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A small collection of pics...a few more..
from my dutch world! (On my expressions page) More to come, I promise!!! Knuffels, Kathi
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Up date on Hubby
We saw the Madison Team yesterday and everything seems to be a go for the liver resection. They said they will be calling in the next couple days and will have surgery in next two weeks. Needless to say we are so happy except that they informed us that this surgery has a 3% mortalilty rate. This is wonderful odds (I do…
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CEA Markers
Hi to all, just wanting some information on cea, my husband is on a chemo break at the moment, having been dx 17 months ago, and at present being treated for Colon mets to peritoneum, liver and lung. What has been strange is that his Cea has never gone up!! Always around 3 - 4. Has anyone else experienced this? Again my…
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Cimetidine use
Have a few quick questions for those of you who have used cimetidine. What dose did you use and did you use it all the time or just for a period of time? Also what was your opinion of it? Did you think it helped?
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colon mets
Has anyone had colon cancer thats has mets to the liver and lung? had colon cancer back in 2010 now mets to liver and lung. Dr. is suggesting liver ablation, would like to talk to someone who has had it, please, then they will work on liver. I feel they are taking me apart one piece at the time. need encouragement.
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Bowel control
My husband had resection of small and large intestine without colostomy end of Nov. and continues to battle bathroom issues. It's either too much or not enough. Can any of you give me an idea of whether he will regain some normalcy in this area? Lisa
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Blake, Is Anybody Out There?
Just wondering how you are doing? Have not seen you in a few days. Hope you are much improved. Check in when you can. Luv, Wolfen
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Hey..... NED stopped by today!!! :)
YEP.... NED came calling today. God I love him!!! I have been holding off sharing my info until I had all the facts in. I had my 3rd recurrence in my right lung and completed my 3rd Cyberknife on Dec 31st. I had my CEA done 4 days after CK and it had gone up to 13 from 8. Doc said probably due to cancer cells dying off. I…
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I am just plain scared
As my husband's caregiver I am always afraid. Am I doing the right thing encouraging him to continue his chemo or should I just let him decide? He has CRC with mets to liver, gallbladder, pancretis, lungs and god know where else. Oh yeah, he also has a horrible adbominal fistula that no one will even keep an eye on. CEA…
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"Local Therapies for Unresected CRC Metastases to the Liver:A Comparative Effectiveness Review"
I rec'd this in an email and its rather lengthy but may be of assistance in giving ideas to those with mets to liver that cannot be operated upon....Trying to see what else site offers and its not easy to me…
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Husbands surgery in a week
My husband is having his surgery next Tuesday. We've talked to the surgeon obviously. But I thought I would ask all of you what to expect. I'm very anxious and so his my husband, he's 39 and fit so I'm hoping that will help. Michele
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"Is the 3rd Time the Charm?" – Only The Shadow Knows…
Well, I just wrapped up my 3rd scan cycle from last year’s fight…I’m 9-months out of my last treatment now…sitting back in the blood labs and in the infusion department, it seems just like yesterday’s nightmare…crowded waiting rooms, standing room only…new folks coming over the hill and into the cancer system quicker than…
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Back from my break from cancer and the boards
OK - I always write long posts, and this one will be no exception. If you are a stage IV CRC patient, please stick it out and read through to the end. (If you have port troubles you may want to read further also.) For the rest of you, if you are bored to tears, you can quit early! After over 2 years of chemo, I just…
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If you want to send a pray/good vibes/good wishes please feel free to use this thread?
I know people will complain that this post belongs in the spiritual forum, but posts in there get missed. Anyway I thought about starting a thread like this, I think the colon club has something similar. So if anyone wants to send out good wishes/vibes/prayers etc please feel free to use this thread. I'll start it off…
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Maine Girl Bouncing Back After 6-Organ Transplant
Maine Girl Bouncing Back After 6-Organ Transplant By THE ASSOCIATED PRESS Published: February 3, 2012 at 8:38 AM ET Excerpt: HOLLIS, Maine (AP) — A 9-year-old Maine girl is home from a Boston hospital healthy, active and with high hopes — and a new stomach, liver, spleen, small intestine, pancreas, and part of an esophagus…
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Colonoscopy and a stoma:what's it like?
Haven't had a colonoscopy since my colostomy (actually,since right before Tx began6/09)and i know i'm overdue and have put it off til ALL my docs got on me so i'm due next Thursday.... I'll be drinking "Suprep Bowel Prep Kit" the night before and the morning of my scope, which i haven't done previously; prior preps were…
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Mate Tea ?
Hi Folks, I just stumbled over this and found it interesting. I don't know if it's new info to anybody else but it was for me: http://scienceblog.com/51739/compounds-in-mate-tea-kills-cancer-cells/ Seems like I'might be drinking Mate instead of Malts in the future :( Toddi
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New Drug regorafenib,-- Free Webinar
Hey everybody, Don't know if anyone has heard about this, if it's a redundant post I'm sorry. My sister found information about this new drug, regorafenib, and a free webinar about it. Links below. I put in a plain path to copy and paste, not sure how to make it clickable. -Dawn…
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Never turn your back on a doctor
I saw my nephrologist yesterday. My auto-immune problems have flared again. He said my kidneys tecnically aren't too bad as far as producing urine and getting rid of toxins ect but he admitted that they were very'leaky'. my protein loss is up over two grams a day again. He started on the lets try again. This time the drugs…
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Interesting vegan reading.
I went off my supplements and juicing since early November. I am back on them! It's the only thing I changed and my liver met us growing. Time for me to get back to my Tumeric and others. http://eatsprouts.com/eat/rawfood.php
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CEA down
Doing a naked dance, don't worry, it is in the shower. onc called this morning that after a rising CEA the last 4 months it is down to.... 1.0 Am I a lucky girl or not. So happy, many sleepness nights later, I tell you, I always think the worsed. Our minds take often the better of us and not in a good way. colonoscopy and…
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ENT
I've been experiencing some problems with my throat. It seems like during times of the day it seems like there is something there that keeps me swallowing to get it down. Sometimes it works and other times swallowing doesn't. I've been put on an antibiotic for sinus, but it doesn't seem to help much. I'm scared as I've…
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Yet another dutch day...What started as a swap meet in Leeuwarden....
......Ended as an adventure in Northwest Holland. We had driven a very long time to this place, only to find that the swapmeet wasn't there. So, instead of just going home, we drove to the Northwest coast and visited some very lovely places. First, we stopped in Harlingen, a fishing village with alot of summer visitors…
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Happy Belated Birthday Phil!
Dang! I meant to get this out the other day! Hope you had a great birthday you old man! peace, emily
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Anyone here attending Call on Congress for CRC in March?
Is anyone here attending Call on Congress? http://fightcolorectalcancer.org/policy/call-on_congress
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First flight tomorrow
Wow, got an unexpected 'emergency' trip for work dumped on me today and will fly for the first time since I have the stoma and port. I hope Fort Lauderdale and Atlanta's TSA teams are not going to make this trip hell. I have no idea what to expect and how to deal with it, so I am quite a little bit worked up about it.…
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Courage this Sunday Morning
Good Morning Colorectal Cancer Survivors and friends, I am one of the quiet ones that sit back and read the Discussion Boards at least once a week if not more, but never respond, write or articulate my admiration and praise for this group of people that speak out on my/ our behalf. For all of you like me, I think it would…
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Got my juicer :)
Yay I got my juicer! I was putting it together last night and I have a question....I have the Omega Vert and there is a yellow tab on the bottom. Do you know what I do with that? Do I pull it all the way off or just slide it out of that pulp slot....I can't wait to try it out tonight :) plh4gail
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Staples - after the surgery
I about freaked after liver surgery that I have about 70 staples. The last time (when the pump was placed in the abdomen), they used steri-strips and that worked fine. That was a large incision, too, but not as large. I asked the nurse about numbing cream, she said, "no". Gave no rationale. I had staples after colon…
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Does anybody know anything about MAGLETS?
Miss her.