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Lynch Patient w/ Stage IV Met to Lymph starting treatment w/ nivolumab (Opdivo)
Hi all... it's my first time posting here and 4 months ago I thought I would never be on a Cancer Forum again posting a diagnosis... but here I am. 2nd time colon cancer battler (the first diag was Oct 2009 Stage IIIC spread to 5 lymph localized. Last Spring my mom got her 2nd diagnosis in 26 years. She's 75 and thankfully…
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Butt/Karen and Other MSS Types - Immunotherapy Trial
This trial is looking for MSS patients who had chemo stop working https://clinicaltrials.gov/ct2/show/NCT03953235 A bit more here https://cancer.columbia.edu/clinical-trials/phase-12-study-grt-c903grt-r904-vaccine-targeting-shared-neoantigens-combination It is one I am trying to get into. Note that they do a blood test to…
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Merry Christmas!
Merry Christmas to everyone on this board and their families. I wish you all good health and if you can’t get that, I wish you all peace and strength in your journey. Thank you all for the advice and comments on this board. We each have our own struggle with this disease and it helps to read about trials, drugs, helpful…
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Progression of Symptoms With Lung Mets
Thanks to all of you for weighing in on my results from Charleston. I have some choices to make but for now, I am still leaning towards no more chemo. My oncologist told me that he didn't forsee the mets causing me any issues six months from now or even a year from now. I am wondering if anyone here has had experience with…
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Happy Birthday, Sestra17
May your day be filled with as much joy as you can fit into it. TRU
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Re
How to post a picture?
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Getting ducks in a row
Question: How many here had to have blood with APR surgery? I want my donor to be a family member if I do need blood.
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IV vit C #600, a road less traveled
It is ca 4.7 yrs since wife's initial diagnosis, 4.6 yrs of IV vitamin C along with about her weight in supplements. She's infused about 36,000,000 mg of vitamin C, about 80 pounds of the stuff, directly into her veins, not even counting the oral part. This year, usually 30 (too low) - 65 grams per infusion, about every 4+…
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Chemo Is The Only Thing On The Table
fDid not get the news I wanted. I have 7 tumors with some size to several which makes me a no go for anything other than what I dread most.. chemo. If and when the chemo destroyed or shrunk the tumors, we could talk additiona/other treatments. What happened to a simpler life? My daughters are in tears begging me to do the…
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Praying For Hope From MUSC
Just wanted to leave an update and beg for good energy and thoughts in the process. I thought the tumor board at MUSC was meeting today but after talking to the nurse, she said it would be first thing Wednesday morning. I'm usually not full of anxiety but I feel it this afternoon. I hope that ablation or surgery will be an…
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New treatment being tested
One day they may hit the jackpot, and find something that cures. Until, then, the trials continue. New Trial in England Tru
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Dreams
My thoughts are all over the place right with the anticipation of surgery. The past few nights I dreamed I had surgery (one of the dreams I was in Mexico).
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Things "WE" Don't Talk About With Most
I am posting this because I have had several members contact me about "no chemo for life" stance thru email. I am very open and straight-forward and in no way want to impose my own decisions into someone else's. I respect each of you and the turns you have to make to navigate this crazy beautiful thing called "life". This…
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Happy Birthday Melanie67 for the 17th
Just flying by with a Birthday greeting. I hope you have THE most wonderful day; filled with all the love and laughter that your soul needs. Tru
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chemo cost
Just opened todays mail. Insurance was billed a little over $30,000 for 5FU for month of Oct. They got a break of a little over $7,000 and paid $22,000+. WOW! I am shocked and SO BLESSED to have insurance.
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Newly diagnosed - need advice
Hi I was diagnosed few weeks ago 7cm in cecum with extended local nodes and possibly lynch syndrone. Surgery for right hemicolectomy and hysterectomy scheduled for Dec 3rd - waiting for genetic Lynch testing results to see how much to take. Looking for advice on how to deal with surgery recovery what should take for…
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Good News/Bad News - CHEMO DONE!!! Chemo Not Working
The good news is I am done with FOLFORI The bad nes is I am done with FOLFORI K-rap. What I thought was happening last scan has happened. It stopped working. More mets and the bad boys have started growing again, one pushing 6 cM. Yay. Looking for trials now and then at other possible chemos if there is no trial or the…
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Folfox chemo before APR surgery?
Hello I am new to this forum but have been reading a lot on here as my husband who is 60 years old found out in July he has Stage 3a rectal cancer. He had the 5 weeks of chemo radiation and added a few more radiation days to try to eliminate the cancer. Unfortunately the tumor shrank a lot but it's still there. The surgeon…
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Lung Mets/Time
I am trying to gather as much info as possible to make descisions to come. I am waiting for my referral appointment back to MUSC in Charleston and thinking a million things at once. Does anyone have information to share on the growth rate of colon mets to the lung without treament? I know everyone is different but any info…
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Another CEA jump.
A while back I posted up a thread outlining my CEA craziness. Because the search function majorly sucks for this site, here'sa quick summary. My CEA has been abnormal for close to 3 years now. For the past two years, my CEA has bounced around from 11 to 20. Every CEA test was accompanied by a CT scan which showed nothing.…
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11 Years Ago
11 Years ago, the day before Thanksgiving, I'd gone in for a colonoscopy because of rectal bleeding. Well, long story short, it was the dreaded C word. I've been through a lot and still am but I'm here 11 years later. This group has helped me so much in everything that I've gone through and some of it wasn't even cancer…
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vitamin c iv and mistletoe
I am 36 years old and was diagnosed with stage iv cc in aprilmof this year i had a colon resection and liver resction. I finally startedfolfox6 last week. I recently consulted with a natriopathic oncologist about anything I can do in addition to chemo. She has recommended some supplements as well as mistletoe injections…
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Pushing For MY Life & Not Waiting
After crying a while and thinking of all the what if's, I picked up the phone and called MUSC where I had my liver and colon surgery. My liver surgeon's nurse called me back, heard me out and gave me something I needed...a plan and HOPE without waiting. The tumor board meets every Tuesday to go over cases and make plans of…
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After affects of Chemo
My husband just started his chemo, has only had one round so far, was suppose to go in today but his labs wouldn't allow. He is only doing the 5fu right now due to some neuropathy he developed after his surgery. He may do the oxiliplatin but my husband is very unsure if he wants to do it. I have been hearing about the…
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Not Good News
My doctor's nurse returned a call to me today. I have an appointment with him tomorrow at 1 to discuss the CT results but I called today to ask why they weren't posted. She said he tried to get in touch with me Friday. He said the scan showed new spots on my lungs from previous scans and he thinks it is the colon cancer.…
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Encouraging 1st CT after Opdivo started!!!
Well it's about time we got a little good news and right before Christmas too! So I am not going to get over elated but.....This is the best news we have received in a very long time! The Lung Met is gone, the Met in the duodenum is gone, the main tumor has shrunk by almost half, the liver mets are mostly shrinking while a…
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So Thankful For All Of You...
To know I can come here and alway find a hand to hold is priceless....thank all of you. I am so humbled by the genuine love and concern I "feel" from the members on this board. I wanted to post just to answer some questions I found in the posts you left for me...Two small nodules were noted in June when I had a scan but we…
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A Lot To Think About
Today was one I would like to forget. My oncologist told me that I have one 8mm nodule and 4-5 very tiny other nodules. He is pretty certain they are mets, particuarly the large one. Right out of the gate he told me that he thought radiation to zap them with them being scattered over both lobes would cause too much damage…
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Liver resection?!
Dear all, May I have some sharing about liver resection? I don't know if that would be good for my mum because she is already 70 years old and she is not as healthy as before (after the colon resection, 3 rounds of chemo). Besides, the oncologist doesn't think this is a good idea! I've heard that liver resection is called…
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Signet Ring features?
Hello Everyone.. I am so glad to have found this web site and this community. Last June my husband was diagnosed with Rectal cancer, adenocarcinoma with signet ring, stage 2/3. Everything we found online referencing signet ring was ominous and we've been trying to understand what it means to have signet ring 'features'.…