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Any news on Karen and Man Apart
Thank you.
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Things just keep getting worse
My husband had his surgery just 2 weeks ago, today we recieved the pathology report with is worse than we thought. They only saw maybe 3 lymph nodes involved but there were 5 of the 17 removed. Here is what is said: Moderately differentiated adenocarcinoma, invasive through lymphovascular invasion, surgical margins free of…
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I thought I wasn't anxious about my scan Wed
I thought I was not anxious about my scan on Wed. But here I am, wide awake at 5 am tossing and turning. I realized I haven't had a scan since my pre liver resection scan that didn't have some twist of a new tumor. This one is to see if the erbutix and irinotecan has worked after the first four rounds. I asked how they…
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Good News
Although I don’t post very often, I’m happy to say I’m Ned again! One year post hipec surgery! I will now have my scan every six months and visit with my surgeon via videoconference. God is great!
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Drug to treat 5-FU/capecitabine overdose/severe adverse reactions
In my miscellaneous ramblings, I came accross mention of this drug, which is news to me: Uridine Triacetate. I first saw it in this abstract, and then came accross this article. I sure wish I had known about this when I had a toxic reaction to capecitabine. Hopefully, this can be useful to others who might have a bad…
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Non-cancer-specific supplement review
As most of you know, I am a believer in supplements. But just to show I am open-minded, here is a non-cancer-specific look at supplements and health. It does not deal with the specific issues we face, but nonetheless, it might be interesting: link There was moderate-certainty evidence that reduced salt intake decreased the…
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Ending Chemo and getting first scan since surgery
My Husband is ending his Chemo at 5 cycles or 4 months depending on how one looks at it. He was on the Capcetabine 2 weeks on and one week off. The IDEA study has very compelling statistic for three months being almost as effective as 6 months. So, with all of our research and careful consideration and discussions we are…
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Chemotherapy perfusion for lungs
Any places in the US that do it? It is like HIPEC for lungs.
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Ct scan results today
and my husband continues to be clear of disease. The tumor that caused issues has not grown in 6 months so we are hoping the radiation killed it, in fact they refer to it as an ill defined area now. No CEA because the lab forgot to run it, so we will get that Thursday. It’s been fine for year though that tumor never…
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Happy Birthday Canadian Sandy
I hope you are loving every minute of today (and every day). I think Birthday cake is in order - bring it on Tru
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Happy Birthday to our very own Tunadog!
I hope you have a wonderful day, filled with love, laguhter, family, friends and lots of good food . Trubirt
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How long can I expect to have stool issues?
Hello all. Sorry for the topic. I am 11 days post surgery and just when I think my BM's are going to start being normal again, I get diarrhea. Today I had something with caffeine in it for the first time since the surgery and it feels like Im passing lava. I had my ascending and transverse removed so I realize it will take…
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Rising CEA
I had colon cancer a year ago. My doctor removed all of the cancer and has been monitoring my CEA. My CEA went from 3 to 42 to 179 in a few months. Nothing showed up on my PET Scan. Could Crohns cause a false reading with these numbers? I was diagnosed with Crohns the same time I was diagnosed with cancer a couple of years…
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anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9
started on gcmaf yesterday, got a runny nose. just google it, its all about stimulating your immune system nothing on pubmed for colorectal but the method of action should be the same. here is the pubmed link for breast cancer test, yes i know not in vivo. http://www.ncbi.nlm.nih.gov/pubmed/22213287 it costs $170 dollars…
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Rising CEA Level
I know that this topic has been discussed multiple times but I have a question. Up until now, my dad's cea level has matched what was on the PET scan. If the level went up, we found 1 or 2 spots in his liver. In February, my dad had radiofrequency ablation to remove a spot, we were successful. His CEA was 2.8. In March it…
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It's been rough
Wow since my last post, Jim has fallen very ill! The Strivaga was approved and it arrived, still haven't heard from the new cancer Center either. He was feeling really weak and winded last week and was hopeful that the Iron Infusion and B-12 he had scheduled would help. I was sleeping on the couch Sunday night and in the…
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Is it safe to leave in chemo port long term?
I had a chemo port put in December 2018. I haven't used it since I finished a month of 5FU. Is it safe to just leave it in. Has anyone had problems with it down the line?
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Post Extended Right Hemicolectomy Treatment Options
Hello all, its been a while since I posted. I had an extended right hemicolectomy on 7/19 to remove a 5cm mass from my TC. It was originally supposed to be done by robot, but they had to convert because of its locations. They took 2/3 of my colon. The surgery lasted approx 2 hours and everything went well. The mass was…
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Buying chemo meds from Canada
My mom has stage 4 colon cancer mets liver. Been on different chemo meds and now trying Afinitor since we can't use the previous chemo that was used. Afinitor was FDA approved for breast cancer only. Oncologist says it targets similar tumor markers so trying it out. Our insurance won't cover it because it's not FDA…
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Twinzma
how is your husband doing? I have been thinking about you and your family.
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Sleeping..
Wondering if anyone else has sleeping issues since having chemo. I have NEVER had such a hars time with sleep. My body is tired most nights but it doesn’t make a difference. Sleep will not come some nights. I have fought taking anything on a regular basis but I know how important rest is. I have tried melatonin, various…
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Update Hawaii trip and new Doctor
Hi all, been away from this site for a couple of months or more. So I did make it to Hawaii, what a trip! My son went with me. I've never been on a trip that far away, 14 hour flights are killer! It was not exactly what I expected but so beautiful. Photos don't do it justice! We went to Waikiki, which is busy busy. I had…
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Can food affect ostomy leaking?
This is a question for all ileostomy holders: can a food cause ostomy leaking? I made a mistake in my food choices today: my ostomy was holding strong since yesterday morning,I got a good news from my surgeon,so I was feeling so good and happy that I stopped at a place for red curry chicken (which I love),and eventhough it…
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Port removed today!
just wanted to share good news. My onc approved port removal and I could not be happier! Got it removed today. Every one that I saw at the hospital congratulated me! I had a smile on my face all day! k
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NED dream
At this point I am getting obsessed with an idea of becoming NED. I have multiple mets on my lungs and chemo is not erasing them. VAT surgery and radiation are not in a table. I want to enter NED and keep it going. All they offer me chemo for life including MD Anderson. Understanding that down the line things will become…
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Help with ileostomy!
I am looking for somebody who experienced this situation:I had a colorectal tumour surgery on May31,and left the hospital on June 7th with temporary ileostomy. After getting several instructions and help from Healthcare Centre nurses I started manage my ileostomy myself; it did not go very well,and in last 2 weeks I am…
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What is considered a round of chemo?
My last oncologist once told me I needed 4 rounds of chemo. At the 4th infusion, I said this is the last one. He said no 4 rounds is 8 infusions. I thought one round equals the 14 days starting with the infusion day, ending with the day before next infusion. So what is a round of chemo, as far as y'all know and believe the…
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Sugary Drinks and Cancer
I came accross this study in an article in the newspaper. There is no sense in looking back (I used to drink sodas a decade or so ago, before I cleaned up my diet), but the information may be useful looking forward or for family memebers: https://www.bmj.com/content/366/bmj.l2408 The consumption of sugary drinks was…
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Losing my hair
My hair thinned on folfox and folfiri. I was not prepared for all my hair to fall out on erbutix and irinotecan. I am so angry that my oncologist didn't warn me especially since I specifically said when looking at options I did not want to choose one that would make me lose all my hair. I am so angry right now. And to make…
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CEA 523
Been though many different chemo combinations...now on Infinitor (made for breast cancer but trying for colon cancer). Insurance doesn't cover it so been using physician samples. Mom's last CEA is at 523...stressing me out. We were as low as 20s before. Surgeon still doesn't want to remove the mets tumors in her liver.…