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Platinum in the skin?
Somehow, I always figured chemo got deposited in the nerves, and that was why it was so hard for many to overcome neuropathy. This abstact only says that 60 months after treatment, the platinum is still found in the skin. That is interesting and maybe it can lead to better treatment for neuropathy. (For what it is worth.)…
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Neuropathy in 3 v. 6 mo CAPOX v. FOLFOX
For what it is worth, here is an abstract of a new study: https://jamanetwork.com/journals/jamaoncology/article-abstract/2749687 The incidence of long-lasting [neuropathy] was significantly lower for 3 months than for 6 months of therapy, and significantly lower for treatment with the drug CAPOX than with mFOLFOX6. Since…
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Lovenox for pulmonary embolism
Recently had a very large pulmonary embolism that was assumed to be secondary to metastatic cancer. Start on daily Lovenox injections to prevent future blood clots. Has anyone else been on Lovenox, and if so, have you ever been able to switch to an oral medication?
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Rejection
i have multiple mets on my lungs. Just got back from MD Anderson trip 3. Slow progression on chemo. Chemo for life. A German clinic that does surgery for multiple mets rejectex me about 4 months ago. Today I received an e mail from a Russian clinic that does something similar. They rejected me , too. I am devastated…
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Exhaling...
I got great news today. The "spots" in question are all smaller so they were residual healing. 7 months out from surgery so I am thrilled. I even gained 5 lbs..lol..I am eating clean and walking every day. I think my weight gain is from the nuts I eat...I love them!! My doctor will repeat scans and blood work at the first…
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Folfiri may be on the table for me
I've read a lot here, but didn't pay a ton of attention. However, Folfiri may be in my immediate future. What do I need to watch out for? (I had Folfox, and lots of problems with that.) The question is: is it better to get the tumor out fast (since it appeared over 6 months) or delay surgery by seeing if chemo affects the…
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Kaleena
Kathy: I've seen you post a couple times on here and kept looking at your picture and thought you looked so familar and then realized you joined about the same time as me. Hope you are doing well, and it's good to see you post back on the boards. Kim
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I dont want to give up on my dad
My dad has stage 4 colon cancer with mets to liver and both lungs. He recently has experiencing more frequent abdominal pain. What was recently determined is he has a tumor in his main bile duct which was causing infections. Long story short, an intervential radiologist did an ERCP procedure to put a stent around the tumor…
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6 days from chemo
Today is the 6th day after husband had his pump removed (last Wednesday). He didn't feel great Thursday and Friday but seemed fine most of Saturday once small episode of nausea Sunday and Monday Fine. Then middle of the night Monday into today Tuesday is not feeling good at all, worse than before. Is this normal for this…
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Foods after chemo
Hello all, My husband has completely lost his sense of taste after 6 rounds of FU chemo and has become pretty depressed. Does anyone have advice on go to foods or suggestions for what he might be able to still taste. So far, he can still taste fresh fruit and yogurt pretty well. Thank you!
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Just An Update
I had my CT scan today and won't know anything for a day or so. My bloodwork has all come back normal and my CEA count is 2.5..yippeeeee!!! I cried like a baby when the nurse called me with the results. I have never been one to cry easily. Boy, did cancer change that for me. My CEA has always been a good marker for me thru…
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Oil pulling?? (Coconut
Has anyone heard about oil pulling as a way to avoid mouth sores with chemo. A friend said that her mother does that, and hasn't had any mouth sores (different chemo from us, tho.) Thoughts? Experiences? Thanks. Alice
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New to treatment, are so many tests necessary?
I was diagnosed with colorectal cancer 2 months ago stage IIA. I have had surgery to remove the tumor and so far, they are fairly certain I do not need chemo. I saw my oncologist yesterday for the first time and all of a sudden, he recommended a LOT of further testing and I feel overwhelmed with all the things I need to…
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Positive Vibes/Energy Requested
Next week I will be having blood work and another CT scan to check the spots on my liver that nobody could make a call on. I am praying that it was all residual healing. I don't think my liver could withstand another major hit. The thought of ablation scares me but my surgeon in Charleston had already suggested that option…
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And an update. :-(
My most recent visit to MSK showed that my cancer is much worse than we’d thought. The PET scan showed spots of cancer on my lung, and I am now inoperable, at least until we can get the lung spots under control. The cancer has escaped the peritoneum, and has gone rogue. The “good” news is that the cancer has transformed,…
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Quick Hello
Well, bracing for the hurricane and going crazy here. Jim started on Opido yesterday and will be getting it every week...SHOCKED our insurance did approve it. I don't know much about it since it's more for other cancers but seems to work on CRC as well. Fingers crossed! He lost a lot more weight and the ulcers are still a…
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First day of chemo
Today was the first day of my husbands chemo. Wow, what a very long day. Arrived at 8:30 am and the actual chemo was not started until 1:45. He was already filled with so much anxiety before we even got there so all the sitting around made it so much worse. He was full of so much emotion from anger, to sadness to wanting…
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Looking for names of oncologists in Sloan-Kettering
I am looking for names of good oncologist in Sloan Kettering in NY. The one that you see and pleased with. I am not talking about Nancy K. I just got back from MD Anderson and my local oncologist wants me to go to Sloan Kettering. Thank you. Butt.,
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13 years
Hello all. 13 years ago I was dx with stage 4... mets to liver and lung.... You can read all about that on my profile. It was all the usual stuff crappy stuff everyone deals with...recurrances, 4 thoraic surgeries....chemo... I am still here and have been NED for the last 6 years now. I wish I had the magic answer but for…
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Stage IV input needed
i was diagnosed Stage IV in January 2017‘, rectal cancer with mets to liver. I‘ve had Chemo, then surgery ( bowel resection, liver resection and liver abalation), chemo, another liver abalation, more chemo. I was NED for a year, ca returned august of last year, this time in my lung. Idid FOLFIRI with Avastin from Aug 2018…
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Disappointed
Well we went to the other cancer center, no clinical trails are available there becuase he is on third line treatment already. I asked where we maybe able to find something anything...She turned her computer to me and showed me the Clinical Trial dot gov site and said to check there. Maybe MD Anderson in Houston but we…
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Strata testing, anyone?
Yesterday my oncologist recommended Strata testing. Does anyone know about this or have any experience with it? Apparently there are only 100,000 slots available. He said it should help find a treatment that will show a good response and my body will tolerate. I agreed, and have a lung needle biopsy scheduled for next week…
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CEA
Does anyone know anyone with crohns who had a false positive with a cea of over 15o. The ct scan showed what appears to be tumors but GI doctor says it could be inflammation. Waiting for biopsy appointment and worrying.
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CEA of 140
Hi - I'm Alexander, 32, new here. Yesterday officially diagnosed with Stage IV and that it showed up on liver and lung also on the PET scan I had Thursday. It started in June, went to ER, they found a tumor, removed part of my small intestine and found lymph node behind it and a node in fatty tissue that were cancerous. I…
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I don't want anymore chemo
I don't want mop up 5fu (what a name) chemo. I'm sorry if this is a long post but I feel I need to explain why and start at the beginning. Last Feburary I started a Xeloda/Radiation treatment regime. They told me there "might be some irritation" toward the end. By irritation they must have meant excrutiating pain every…
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Apologies!
Sorry if I had you guys worrying about me, but I do appreciate that you thought of me. I'm still here and kicking sort of. I think that I would be better off if not for the negativity of the doctors and a therapists I've seen. I'm not sure why they feel the need to make everything seem so bleak but I definitely have bought…
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Starving all the time since liver resection!
Ok this is probably a weird one.....haven't had a chance to ask my surgeon yet, but who better to answer then those who have been through it. I had 1/2 of my liver and gall bladder removed 5 weeks ago due to an anal cancer that spread there. Since then, I am STARVING....like I haven't eaten in days several times a day. My…
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Another Blow
August 12th, the first day of 8th grade for our boys, the 4th year anniversary of my Fathers death and the day my husband finally was told the cold hard truth that there will be no surviving this disease as much as it has progressed. He didn't want me to go to his appointment, nothing new and I abide by his wishes. He just…
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Update
Imagine my surpise yesterday when I went to my dr appointment before chemo and my doc declared me NED!!! Today is one year anniversary of my chemo treatments every two weeks and I am flabbergasted and grateful beyond words. I have earned (with blood sweat and tears) a two month break and we will go with the checks and…
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Colorectal Cancer with Peritoneal Metastasis ... anyone else?
Hey Community! Just wondering if there was anyone out there will my same diagnosis: Stage 4 Colorectal Cancer with Peritoneal Metastasis... I don't know all the right lingo yet, but think that is my official I'm 39yo and was just diagnosed with colon cancer end of April 2019. Thought we caught at stage 3, but when they…