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Colorectal Cancer

Nervous Pending Labwork *The Wait*
After 2 years of abdominal pain, painful BM, severe bloat, and some off/on bleeding finally got in for endoscopy and colonoscopy. Dr removed and biopsied 25mm polyp in sigmoid colon but was unable to remove a "large, lobulate, partial obstruction, friable mass found in recto-sigmoid". Approx 6cm x 3.5cm. Took several…
New Caregiver - brother rectal cancer
Wish we weren't part of this group, but here we are. My younger brother (52) was diagnosed about four months ago. He had been dealing with bloody stool for six months to a year. Finally took him for a colonoscopy and was notified right there that he had a very large tumor about 10 cm up and it was about 85% blocking his…
soundboard
Hello, I am new to his forum and was diagnosed with sage 3 colin cancer after a colin resection to remove tumor. It was discovered I have mets to lymph nodes 12/24. I went to the Doctor yeserday and she said I was "cured" but unfortuinalty have mets to the lymph. I asked how she was going tohelp me through it and she said…
KRAS and NRAS Wildtype Positive
The results came back from my tumor. It looks like more good news. My doctor and I had a long discussion about all options, pros and cons. He is totally letting me steer my ship and for that I am grateful. He was compassionate and honest. We talked abou the alternative therapies He supported me in my decision to not do…
Advice
So my dad struggles with battling this disease often so to all those who are battling like him I am wondering . What is the best thing for a caregiver to do when a survior is feeling down and hopeless as I am sure everyone does ? I know there is nothing I can say to make it easier for my dad no words . Is it best to just…
Low white cell count
So when I was first diagnosed, my WBC was in the normal range. During chemo, it dropped to as low as 1.8, at which point my oncologist delayed the next treatment. Really...in the last 4 years it has remained low all during treatment. I still can’t get it to normal and in fact in the last 9 months, it has dropped from 4.0…
This Yr 20 Rounds of Chemo, Biked 1,500 Miles, Ran 375 Miles, Swim 30 Miles
To go into chemo or continue chemo is a personal decision. And many times, depending on diagnosis and other things, passing on chemo for quality of life choice makes sense. And on the scale of things I like to do, chemo is not high on the list. I had surgery and 12 rounds of chemo almost 5 years ago. Then a lung met with…
questions about pump infusion following oxyplatin
I will start 6 months of chemo for colon cancer next week. The plan is to receive oxyplatin infusions every 14 days followed by a small pump taped to my chest delivering FU-5 into my port for 48 hours. The pump will require removal after the 2 days necesitating another visisit to my oncologist Is there anyway a patient can…
Worried
In march my dad was dianosged with stage 3 rectal cancer and told it was curable . So he had radiation 24 treatments and 3 rounds of chemo treatment . Last week he had surgery to remove the tumor and the doctor said it was one of the worse she had done . But they ended up getting the tumor out but he ended up with a…
Advice please! Husband has progression!
I need some advice. It’s been a while since I’ve posted. Just to recap since it’s been a while, dh at 49 was diagnosed in Sept. 2017 with large tumor in sigmoid. Colon resection was done in Oct. 2017. Soon after surgery, found out he was really stage 4, and he had tumors in his liver and possibly lungs. Liver was biopsied…
Newly diagnosed with rectal tumor - lots of questions and fear
Hi, my name is Joy and I learned on Nov. 15th that I have rectal cancer. I am 49 years old and have been experiencing rectal bleeding and symptoms for a while. I went to a gastro specialist last year and they advised I may have IBS, checked that I wasn't anemic and felt my abdomen for tumors and advised I should schedule a…
Pre-surgery stage results
Stage T3N1. Mass 1.6cm from anal verge. 1 mesorectal lymph node involved. Another small lymph node presacral. Positive circumferential resection margin. Negative lymphvascular invasion. Does this mean I might dodge the bullet for APR surgery you think? I am going to research all these terms this weekend. Any knowledge you…
Lynch Patient w/ Stage IV Met to Lymph starting treatment w/ nivolumab (Opdivo)
Hi all... it's my first time posting here and 4 months ago I thought I would never be on a Cancer Forum again posting a diagnosis... but here I am. 2nd time colon cancer battler (the first diag was Oct 2009 Stage IIIC spread to 5 lymph localized. Last Spring my mom got her 2nd diagnosis in 26 years. She's 75 and thankfully…
Butt/Karen and Other MSS Types - Immunotherapy Trial
This trial is looking for MSS patients who had chemo stop working https://clinicaltrials.gov/ct2/show/NCT03953235 A bit more here https://cancer.columbia.edu/clinical-trials/phase-12-study-grt-c903grt-r904-vaccine-targeting-shared-neoantigens-combination It is one I am trying to get into. Note that they do a blood test to…
Merry Christmas!
Merry Christmas to everyone on this board and their families. I wish you all good health and if you can’t get that, I wish you all peace and strength in your journey. Thank you all for the advice and comments on this board. We each have our own struggle with this disease and it helps to read about trials, drugs, helpful…
Progression of Symptoms With Lung Mets
Thanks to all of you for weighing in on my results from Charleston. I have some choices to make but for now, I am still leaning towards no more chemo. My oncologist told me that he didn't forsee the mets causing me any issues six months from now or even a year from now. I am wondering if anyone here has had experience with…
Happy Birthday, Sestra17
May your day be filled with as much joy as you can fit into it. TRU
Re
How to post a picture?
Getting ducks in a row
Question: How many here had to have blood with APR surgery? I want my donor to be a family member if I do need blood.
IV vit C #600, a road less traveled
It is ca 4.7 yrs since wife's initial diagnosis, 4.6 yrs of IV vitamin C along with about her weight in supplements. She's infused about 36,000,000 mg of vitamin C, about 80 pounds of the stuff, directly into her veins, not even counting the oral part. This year, usually 30 (too low) - 65 grams per infusion, about every 4+…
Chemo Is The Only Thing On The Table
fDid not get the news I wanted. I have 7 tumors with some size to several which makes me a no go for anything other than what I dread most.. chemo. If and when the chemo destroyed or shrunk the tumors, we could talk additiona/other treatments. What happened to a simpler life? My daughters are in tears begging me to do the…
Praying For Hope From MUSC
Just wanted to leave an update and beg for good energy and thoughts in the process. I thought the tumor board at MUSC was meeting today but after talking to the nurse, she said it would be first thing Wednesday morning. I'm usually not full of anxiety but I feel it this afternoon. I hope that ablation or surgery will be an…
New treatment being tested
One day they may hit the jackpot, and find something that cures. Until, then, the trials continue. New Trial in England Tru
Dreams
My thoughts are all over the place right with the anticipation of surgery. The past few nights I dreamed I had surgery (one of the dreams I was in Mexico).
Things "WE" Don't Talk About With Most
I am posting this because I have had several members contact me about "no chemo for life" stance thru email. I am very open and straight-forward and in no way want to impose my own decisions into someone else's. I respect each of you and the turns you have to make to navigate this crazy beautiful thing called "life". This…
Happy Birthday Melanie67 for the 17th
Just flying by with a Birthday greeting. I hope you have THE most wonderful day; filled with all the love and laughter that your soul needs. Tru
chemo cost
Just opened todays mail. Insurance was billed a little over $30,000 for 5FU for month of Oct. They got a break of a little over $7,000 and paid $22,000+. WOW! I am shocked and SO BLESSED to have insurance.
Newly diagnosed - need advice
Hi I was diagnosed few weeks ago 7cm in cecum with extended local nodes and possibly lynch syndrone. Surgery for right hemicolectomy and hysterectomy scheduled for Dec 3rd - waiting for genetic Lynch testing results to see how much to take. Looking for advice on how to deal with surgery recovery what should take for…
Good News/Bad News - CHEMO DONE!!! Chemo Not Working
The good news is I am done with FOLFORI The bad nes is I am done with FOLFORI K-rap. What I thought was happening last scan has happened. It stopped working. More mets and the bad boys have started growing again, one pushing 6 cM. Yay. Looking for trials now and then at other possible chemos if there is no trial or the…
Folfox chemo before APR surgery?
Hello I am new to this forum but have been reading a lot on here as my husband who is 60 years old found out in July he has Stage 3a rectal cancer. He had the 5 weeks of chemo radiation and added a few more radiation days to try to eliminate the cancer. Unfortunately the tumor shrank a lot but it's still there. The surgeon…

Colorectal Cancer

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