Question about NED

Denise1966

Hi everyone,

I hope everyone's enjoying their summer...here in Michigan, we haven't had too much of one so far, but It has to get better...right???

I have a question about NED...When do you consider yourself NED? After your first radiation/chemo treatment? After surgery? or after chemo is finished after surgery?
I know the highest recurrence rate is within the 2 years after, but when does that start?
I'm just trying to figure this out.

Hugs,
Denise

shmurciakova

Wonderful NED...
As far as I have been keeping track it is after your last treatment ends, whether that be surgery or chemo. In my case, after my lung resection in October of 2004....tick, tick, tick! Countdown to 5! On the other hand, if I started counting since my lung nodules first reared their ugly little heads, before surgery, then it already has been over 5 years. Hey, I think I like that one better!
Cheers,
Susan H.

dianetavegia

shmurciakova said:

Wonderful NED...
As far as I have been keeping track it is after your last treatment ends, whether that be surgery or chemo. In my case, after my lung resection in October of 2004....tick, tick, tick! Countdown to 5! On the other hand, if I started counting since my lung nodules first reared their ugly little heads, before surgery, then it already has been over 5 years. Hey, I think I like that one better!
Cheers,
Susan H.

My onc replied
Since I had no mets, he considered me NED after my surgery.

mom_2_3

My oncologist
My oncologist said that the medium time to recurrence is 14 months (half of the people that recur will recur by 14 month time frame) and that most who recur will do so in the first 2 years. So we are counting towards the 14 month timeframe first and then 2 years and then so on. I asked her specifically when the NED time started and she said at surgery. I know that different oncologists have different opinions but that's hers.

Denise1966

mom_2_3 said:

My oncologist
My oncologist said that the medium time to recurrence is 14 months (half of the people that recur will recur by 14 month time frame) and that most who recur will do so in the first 2 years. So we are counting towards the 14 month timeframe first and then 2 years and then so on. I asked her specifically when the NED time started and she said at surgery. I know that different oncologists have different opinions but that's hers.

Like this one
I kind of like this answer, my surgery was last June so that puts me at 13 months out..yay!! But, I finished chemo this Feb. that would put me at 5 months
I'll take being NED anytime though!!!!

John23

Generally, it takes about
Generally, it takes about two years for a cancer cell to grow
to a size that can be determined to be a cancer cell.

And also... generally speaking... if you show signs of having cancer
(as in tumor), cancer cells are more likely than not, have spread
throughout your body already.

Chemotherapy (chemical therapy) may or may not kill the cells,
since the pesticides used, only go after any cell that's splitting
faster than other cells (that's why you lose hair first).

The practice had always used a "five-year after initial diagnosis"
starting point, for determining the long-term prognosis.

I.E. If you're still alive five years the initial diagnosis, you can be
considered "cured" by the "system" (add 1,000 points for
Western Medicine and the pharmaceutical industry).

Cancer does not "come back with a vengence". If it rears it's
ugly head, it's because it never left; it had been alive and growing
undetected.

For those so inclined and daring, Google "TCM Cancer".

There are better ways.