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Please need some inspiration today
Hello all, I have been looking and looking for stage 4 ned or better and not having much luck. I am stage 4 with big mets to liver and looking for some inspiration today! feeling down and needing support. I find myself always asking for something on this sight instead of contributing. I hope to get to contributing soon!…
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More info
Stage IIa T3N0M0. Meeting with radiation onc tomorrow and the med onc on Monday. Looks as if we will be doing radiation and chemo before surgery. Don't know alot just yet as far as how often and how long but will post again.
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Avastin/booster shots
My dad has had three 46 hour rounds of chemo(5FU), then this last one was 54 hours. He had a platelet booster shot and a shot of neulasta. This was the first time he has had the platelet shot but he has had neulasta twice before. He has never been this ran down and it has been a week. He is not getting out of bed at all…
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4 chemo sessions and then PET scan... what to expect???
I am not having my 4th treatment for 2 more weeks but I was just wondering in that short amount of time will I see any changes or is that too soon to hope for something??? Just wondering if ya'll had seen any progress in that amount of time. Jennie
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CAPE-OX Chemo in my future
At today's visit to my Oncologist yht new plan is CAPE-OX for six months following my recent surgery to remove the lesion on my liver. This the Capecetibine taken orally for 14 days, seven days rest and Oxiliplatin every 21 days, resuming another 14 days of oral chemo. Anybody have experience with this one?
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loss of kidney function
Has anybody experienced a loss of kidney function post surgery. I never had problems, now since colon removal and temp illeostomy it is down 54%. Kidney Doc doesn't have a clear explanation, he just sends me in for test every couple of months and is slowly ruling out causes, he gave clearance for reversal and hopes that…
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Scanxiety
I was supposed to get a scan this week to see where I stand but the doctor decided to wait another month. I`ve been waiting for scan day and now it has been postponed. I have scanxiety but would like to know the results. My doctor says he thinks I am responding well to treatment. There is even the possibility that I may…
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#10 coming up Monday, with changes
I am getting ready for #10 on Monday, I had the oxy cut back 25% on #9, but the side effects have not eased up. My hands and feet are still numb. The first 7 treatments it only lasted a few days, but since # 8 it has been constant. The Dr and i discussed it last time when he cut the dosage. If it didn't go away, we would…
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Meeting New Onc
Yesterday I met my new Onc. He first began by telling me how both himself and his partner had been with the same group of Onc that I began with but left due to the fact they did not like the way patients were being treated, not that the treatment for cancer was not current and appropriate, but for patient management, the…
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ugh! Round 4 of 8 today!
Wish me luck...I am heading to round 4 of my Folfox plus Avastin today. I am enjoying an ice cold DR Pepper because I know I won't be able to for about 5 days. I swear I can already tast the metal and I am not even at the cancer center yet! Can I just say I dread this. I know I am 1/2 way done after today but I truely hate…
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Received some difficult news
Depressed household!! I took my husband to the ER last Friday to address a painful abscess he had. He was admitted. While in surgery to have the abscess removed the surgeon found a tumor. POSITIVE! All we know is that we have to call an ONCOLOGIST this AM to make an appointment, one of many i've been told.
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Possible New Health Care Plan
Is anyone afraid of losing their health care because of this. That's all I dreamt of last night because they said that over 11 million people with employer paid health care could lose their health care within the next couple months and have to sign up for this government health care. I will be screwed. No government is…
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Once Again, Has Anyone Heard
From Limey? I am getting really worried.
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Just starting
Just got staged but have not met with the doctor to see the next step. From what I have read it could be chemo or radiation before I have surgery. We will see.
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I'm Peggy
had a complete colectomy, temporary illeostomy, waiting on reversal. Anybody have problems with loss of kidney function post surgery?
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very severe liver/abdominal pain....i don't know what to do!
MY mom just had as she explained it the worse pain she had so far with her liver a few hrs ago, she normally is now taking some vicodin every few hrs to sustain the pain, but even though the bottle states 1 to 2 tablets of it every 4 hrs, she is super hesitant to start taking the meds till maybe after 6-10 hrs or if she…
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UPDATE: Chest Surgeon Visit Went Badly
Hi, Gang It looks a little slow out on the "newsroom" today, so I thought I would post a follow-up on what happened when I had my appointment with the chest surgeon this week. To begin with, they bungled my appointment in a big way. We each took a half day off with no pay to be there for one thing. When we got in, a series…
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too long of a "chemo in-between breaks"? so far its been 3 weeks without any chemo
Just want to ask out there, since my mom's onc wanted to meet after 5 chemo (he pretty much explained chemo wasnt working on the liver mets and will need to use another drug), on the 20th of July, he asked us to call him to double check the status of things....and see what the new "schedule" is or option to take on my…
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C Diff Colitis
History-Stage 3 rectal cancer, surgery 5/08, Folfox chemo thru 11/08, illeostomy take down 12/08. Was just diagnosed with C Diff on Tuesday by my surgeon after a sigmoid flex scope thingie. First time one of those hurt so bad I almost screamed. They are usually a breeze IMO. My guts hurt like hell and I have diarreha so…
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eric38
This relates to your prior post about being worse than you had hoped. There have been some interesting things pop up in just the last month or two. When conventional therapy stops working, we should qualify for 2-3 very promising new trials that started this month or last. Check them out. I think you will qualify for 2 of…
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LUMP UPDATE
As I posted before I found a lump above my belly button. Well found out today its a hernia..Need to have it repaired right away..Also I will have my gallbladder out at the same time..In to much pain to let it go anymore..I just HATE the thought of having surgery (it will have to be open surgery) and being in the hospital…
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accidents during those intimate times
Anybody got any suggestions on how to deal with accidents during intimacy. It seems like everytime I try to be intimate with my husband I end up having to stop it due to accidents, I have the bag, but also have bowel function... I end up in the bathroom crying, he says its ok and not to worry, but I feel like I cant…
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Xeloda 5 days on, 2 days off - Anyone?
Hi all - Has anyone tried the "Monday - Friday" Xeloda regimen? Essentially you take Xeloda for 5 days and then take 2 days off - repeat two more times for one cycle. So, in 21 days you actually get 15 treatment days instead of 14, but there are 2 respite days between each set of 5 treatment days. (But, there is no entire…
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Metamucil: the new enemy!
Hello! Has anyone tried that metamucil stuff?? I've been having a horrible time with constipation since my takedown. No matter what i eat, and i'm very cautious about what i eat, it turns to paste. The miralax did absolutely nothing, and stool softeners are even less effective. So i decided to give that metamucil garbage a…
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surgery on for tomorrow am, July 15th
old colostomy site, hernia repair went to Rochester this morning- 2 hours to get there, 2 hours to get home. For all of a 10 min appointment. Have to do the golite prep tonight, funny how for some reason I thought I was going to get to avoid that this time.... won't find out the time of surgery till after 8 tonight, but…
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Surgery NEVER possible
Hey Everybody, I just returned from M.D.Anderson today after going thru port placement and 2 chemo treatments. I guess the most important issue there was a second opinion. They agreed with Onc here.... My liver and lung mets are not now... nor will they ever be operable. I cannot have a surgery that requires me to be…
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Xeloda
Hi Everyone! I recently started Xeloda and I am now having pains in my feet and hands, I was told one side effect is dry feet and palms of hands, they are more sore than dry. Is anyone else having this side effect! If so, what are you doing about it? It is very sore to walk and to close my hands. Thanks! Karyn
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lawsuit
I am 7 months into what looks like will be about a 2 year process, suing the doctor and clinic for not meeting the standard of care, ie documented history of 8 years of colon issues, family history of colon cancer and so forth. The gold standard of care is a colonoscopy and it was never mentioned. Oh, everything else was…
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Husband starts chemo on Monday - scared
Hi everyone, My husband will be starting chemo on Monday and I am concerned about him being strong enough. He lost 32 lbs in one month and has only gained about 9 back. I know they want to get started because he has so many spots on his liver, and they want to get it under control, but doesn't this drastic weight loss put…
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HATE Insurance Companies
Mom's insurance company refused to pay for an even halfway decent rehabilitation facility, so we decided to just go home. She came home Friday, and so far is doing great. Home health comes out to do the wound vac changes. She has 2 drains left, but neither seem to really be draining, so we're hoping she's finally healing!…