-
More on travel (after takedown)
If all goes according to schedule, treatment wise, I will most likely have my ileostomy takedown at the beginning of June. We have a trip scheduled to the beach about 7 weeks later. It is a long drive with some distances between bathrooms in places. I know everyone is different. But is it realistic to think I will be able…
-
Update
One more round of 5fu and then I prep for lung surgery March 20th. The plan is to remove some lymph nodes that lit up on the PET scan and section off a portion of my right lung. Since I am told surgery is the gold standard I try to think of this as good news. My surgeries have been progressively more difficult. Colon…
-
Stage what?
So my husband had his surgery and we asked what stage he was in and the oncologist said "stage unknown". What??? She said since the cancer in the tumor was so small and it didn't spread anywhere and wasn't in the lymph nodes that the pathologist couldn't get a stage on it. She even called and questioned him to make sure…
-
Cyberknife treatments
Greetings! I'm new to this board and don't know whether anyone has posted on this topic before. In late September I had cyberknife treatments for metastasis to the sacrum, and I want to offer a brief report on that. Cyberknife is a technique that delivers highly focused high-dose radiation. Because the focus is so precise…
-
so afraid to travel
please forgive me because i know it is not life threatening. My daughter has bought us tickets to travel to Naples Florida and tomorrow we leave. I am so afraid I can hardly breathe. i used to love to travel.....I once hitch-hiked alone from England all over Europe and across Turkey. now i feel like I cannot do this.....…
-
Cathleen Mary
Thank you! plh4gail
-
Blake , Buzzard , you both all right ?
Hugs from the other side of the pond.
-
probiotics to help with diarrhea and immune function
I found this paper today by accident, but its a good co-incidence. I have actually embark on intensive probiotic rebuild and having very results in many areas. bowel motions are the best in as long as i can remember. I also have plenty of energy and am sleeping well. And my positive spirit is more positive. that documented…
-
Husband NED after 82 rounds of chemo
Dear Friends, As many of you know, **** has been fighting cc for the past 3 years. He was stage 3c when diagnosed in January 2009. He has had 2 surgeries and 82 rounds of chemo. He was NED from June 2010 till a scan in January 2011 showed cancer back in his lungs. For the past year he has been on Folfori + Avastin. In…
-
ileostomy
My husband had to get an emergency ileostomy a week after his original surgery. But my question is how often will he need to empty it? Right now the nurses are emptying every hour! I hope he doesn't have to do that when he gets home which will be anywhere from tomorrow to Monday. How often does it need to be empties at…
-
Wound Vac is History
After being tethered to something since Nov. 29, the date of his HIPEC surgery, my husband is finally free. He had to go home from the hospital with a machine that suctioned moisture out of the open wound 24/7. It was a pack that he had to carry around like a purse. It has been a long haul but what a trooper he has been. I…
-
Lisa42
Lisa is not doing well. Her husband posted on FB ad they have called hospice. She is in a semi conscious state and on moraphine. The family is taking turns caring fr her. Please keep Lisa and her family in your prayers. This is a very difficult time for them I am so very sad. (Hi, this is Lisa's husband. I'm sorry to…
-
TRAIL IN BARCELONA vaccine.
Last month they where still accepting candidadtes. http://clinicaltrials.gov/ct2/show/NCT01413295
-
Your help please.
dear colleges after 2 rounds of FOFOX I have developed a kind of sore or eczema in my groin ( between my inner upper leg and my balls,sorry for that, LOL ). It's really uncomfortable, any of you had ever experimented such a disgusting effect while on chemo?.Arrggggh!. Thank you in advance my friends.
-
A sad day
Hello friends, Today was a sad day for me my family and many of my friends. I have not been feeling well at all lately- breathing is very compromised and my heart just pounds. Today at rest in the dr's office, my heart rate was 137. It didn't even feel like it was pounding at that moment to me. I can only imagine what it…
-
changes in bowel movements after 10 years NED
Wow, its been a while for me, but I was hoping to get some suggestions. I had rectal cancer in 2001 with 6 mnths chemo. My most recent colonoscopy was at the beginning of last year and was fine. Since my surgery in 2001 I have had frequent bowel movements, which I understand alot of us have to deal with after rectal…
-
Liver surgery
Okay so as the past has been clear dr.s don't tell you everything they tell you what they believe to be true or what they want you to hear. Those that have had liver surgery please give your experiences and thoughts of what to expect following this surgery. They are saying 6ish hours surgery they are definitely taking gall…
-
lost and confused
My husband was diagnosed with stage 4 colon cancer (adenocarcinoma of the cecum) last year just before his 29th birthday... a couple of months ago the doctor told us that he was just needing a little more chemo then he could go to maintenance if scans looked good after another 6 months... well last week my husband had 2…
-
Turn the White House Blue - light it up in March for CRC awareness
Please take a minute to sign the petition to light up the White House Blue in March for CRC Awareness month. Pink has done it every October since 2008, so we should get it done for BLUE! TURN THE WHITE HOUSE BLUE PETITION
-
lisa42
lisa: just wondering how you are doing and if anything has changed. know that you are in my prayers daily. Praying for healing and strength for you. Much love to you and your family AMY
-
Phony Avastin?: Press release from Genentech
gene.com/gene/news/press-releases/press_statements/ps_021412.html advising health care workers what to look for
-
Canadian Pharmacies
My sister is mentally challenged and has schizophrenia as well. She takes a medication called Zyprexa. She had been under my mother's care for most of her life but she has recently become independent of my mother (thank goodness). The patent on Zyprexa recently expired so her psychiatrist is unable to give her free samples…
-
Stage 4, 3 years NED
I just got the results from my last CT scan and x-ray and they were both clear. I have now been NED for 3 years since I was diagnosed July 07 as Stage 4 CCR with met. in my liver. I have posted before with the program I have been following, but thought I should do it again for those new to the board. I am not saying that…
-
Pete
Hi Pete. I wanted to ask you if your onc mentioned to you trying a vaccine. I think you said in another thread your pharmacist had one "custom made" for himself after having been diagnosed with cc. Was wondering if you have thought about doing what he did, or if not, what are your thoughts on that? Wondered where he had…
-
On antibiotics today for recurrent pneumonia- religious post
Hi all! Thank you for all your replies. I'm sorry to have made you all sad with my news. These past few days have been quite difficult, until this afternoon... My husband told me when got home from work today that he heard words from God 3 times today ( and this has never happened to him before). He said he was driving to…
-
scared with new issues
I am a stage 4 colon cancer patient wtih mets to liver. I was lucky to find new onco/surgeons and had a colon resection and liver zapping on my lesions. I am NED at this point. There a two things though. First, with being NED I am having a hard time accepting and believing after eveything i've been thru since May of 09. I…
-
first day of chemo
well here are the meds i am started on so far 5-fu on pump and 2.5 hours of cpt-11 well i am scared but tring to keep a positive out look on things, i will post more when i get home thank you all for being here for me. john
-
New issue.
I am on a chemo holiday for 6 weeks right now from Avastin. My last CEA level was 1.3. Last MRI showed lesions shrinking and going from 30+ across both lobes of my liver to 15 or 16 only in the right lobe. The down side has been migraines. I was on Fioricet but I "abused" them fearing every headache would be a mirgraine so…
-
Cramping
Does anyone have experience with severe diarhea followed by severe stomach/intestinal cramping 5 days after getting Irinotican. I did Irinitocan 4 years ago and didn't have these problems, especially this long after my last infusion.
-
update on husbands surgery
My husband originally didn't get a ileostomy but ended up getting one Sunday because around 2 oclock that morning it popped, luckily he was still in the hospital. He started running a fever and sweating. They sent him down for a ct scan at 12:30pm and by 2:30 he was headed for surgery. His colon tore where they put it back…