afraid of losing their health care because of this. That's all I dreamt of last night because they said that over 11 million people with employer paid health care could lose their health care within the next couple months and have to sign up for this government health care. I will be screwed. No government is…
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Once Again, Has Anyone Heard
From Limey? I am getting really worried.
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Just starting
Just got staged but have not met with the doctor to see the next step. From what I have read it could be chemo or radiation before I have surgery. We will see.