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Anyone Have "Maybe Mets"?
Before my surgery in April, the onc and surgeon looked at my CT scan with enhanced spots on my liver and lungs and decided I may be stage IV. They did a Pet Scan and the liver did not "glow", FDG wise. My lung issues were thought to be asthma scar tissue, and so off to colon surgery and chemo we went. My CapeOx regime was…
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HAVING SERIOUS ISSUES WITH TREATMENT
HI, I am 67 and was was diagnosed with colorectal cancer about 2 months ago and now undergoin treatment. It was stage 3 but didn't touch the muscle. They started me on a Chemo pill called Xeloda and radiation at the same time. I was doing fine until about 4 days ago. I now am in day 16 of 30 treatments. They had to…
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Is it wrong
Is it wrong to be annoyed that the only services I find concerning cancer support programs in my area are all specific to breast cancer patients and survivors? I do not begrudge anyone the services, they certainly are in need, I just wonder where are the programs for others? ugh I hate that I said that out loud and also…
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Are we having fun yet?
Our family doesn't do anything by halves. After 7 cycles of Folfiri/Avastin where my major side effect was fatigue, this last round (12/31-1/2) left me with severe ongoing bowel pain and diarrhea (pain still ongoing.) We reached the point where my onc sent me for an emergency CT yesterday to ensure that there was nothing…
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Big Talk On New Years Day Coming
Hanging upside down in limbo this morning is a weird place to be. I plan oh hiking today and soaking up some fresh air. I know that none of us know when our time is up but I am a realist as well as a dreamer. Hope for the best and prepare for the worst has always been my plan for life and still is. I got a call from my…
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Thin hair
My hair thinned quite a lot from chemo. It's a year since I stopped and it's still thin and seems to be getting thinner. Does anyone else have this problem? I know it's vanity but it's yet another thing that this cancer has taken from me. My husband and I are going to celebrate our 25 year anniversary. We wanted to take…
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Happy Birthday TruBrit
Happy Birthday to TruBrit (Sue), the central pillar of our online community and mistress of birthday greetings, who I believe is turning 19 on Sunday, December 22nd . Birthday song!
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Useless CEA, nearing one year since surgery
Is anyone else here have this situation where your CEA was in the normal range even with a tumor present? I didn't have the test done before surgery to remove the colon tumor. I had it after and it was 1.5, the same week they discovered the liver met. I've had three tests and it has never been higher than two, it actually…
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My mother passed away - thank you all for your support
Dear all, I wanted to let you know that my mother passed away on December 8th at home, peacefully in our arms, surounded by love. Her name was Loukia which means light and that's what she has been in the lives of so many. She was 72. She fought this disease (along with stroke) with an exemplary passion and strength - she…
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Slow-runner's husband has passed
I am copying and pasting Slow-runner's post here, so that we can share our love with her at this time. My husband just passed on November 27. He was diagnosed in August 2017. He had a tumor in the ascending colon with liver, lung, peritoneal and lymph node involvment. His only symptom was shortness of breath when running…
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Update: Jan has passed
Our dearest forum friend, JanJan, has arrived at the end of her beautiful life here on earth. She is at this time, slipping away, and I wouild like to ask you to pray for peace as she passes. She has already suffered so much through this journey, she deserves a peacefuil, painless end. I will keep you updated. Tru
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Happy Birthday Joan M
I know that sometimes it is a struggle to celebrate, when you're not feeling on top of the world, but still I wish you a grand day, in any way you and your family can make it. May you be surrounded in love and joy, family & friends and I do hope there is cake, or something equally as enticing for you. Tru
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Immunotherapy for MSS number.
MD Anderson 2017-1339.
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New and in search for answers
Hi beautiful people, I‘m 22 years old and was diagnosed with Stage 4 Colorectal Cancer, more specially called Goblet Appendiceal Carcinoid back in January of this year. From what the doctors say, I’m a Unicorn. No one around my age has been diagnosed with this type of cancer in the US, but globally there are only 34 others…
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Happy New Year
Just want to wish everyone a Happy New Year. My thoughts are with all of you daily. Thanks for all of your wisdom, support and caring to all on the board. Hugs! Kim
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Nervous Pending Labwork *The Wait*
After 2 years of abdominal pain, painful BM, severe bloat, and some off/on bleeding finally got in for endoscopy and colonoscopy. Dr removed and biopsied 25mm polyp in sigmoid colon but was unable to remove a "large, lobulate, partial obstruction, friable mass found in recto-sigmoid". Approx 6cm x 3.5cm. Took several…
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New Caregiver - brother rectal cancer
Wish we weren't part of this group, but here we are. My younger brother (52) was diagnosed about four months ago. He had been dealing with bloody stool for six months to a year. Finally took him for a colonoscopy and was notified right there that he had a very large tumor about 10 cm up and it was about 85% blocking his…
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soundboard
Hello, I am new to his forum and was diagnosed with sage 3 colin cancer after a colin resection to remove tumor. It was discovered I have mets to lymph nodes 12/24. I went to the Doctor yeserday and she said I was "cured" but unfortuinalty have mets to the lymph. I asked how she was going tohelp me through it and she said…
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KRAS and NRAS Wildtype Positive
The results came back from my tumor. It looks like more good news. My doctor and I had a long discussion about all options, pros and cons. He is totally letting me steer my ship and for that I am grateful. He was compassionate and honest. We talked abou the alternative therapies He supported me in my decision to not do…
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Advice
So my dad struggles with battling this disease often so to all those who are battling like him I am wondering . What is the best thing for a caregiver to do when a survior is feeling down and hopeless as I am sure everyone does ? I know there is nothing I can say to make it easier for my dad no words . Is it best to just…
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Low white cell count
So when I was first diagnosed, my WBC was in the normal range. During chemo, it dropped to as low as 1.8, at which point my oncologist delayed the next treatment. Really...in the last 4 years it has remained low all during treatment. I still can’t get it to normal and in fact in the last 9 months, it has dropped from 4.0…
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This Yr 20 Rounds of Chemo, Biked 1,500 Miles, Ran 375 Miles, Swim 30 Miles
To go into chemo or continue chemo is a personal decision. And many times, depending on diagnosis and other things, passing on chemo for quality of life choice makes sense. And on the scale of things I like to do, chemo is not high on the list. I had surgery and 12 rounds of chemo almost 5 years ago. Then a lung met with…
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questions about pump infusion following oxyplatin
I will start 6 months of chemo for colon cancer next week. The plan is to receive oxyplatin infusions every 14 days followed by a small pump taped to my chest delivering FU-5 into my port for 48 hours. The pump will require removal after the 2 days necesitating another visisit to my oncologist Is there anyway a patient can…
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Worried
In march my dad was dianosged with stage 3 rectal cancer and told it was curable . So he had radiation 24 treatments and 3 rounds of chemo treatment . Last week he had surgery to remove the tumor and the doctor said it was one of the worse she had done . But they ended up getting the tumor out but he ended up with a…
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Advice please! Husband has progression!
I need some advice. It’s been a while since I’ve posted. Just to recap since it’s been a while, dh at 49 was diagnosed in Sept. 2017 with large tumor in sigmoid. Colon resection was done in Oct. 2017. Soon after surgery, found out he was really stage 4, and he had tumors in his liver and possibly lungs. Liver was biopsied…
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Newly diagnosed with rectal tumor - lots of questions and fear
Hi, my name is Joy and I learned on Nov. 15th that I have rectal cancer. I am 49 years old and have been experiencing rectal bleeding and symptoms for a while. I went to a gastro specialist last year and they advised I may have IBS, checked that I wasn't anemic and felt my abdomen for tumors and advised I should schedule a…
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Pre-surgery stage results
Stage T3N1. Mass 1.6cm from anal verge. 1 mesorectal lymph node involved. Another small lymph node presacral. Positive circumferential resection margin. Negative lymphvascular invasion. Does this mean I might dodge the bullet for APR surgery you think? I am going to research all these terms this weekend. Any knowledge you…
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Lynch Patient w/ Stage IV Met to Lymph starting treatment w/ nivolumab (Opdivo)
Hi all... it's my first time posting here and 4 months ago I thought I would never be on a Cancer Forum again posting a diagnosis... but here I am. 2nd time colon cancer battler (the first diag was Oct 2009 Stage IIIC spread to 5 lymph localized. Last Spring my mom got her 2nd diagnosis in 26 years. She's 75 and thankfully…
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Butt/Karen and Other MSS Types - Immunotherapy Trial
This trial is looking for MSS patients who had chemo stop working https://clinicaltrials.gov/ct2/show/NCT03953235 A bit more here https://cancer.columbia.edu/clinical-trials/phase-12-study-grt-c903grt-r904-vaccine-targeting-shared-neoantigens-combination It is one I am trying to get into. Note that they do a blood test to…
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Merry Christmas!
Merry Christmas to everyone on this board and their families. I wish you all good health and if you can’t get that, I wish you all peace and strength in your journey. Thank you all for the advice and comments on this board. We each have our own struggle with this disease and it helps to read about trials, drugs, helpful…