got scan report today
lisa42
Member Posts: 3,625 Member
I went to the records room and got my PET/CT scan report today. As I had mentioned as an update on my other post, I left the scan yesterday with a CD in hand, and I did look at it last night. The same old lit up spots were still visible on my lungs, liver. I couldn't tell about the rectal tumor (which showed as a recurrence in Feb.)
Anyhow, today the written report is basically calling everything stable. "Compared to most recent exam dated 2/10/10, there has been little interval change." It goes on to give details. Basically, there is no change in size at all in any of the "innumerable pulmonary nodules or hepatic nodules". Uptake slightly decreased in the lungs and slightly increased in the liver. Weird thing was that the report didn't even mention my rectal tumor. I'm assuming it must be stable too, as the last sentence in the findings part of the report states "Remainder of examination is stable." I was actually a bit disappointed last night, but I know stable is good, and I probably need to give the chemo more time to work. My onc had said before that he'll consider adding the Avastin back in, so maybe that will happen now. I'm also going to discuss w/ him switching from the 5FU pump to Xeloda. I was originally going to take the Xeloda, but took the 5FU pump just to get insurance to cover part of the cost. Since they ended up covering it after all, I don't see why I can't switch to Xeloda now. I'm a little nervous about the Avastin- nose bleeds and blood pressure issues again, which is why my onc didn't already put me back on it, but maybe it's something I should do again.
Anyhow- I'm doing well emotionally today- I am so grateful that in the almost 3 yrs since dx, God has kept me so strong physically, emotionally, and spiritually, and that I've really never had any complications or pain from the cancer. So, I will have a good mother's day weekend. I wish the same to all of you mothers out there!
Love ya,
Lisa
Anyhow, today the written report is basically calling everything stable. "Compared to most recent exam dated 2/10/10, there has been little interval change." It goes on to give details. Basically, there is no change in size at all in any of the "innumerable pulmonary nodules or hepatic nodules". Uptake slightly decreased in the lungs and slightly increased in the liver. Weird thing was that the report didn't even mention my rectal tumor. I'm assuming it must be stable too, as the last sentence in the findings part of the report states "Remainder of examination is stable." I was actually a bit disappointed last night, but I know stable is good, and I probably need to give the chemo more time to work. My onc had said before that he'll consider adding the Avastin back in, so maybe that will happen now. I'm also going to discuss w/ him switching from the 5FU pump to Xeloda. I was originally going to take the Xeloda, but took the 5FU pump just to get insurance to cover part of the cost. Since they ended up covering it after all, I don't see why I can't switch to Xeloda now. I'm a little nervous about the Avastin- nose bleeds and blood pressure issues again, which is why my onc didn't already put me back on it, but maybe it's something I should do again.
Anyhow- I'm doing well emotionally today- I am so grateful that in the almost 3 yrs since dx, God has kept me so strong physically, emotionally, and spiritually, and that I've really never had any complications or pain from the cancer. So, I will have a good mother's day weekend. I wish the same to all of you mothers out there!
Love ya,
Lisa
0
Comments
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Stable is good
Lisa...I have been thinking about you and wanted to tell you that I'm happy you got a stable report.Maybe the next scan will show improvement. Like you said, you were off chemo for a time fighting to get insurance to cover your meds so hopefully by the time you have another scan some of the spots will have disappeared.
Have a wonderful Mother's Day Lisa.
-Pat0 -
Not exactlyC Dixon said:I have been thinking of you too...
and watching the board for your update. Stable is good...not perfect but good. I am happy for you tonight and pleased you will have a good Mother's Day.
Blessings,
Catherine
Lisa,
Not exactly what we had hoped and prayed for but all in all not too bad. Your fighting spirit will keep you going. I celebrate each additional Mother's Day i'm given...you do the same and have a wonderful day with your kids.
Smiles,
Dawn0 -
Scans
Lisa, I know you were disappointed to be "stable", but remember, you have been busy fighting the injustice of the insurance world, not just.....this blasted cancer. So, you won that crazy battle and now you can rest a little and put your energy into fighting for you! You are one tough lady and I appreciate your sharing! I admire your courage and hope that I can fight as hard as you!! Keep it up. Jean0 -
Xeloda
Sorry about your report being not as good as you hoped but stable isn't terible either. I took 15 weeks of Xeloda and don't let the pills fool you, it is strong meds with some bad side effects. If you get on the pills just some ideas. If you get the hand and foot syndrome. keep your feet and hands heavily lubed up (bag balm for city folk but farmers know it as utter cream). You need socks all the time and I wore light cloth gloves 24-7. I had seven pair so the bag balm could stay on all the time. I also understand that if you take vitamain B6 and B12 before you start Xeloda it may help but I read about this and did not take the vitamins. The pills when you take them by week six I was having trouble just shallowing them from the smell of the pills. Nuts I know but I was careful to have something more pleasant like a candle at dose time. It helped to get the pills down. If you hands get touch sensitive due to pain and you want to type on a keyboard I let my nails grow out (hidden by the gloves anyway) and I used the nails not the fingertips to type. It worked well. Happy Mother's Day it looks like you have a great family from the picture. Lou0 -
Lisatootsie1 said:Pretty good!
That all sounds pretty good to me! Stable is WAY better than a big step backward. I'll be praying for even better results the next time.
*hugs*
Gail
Thanks for posting ! I
Lisa
Thanks for posting ! I look for you posts. They offer me so much information.
I agree that stable is good and I am praying for even better results the next time.
Happy Mother's Day
Brenda0 -
Stable
Yes, stable is good and I'm glad for that. Maybe you do need to give the chemo a little more time to work and shrink those lesions. Adding the Avastin back might be a good thing for you as this could be a good addition to what you are taking. Glad you are doing well emotionally and spiritually, because attitude is a big part of healing and you have done a great job in that respect.
Happy Mothers day to you.
Hugs!
Kim0 -
Lisa
Lisa,
I think stable is good. You have been on my mind and in my prayers so much. I hope you have a good So Cal weekend.
Aloha,
Kathleen0 -
Goodlisa42 said:Thank you
Thank you for the comments, everyone. Every one of you who posted- it means so much to me! You are all on my heart and mind often, too.
Have a blessed weekend, everyone!
Lisa
Hi Lisa -- my fellow scan-tube mate!
OK - it's not the Fantasy results I was hoping for! But, I am happy for you that no increases, and that things are stable. That is good.
I got my results today - not good - but could be worse..... I will post separately....still processing the news!
So, not our Fantasy results. But, as you say - -we are alive! YEARS have gone by....As my oncologist said to me today "you are a survivor" - not just a label/hope, but it is true -- we are still alive and we still have treatment options....
It's gonna be a sweet Mother's Day! For us all....
Love,
Tara0 -
Stable is good!
So happy to see your news posted! Stable is still very good Lisa. Tom had the same trouble with the Avastin but it did work well for him as part of his first round of treatments. BP did increase but was controlled with BP medication and nose bleeds were on and off. I know we have to think about all the other possibilities when on Avastin but we have to do the same with any of the chemo drugs. Happy Mother's Day - do something special with your husband and children - have a wonderful weekend. Celebrate!!!0 -
LisaSundanceh said:Happy Mama's Day
Enjoy your Sunday - it's a special one:)
-Craig
Stable is a step forward in as much as it has not grown and staying the same is wonderful when we are talking about cancer. I was on Xeloda for 7 months and mine spread so I don't recomend it to anyone. If that is the only thing you can do well it is better than nothing but I was very disapointed that mine spread while I was on it. any way I am proud of you and you stay tuff in this battle and next scan will show them going away...0 -
Dear Lisa,you always have a
Dear Lisa,you always have a plan and you always fulfill your plan.I am glad to know it is stable.Happy Mother's day.0 -
LisaFight for my love said:Dear Lisa,you always have a
Dear Lisa,you always have a plan and you always fulfill your plan.I am glad to know it is stable.Happy Mother's day.
Lisa...you are such a fighter and such a planner. Happy Mother's day to you Lisa....thinking of you often
mags0 -
Lisa, I'm also one of thosemaglets said:Lisa
Lisa...you are such a fighter and such a planner. Happy Mother's day to you Lisa....thinking of you often
mags
Lisa, I'm also one of those that look up to you. You're just an amazing woman. Stable is good and I think you're on the right path! Happy Mother's day to you!!0
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