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6 days from chemo
Today is the 6th day after husband had his pump removed (last Wednesday). He didn't feel great Thursday and Friday but seemed fine most of Saturday once small episode of nausea Sunday and Monday Fine. Then middle of the night Monday into today Tuesday is not feeling good at all, worse than before. Is this normal for this…
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Foods after chemo
Hello all, My husband has completely lost his sense of taste after 6 rounds of FU chemo and has become pretty depressed. Does anyone have advice on go to foods or suggestions for what he might be able to still taste. So far, he can still taste fresh fruit and yogurt pretty well. Thank you!
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Just An Update
I had my CT scan today and won't know anything for a day or so. My bloodwork has all come back normal and my CEA count is 2.5..yippeeeee!!! I cried like a baby when the nurse called me with the results. I have never been one to cry easily. Boy, did cancer change that for me. My CEA has always been a good marker for me thru…
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Oil pulling?? (Coconut
Has anyone heard about oil pulling as a way to avoid mouth sores with chemo. A friend said that her mother does that, and hasn't had any mouth sores (different chemo from us, tho.) Thoughts? Experiences? Thanks. Alice
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New to treatment, are so many tests necessary?
I was diagnosed with colorectal cancer 2 months ago stage IIA. I have had surgery to remove the tumor and so far, they are fairly certain I do not need chemo. I saw my oncologist yesterday for the first time and all of a sudden, he recommended a LOT of further testing and I feel overwhelmed with all the things I need to…
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Positive Vibes/Energy Requested
Next week I will be having blood work and another CT scan to check the spots on my liver that nobody could make a call on. I am praying that it was all residual healing. I don't think my liver could withstand another major hit. The thought of ablation scares me but my surgeon in Charleston had already suggested that option…
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And an update. :-(
My most recent visit to MSK showed that my cancer is much worse than we’d thought. The PET scan showed spots of cancer on my lung, and I am now inoperable, at least until we can get the lung spots under control. The cancer has escaped the peritoneum, and has gone rogue. The “good” news is that the cancer has transformed,…
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Quick Hello
Well, bracing for the hurricane and going crazy here. Jim started on Opido yesterday and will be getting it every week...SHOCKED our insurance did approve it. I don't know much about it since it's more for other cancers but seems to work on CRC as well. Fingers crossed! He lost a lot more weight and the ulcers are still a…
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First day of chemo
Today was the first day of my husbands chemo. Wow, what a very long day. Arrived at 8:30 am and the actual chemo was not started until 1:45. He was already filled with so much anxiety before we even got there so all the sitting around made it so much worse. He was full of so much emotion from anger, to sadness to wanting…
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Looking for names of oncologists in Sloan-Kettering
I am looking for names of good oncologist in Sloan Kettering in NY. The one that you see and pleased with. I am not talking about Nancy K. I just got back from MD Anderson and my local oncologist wants me to go to Sloan Kettering. Thank you. Butt.,
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13 years
Hello all. 13 years ago I was dx with stage 4... mets to liver and lung.... You can read all about that on my profile. It was all the usual stuff crappy stuff everyone deals with...recurrances, 4 thoraic surgeries....chemo... I am still here and have been NED for the last 6 years now. I wish I had the magic answer but for…
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Stage IV input needed
i was diagnosed Stage IV in January 2017‘, rectal cancer with mets to liver. I‘ve had Chemo, then surgery ( bowel resection, liver resection and liver abalation), chemo, another liver abalation, more chemo. I was NED for a year, ca returned august of last year, this time in my lung. Idid FOLFIRI with Avastin from Aug 2018…
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Disappointed
Well we went to the other cancer center, no clinical trails are available there becuase he is on third line treatment already. I asked where we maybe able to find something anything...She turned her computer to me and showed me the Clinical Trial dot gov site and said to check there. Maybe MD Anderson in Houston but we…
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Strata testing, anyone?
Yesterday my oncologist recommended Strata testing. Does anyone know about this or have any experience with it? Apparently there are only 100,000 slots available. He said it should help find a treatment that will show a good response and my body will tolerate. I agreed, and have a lung needle biopsy scheduled for next week…
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CEA
Does anyone know anyone with crohns who had a false positive with a cea of over 15o. The ct scan showed what appears to be tumors but GI doctor says it could be inflammation. Waiting for biopsy appointment and worrying.
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CEA of 140
Hi - I'm Alexander, 32, new here. Yesterday officially diagnosed with Stage IV and that it showed up on liver and lung also on the PET scan I had Thursday. It started in June, went to ER, they found a tumor, removed part of my small intestine and found lymph node behind it and a node in fatty tissue that were cancerous. I…
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I don't want anymore chemo
I don't want mop up 5fu (what a name) chemo. I'm sorry if this is a long post but I feel I need to explain why and start at the beginning. Last Feburary I started a Xeloda/Radiation treatment regime. They told me there "might be some irritation" toward the end. By irritation they must have meant excrutiating pain every…
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Apologies!
Sorry if I had you guys worrying about me, but I do appreciate that you thought of me. I'm still here and kicking sort of. I think that I would be better off if not for the negativity of the doctors and a therapists I've seen. I'm not sure why they feel the need to make everything seem so bleak but I definitely have bought…
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Starving all the time since liver resection!
Ok this is probably a weird one.....haven't had a chance to ask my surgeon yet, but who better to answer then those who have been through it. I had 1/2 of my liver and gall bladder removed 5 weeks ago due to an anal cancer that spread there. Since then, I am STARVING....like I haven't eaten in days several times a day. My…
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Another Blow
August 12th, the first day of 8th grade for our boys, the 4th year anniversary of my Fathers death and the day my husband finally was told the cold hard truth that there will be no surviving this disease as much as it has progressed. He didn't want me to go to his appointment, nothing new and I abide by his wishes. He just…
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Update
Imagine my surpise yesterday when I went to my dr appointment before chemo and my doc declared me NED!!! Today is one year anniversary of my chemo treatments every two weeks and I am flabbergasted and grateful beyond words. I have earned (with blood sweat and tears) a two month break and we will go with the checks and…
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Colorectal Cancer with Peritoneal Metastasis ... anyone else?
Hey Community! Just wondering if there was anyone out there will my same diagnosis: Stage 4 Colorectal Cancer with Peritoneal Metastasis... I don't know all the right lingo yet, but think that is my official I'm 39yo and was just diagnosed with colon cancer end of April 2019. Thought we caught at stage 3, but when they…
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JanJan
Was just wanting to let you know that I'm thinking of you. I've not seen you on lately and was concerned. Hope all is good. Hugs! Kim
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Scan results
All of my tumors are smaller than they were on my prior scan. This is better than I had hoped for because the scan was from 6 weeks before I started this treatment, so I figured they would have grown in that time. I guess I was hoping to break even :) Also, so glad that it is working on the lung tumors, since they appeared…
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Discomfort during sex
Hello all, My husband was diagnosed with colon cancer four months ago and underwent a colon resection. He has healed well and recently received his fourth chemotherapy treatment of oxaliplatin and FU. This past week, he has noticed discomfort at being touched sexually and is unable to achieve an erection pleasurably. I was…
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Maybe a little personal
I know this is probably not the topic anyone likes to talk about but my husband will eat and he will get a severe stomach with cramping, he will feel like he has to go to the bathroom and it starts out fairly normal but he will be in there every 30 min or so for hours then he will have diarrheah (which in itself has been…
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Frustrations... No Scan results - Edited (D*mn)
I go down to Sloan Kettering every 6 months for my MRI and to meet with my dr. I get the MRI done on a Tuesday, so that my dr will have results when he sees me on that Thursday. I just got back from my Tuesday/Thursday Sloan Kettering appointments - a day late. I have no news. There was a significant foul-up, where a…
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Inoperable colon cancer mets to Liver
Hello everyone, I was diagnosed stage 4 colon cancer mets to liver in Feb 2016. Since then I had 26 cycle of chemo and keep getting every other week. I was told I am inoperable, having treatment at MD Anderson (treatment going well with minimum side effects) and never had a second opinion yet. I wonder if anybody had about…
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Any news on Karen and Man Apart
Thank you.
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Things just keep getting worse
My husband had his surgery just 2 weeks ago, today we recieved the pathology report with is worse than we thought. They only saw maybe 3 lymph nodes involved but there were 5 of the 17 removed. Here is what is said: Moderately differentiated adenocarcinoma, invasive through lymphovascular invasion, surgical margins free of…