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Colorectal Cancer

After affects of Chemo
My husband just started his chemo, has only had one round so far, was suppose to go in today but his labs wouldn't allow. He is only doing the 5fu right now due to some neuropathy he developed after his surgery. He may do the oxiliplatin but my husband is very unsure if he wants to do it. I have been hearing about the…
Not Good News
My doctor's nurse returned a call to me today. I have an appointment with him tomorrow at 1 to discuss the CT results but I called today to ask why they weren't posted. She said he tried to get in touch with me Friday. He said the scan showed new spots on my lungs from previous scans and he thinks it is the colon cancer.…
Encouraging 1st CT after Opdivo started!!!
Well it's about time we got a little good news and right before Christmas too! So I am not going to get over elated but.....This is the best news we have received in a very long time! The Lung Met is gone, the Met in the duodenum is gone, the main tumor has shrunk by almost half, the liver mets are mostly shrinking while a…
So Thankful For All Of You...
To know I can come here and alway find a hand to hold is priceless....thank all of you. I am so humbled by the genuine love and concern I "feel" from the members on this board. I wanted to post just to answer some questions I found in the posts you left for me...Two small nodules were noted in June when I had a scan but we…
A Lot To Think About
Today was one I would like to forget. My oncologist told me that I have one 8mm nodule and 4-5 very tiny other nodules. He is pretty certain they are mets, particuarly the large one. Right out of the gate he told me that he thought radiation to zap them with them being scattered over both lobes would cause too much damage…
Liver resection?!
Dear all, May I have some sharing about liver resection? I don't know if that would be good for my mum because she is already 70 years old and she is not as healthy as before (after the colon resection, 3 rounds of chemo). Besides, the oncologist doesn't think this is a good idea! I've heard that liver resection is called…
Signet Ring features?
Hello Everyone.. I am so glad to have found this web site and this community. Last June my husband was diagnosed with Rectal cancer, adenocarcinoma with signet ring, stage 2/3. Everything we found online referencing signet ring was ominous and we've been trying to understand what it means to have signet ring 'features'.…
Work
Happy thanksgiving everyone! I am thankful to be here and I am thankful for this group! My question is about work. I have been out of work throughout my entire cancer experience and treatment. There was no way I would have been able to do my job and manage the treatments. I am currently on long term disability which also…
Getting prepared for sugery possibly on Jan 7, 2020
Getting ready for surgery and want to be prepared as possible. I have questions for my dr so I hopefully won't have any "wake-up suprises" after surgery (APR with permanent colostomy most likely) but know I haven't thought of everything. Any advice on what to ask would be so much appreciated. Also, what are some things…
Just Diagnosed Stage lV lots of liver mets
I am 40yo and was just diagnosed stage 4 with an 8cm tumor in sigmoid colon and approx 15 tumors in my liver. obviously I am not a candidate for surgery anytime soon for my liver Mets. Has anyone on here had numerous liver tumors like me? I am starting chemo in December. They haven't mentioned anything about radiation…
Happy Dance
I went for my CT scan today and won’t meet with my doctor to discuss the results until the 10th..I did get my CEA level back and it was at it’s lowest ever (2.1) I know for some it isn’t a good marker but for me it has been. When I was diagnosed, my CEA was in the 40’s and began to come down with chemo and dropped even…
Beginning radiation for rectal tumor
Hi, I'm beginning radiation along with Xeloda next week and am trying to make a list of things to do proactively to circumvent problems with the radiation and/or chemo. Has anyone that has been through this got any tips or tricks for me? I really believe that I need to be putting a cream or ointment or something on daily…
Need advise.....
In a few days I am supposed to go back to MD Anderson for potential immunotherapy phase 1/2 trail. They need some additional tests in order to be sure I qualify. Two days before that additional testing I meet with a TIL trail doctor. I am not sure if I am qualified or not. My understanding is that if I go with T cell I…
Waiting to Exhale
It is comforting to see the posts from the "support beams" of this community. I sign on and feel like I am peeking from behind a curtain sometimes, hoping if I stay hidden that cancer will never find me again.. I went for my third round of blood work and will have the third CT scan this Thursday. Feels like I am holding my…
Crying for silly reasons
From the time my doctor ordered my drugs until it was ready was 3 and a half hours. Every time I asked beginning at 90 minutes, I was told 15 to 30 minutes. And I got so frustrated I started bawling.
Chem 14 and CBC w/ diff. Need to know more.
I need to know everything there is to know about the tumor I have (characteristics, factors, etc). What are the extra tests that can done to know all about the tumor make-up and behavior?
The Squatty Potty
I always forget to mention in my list of 'Things That Help' The Squatty Potty. The Squatty Potty has helped me just as much as the Bidet post treatment. There is something about raising the legs that helps with elimination. I purchased the tallest version. I see they have allot more options available, than when I purchased…
Any dietary advice please
Hi My mother got diagnosed with Stage 4 colorectal cancer. She’s had surgery to remove the colon lesion and also surgery to remove the solitary metastasis that was found in her lung. We are waiting for her chemo to start. We have been torn with this news. It was all just incidental findings (found on bowel cancer screening…
Leeks?
I was looking up the nutrition for leeks, and saw lots of articles that leeks help fight colon cancer. Have any of you heard about this? And I happen to love leeks, so would eat them a few times a week if it is true.
Dying well.
I know it is not a subject we breach often here on the forum; as the forum is all about surviving and how to survive. But, I just read this article, and it warmed my heart to see so many families and friends, supporting the dying wishes of their loved ones. Of course, I know that for some, the end will not be a calm one,…
News: Cancer survivors have higher risk of dying of heart disease
Just read this in the news. https://www.bbc.com/news/health-50516536 I say damned if you do, and damned if you don't. Another link on the same subject https://www.bbc.com/news/health-49770429 Tru
6th chemo today for husband-fear/anxiety
Today is my husbands 6th chemo treatment, yay about half way done. The first 5 treatments have only been with the 5fu and today will be the first with the Oxaliplatin, starting with only 1/2 dose. They have held off due to nerve issues he was currently having. He (we) are petrified to start this new chemo. The last…
Good news!
Was at Sloan Kettering for scans and appointments this week. Chemo is working. Lung spots shrunk dramatically; belly tumor stayed about the same. 4 more rounds of FolFiri, then we reconsider surgery, followed by maintenance chemo of 5FU + Avastin. Wheeeeeeeee!
A visit to MD Anderson. A crying Butt.
I am currently en route from a trip number 4 to MD Anderson. All I was hearing chemo for life but during the second visit the doc mentioned potentially a TIL trail and did a blood work to see if I am a match that I was. During the 3rd visit I heard that that they have a couple of varions of the said trail. At that point I…
Introductions are in order...
Hello Everyone, My name is Anne and I'm 53, female and I was diagnosed in January 2018 with stage 3B rectal cancer. It began by not being able to have a bowel movement. Lots of straining, and some blood. I thought it was from a hemorrhoid that suddenly popped up, so I did the "ah, it's nothing, let's wait and see if it…
Howdy (Intro and fatigue question)
I don't know if there's a place where everyone does hellos to the group, at least I couldn't find one, so I've started a thread, lol. I'm Mark, 53, with oligometastatic CRC. I was diagnosed in Feb 2019 after a few years of complaining about anemia and chronic diarrhea (I didn't have a PCP). Doctors always seemed to ask me…
Stage 4 colorectal cancer mets to liver and tiny nodule in lung
Hey All, My mother was recently diagnosed stage 4 colorectal cancer w mets to liver an dtiny nodule in lungs. Was on oxyplatin and avastin and 5fu for about 6 months (2 rounds) and now on maintenance chemo (just 5fu and avastin). Cea was initially 587 prior to treatment and went down to 7.1 and since maintenance chemo of 4…
Chemo breaks
For those of you on lifetime chemo, is there flexibility as to when you get breaks from chemo. I am really hoping that I could get a month of chemo free time before my next vacation so I have some energy. Just curious how the whole lifetime chemo thing works since my oncologists never want to discuss past next step.
Hubby is NED again! Was stage 4
Hello all, i think of you all daily. Richard just returned home from MDA for another 3 month checkup. He remains NED at this time. He is becoming more and more of himself each month. A couple of weekends ago he traveled a few hours from home with some old buddies for a friends 40th bday and a football game. He did this…
Cetuximab
I had the weirdest side effect during infusion with cetuximab - chills. I was trembling so hard I couldn't control my hands. Has anyone else had this happen? I saw that cetuximab had chills as a side-effect but this was beyond anything I expected.

Colorectal Cancer

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