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Zometa and B12 injection
Hi, I know I havent been on here lately, been going thru so things. Every 6 months I go and receive Zometa via IV to help build up my bone dentisty that I lost from the treatment. And B12 to help build me back up. I am getting frustated everytime I receive the Zometa I am in pain afterwards (bones hurt, alot of loose…
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Unsolicited PM's pushing treatment methods
Has anyone else received unsolicited PM's regarding their treatment? I'm not talking someone sending a PM after reading a post you've made about your current situation. I'm talking about PM's out of the blue from a new member you've never heard of, that obviously didn't take the time to even really know your situation?…
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6 months
My oncologist said I was still NED with low (0.9) CEA. Didn't need to see me again for 6 months At that time will order next c/t scan. Hopefully, I have it beat. YEA!!!
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scan results
My scan came back CLEAN!!!! My onc said I am done with treatment. Follow up scan in six months. I had to take a break from here for a little while but I am back now. I love you all. Jeff
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Great Scan and Surgery Date
Wanted to share some good news today. The last scan was positive and the treatment (FOLFOX + Avastin) has been working. The tumor in the liver has shrunk almost an inch and there are no new mets. Surgery has been scheduled for next week and there is hope for a good outcome. I am more of a lurker vs. a writer (listening…
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Looking for help
My father complained of major pains in his upper abdomen all last weekend. He thought it was gastro pain not going to the bathroom. Tues. pains were unbearable, his family dr. sent him to E.R. were they did Ct scan and saw a abnormality. They performed a colonoscopy on wed. Thurs. he was diagnosed with a tumor of 3cm…
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colcon cancer, ileostomy and now stents and nephrostomy tubes, anyone else have these issues
Hi! I am a six year survivor of colon cancer. I have had my colon removed and have an permanent ileostomy and in the past few weeks, my kidneys started giving me problems and ended up with stents in each kidney. Well, wednesday I was scheduled for a simple exchage of my stents and then start my chemo. Well not so easy, my…
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CEA
Hi all. I am a new member and I am from Brazil. In july 2009 I was diagnosed with a stage III rectal cancer. My cea was 5.6. After the surgery and chemo it was down to 2,2. One year ago it was 1.0. But now I am afraid, as it was 1,5 6 months ago, 3,2 last month and today it reached 4,3. May you help me to understand this…
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Update on Bill
Hi Deb here again to update on Bill's progress. It is now 2 weeks that he has been in the ICU. He is still on the ventilator and very slowly progressing in a good way every day. They operated again on him yesterday in the OR. His vent settings are down to 40% and a peep of 8 (down from 100%, 20 Peep)So they felt he was…
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scan results and apology
I am sorry I haven't been here much recently. I just lost too many people over the last 6 years and now my dad is going through cancer ( lung) and I am taking him in. On the good news side, last scan was good and clear. This makes me get to the six year mark . Of course like others it has not been easy. Stage 4, colon,…
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Private Messages
I find it hard to abuse PMs In adding some humor I always make it a response on the board-for all to see. I don't know how, but we should get rid of these abusers!
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PHEW!
PHEW! First Bloodwork (2 weeks) after Thorstens ileostomy reversal (8 months after surgery / 7 weeks after end of XELOX-chemo).... the liver counts are still bad but slowly getting better and the CEA lasts at 0.8 (was 95 before surgery). I'm really relieved! Tuesday he starts 3 weeks of rehab and hopefully mid august we…
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News
I had a petscan and an mri on friday. I found out today that I only have 2 spots on my liver now that are very close to each other (I started out with 20 spots scattered). I am being referred to a surgeon in St. Louis at Barnes Hospital. If that surgery is successful than I will be cancer free. I'm a little worried about…
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Folfox # 5 is Kicking. My. Butt
Go figure. I post on Facebook about how blessed I am tolerating Folfox. then BAM, treatment 5 layed me flat. Didn't eat or drink fro 3 days, constant tingling in hands AND now feet. Weak, weak, weak in my arms and legs. Is that from being in bed for 3 days or the chemo. fkn chemo
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Cycle 1, day 8 with trial drug TRC 105
Today was first infusion of the trial drug.....5.5 hrs long, taking vitals every 30 min. Fairly uneventful, altho' Robert's BP went up (expected side effect), lightheaded, and nauseous (not expected). No migraine they were half expecting. He gets another dose on Thursday (split first dose) and next week he gets a full dose…
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Good news my latest CEA is 47 a 1 point rise this month
So this month i have been having iv c, lipoic acid and sodium bircab 3 x a week. I had a clear MRI with liver contrast. I have started wheatgrass juicing. Back on most of my full supplement and tcm load. Have had lots of probiotics trying to heal my bowel. My thrush is stable, maybe getting better. My general health is…
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Pete did you get scan results??
Just wondering I thought you had onc. appt to go over your scans.
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Accupuncture-Has anyone had treatments?
Hi all: Yesterday I had folfox #7 and an accupuncturist stopped by and offered a treatment and introduced her services. I tried it. It was not painful. I am wondering if anyone has used it for the varied symptoms we all experience with our surgeries and treatments. I hope to try some sessions but need to check if it is…
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Scan question-post surgeries and chemo
Having a L lung lobectomy and R lung and L liver tumor removed/wedged etc., I realize my chances for reoccurence are high. The lobectomy hes been an uncomfortable and long recovery...it was in Feb. Anyone else experienced this? Talk about the 'new normal' I am trying to find the balance... My oncologist has one more Folfox…
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Why Military Date and Time
Yesterday no avatars and now all dates and times are posted in military style. Unless it's just mine I'd like to know how to change it back to civilian mode. Any ideas? Kim
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Xeloda or 5fu, did any of you ever have problems with your Voice?
I'm loosing int ! First time it happens to my in 3 1/2 years! Hugs Bros&Sis.
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Update on Jennie
She has been released from hospital and home health nurses are coming in to continue with IV antibiotics and other good stuff to continue to build her up. Cyber Knife is still on for Thursday at 9 a.m. They will go after both brain mets. She has been having difficulties with controling blood pressure and potassium in…
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New to the board and need some input
Hey Guys I am new to the board am in a fog right now trying to grasp everything that has happened in the last month. My mom who just turned 60 was doing yard work in late april and thought she threw her back out. She suffered with sciatic pain and what started to alarm her was a feeling in her bowel and bladder of…
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Will Other Discussion Boards Help or Hinder
Hi there... Now that I am dealing with mets to the lungs I was wondering if the Lung Discussion Board would be helpful or not since this is metastic rectal cancer. I do not want to scare myself anymore than I already am but this board is always so helpful I was wondering if the other board would help too.
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The Beautiful Things
One thing that cancer has given me is a greater appreciation for the simple but beautiful things in life. In the evenings I enjoy going outside and reading while enjoying the night air. The past two nights, however, I've been distracted from reading by sights that are truly breathtaking and really made me realize what it…
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Cheryl Hutcherson (CherylHutch)
Cheryl Hutcherson has been a member here for some time, but does not post regularly lately. She is from Vancover and has been very active in the Live Arts community there. Christine Carlson posted the following today on FB: Cheryl Hutcherson is in the hospital now with severe breathing problems. She is sedated so not in…
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Cramping after surgery
I am 16 days post-op. My ovary, fallopian tube, and omentum were removed. They stopped there because the gyno/onco found it was a muconious cancer (PMP), and not ovarian. Anyhow, my question is, is it normal to have very bad cramping still. It does appear to be gas. It does seem relieved from passing it, but it can build…
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Problem With Website Or Just my Antiquated Computer??
Hi Gang, Need some help from you computer gurus (John, Phil, or anybody who has an idea). I can't access CSN by directly going to it. I get a page simply stating FALSE SETT. If I Google Cancer Survivors Network and go directly to Login, I get a Login page that says Drupal at the top with the ACS logo, space to login, etc.,…
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3 Months Ago Today 4/11/2012
Its hard to believe that 3 months and 1 day ago I was at work at the hospital taking care of patients. I was preparing for a Colonoscopy the next day, 4/11/12 and drinking only clear liquids. My friends at work were giving me a hard time because they know how much I love to eat and had to do clear liquids all day. I never…
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Depression - Where Do I Go For Help?
Where do you suggest that someone with Stage IV cancer go for help with depression? I am overwhelmed with sadness. I am trying to be strong for my family but I am so scared. Is it better to go to someone specializing in helping those with cancer?