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Colorectal Cancer

Hubby update
So, another 3 months has passed and last week Richard flew down to MD Anderson for his scans. Since the APR in March 2019 his scans were clean. However, not so lucky this round. The CT showed two spots on the liver. 1 spot is in the location where his liver ablation was completed in WV back in 2017 when first diagnosed.…
APR repair for butt hernia
Good Morning I am looking for suggestions/ people that have gone thru this. I have stage 3 colorectal cancer and had a APR with colostomy done Now I am having issues with butt hernia and the plan is to take muscle from my thigh and put it in my butt to repair (at this pont they will not use mesh) It is called a APR repair…
Waiting and wondering
So now me and my dad are waiting to go to ann arbor for his second surgery . But after the pathalogy report I still have alot of questions . Like one of things in the pathalogy report is that my dad's cancer is grade 1 tissue . Does anyone know what that means if its grade 1 tissue ? Also one of things the doctor said is…
Hepatic metastasis from colorectal cancer (article)
This topic has been much discussed lately and I thought this article might be useful and hopeful. Abstract follows, with full-text link at the end for those who are interested. Colorectal cancer (CRC) is one of the most common cancers in the world. About two third of patients with CRC will develop distant recurrence at…
CEA is lower!
I know not to place much merit into CEA counts but we did get an encouraging number today. 26! I know that is still high, but what's made me so thrilled is in July when were were given the doomsday news Jim's count was 611. Opdivo is doing it's job THANK HEAVENS. I really am surprised though, since he is on it with…
Oncology case manager
I was recently diagnosed with colon cancer and I got a letter in the mail offering the free services of an "oncology case manager"- she works for my insurance company, of course. I am wondering if anyone has had one of these and if they found them useful or if they basically are just there to keep costs down for the…
Anyone Have "Maybe Mets"?
Before my surgery in April, the onc and surgeon looked at my CT scan with enhanced spots on my liver and lungs and decided I may be stage IV. They did a Pet Scan and the liver did not "glow", FDG wise. My lung issues were thought to be asthma scar tissue, and so off to colon surgery and chemo we went. My CapeOx regime was…
HAVING SERIOUS ISSUES WITH TREATMENT
HI, I am 67 and was was diagnosed with colorectal cancer about 2 months ago and now undergoin treatment. It was stage 3 but didn't touch the muscle. They started me on a Chemo pill called Xeloda and radiation at the same time. I was doing fine until about 4 days ago. I now am in day 16 of 30 treatments. They had to…
Is it wrong
Is it wrong to be annoyed that the only services I find concerning cancer support programs in my area are all specific to breast cancer patients and survivors? I do not begrudge anyone the services, they certainly are in need, I just wonder where are the programs for others? ugh I hate that I said that out loud and also…
Are we having fun yet?
Our family doesn't do anything by halves. After 7 cycles of Folfiri/Avastin where my major side effect was fatigue, this last round (12/31-1/2) left me with severe ongoing bowel pain and diarrhea (pain still ongoing.) We reached the point where my onc sent me for an emergency CT yesterday to ensure that there was nothing…
Big Talk On New Years Day Coming
Hanging upside down in limbo this morning is a weird place to be. I plan oh hiking today and soaking up some fresh air. I know that none of us know when our time is up but I am a realist as well as a dreamer. Hope for the best and prepare for the worst has always been my plan for life and still is. I got a call from my…
Thin hair
My hair thinned quite a lot from chemo. It's a year since I stopped and it's still thin and seems to be getting thinner. Does anyone else have this problem? I know it's vanity but it's yet another thing that this cancer has taken from me. My husband and I are going to celebrate our 25 year anniversary. We wanted to take…
Happy Birthday TruBrit
Happy Birthday to TruBrit (Sue), the central pillar of our online community and mistress of birthday greetings, who I believe is turning 19 on Sunday, December 22nd . Birthday song!
Useless CEA, nearing one year since surgery
Is anyone else here have this situation where your CEA was in the normal range even with a tumor present? I didn't have the test done before surgery to remove the colon tumor. I had it after and it was 1.5, the same week they discovered the liver met. I've had three tests and it has never been higher than two, it actually…
My mother passed away - thank you all for your support
Dear all, I wanted to let you know that my mother passed away on December 8th at home, peacefully in our arms, surounded by love. Her name was Loukia which means light and that's what she has been in the lives of so many. She was 72. She fought this disease (along with stroke) with an exemplary passion and strength - she…
Slow-runner's husband has passed
I am copying and pasting Slow-runner's post here, so that we can share our love with her at this time. My husband just passed on November 27. He was diagnosed in August 2017. He had a tumor in the ascending colon with liver, lung, peritoneal and lymph node involvment. His only symptom was shortness of breath when running…
Update: Jan has passed
Our dearest forum friend, JanJan, has arrived at the end of her beautiful life here on earth. She is at this time, slipping away, and I wouild like to ask you to pray for peace as she passes. She has already suffered so much through this journey, she deserves a peacefuil, painless end. I will keep you updated. Tru
Happy Birthday Joan M
I know that sometimes it is a struggle to celebrate, when you're not feeling on top of the world, but still I wish you a grand day, in any way you and your family can make it. May you be surrounded in love and joy, family & friends and I do hope there is cake, or something equally as enticing for you. Tru
Immunotherapy for MSS number.
MD Anderson 2017-1339.
New and in search for answers
Hi beautiful people, I‘m 22 years old and was diagnosed with Stage 4 Colorectal Cancer, more specially called Goblet Appendiceal Carcinoid back in January of this year. From what the doctors say, I’m a Unicorn. No one around my age has been diagnosed with this type of cancer in the US, but globally there are only 34 others…
Happy New Year
Just want to wish everyone a Happy New Year. My thoughts are with all of you daily. Thanks for all of your wisdom, support and caring to all on the board. Hugs! Kim
Nervous Pending Labwork *The Wait*
After 2 years of abdominal pain, painful BM, severe bloat, and some off/on bleeding finally got in for endoscopy and colonoscopy. Dr removed and biopsied 25mm polyp in sigmoid colon but was unable to remove a "large, lobulate, partial obstruction, friable mass found in recto-sigmoid". Approx 6cm x 3.5cm. Took several…
New Caregiver - brother rectal cancer
Wish we weren't part of this group, but here we are. My younger brother (52) was diagnosed about four months ago. He had been dealing with bloody stool for six months to a year. Finally took him for a colonoscopy and was notified right there that he had a very large tumor about 10 cm up and it was about 85% blocking his…
soundboard
Hello, I am new to his forum and was diagnosed with sage 3 colin cancer after a colin resection to remove tumor. It was discovered I have mets to lymph nodes 12/24. I went to the Doctor yeserday and she said I was "cured" but unfortuinalty have mets to the lymph. I asked how she was going tohelp me through it and she said…
KRAS and NRAS Wildtype Positive
The results came back from my tumor. It looks like more good news. My doctor and I had a long discussion about all options, pros and cons. He is totally letting me steer my ship and for that I am grateful. He was compassionate and honest. We talked abou the alternative therapies He supported me in my decision to not do…
Advice
So my dad struggles with battling this disease often so to all those who are battling like him I am wondering . What is the best thing for a caregiver to do when a survior is feeling down and hopeless as I am sure everyone does ? I know there is nothing I can say to make it easier for my dad no words . Is it best to just…
Low white cell count
So when I was first diagnosed, my WBC was in the normal range. During chemo, it dropped to as low as 1.8, at which point my oncologist delayed the next treatment. Really...in the last 4 years it has remained low all during treatment. I still can’t get it to normal and in fact in the last 9 months, it has dropped from 4.0…
This Yr 20 Rounds of Chemo, Biked 1,500 Miles, Ran 375 Miles, Swim 30 Miles
To go into chemo or continue chemo is a personal decision. And many times, depending on diagnosis and other things, passing on chemo for quality of life choice makes sense. And on the scale of things I like to do, chemo is not high on the list. I had surgery and 12 rounds of chemo almost 5 years ago. Then a lung met with…
questions about pump infusion following oxyplatin
I will start 6 months of chemo for colon cancer next week. The plan is to receive oxyplatin infusions every 14 days followed by a small pump taped to my chest delivering FU-5 into my port for 48 hours. The pump will require removal after the 2 days necesitating another visisit to my oncologist Is there anyway a patient can…
Worried
In march my dad was dianosged with stage 3 rectal cancer and told it was curable . So he had radiation 24 treatments and 3 rounds of chemo treatment . Last week he had surgery to remove the tumor and the doctor said it was one of the worse she had done . But they ended up getting the tumor out but he ended up with a…

Colorectal Cancer

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