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What to expect from the doc when...
When the doctor came in on Friday to give the news that my husband's ct scan showed 4 tumors, he spent maybe 5 but definitely less than 10 minutes with us. Of course we were shocked and devastated. In that matter of time he quickly explained the course of possible treatment, and said see you on Friday for your first chemo…
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Living With Chronic Illness Builds Courage
Here is the article I referred to in my update post: Living With Chronic Illness Builds Courage by Pauline Salvucci The challenge of living with chronic illness isn't always apparent when you're first diagnosed. This is just the beginning. It takes time to understand your illness, the treatment options available, and how…
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Chemo Break is over back to reality
My chemo break ended yesterday. I only took 4 weeks off but did enjoy some of my short break. Only really started feeling normal about the last week. Guess I shouldn't have expected more.What concerned me the most was my CEA was 286.2 on 8/17 and jumped to 431.4 on 9/28. I know I shouldn't dwell on the numbers but this is…
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All Right!!!!! Which one of you told Johns Hopkins?
newswise.com/articles/view/581134?print-article "Popular Colorectal Cancer Drug May Cause Permanent Nerve Damage?"
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Questions about maintenance chemo
We met with the onc yesterday and began discussing plans after this session of FOLFOX/FOLFIRI. Jake will be finished the end of October. I am probably jumping the gun because he isn't having his CT scan until next week but it doesn't sound like its results will affect his future treatment plan anyhow. So far there has been…
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Just wondering?
Hello, I'm new and I've been watching the board for sometime, lot's of good info. here. Just alittle about me, stage 3 colorectal cancer. I've had the radiation and the chemo, all the good stuff...I had CT Scan a couple of weeks ago.. it looks good. Doctor mentioned that it found that I have gallstones and some spots on my…
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hubby stage iv. don't know if I can stay strong.
Hello all. my husband "graduated" to stage iv yesterday. 4 lesions found on his liver. originally diagnosed in Nov. 2009 had a resection and chemo. he's going for the pet scan this week and will start chemo on Friday. he is 46. we have 3 children ages 17, 15, and 11. we are devasted but he is a fighter. definitely nervous…
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Happy news - I'm a mother-in-law!
On Sunday, my son married a wonderful young woman. The wedding was beautiful. The families mixed fantastically (all parents sat together during the ceremony, and walked out en masse - me between the 2 fathers. The bride's mother died years ago.) Sarah wore my wedding gown, much to the delight of both sides of the family.…
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Nana b everything fine ?
any new results?,hope the best, praying for that!
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Dr Appt today.......
Results were all blood platelets and levels great immune system up and running fine...CEA is though at 50, knew it was going to be high because nothing has been done until last Monday Now we will see how it goes and if it goes well them chemo breaks etc........this is my baseline and he will see me again in 2 weeks after…
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Appt with Thoracic Surgeon -UPDATE
UPDATE: As expected, the surgeon said that the size 8mm and the Pet uptake - 1.9 is too small to warrant further action at this time. 3 months and get a CT scan this time, not PET. I'm at the 2.5 years mark since DX and colon resection. General accepted stats are 50% of recurrences happen with 2 years of Dx. So, could be…
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good results
FINALLY! some good news. My ct is clear, my cea is 2.00. No more scans for 6 months. I feel so blessed and so happy for my csn family,thank you for all you support. Love and hugs to ya.
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Results
Got results from both of last week's tests this morning. My CEA was the same as always, very good! My chest x-ray was good, just showed some bronchial thickening. I would assume this is from previous infections. I feel great about me, but my excitement is tempered by knowing there are so many here that would dearly love to…
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laurettas,,,,,,my apology
It was in bad taste to make the statement I made to your post and I do want you to take this apology that in no way did I want to hurt anyone...everyone should be entitled to say what they want when they want and I did, and you did, and I think I got a little out of line with my rebuttal......my apology.............buzz
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Bad month
First it was the husband of a friend I had made on the Head and Neck board who died suddenly from metastasis to his lungs and spine. He was fine one day, then went to the ER with breathing problems and passed within a couple of days (this was a great guy, truly one of the good ones) Then a supplier partner who was…
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i love henry TCM post
I hope this does not pulled like the last time i praised my TCM oncologist doctor. I saw him tonight after 3 weeks. Had to wait for 30 minutes and chatted to a lovelly lady about my age. she was dx stage 4 nasty unknown cancer in 2004 and has been going to henry for 7 years now. still lots of tumours but all dormant, her…
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dodged a 3rd bullet?
One of the bizarre aspects of this disease has been that my wife's initial prognosis seems to keep getting worse and worse while her status gets better and better. She has healed from her two surgeries fast, and unusually well according to the radiologist. The mesenteric invasion area remains clear and has not produced the…
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Does our immune system (Maybe be one for Emily, LisaP, or John23)
..ever recover from treatments etc? Come December it will be two years since I last had treatment. Just wondering if anyone is the same, that if you get hit with a virus, you really get hit by it.
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Want to hear something I got in the mail from my insurance company
I received Saturday a letter that read pretty bluntly that the use of avastin in my treatment was accepted by the nurses and Drs on the insurance bd only to go ahead in the use but not sure at this time whether or not they were going to pay for it..If they don't then I won't...I have to assure my family will get by if I am…
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Please Help - Questions About Chemo
Hello all-- I hope and pray you're all doing well and recover. I come from the breast cancer forum, but wanted to share a story here. Someone I know dearly, her aunt was dx with a rare type of cancer, and she is getting treated with chemo regimen that's also used for colorectal cancer, from my understanding. Just wanted to…
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A Thought for the Caregivers
I posted this some time ago, but we have some new caregivers on the board, and some of them are struggling, so I thought it might be a good time to reprise it: You were there when we discovered we were ill, and you shared our shock and pain You were with us in the hospital, worrying while we slept You stood by us when our…
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A great time in Europe. Afterward, not so much fun...
Hey gang! The family and I had a wonderful time in Europe. We saw a lot of great things, ate a lot of great food, drank a lot of great wine and had a lot of great conversations. I felt pretty good and did a ton of walking. I took some naps and skipped a long day of walking in Versailles and what I though would be a long…
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ceo marker
Hi... I have primary peritoneal cancer but would like to know about a test .. a CEO ... which was done on me. Could anyone tell me what the normal range is for this test? Thanks in advance.... :)
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HEY!!! Back from Onc Visit...... NEWS!!!!!!
Onc walked into office to me and hubby's VERY long faces. I looked a mess after crying all day. He asked what the heck was up??? I told him about what rad onc had said. He said that was the problem with prelim reports..... the tech that wrote that report recanted and now says she believes the tumor is in fact mCRC.…
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Symtoms
Hello, Today is my two year anniversary with dancing with NED, Breast cancer. I have been having pain for the last week on my tail bone and of course we all carry that dread with us that the beast might be back. I did make an appt with my P.C.P but can't get in until the 4th, so I'm here to ask what might be some early…
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Excerpts from Chapter XIII....
I had posted this to Winter's thread in response to her's. I second guessed myself after posting, thinking I had said too much on her thread. Before I could edit, that option had been removed. I thought since it was out there, I'd just go ahead and share it with the group. Comment if you would like too. I have been "knee…
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small bowel cancer (adenocarcinoma)
Hi My Husband has small bowel cancer (adenocarcinoma) the doctors told us it was rare and he had not seen this type he is treating him the same as he would someone who has colon cancer, he was diagnosed in November 2010 with Chrons, they did all sorts of test and they told us they did not see any signs of cancer. In April…
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irinotecan +oxaliplatin
Dear all, My mum onc mentioned about using irinotecan and oxaliplatin at the same time. Have any one of you been on this regimen? I would like to explore more about it before we move to our next step. Many thanks! Dora
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I passed my test
CEA was 1.3! Yah! I have become anemic since the last visit three months ago. Low iron, low red blood cells. CT Scan in NOV. Thanks for all good wishes and prayers. Mark
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Scan results
Not so good CEA is up another 100 pts., scan showed some new growth in the liver. My question is can anyone help ? They want to switch my husband's treatment to Erbitux and I have read so many horror stories and now we are both scared, they say it is the only other option. Also they cannot see why his CEA is jumping so…