-
protein and blood in urine
I had treatment today after skipping last week because of low platelets. The oncolgist wanted urine sample today. I have had problems emptying my blatter. After I got home the nurse calls saying I need to go in tomorrow andcgive another urine sample. Also they want me to take a big urine jug home and every time I pee i…
-
Need some positive thoughts please
Hi guys, back on the board... Mum was diagnosed last year with advanced ca cancer, some sports in abdomen area. Had 6 months of chemo- infusion and oral ... first blood work and scan NED..... this was about 6 months ago...seems we are not over the worst of this yet!!! Today second scan results back and some small spots…
-
Talking to the kids
On Friday we told my two kids (5 and 8) about the fact that I am going to have an amputation to treat my cancer and, have to say, it was one of the hardest things I have done yet on this journey. They already knew I have cancer, that it is something growing in my pelvis that gives me a 'poorly leg', which limits what I do…
-
Huggggh! Back in the city and completely Burnt !
Got my face burning ! F......ng chemo!,I know ,I know I was aware about it but........ Any magical home solution?
-
Ghost
I am starting to feel like a ghost in my own life.. do you know what I mean.... i feel like I am watching all this happen... it can't really be happening... but I feel like others are leaveing me out of things. I see these postings on FB that I would normally be included in and I have not been invited anymore.. it's like I…
-
back from lil break
hey everyone well first on may 30th i fired my onc,got new one and he lowered my dose of fu5 cause i ended up being real sensitive to it, and i now have s last week a cea count of 6.1 but now i have a growth in my back we are checking out, but i have not gave up yet. john
-
CEA
Sorry Robin, I couldn't think of a music related subject title. For the third consecutive treatment, my CEA has gone up. Four treatments ago (29 May) it was 129 and today it's at 276. I'd been being optimistic that this was dead cancer cells being sloughed off, but now we know it's a trend. The first two rises were pretty…
-
Folfox kicked me down(help)
Had my first treatment on Tuesday and I'm still not feeling good. Could not eat or drink anything. All I want to to do is sleeep. Any ideas how go get through this.
-
Gangsta Gail
I thought it was time to change my profile photo here, and thought I'd surprise y'all. If you haven't already seen this on facebook, yes it really is me. *L* I was in gangsta mode, ready to do a rap written by a youth and myself. We were in the same "family" group on the mission trip I went on in June, and our group was…
-
Hi Mates it is FRIDAY here! Any interesting plan for the weekend?
I'm already at the beach , tomorrow sea ,sand,sun.( if diarrhea allows) LOL. what about you?.
-
anyone taken this mix of chemo?
Mitomycin,5-FU AND Cisplatin along with radiation?I should be stating this cocktail sometime next week and wondered if anyone has taken these together and what their reactions were.thanks in advance Patsy
-
Sympathy Cards to Cheryl's Dad and three siblings
If you wish to send a card of sympathy to Cheryl's father Bill and her three siblings the address is posted below. ... For those wishing to send condolences to Dad Bill and family, here's Bill's address. Any cards of sympathy will be appreciated and will be shared with her three siblings. W. Hutcherson 6466 Wade Road,…
-
Colon Cancer Alliance - Baltimore, MD: Anyone going???
About a month ago someone sent me info on the Colon Cancer Alliance, National Conference in Baltimore, MD. Timing is strange, as I'm feeling better than i have felt in 6 months... and with a break in chemo prior to my colon resection and bag-take down on the 26th of this month, i was thinking... man, it feels like i should…
-
Emotional/personality changes
Hello all! I don't post much but do stalk and keep you all in my thoughts and prayers daily. We've been living without cancer for about a month after my husband's last scan came back clear! He does not have to go back to the doctor until sept. yay! (stage iv orig. dx kept. 09). Anyway, after this long road with finally a…
-
Anyone had HAI
I hv stage iv colon have hd numerous surgeries and chemo now being offered HAI to the liver??
-
More News on Bill
Well I went to see Bill for the first time since he is awake and alert. He is very confused. When I walked into his room I thought he would be so happy to see me, but he actually had no expression at all. He can't talk because the vent is still in. So he gestures for me to try and understand what he wants, which is quite…
-
Zometa and B12 injection
Hi, I know I havent been on here lately, been going thru so things. Every 6 months I go and receive Zometa via IV to help build up my bone dentisty that I lost from the treatment. And B12 to help build me back up. I am getting frustated everytime I receive the Zometa I am in pain afterwards (bones hurt, alot of loose…
-
Unsolicited PM's pushing treatment methods
Has anyone else received unsolicited PM's regarding their treatment? I'm not talking someone sending a PM after reading a post you've made about your current situation. I'm talking about PM's out of the blue from a new member you've never heard of, that obviously didn't take the time to even really know your situation?…
-
6 months
My oncologist said I was still NED with low (0.9) CEA. Didn't need to see me again for 6 months At that time will order next c/t scan. Hopefully, I have it beat. YEA!!!
-
scan results
My scan came back CLEAN!!!! My onc said I am done with treatment. Follow up scan in six months. I had to take a break from here for a little while but I am back now. I love you all. Jeff
-
Great Scan and Surgery Date
Wanted to share some good news today. The last scan was positive and the treatment (FOLFOX + Avastin) has been working. The tumor in the liver has shrunk almost an inch and there are no new mets. Surgery has been scheduled for next week and there is hope for a good outcome. I am more of a lurker vs. a writer (listening…
-
Looking for help
My father complained of major pains in his upper abdomen all last weekend. He thought it was gastro pain not going to the bathroom. Tues. pains were unbearable, his family dr. sent him to E.R. were they did Ct scan and saw a abnormality. They performed a colonoscopy on wed. Thurs. he was diagnosed with a tumor of 3cm…
-
colcon cancer, ileostomy and now stents and nephrostomy tubes, anyone else have these issues
Hi! I am a six year survivor of colon cancer. I have had my colon removed and have an permanent ileostomy and in the past few weeks, my kidneys started giving me problems and ended up with stents in each kidney. Well, wednesday I was scheduled for a simple exchage of my stents and then start my chemo. Well not so easy, my…
-
CEA
Hi all. I am a new member and I am from Brazil. In july 2009 I was diagnosed with a stage III rectal cancer. My cea was 5.6. After the surgery and chemo it was down to 2,2. One year ago it was 1.0. But now I am afraid, as it was 1,5 6 months ago, 3,2 last month and today it reached 4,3. May you help me to understand this…
-
Update on Bill
Hi Deb here again to update on Bill's progress. It is now 2 weeks that he has been in the ICU. He is still on the ventilator and very slowly progressing in a good way every day. They operated again on him yesterday in the OR. His vent settings are down to 40% and a peep of 8 (down from 100%, 20 Peep)So they felt he was…
-
scan results and apology
I am sorry I haven't been here much recently. I just lost too many people over the last 6 years and now my dad is going through cancer ( lung) and I am taking him in. On the good news side, last scan was good and clear. This makes me get to the six year mark . Of course like others it has not been easy. Stage 4, colon,…
-
Private Messages
I find it hard to abuse PMs In adding some humor I always make it a response on the board-for all to see. I don't know how, but we should get rid of these abusers!
-
PHEW!
PHEW! First Bloodwork (2 weeks) after Thorstens ileostomy reversal (8 months after surgery / 7 weeks after end of XELOX-chemo).... the liver counts are still bad but slowly getting better and the CEA lasts at 0.8 (was 95 before surgery). I'm really relieved! Tuesday he starts 3 weeks of rehab and hopefully mid august we…
-
News
I had a petscan and an mri on friday. I found out today that I only have 2 spots on my liver now that are very close to each other (I started out with 20 spots scattered). I am being referred to a surgeon in St. Louis at Barnes Hospital. If that surgery is successful than I will be cancer free. I'm a little worried about…
-
Folfox # 5 is Kicking. My. Butt
Go figure. I post on Facebook about how blessed I am tolerating Folfox. then BAM, treatment 5 layed me flat. Didn't eat or drink fro 3 days, constant tingling in hands AND now feet. Weak, weak, weak in my arms and legs. Is that from being in bed for 3 days or the chemo. fkn chemo