-
Waiting and Waiting!
Well, last week I went to SF and met with Dr. Munster. It was a long trip for a short visit, but I guess that is how you have to do it when you do trials. Instead of telling me they had a trial for me to start now, I was told about a new trial that isn't approved yet, but is supposed to be approved this next week. The…
-
Good news!
Hi everyone - Rick and I are currently at Dana Garner and we just got the scan results back - ALL CLEAR! No more chemo! The new doctor is recommending increasing D levels and starting an alternative diet including Chinese herbs. John - I know you'll like that! In fact, I used your case as an example. Love to you all -…
-
Update on my mom (va-beekeeper)
Happy Wednesday! I wanted to start by thanking everyone who responded with such positive things when I first posted about my mom being diagnosed. We have remained optimistic as she has started her chemo treatments. She will be on 12 rounds of 5FU, Oxi and something with an "L", which seems to be a standard regimen for her…
-
Prayers Needed Please *update*
Hi all, As you know this is the first place I turn to when I need advise or prayers. Just got a call from my daughter (19), she just came from her OBGYN, we are awaiting the results of her pap smear, she has had 2 abnormal ones in the last 18 months, if this one is abnormal as well, the doctor is suspecting cervical…
-
been away, but not far
I left the board when i could nolonger read of people i was just begining to know, dying, it was so sad and made my problem with this cancer seem small, i felt guilty for still being here and living when loveones were lost, why me. This cancer has wrecked my life, i have had three serious surgeries and will be getting my…
-
Devistated Daughter
Hi, in October 2010, my mom (48 yrs old) was diagnosed with Stage 4 colon cancer that had spread to the bottom part of her stomach and a tumor on her spine. They immediately started chemo and radiation. She's had 5 treatments to date and the cancer is still spreading. It's infected 12 lymph nodes between the colon and the…
-
And so the adventure continues...
Hi everyone! Ok... update on the ongoing adventure! This week I guess ends my holiday from treatments/medical appts. I guess. I have to go to the hospital (Vancouver General Hospital aka VGH) Thursday morning to get my second port-a-cath inserted. The first one I had was back in 2007. I finished my FOLFOX (well, minus the…
-
power port question
Hello there, My mum just put the power port in her body this morning and I wonder if she can use it immediately? or she has to wait till the wound is healed? Does anyone of you have experience using it immediately? Many thanks to your sharing. Dora
-
mixed PET results & question re radiation for bone mets
Brief background: I'm on Xeliri + Avastin for bone mets. Done 16 cycles so far and side effects not too bad. I had a PET scan yesterday and got the results today. Mixed news. The good news is that the pre-existing mets have ALL shrunk further -- and one has disappeared completely. So, the chemo is still working. (Also,…
-
If anyone needs a listing of treatment centers in the US:
one can be found at: www.patientresource.net (in case you may not have such a list already)
-
Kathleen and ****
Just wanted to let you know that I am thinking of you guys. I hope that you are hanging in there. Be assured that I am sending many prayers up on your behalf. Take care Smiles, Dawn
-
Have a question
What is HIPEC? anyone who has experinced this.
-
Well were back
Well were back from the colon doctor some good news and some bad news good news is that she's willing to go in but the bad news is the tumor in the colon is also in his back but she said that jorge looks good looks like chemo has helped make the tumor in the liver smaller and the lunph node are smaller as well the tyumor…
-
Pepe!
Haven't seen much of you on the board recently. Are you doing ok? Hugs, Marie who loves kitties
-
Cancer is not a disease it's a survival mechanism
I've just started reading this book and it's basically implying that chemo is killing thousands of people more so then the cancer itself. Anyone else read this book? I will continue reading on but already signals are coming in strong...maybe a compromised immune system is not such a good idea.
-
Not sure what to do
I'm on my second recurrance for stage IV colon cancer. Original diagnosis in 2007 had a bit of colon removed and an ovary where it has metastized, then FOLFOX for 12 rounds. had first reccurance 18 months later (12/08) with mets to omentum, and had HIPEC surgery followed by 6 rounds of FOLFOX. Less than 12 months later…
-
Interstitial Lung Disease
Hi Everyone - I want to thank you all for your great advice on my prior posts. I would like to comment on something I haven't yet seen on the discussion board. We have an appt on Thurs with a Pulmonologist as it looks like Jimmy has some lung problem that showed up on his last CT. The Dr. at Sloan thinks it was caused by…
-
JohnSFO Memorial
I haven't posted in a while and many of you probably don't know me or remember JohnSFO, but for those of you who do and who are local, there will be a memorial on Saturday, 1/22/11 in the Mackenzie room (top floor) of the Huang Building on the Stanford campus, at 4 p.m. Refreshments will follow. If any of you can make it,…
-
scared and worried today
Jorge has to go and see the colon doctor today at 2 and I've been trying to keep my cool. But its getting hard and I also think its getting to jorge last night he told me off he told me that I wasn't taking good care of him and that he didn't want me to go the with him to the doctors today . I've cried all night long don't…
-
Need positive thoughts and prayers
On WED. I'll be recieving my 2nd treatment of chemo after my liver resection. And the follow up CT scan results. I'm trying to think positive, but my mind starts to ask "what if?" I was really looking foward to having my ileostomy removed sooner, but I guess I'll need to wait. Your support on this website is so helpful to…
-
If I could, I would erase this post....sorry for the feelings! Please, just let this go! Old posts
My suggestion is, that if you have something new to add, start a new post, please. I just got the wind knocked out of me by a year-old post where our beloved Shayenne was posting, still full of life and optimism. We just suddenly lost 2 beloveds on my other board, and all of us are reeling there...I am going to make the…
-
An inspirational video
http://www.ted.com/talks/charity_tilleman_****_singing_after_a_double_lung_transplant.html Charity Tilleman, opera singer who also has had double lung transplant, states that: "Medical conditions do not negate the human condition........I want to tell you that we need to stop letting disease divorce us from our dreams.…
-
Dr Lenz's clinical trial
I've been off the board for a few months. Did Dr. Lenz get his clinical trial going? Anyone participating? Very curious! Traci
-
Erbitux, 5fu, lv, & Irin
Changing from Xeloda to 5fu, I am starting folfiri with 5fu & Erbitux on Wednesday after a port is put in, it is suggested by a second opinion (Dr. Lenz USC) that I have a double dose of Erbitux (500mg) once every 14 days with the chemo. My Onc wants me to do the protocol, Erbitux every 7. I can't decide what I should do…
-
Back for 3 month checkup Monday.........UPDATE !!!!!!!!!!!!!!!!!!
Labs at 11:00 and appt with Onc at 11:40...I guess I will find out everything Monday...Not sure if CEA can be deciphered that fast...doesn't matter....it is what it is... you'll never guess what this 56 year old is doing right now....listening to "NELLY" singing "COUNTRY GRAMMAR"...LOL....I love this kind of…
-
Your love and kindness help sustain us
Dear Friends, Thank you very, very much for your kind responses. I can't tell you how much it means to me to know you are out there, know what we are going through and you care about us. Thank you. **** does have a small hernia but he does have fluid too. Can someone please tell me what they do to get rid of the fluid? Do…
-
holistic healing
i have been coming to this board since 2007 and it has been wonderful it has helped me so much.. i have taking all the chemo that they wanted me to take i have been in 2 studies and now there is nothing that they can offer me untill they find a new study.. i have colon cancer with mets to the liver had the colon surgey and…
-
calenders..
Just wondering if anything has happened with the calenders. wishing everyone has a great week. Petrina
-
Relay for Life, Kerman CA is starting up!
Does this happen every where at the same time?
-
Chemo #8
Every treatment is different but the last two have been really bad.. Monday - Wednesday were not to bad just tired. But when I get my shot on Thursday it all goes down hill. I feel like I have the flu. Tired, soreness, not able to eat, the whole works, even my hair hurts. I did talk to my doctor about my dizzyness but he…