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Chemo breaks
For those of you on lifetime chemo, is there flexibility as to when you get breaks from chemo. I am really hoping that I could get a month of chemo free time before my next vacation so I have some energy. Just curious how the whole lifetime chemo thing works since my oncologists never want to discuss past next step.
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Hubby is NED again! Was stage 4
Hello all, i think of you all daily. Richard just returned home from MDA for another 3 month checkup. He remains NED at this time. He is becoming more and more of himself each month. A couple of weekends ago he traveled a few hours from home with some old buddies for a friends 40th bday and a football game. He did this…
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Cetuximab
I had the weirdest side effect during infusion with cetuximab - chills. I was trembling so hard I couldn't control my hands. Has anyone else had this happen? I saw that cetuximab had chills as a side-effect but this was beyond anything I expected.
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Bolus
Appereny a bolus infusion of FU 5 can be reduced to 50 percent or dropped all together. There is no evidence that it is makes chemo better. Reduces side effects. Also you ca by your own disconnect the pump at home after 46 hours or request a home care nurse to come and get it done.Just learned it.
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On clinical trails——Dah.......
First, sorry for the lack of paragraphs because I am typing from the mobile.... When a year ago my cancer returned to lungs after a brief remission, I started to look on clinical trails. I found a couple of databases and invested my effort and time looking on those trails. First, I noticed that the vast majority of them…
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Mouth Sore
I finally got the mouth sore side effect. How do you get rid of one? Been rinsing with biotene. Do the antibiotics they give when taking erbutix help? This is very painful.
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KarenMG
Has anyone heard from her. It's been quite sometime since I've seen her post. Any information would be much appreciated. Thanks! Kim
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Well... Been a few years
Hey Fellas, been a couple of years that I stopped by here. Was honestly hoping I wouldn't have to come back but life doesn't go as planned, right ? After 7 years of NED. A little kicked in the butt right now. Anybody have a good translation or words of encouragement ? This showed up on a CT scan recently but not on a PET…
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Remission in Stage IV is long term possible?
Does anyone know how long someone in Stage IV can go into remission? Is there any people that go into remission for years?
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Coping question
How do you deal with the fact while have been fighting this demon for a while, that you may have another year or two left and have to leave behind people whom you truly live and they do need you?
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Neuropathy
Hello, My name is Kristine and I have stage four colon cancer. Does anyone have any ideas or helpful hints onneuropathy?
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I really want to smack this person - fakes cancer for $
Actually I would never hit anyone, but I would be hard pressed not to use some really bad words. https://www.nbcphiladelphia.com/news/local/GoFundMe-Facebook-Donations-Scam-Allegations-Cancer-Lie-Fake-Chester-County-Pennsylvania-Uwchlan-Township-564376041.html
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Any tips to beat fatigue
When I first started irinitecan /erbutix, I felt like the fatigue was not as bad as on folfox. But now I am just exhausted! At first I was doing that trial for the cream that took a lot of time. Then I took a vacation, which was very active, then got back and went upstate to visit family. I am hoping it is just the…
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Question on a procedure
I have dozens of mets in my lungs. Despite chemo, they are increasing. Did anyone have SBRT or gamma knife done on just a few big ones when the rest were left behind? Butt.
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a virus that kills all cancer types in mice
an Australian company have made a virus that kills all cancer types in mice. The treatment is called is called CF33. Trials are starting next year. Here is a link. https://www.news.com.au/national/human-trials-to-begin-next-year-using-a-virus-to-kill-cancer/news-story/f38cd02d2652a2ff3ae90a51b4893423
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Ostomy supplies..
Hi everyone, Right now I have 6 boxes of wafers and 2 boxes of the corresponding pouches, they are the kind that require the clip. I also have clips, a box of barrier wipes and a box of adhesive remover wipes. I switched to a different company, and the pouches I'm using are the kind with the velcro thing for the closure.…
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Concerning
i had a right hemi removing 12“ of colon stage 2a diagnosis in May of 18, colonoscopy in May of 19 they removed small polyp (4mm) was benign everything else clear. Red blood on toilet paper today but not in bowel or on stool. My report did indicate internal hemoraids. I have not had any irration and have been feeling good.…
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Immunotherapy side effects
I signed a paper yesterday to get tested to see if I am a fit for a clinical trial that has a chemo drug and an immunotherapy drug. There is that possiblility with immunotherapy, very rare, but still there, of it causing your immune system to attack your organs. For those of you who have taken immunotherapy, how do you…
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Scan Questions
For my lung scan two were unchanged, one increased by .2 cm. The liver one shrunk by half. Is there ANY possibilty that maybe some of the cells are just dead but still occupying space? I know I am grasping at straws, and that it could have been much worse. I was really expecting/hoping for shrinkage and definitely not…
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FIT and Cologuard: Conflicting Results - CT Colonography Results
Hi! It was suggested that I start a new thread on this topic so that my post would not be lost. So glad I found this discussion board. History: I have had several bouts of IBS iover my adult life. Typical symtoms - bloating, occassional cramping, sometimes diarrhea and sometimes constipation, 'noisy' GI tract, etc. but…
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Happy Birthday Kazenmax
Let's par-tay! I hope you have a splendid day, filled with all the joys that life can bring. Happy Day! Tru
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Folfox - not sure what to expect
Hello Everyone, as I've stated, I am new to this process. I will be starting the treatments on Tuesday and as of yet I have not received any teaching so I really don't know what to expect. I was told that I will have to have twelve treatments of Folfox and these treatments will include a five hour session and I will have…
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Clinical Trial
After 6 months of NED after right hemi-colectomy, liver resection and SBRT as well as 12 rounds of chemo (6-folfox, 6-folfiri) a new met has shown up in my liver. My oncologist has suggested a clinical trial that he is part of at UTSW that is using cetuximab with durvalumab w/without monalizumab. Sounds like it's all…
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When are you considered a survivor?
I go for my first scan since surgery tomorrow, and I've been thinking a lot about this lately. I shy away from the term "survivor" because I don't feel I've met that goal yet. I'm interested in know what all of YOU think the term survivor means. Anne
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Exhausted!
Had my 10th erbutix/irinotecan infusion Tues, and cannot get enough sleep and rest. I am so exhausted. I wonder if the fatigue is cumulative, or if it is because my flight back from my reunion was 12 hours before my infusion Tuesday and the combo of fatigue from vacation is making this rounds fatigue worse.
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NED!!!
Another Ned for Sandy.....yippeeeeeeee! 3 1/2 years now. I'm so thankful for finding this site it's helped me so much along the way.
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Hope for Neuropathy?
I came accross this article in abstract form only that may provide some hope for those with neuropathy (please note that this appears to be a very preliminary mouse study): Oxaliplatin is a cornerstone chemotherapeutic used in the treatment of colorectal cancer, the third leading cause of death in Western countries. Most…
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Lonsurf costs and is it worth it?
The doctor wants to put my mom on Lonsurf but it is apparently around $12,000 per month? Not sure if Medicare or the drug company will cover any of it, she is going to see about completing paperwork tomorrow. How much are most people paying for it? Second, is it even worth it? I saw studies only showed an extra 2 months of…
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Happy Birthday, Cinda
Happy Birthday for tomorrow, 21st. I will be heading off to the airport early, and did not want to miss your celebration. I hope you have a wonderful day, filled with love and light, family and good food. This will be me tomorrow, celebrating you as I fly high through the sky. Tru
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is there anything else we can do?
I'm afraid my mother is reaching the end stage 4 with mets in liver/lungs since September 2017, we tried everything we could (Folfox, Folfiri, avastin, lonsurf) - nothing worked for long, now off chemo for a couple of months as we have run out of options. She has been hospitalised quite a few times over the last month, now…