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Dying well.
I know it is not a subject we breach often here on the forum; as the forum is all about surviving and how to survive. But, I just read this article, and it warmed my heart to see so many families and friends, supporting the dying wishes of their loved ones. Of course, I know that for some, the end will not be a calm one,…
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News: Cancer survivors have higher risk of dying of heart disease
Just read this in the news. https://www.bbc.com/news/health-50516536 I say damned if you do, and damned if you don't. Another link on the same subject https://www.bbc.com/news/health-49770429 Tru
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6th chemo today for husband-fear/anxiety
Today is my husbands 6th chemo treatment, yay about half way done. The first 5 treatments have only been with the 5fu and today will be the first with the Oxaliplatin, starting with only 1/2 dose. They have held off due to nerve issues he was currently having. He (we) are petrified to start this new chemo. The last…
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Good news!
Was at Sloan Kettering for scans and appointments this week. Chemo is working. Lung spots shrunk dramatically; belly tumor stayed about the same. 4 more rounds of FolFiri, then we reconsider surgery, followed by maintenance chemo of 5FU + Avastin. Wheeeeeeeee!
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A visit to MD Anderson. A crying Butt.
I am currently en route from a trip number 4 to MD Anderson. All I was hearing chemo for life but during the second visit the doc mentioned potentially a TIL trail and did a blood work to see if I am a match that I was. During the 3rd visit I heard that that they have a couple of varions of the said trail. At that point I…
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Introductions are in order...
Hello Everyone, My name is Anne and I'm 53, female and I was diagnosed in January 2018 with stage 3B rectal cancer. It began by not being able to have a bowel movement. Lots of straining, and some blood. I thought it was from a hemorrhoid that suddenly popped up, so I did the "ah, it's nothing, let's wait and see if it…
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Howdy (Intro and fatigue question)
I don't know if there's a place where everyone does hellos to the group, at least I couldn't find one, so I've started a thread, lol. I'm Mark, 53, with oligometastatic CRC. I was diagnosed in Feb 2019 after a few years of complaining about anemia and chronic diarrhea (I didn't have a PCP). Doctors always seemed to ask me…
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Stage 4 colorectal cancer mets to liver and tiny nodule in lung
Hey All, My mother was recently diagnosed stage 4 colorectal cancer w mets to liver an dtiny nodule in lungs. Was on oxyplatin and avastin and 5fu for about 6 months (2 rounds) and now on maintenance chemo (just 5fu and avastin). Cea was initially 587 prior to treatment and went down to 7.1 and since maintenance chemo of 4…
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Chemo breaks
For those of you on lifetime chemo, is there flexibility as to when you get breaks from chemo. I am really hoping that I could get a month of chemo free time before my next vacation so I have some energy. Just curious how the whole lifetime chemo thing works since my oncologists never want to discuss past next step.
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Hubby is NED again! Was stage 4
Hello all, i think of you all daily. Richard just returned home from MDA for another 3 month checkup. He remains NED at this time. He is becoming more and more of himself each month. A couple of weekends ago he traveled a few hours from home with some old buddies for a friends 40th bday and a football game. He did this…
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Cetuximab
I had the weirdest side effect during infusion with cetuximab - chills. I was trembling so hard I couldn't control my hands. Has anyone else had this happen? I saw that cetuximab had chills as a side-effect but this was beyond anything I expected.
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Bolus
Appereny a bolus infusion of FU 5 can be reduced to 50 percent or dropped all together. There is no evidence that it is makes chemo better. Reduces side effects. Also you ca by your own disconnect the pump at home after 46 hours or request a home care nurse to come and get it done.Just learned it.
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On clinical trails——Dah.......
First, sorry for the lack of paragraphs because I am typing from the mobile.... When a year ago my cancer returned to lungs after a brief remission, I started to look on clinical trails. I found a couple of databases and invested my effort and time looking on those trails. First, I noticed that the vast majority of them…
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Mouth Sore
I finally got the mouth sore side effect. How do you get rid of one? Been rinsing with biotene. Do the antibiotics they give when taking erbutix help? This is very painful.
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KarenMG
Has anyone heard from her. It's been quite sometime since I've seen her post. Any information would be much appreciated. Thanks! Kim
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Well... Been a few years
Hey Fellas, been a couple of years that I stopped by here. Was honestly hoping I wouldn't have to come back but life doesn't go as planned, right ? After 7 years of NED. A little kicked in the butt right now. Anybody have a good translation or words of encouragement ? This showed up on a CT scan recently but not on a PET…
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Remission in Stage IV is long term possible?
Does anyone know how long someone in Stage IV can go into remission? Is there any people that go into remission for years?
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Coping question
How do you deal with the fact while have been fighting this demon for a while, that you may have another year or two left and have to leave behind people whom you truly live and they do need you?
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Neuropathy
Hello, My name is Kristine and I have stage four colon cancer. Does anyone have any ideas or helpful hints onneuropathy?
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I really want to smack this person - fakes cancer for $
Actually I would never hit anyone, but I would be hard pressed not to use some really bad words. https://www.nbcphiladelphia.com/news/local/GoFundMe-Facebook-Donations-Scam-Allegations-Cancer-Lie-Fake-Chester-County-Pennsylvania-Uwchlan-Township-564376041.html
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Any tips to beat fatigue
When I first started irinitecan /erbutix, I felt like the fatigue was not as bad as on folfox. But now I am just exhausted! At first I was doing that trial for the cream that took a lot of time. Then I took a vacation, which was very active, then got back and went upstate to visit family. I am hoping it is just the…
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Question on a procedure
I have dozens of mets in my lungs. Despite chemo, they are increasing. Did anyone have SBRT or gamma knife done on just a few big ones when the rest were left behind? Butt.
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a virus that kills all cancer types in mice
an Australian company have made a virus that kills all cancer types in mice. The treatment is called is called CF33. Trials are starting next year. Here is a link. https://www.news.com.au/national/human-trials-to-begin-next-year-using-a-virus-to-kill-cancer/news-story/f38cd02d2652a2ff3ae90a51b4893423
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Ostomy supplies..
Hi everyone, Right now I have 6 boxes of wafers and 2 boxes of the corresponding pouches, they are the kind that require the clip. I also have clips, a box of barrier wipes and a box of adhesive remover wipes. I switched to a different company, and the pouches I'm using are the kind with the velcro thing for the closure.…
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Concerning
i had a right hemi removing 12“ of colon stage 2a diagnosis in May of 18, colonoscopy in May of 19 they removed small polyp (4mm) was benign everything else clear. Red blood on toilet paper today but not in bowel or on stool. My report did indicate internal hemoraids. I have not had any irration and have been feeling good.…
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Immunotherapy side effects
I signed a paper yesterday to get tested to see if I am a fit for a clinical trial that has a chemo drug and an immunotherapy drug. There is that possiblility with immunotherapy, very rare, but still there, of it causing your immune system to attack your organs. For those of you who have taken immunotherapy, how do you…
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Scan Questions
For my lung scan two were unchanged, one increased by .2 cm. The liver one shrunk by half. Is there ANY possibilty that maybe some of the cells are just dead but still occupying space? I know I am grasping at straws, and that it could have been much worse. I was really expecting/hoping for shrinkage and definitely not…
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FIT and Cologuard: Conflicting Results - CT Colonography Results
Hi! It was suggested that I start a new thread on this topic so that my post would not be lost. So glad I found this discussion board. History: I have had several bouts of IBS iover my adult life. Typical symtoms - bloating, occassional cramping, sometimes diarrhea and sometimes constipation, 'noisy' GI tract, etc. but…
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Happy Birthday Kazenmax
Let's par-tay! I hope you have a splendid day, filled with all the joys that life can bring. Happy Day! Tru
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Folfox - not sure what to expect
Hello Everyone, as I've stated, I am new to this process. I will be starting the treatments on Tuesday and as of yet I have not received any teaching so I really don't know what to expect. I was told that I will have to have twelve treatments of Folfox and these treatments will include a five hour session and I will have…