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Happy Dance
I went for my CT scan today and won’t meet with my doctor to discuss the results until the 10th..I did get my CEA level back and it was at it’s lowest ever (2.1) I know for some it isn’t a good marker but for me it has been. When I was diagnosed, my CEA was in the 40’s and began to come down with chemo and dropped even…
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Beginning radiation for rectal tumor
Hi, I'm beginning radiation along with Xeloda next week and am trying to make a list of things to do proactively to circumvent problems with the radiation and/or chemo. Has anyone that has been through this got any tips or tricks for me? I really believe that I need to be putting a cream or ointment or something on daily…
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Need advise.....
In a few days I am supposed to go back to MD Anderson for potential immunotherapy phase 1/2 trail. They need some additional tests in order to be sure I qualify. Two days before that additional testing I meet with a TIL trail doctor. I am not sure if I am qualified or not. My understanding is that if I go with T cell I…
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Waiting to Exhale
It is comforting to see the posts from the "support beams" of this community. I sign on and feel like I am peeking from behind a curtain sometimes, hoping if I stay hidden that cancer will never find me again.. I went for my third round of blood work and will have the third CT scan this Thursday. Feels like I am holding my…
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Crying for silly reasons
From the time my doctor ordered my drugs until it was ready was 3 and a half hours. Every time I asked beginning at 90 minutes, I was told 15 to 30 minutes. And I got so frustrated I started bawling.
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Chem 14 and CBC w/ diff. Need to know more.
I need to know everything there is to know about the tumor I have (characteristics, factors, etc). What are the extra tests that can done to know all about the tumor make-up and behavior?
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The Squatty Potty
I always forget to mention in my list of 'Things That Help' The Squatty Potty. The Squatty Potty has helped me just as much as the Bidet post treatment. There is something about raising the legs that helps with elimination. I purchased the tallest version. I see they have allot more options available, than when I purchased…
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Any dietary advice please
Hi My mother got diagnosed with Stage 4 colorectal cancer. She’s had surgery to remove the colon lesion and also surgery to remove the solitary metastasis that was found in her lung. We are waiting for her chemo to start. We have been torn with this news. It was all just incidental findings (found on bowel cancer screening…
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Leeks?
I was looking up the nutrition for leeks, and saw lots of articles that leeks help fight colon cancer. Have any of you heard about this? And I happen to love leeks, so would eat them a few times a week if it is true.
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Dying well.
I know it is not a subject we breach often here on the forum; as the forum is all about surviving and how to survive. But, I just read this article, and it warmed my heart to see so many families and friends, supporting the dying wishes of their loved ones. Of course, I know that for some, the end will not be a calm one,…
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News: Cancer survivors have higher risk of dying of heart disease
Just read this in the news. https://www.bbc.com/news/health-50516536 I say damned if you do, and damned if you don't. Another link on the same subject https://www.bbc.com/news/health-49770429 Tru
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6th chemo today for husband-fear/anxiety
Today is my husbands 6th chemo treatment, yay about half way done. The first 5 treatments have only been with the 5fu and today will be the first with the Oxaliplatin, starting with only 1/2 dose. They have held off due to nerve issues he was currently having. He (we) are petrified to start this new chemo. The last…
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Good news!
Was at Sloan Kettering for scans and appointments this week. Chemo is working. Lung spots shrunk dramatically; belly tumor stayed about the same. 4 more rounds of FolFiri, then we reconsider surgery, followed by maintenance chemo of 5FU + Avastin. Wheeeeeeeee!
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A visit to MD Anderson. A crying Butt.
I am currently en route from a trip number 4 to MD Anderson. All I was hearing chemo for life but during the second visit the doc mentioned potentially a TIL trail and did a blood work to see if I am a match that I was. During the 3rd visit I heard that that they have a couple of varions of the said trail. At that point I…
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Introductions are in order...
Hello Everyone, My name is Anne and I'm 53, female and I was diagnosed in January 2018 with stage 3B rectal cancer. It began by not being able to have a bowel movement. Lots of straining, and some blood. I thought it was from a hemorrhoid that suddenly popped up, so I did the "ah, it's nothing, let's wait and see if it…
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Howdy (Intro and fatigue question)
I don't know if there's a place where everyone does hellos to the group, at least I couldn't find one, so I've started a thread, lol. I'm Mark, 53, with oligometastatic CRC. I was diagnosed in Feb 2019 after a few years of complaining about anemia and chronic diarrhea (I didn't have a PCP). Doctors always seemed to ask me…
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Stage 4 colorectal cancer mets to liver and tiny nodule in lung
Hey All, My mother was recently diagnosed stage 4 colorectal cancer w mets to liver an dtiny nodule in lungs. Was on oxyplatin and avastin and 5fu for about 6 months (2 rounds) and now on maintenance chemo (just 5fu and avastin). Cea was initially 587 prior to treatment and went down to 7.1 and since maintenance chemo of 4…
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Chemo breaks
For those of you on lifetime chemo, is there flexibility as to when you get breaks from chemo. I am really hoping that I could get a month of chemo free time before my next vacation so I have some energy. Just curious how the whole lifetime chemo thing works since my oncologists never want to discuss past next step.
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Hubby is NED again! Was stage 4
Hello all, i think of you all daily. Richard just returned home from MDA for another 3 month checkup. He remains NED at this time. He is becoming more and more of himself each month. A couple of weekends ago he traveled a few hours from home with some old buddies for a friends 40th bday and a football game. He did this…
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Cetuximab
I had the weirdest side effect during infusion with cetuximab - chills. I was trembling so hard I couldn't control my hands. Has anyone else had this happen? I saw that cetuximab had chills as a side-effect but this was beyond anything I expected.
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Bolus
Appereny a bolus infusion of FU 5 can be reduced to 50 percent or dropped all together. There is no evidence that it is makes chemo better. Reduces side effects. Also you ca by your own disconnect the pump at home after 46 hours or request a home care nurse to come and get it done.Just learned it.
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On clinical trails——Dah.......
First, sorry for the lack of paragraphs because I am typing from the mobile.... When a year ago my cancer returned to lungs after a brief remission, I started to look on clinical trails. I found a couple of databases and invested my effort and time looking on those trails. First, I noticed that the vast majority of them…
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Mouth Sore
I finally got the mouth sore side effect. How do you get rid of one? Been rinsing with biotene. Do the antibiotics they give when taking erbutix help? This is very painful.
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KarenMG
Has anyone heard from her. It's been quite sometime since I've seen her post. Any information would be much appreciated. Thanks! Kim
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Well... Been a few years
Hey Fellas, been a couple of years that I stopped by here. Was honestly hoping I wouldn't have to come back but life doesn't go as planned, right ? After 7 years of NED. A little kicked in the butt right now. Anybody have a good translation or words of encouragement ? This showed up on a CT scan recently but not on a PET…
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Remission in Stage IV is long term possible?
Does anyone know how long someone in Stage IV can go into remission? Is there any people that go into remission for years?
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Coping question
How do you deal with the fact while have been fighting this demon for a while, that you may have another year or two left and have to leave behind people whom you truly live and they do need you?
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Neuropathy
Hello, My name is Kristine and I have stage four colon cancer. Does anyone have any ideas or helpful hints onneuropathy?
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I really want to smack this person - fakes cancer for $
Actually I would never hit anyone, but I would be hard pressed not to use some really bad words. https://www.nbcphiladelphia.com/news/local/GoFundMe-Facebook-Donations-Scam-Allegations-Cancer-Lie-Fake-Chester-County-Pennsylvania-Uwchlan-Township-564376041.html
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Any tips to beat fatigue
When I first started irinitecan /erbutix, I felt like the fatigue was not as bad as on folfox. But now I am just exhausted! At first I was doing that trial for the cream that took a lot of time. Then I took a vacation, which was very active, then got back and went upstate to visit family. I am hoping it is just the…