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Colorectal Cancer

Things "WE" Don't Talk About With Most
I am posting this because I have had several members contact me about "no chemo for life" stance thru email. I am very open and straight-forward and in no way want to impose my own decisions into someone else's. I respect each of you and the turns you have to make to navigate this crazy beautiful thing called "life". This…
Happy Birthday Melanie67 for the 17th
Just flying by with a Birthday greeting. I hope you have THE most wonderful day; filled with all the love and laughter that your soul needs. Tru
chemo cost
Just opened todays mail. Insurance was billed a little over $30,000 for 5FU for month of Oct. They got a break of a little over $7,000 and paid $22,000+. WOW! I am shocked and SO BLESSED to have insurance.
Newly diagnosed - need advice
Hi I was diagnosed few weeks ago 7cm in cecum with extended local nodes and possibly lynch syndrone. Surgery for right hemicolectomy and hysterectomy scheduled for Dec 3rd - waiting for genetic Lynch testing results to see how much to take. Looking for advice on how to deal with surgery recovery what should take for…
Good News/Bad News - CHEMO DONE!!! Chemo Not Working
The good news is I am done with FOLFORI The bad nes is I am done with FOLFORI K-rap. What I thought was happening last scan has happened. It stopped working. More mets and the bad boys have started growing again, one pushing 6 cM. Yay. Looking for trials now and then at other possible chemos if there is no trial or the…
Folfox chemo before APR surgery?
Hello I am new to this forum but have been reading a lot on here as my husband who is 60 years old found out in July he has Stage 3a rectal cancer. He had the 5 weeks of chemo radiation and added a few more radiation days to try to eliminate the cancer. Unfortunately the tumor shrank a lot but it's still there. The surgeon…
Lung Mets/Time
I am trying to gather as much info as possible to make descisions to come. I am waiting for my referral appointment back to MUSC in Charleston and thinking a million things at once. Does anyone have information to share on the growth rate of colon mets to the lung without treament? I know everyone is different but any info…
Another CEA jump.
A while back I posted up a thread outlining my CEA craziness. Because the search function majorly sucks for this site, here'sa quick summary. My CEA has been abnormal for close to 3 years now. For the past two years, my CEA has bounced around from 11 to 20. Every CEA test was accompanied by a CT scan which showed nothing.…
11 Years Ago
11 Years ago, the day before Thanksgiving, I'd gone in for a colonoscopy because of rectal bleeding. Well, long story short, it was the dreaded C word. I've been through a lot and still am but I'm here 11 years later. This group has helped me so much in everything that I've gone through and some of it wasn't even cancer…
vitamin c iv and mistletoe
I am 36 years old and was diagnosed with stage iv cc in aprilmof this year i had a colon resection and liver resction. I finally startedfolfox6 last week. I recently consulted with a natriopathic oncologist about anything I can do in addition to chemo. She has recommended some supplements as well as mistletoe injections…
Pushing For MY Life & Not Waiting
After crying a while and thinking of all the what if's, I picked up the phone and called MUSC where I had my liver and colon surgery. My liver surgeon's nurse called me back, heard me out and gave me something I needed...a plan and HOPE without waiting. The tumor board meets every Tuesday to go over cases and make plans of…
After affects of Chemo
My husband just started his chemo, has only had one round so far, was suppose to go in today but his labs wouldn't allow. He is only doing the 5fu right now due to some neuropathy he developed after his surgery. He may do the oxiliplatin but my husband is very unsure if he wants to do it. I have been hearing about the…
Not Good News
My doctor's nurse returned a call to me today. I have an appointment with him tomorrow at 1 to discuss the CT results but I called today to ask why they weren't posted. She said he tried to get in touch with me Friday. He said the scan showed new spots on my lungs from previous scans and he thinks it is the colon cancer.…
Encouraging 1st CT after Opdivo started!!!
Well it's about time we got a little good news and right before Christmas too! So I am not going to get over elated but.....This is the best news we have received in a very long time! The Lung Met is gone, the Met in the duodenum is gone, the main tumor has shrunk by almost half, the liver mets are mostly shrinking while a…
So Thankful For All Of You...
To know I can come here and alway find a hand to hold is priceless....thank all of you. I am so humbled by the genuine love and concern I "feel" from the members on this board. I wanted to post just to answer some questions I found in the posts you left for me...Two small nodules were noted in June when I had a scan but we…
A Lot To Think About
Today was one I would like to forget. My oncologist told me that I have one 8mm nodule and 4-5 very tiny other nodules. He is pretty certain they are mets, particuarly the large one. Right out of the gate he told me that he thought radiation to zap them with them being scattered over both lobes would cause too much damage…
Liver resection?!
Dear all, May I have some sharing about liver resection? I don't know if that would be good for my mum because she is already 70 years old and she is not as healthy as before (after the colon resection, 3 rounds of chemo). Besides, the oncologist doesn't think this is a good idea! I've heard that liver resection is called…
Signet Ring features?
Hello Everyone.. I am so glad to have found this web site and this community. Last June my husband was diagnosed with Rectal cancer, adenocarcinoma with signet ring, stage 2/3. Everything we found online referencing signet ring was ominous and we've been trying to understand what it means to have signet ring 'features'.…
Work
Happy thanksgiving everyone! I am thankful to be here and I am thankful for this group! My question is about work. I have been out of work throughout my entire cancer experience and treatment. There was no way I would have been able to do my job and manage the treatments. I am currently on long term disability which also…
Getting prepared for sugery possibly on Jan 7, 2020
Getting ready for surgery and want to be prepared as possible. I have questions for my dr so I hopefully won't have any "wake-up suprises" after surgery (APR with permanent colostomy most likely) but know I haven't thought of everything. Any advice on what to ask would be so much appreciated. Also, what are some things…
Just Diagnosed Stage lV lots of liver mets
I am 40yo and was just diagnosed stage 4 with an 8cm tumor in sigmoid colon and approx 15 tumors in my liver. obviously I am not a candidate for surgery anytime soon for my liver Mets. Has anyone on here had numerous liver tumors like me? I am starting chemo in December. They haven't mentioned anything about radiation…
Happy Dance
I went for my CT scan today and won’t meet with my doctor to discuss the results until the 10th..I did get my CEA level back and it was at it’s lowest ever (2.1) I know for some it isn’t a good marker but for me it has been. When I was diagnosed, my CEA was in the 40’s and began to come down with chemo and dropped even…
Beginning radiation for rectal tumor
Hi, I'm beginning radiation along with Xeloda next week and am trying to make a list of things to do proactively to circumvent problems with the radiation and/or chemo. Has anyone that has been through this got any tips or tricks for me? I really believe that I need to be putting a cream or ointment or something on daily…
Need advise.....
In a few days I am supposed to go back to MD Anderson for potential immunotherapy phase 1/2 trail. They need some additional tests in order to be sure I qualify. Two days before that additional testing I meet with a TIL trail doctor. I am not sure if I am qualified or not. My understanding is that if I go with T cell I…
Waiting to Exhale
It is comforting to see the posts from the "support beams" of this community. I sign on and feel like I am peeking from behind a curtain sometimes, hoping if I stay hidden that cancer will never find me again.. I went for my third round of blood work and will have the third CT scan this Thursday. Feels like I am holding my…
Crying for silly reasons
From the time my doctor ordered my drugs until it was ready was 3 and a half hours. Every time I asked beginning at 90 minutes, I was told 15 to 30 minutes. And I got so frustrated I started bawling.
Chem 14 and CBC w/ diff. Need to know more.
I need to know everything there is to know about the tumor I have (characteristics, factors, etc). What are the extra tests that can done to know all about the tumor make-up and behavior?
The Squatty Potty
I always forget to mention in my list of 'Things That Help' The Squatty Potty. The Squatty Potty has helped me just as much as the Bidet post treatment. There is something about raising the legs that helps with elimination. I purchased the tallest version. I see they have allot more options available, than when I purchased…
Any dietary advice please
Hi My mother got diagnosed with Stage 4 colorectal cancer. She’s had surgery to remove the colon lesion and also surgery to remove the solitary metastasis that was found in her lung. We are waiting for her chemo to start. We have been torn with this news. It was all just incidental findings (found on bowel cancer screening…
Leeks?
I was looking up the nutrition for leeks, and saw lots of articles that leeks help fight colon cancer. Have any of you heard about this? And I happen to love leeks, so would eat them a few times a week if it is true.

Colorectal Cancer

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