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I'm Peggy
had a complete colectomy, temporary illeostomy, waiting on reversal. Anybody have problems with loss of kidney function post surgery?
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very severe liver/abdominal pain....i don't know what to do!
MY mom just had as she explained it the worse pain she had so far with her liver a few hrs ago, she normally is now taking some vicodin every few hrs to sustain the pain, but even though the bottle states 1 to 2 tablets of it every 4 hrs, she is super hesitant to start taking the meds till maybe after 6-10 hrs or if she…
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UPDATE: Chest Surgeon Visit Went Badly
Hi, Gang It looks a little slow out on the "newsroom" today, so I thought I would post a follow-up on what happened when I had my appointment with the chest surgeon this week. To begin with, they bungled my appointment in a big way. We each took a half day off with no pay to be there for one thing. When we got in, a series…
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too long of a "chemo in-between breaks"? so far its been 3 weeks without any chemo
Just want to ask out there, since my mom's onc wanted to meet after 5 chemo (he pretty much explained chemo wasnt working on the liver mets and will need to use another drug), on the 20th of July, he asked us to call him to double check the status of things....and see what the new "schedule" is or option to take on my…
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C Diff Colitis
History-Stage 3 rectal cancer, surgery 5/08, Folfox chemo thru 11/08, illeostomy take down 12/08. Was just diagnosed with C Diff on Tuesday by my surgeon after a sigmoid flex scope thingie. First time one of those hurt so bad I almost screamed. They are usually a breeze IMO. My guts hurt like hell and I have diarreha so…
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eric38
This relates to your prior post about being worse than you had hoped. There have been some interesting things pop up in just the last month or two. When conventional therapy stops working, we should qualify for 2-3 very promising new trials that started this month or last. Check them out. I think you will qualify for 2 of…
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LUMP UPDATE
As I posted before I found a lump above my belly button. Well found out today its a hernia..Need to have it repaired right away..Also I will have my gallbladder out at the same time..In to much pain to let it go anymore..I just HATE the thought of having surgery (it will have to be open surgery) and being in the hospital…
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accidents during those intimate times
Anybody got any suggestions on how to deal with accidents during intimacy. It seems like everytime I try to be intimate with my husband I end up having to stop it due to accidents, I have the bag, but also have bowel function... I end up in the bathroom crying, he says its ok and not to worry, but I feel like I cant…
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Xeloda 5 days on, 2 days off - Anyone?
Hi all - Has anyone tried the "Monday - Friday" Xeloda regimen? Essentially you take Xeloda for 5 days and then take 2 days off - repeat two more times for one cycle. So, in 21 days you actually get 15 treatment days instead of 14, but there are 2 respite days between each set of 5 treatment days. (But, there is no entire…
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Metamucil: the new enemy!
Hello! Has anyone tried that metamucil stuff?? I've been having a horrible time with constipation since my takedown. No matter what i eat, and i'm very cautious about what i eat, it turns to paste. The miralax did absolutely nothing, and stool softeners are even less effective. So i decided to give that metamucil garbage a…
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surgery on for tomorrow am, July 15th
old colostomy site, hernia repair went to Rochester this morning- 2 hours to get there, 2 hours to get home. For all of a 10 min appointment. Have to do the golite prep tonight, funny how for some reason I thought I was going to get to avoid that this time.... won't find out the time of surgery till after 8 tonight, but…
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Surgery NEVER possible
Hey Everybody, I just returned from M.D.Anderson today after going thru port placement and 2 chemo treatments. I guess the most important issue there was a second opinion. They agreed with Onc here.... My liver and lung mets are not now... nor will they ever be operable. I cannot have a surgery that requires me to be…
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Xeloda
Hi Everyone! I recently started Xeloda and I am now having pains in my feet and hands, I was told one side effect is dry feet and palms of hands, they are more sore than dry. Is anyone else having this side effect! If so, what are you doing about it? It is very sore to walk and to close my hands. Thanks! Karyn
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lawsuit
I am 7 months into what looks like will be about a 2 year process, suing the doctor and clinic for not meeting the standard of care, ie documented history of 8 years of colon issues, family history of colon cancer and so forth. The gold standard of care is a colonoscopy and it was never mentioned. Oh, everything else was…
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Husband starts chemo on Monday - scared
Hi everyone, My husband will be starting chemo on Monday and I am concerned about him being strong enough. He lost 32 lbs in one month and has only gained about 9 back. I know they want to get started because he has so many spots on his liver, and they want to get it under control, but doesn't this drastic weight loss put…
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HATE Insurance Companies
Mom's insurance company refused to pay for an even halfway decent rehabilitation facility, so we decided to just go home. She came home Friday, and so far is doing great. Home health comes out to do the wound vac changes. She has 2 drains left, but neither seem to really be draining, so we're hoping she's finally healing!…
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They are thinking of building a theme park....
LOL! Last night my beau and I went to a friend's house for a visit on our bikes. Now, to set the stage, my bike was Hans' mother's bike, and the light was just as old... We all had a glass of wine, and sat by the fire outside in the garden. Well, it got to be 11pm, and just had gotten dark. So, we set off for home, me in…
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I'm NED!
Thank all of you for your prayers and support. In Nov. I had my colon resection, and then last month took the second of two PET scans and I just heard from the ONC that no cancer showed for a second time and that I'm NED. Yippee! Since I refuse to dance naked alone, how about a Happy Naked Conga Line. Never mind! Now that…
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Update
My husband had colorectal cancer with colostomy surgery 9/06..followed by 2 plus years of chemo. In Feb at Vandy he had 4% of his right lung removed and they got all the cancer there. Then on April 30 he had 75% of his right liver removed. His CEA on 6/7/09 was 226.1 the doctor was pleased it had gone down from the above…
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Fired my Dr today
As you all know I was referred to my Onocologist about my hip pain. They did some blood work and my liver count was up, how high I don't know they never would tell me. The Dr wanted a scan ugently, like right now of my liver. His nurse refused to schedule the scan as I don't have my new insurance card in my hand, (will…
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post chemo body
I have issues with sweating and BO- sweating when nobody else is, runs in my eyes and burns, end up moping my face all day long with my tshirt. BO- by the end of the day smells like a gym locker room. Use a deodorant soap and Mitchem BO killer, shower daily. Complained to my oncologist that 6 months after completing chemo…
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Friday Riddle Answer
grandma2selena is this week's winner :) :) !!!!!!!!!!!!!!!!!!!! RIDDLE: If measured from the center of the planet, which mountain on Earth is the highest? ANSWER: Mount Chimborazo, in Ecuador. Everest is the highest above sea level, but because of the way the Earth bulges at the center, Chimborazo (6010 meters, or 20,600…
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H. Lee Moffitt Cancer and Research Institute
Does anyone have any experience with H. Lee Moffitt Cancer and Research Institute, which appears to be the only comprehensive cancer center in Florida?
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Question about scan results...
This sounds like a dumb question, but how do most of you receive your PET/CT scan results? Is it mostly phone consultations or face-to-face? What about those of you who go out-of-state for treatment? I've had 2 scans previously and my ONC always called me the same day with the report. Today, I, as usual, called and left a…
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LUMP
I just discovered a semi hard lump above my belly button..I am thinking it is scar tissue but don't know for sure..Has anyone else have had this problem???? I do get shooting pain in that area sometimes...I have an appointment with my oncol on the 21st. So I was just wondering if I should go sooner or can it wait..I am…
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2nd Opinion Finally Arrived - The Verdict Is In - VATS
Good morning Semis: I hope everyone had a nice holiday. Since before joining the board on June 9th, I've been waiting for the doctors at UTSW to review my medical history for a 2nd opinion and come back with their opinion and what they think the next course of action should be. And the verdict is...VATS. The definition of…
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Is this normal after one round of chemo?
I am doing 8 rounds of Folfox 6 + Avastin to make sure my surgeries got all the cancer. I did my first round last week and went in today to get my bloodwork done. I will go in each week for that. Well my white blood count is already low! They said 'overall' it was okay but I am low on the white count so make sure I wash my…
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Elevated liver enzymes.
Hi everyone. During my resection, I was told my liver looked great. 6 wks later had labs drawn before restarting chemo, an my liver enzymes were elvated. The doc wanted to do a CT right away, which ended up being clear. I don't know why the sudden elevation in these labs. Can anyone offer any info on this. Thanks.
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port? CEA Marker? other things we might hear?
Hello everyone - Just in the few short weeks I have had to learn this stuff I have come to depend on being here as part of my routine....thank you. Obviously with my dh's new dx I am hearing all sorts of terms I think I understand and then I don't. Help? What is a port and what is it for? DH had a CEA Marker Test and it…
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irinotecan/CPT11/Folfiri side effects
Hi All, Does Irinotecan (= CPT-11, or Folfiri when with 5FU) have any particular side effects? (aside from "the usual" ie fatigue, nausea, diarrhea, low white blood counts)? I've been on may other chemo "cocktails" (5FU, FOLFOX +/- Avastin, Xeloda). I know all too well the side effects of oxaliplatin. Anything…