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Back from RFA
On top of this horrible dx we were hanging on to the hope that they could get a tumor that was very close to the hepatic vein. Just before going in they decided to use cold instead of heat (made me a little nervous but they assured me that cold is just as affective as heat). They decide that because of how close the tumor…
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pet/ct scans
We just left Dana farber and all mets continued to shrink and many have disappeared! All Good news! :-) Cyn
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Bad Day at Infusion......
So here is how it went down. Arrived at the infusion center about 5 mins late for my appointment (Appoint at 11:15 am arrived around 11:20). It's no big deal they are usually running late. 15 minutes later taken to my chemo chair. Get premeds -Zofran, and dex. Port accessed start saline drip while we wait for pharmacy to…
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only place to go
tonight my neighbour was flown out of our small city by helicopter to big centre....6 hour drive for us. He is throat cancer and has gone into renal failure and the docs there think some dialysis could help....I feel so moved so helpless so ..when I had my liver resections I was in this big hospital and the heli pad was…
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****'s Birthday!
Hi Everyone, Today is ****'s 54th birthday, his 3rd birthday since his stage 3c diagnosis. We can't believe he has been in this so long (and we know many of you have been in it longer) and we are tired but we are grateful. As you know, we have had many, many hard days and weeks. 57 or so rounds of chemo for **** and 2…
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Lori S
Where have you been and how are you doing. Just haven't seen you post lately. Let us know. Kim
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Mom getting another opinion
Mom has an appointment with a new doctor at the University of Arkansas Medical Science (UAMS)Oct. 13. They have done wonders for a lot of people. Please pray they can do something for her. FM.
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Update
Hey gang, I haven't posted much recently and wanted to let y'all know that I am ok and what's been going on. After a few weeks of feeling like crap with a lot of throwing up and a fair amount of fatigue, pain and loss of appetite I have started to feel a lot better. I saw my onc yesterday and was supposed to get chemo…
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NEED ADVICE End of holidays I start tomorrow just AVASTIN as maintenance! Cea rised 0.4 after 2 moth
but still below 4 . Never had avastin alone ,always with folfiri,what should I expect any secondary effects?. thanks for you comments! Hugs!
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Buuuzzzzz????? Buzzard..where you be????
Hey Schweetheart! Where you hiding out? Any news on anything? You good? Jennie
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Opinions Please...Alternative vs. Chemo
Of course this has been the topic of many discussions before and I hope it's ok to bring this up again, but my husband, stage iv, and I really are trying to figure out what to do as his first chemo in 18 months is coming up on Friday. He has 4 mets to liver and we are awaiting the results of the pet scan. So... any input…
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Finally got my fix!
Was able to go over to my daughter's today and get some snuggle time in with our newest grandson. He was born two weeks ago but we had to leave the day he got home to go to my stepfather-in-law's funeral so we missed his first week. Then Jake had a treatment and our son-in-law was home getting his two weeks of bonding with…
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KRAS mutation "Novel drug TAS-102 makes headway in refractory colorectal cancer"
as reported at oncologyreport.com (main page today, "in the pipeline" section, first listed) headed toward phase III trial (Some might want to check out info on BINF 1120 (Avastin-like) (medicalnewstoday.com/articles/235298.php and Aflibercept,which much has been reported recently
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Make Craig Laugh
Craig said in his most recent post that cancer was trying to wipe the smile off his face. Well I thought it is our job to try and put that smile back on so if anything funny has happened to you or you've heard a good joke, post it here.
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colostomy revision
Hi all, Hubby was operated on today, a colostomy revision. Having the colostomy since January, the bleeding had gotten so bad he would have to lay down and apply pressure to it for 10 minutes or so in order to get it to stop. For the revision, they recut the area around it and the edge of the stoma as well.(do not…
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My update - good news
Good news! I am in remission again after a clear lung CT in Salt Lake City at the end of last week. How delightful to read "much improved" and "unchanged" in the radiologist's report! I danced in the oncologist's office. Also my cough and wheezing, which started in April, and was likely pneumonitis from the stereotactic…
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Short Term Memory
Oh my goodness, I've been having problems with remembering the simplest things since diagnosis. Sitting here tonight I'm thinking that there is something that needs to be done upstairs, so there is where I'd be heading and then go up there and can't remember the reason I'd even go up there for. Looking around upstairs,…
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It's Game Time!!
So tomorrow at 11:15 am I will have the pleasure of receiving my first cocktail of FOLFIRI. I've decided to switch from the 5-fu pump to the pills, which should be interesting, but I need a break from that pump. Anyways, I spoke with my oncologist today and he stated that I would get my infusion every 3rd week. Is this…
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surgery date
Hey guys surgery date is Novmber the 8th and the doctor has to take half of jorge's liver and all I can say is OH MY GOD thanks everyone hugs Tina
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My Wonderful Husband
My husband has stage 4 colon cancer that spread to his liver and lungs. He has had his surgery about 3 years ago and has been on chemo ever since. The Onc wants to keep him on chemo, because she is afraid that the cancer will come back. He is currently cancer free. But something has been bothering me for awhile now, and…
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My Time To Complain And Get Opinions
Hello All, I spoke to JBG tonight. She had returned from seeing her onc today with more distressing news. He was to decide if, when, & what type of chemo she will be on. Since pet scan in February, she has been told that she had 3 small spots on one lung. Supposedly that had not changed on June cat scan. Now, October cat…
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Need some info on cyberknife
I am Stage 4 mets to liver, resection did not work, liver not so great. Don't want chemo for now or Sir Spheres, I brought up cyberknife to onc, he refer me to local hospital that has it. He is not giving me much info, as he does not know alot about it. Can you help with some info before I go to see the other dr. Wonder if…
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Life is like a box of chocolates, you never know what you are going to get....
Life is like a box of chocolates, you never know what you are going to get.... In 1994 I married my college sweetheart immediately after graduation. Four months later I found myself in the middle of a painful separation and ultimately, a divorce at the age of 24. During those painful months I managed to see Forrest Gump in…
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weird lumps post chemo
What Gail posted earlier about her daughter got me to thinking about the post-cancer lumps I have on both of my forearms. The onc said those type of lymphedema are usually seen only on post-breast cancer patients, but they did an u/s just to err on the safe side. Does anyone else have them? They only bother me--swell--when…
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For those of us with NOT SO ROSY caregivers
Funny thing this cancer, from my point of view, I so admire those that stand beside their man or woman, WOW, I admire you!!! You are truly it seems the few, and so admired by me, by so many of us. For those of us, who do not have that miracle spouse, for those of us, whose spouse couldn't deal with it, the ones that left…
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“The Day I Met the Legend” – a Tale of Empowerment Against Cancer by Sundance
As the old Gilligan Island song used to say, “Just sit right back and you’ll hear a tale…” LOL! LOL! “Does anyone want to hear about one of the greatest days I’ve had in the last 7-years since I was diagnosed with cancer?” Ok, lets have a show of hands…that’s 1-2-3…and oh, you ma’am…that makes 4…great, majority rules…
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anticipating side effects of 5-FU... supplement suggestions?
Hello, My mom is going back on 5-fu after being off Folfox for several months because of some "minimal" activity in her abdomen. My mom experienced fatigue, thinned hair, and skin discoloration as a result of the 5-fu before. In anticipation of this, does anyone have personal experiences with supplements to help with these…
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Cousin with stage 4, Help Please
HI, I used to post on the Lymphoma board but have never posted here. I am a 2 time NHL and 2 time BC survivor but really could use your help here. Have a cousin through marriage with stage 4 colon cancer. It was never found on colonoscopy, grew on outside of colon, very invasive and aggressive. They have given him 6 months…
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CPT-11
Question: I am getting ready to start 5FU, CPT-11 and Avastin. I have heard that diarrhea is a side effect of CPT-11? I was wondering what is the best thing to take for it? Also does the CPT-11 and Avastin seem to cause more people to have issues with throwing up? I had 12 treatments with 5FU (6 with 5FU and oxciliplatin…
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Hip pain
Hi all, I'm hoping that someone can answer this question for us. Rick is experiencing pain in his left hip, it hurts when he gets up out of a chair and especially when he lies on his side in bed. Can this be a normal side effect of either Avastin or the Neulasta shot? Thanks, Cyn