-
WELL.......CYBERKNIFE DONE!
Hey Everybody! Just a quick update to let you all know I am fine......better than fine actually. The Cyberknife is being classified as 100% successful in destroying the 2 brain mets. They will rescan in 30 days and at that time they will decide on a new chemo regime...if any is even needed. I am still on IV antibiotics at…
-
Just want to say hi!
Thinking about you all. I'm doing good! Take Care! Remember, Where your thoughts go, your energy follows..... Reach for your inner courage, we all have it~
-
Decision made
After a lot of soul searching and a meeting today with my colorectal surgeon and oncologist together I have decided that I am going to proceed with surgery (I am 39 and have a pelvic recurrence of a rectal tumour and the only operation that is posibly going to offer a cure is a hemipelvectomy (high amputation of leg) and…
-
Sharing good news
The Pt scan I had this morning showed no evidence of disease! I am truly blessed. I have now been clear for 14 months. So all those newly diagnosed at stage IV, take heed. I was originally diagnosed with colon cancer in 2005. It woke up in my liver 5 yrs later. then again 1 year after that. My second liver resection was…
-
IV Metastatic Colon Cancer
Anyone out there that has beat this thing for more than 3-5 yrs?
-
Surgery a 3rd time Update
I was diagnosed with colon cancer (malignant polyp)in May 2011 - had colon re-section in June 2011. Was told I just needed follow up colonoscopy in 6 months. Had that in December 2012 - and also was told cancer cells were found at incision site, needed another surgery to remove. I trusted my doctors and surgeons, so went…
-
Cymbalta and neuropathy
This is for those suffering from neuropathy, according to the testers of chemicals and such, Cymbalta (an anti-depressent)appears in tests to have reduced neuropathy. Just something to ask your oncologist about. Winter Marie
-
XELOX vs. Xeloda + CPT11 (Ironetecan)
not sure how many knew this that one drug might work for your cancer and the other might not. i did both. Xelox did wonders with tumor reduction but it is nasty whereas CPT11 with Xeloda is more tolerable but didn't do anything with me. I went in for a Target NOW molecular profiling test and it shows that CPT-11 wont work…
-
Am I out of options?
OK, this isn't good. I've been on Folfox, then Folfiri (made me really sick) then just 5FU and Avastin, then one treatment of Erbitux (very bad reaction/eyes were puss) and most recently on Zeloda alone. CEA in three months went from 15 to 57. I can't have another port (I keep getting blood clots) and I'm unsure of what's…
-
Avastin & shoulder pain ?
after 12 treatments of FOLFOX 6 with Avastin (at about 400 mg) my wife has started on Avastin only. The initial dose 4 days ago was a about 1100 mg. Today she exhibted extreme shoulder pain (very top of shoulder) for the first time. I have read some older forum posts which seem to correlate Avastin usage to shoulder and…
-
Radiation damage question?
I'm a 54 year old female and was diagnosed in 1997, had colon surgery, chemo and radiation. thank God I am cured, but the radiation has been continually causing damage. I now cannot completely empty my bladder (has gotten worse over the years) I have to catheter myself once a day, soon to be more than that, and now have…
-
Help!!! Adhesions after APR surgery -anyone have experience?
I'm so worried and upset...feeling like things will never get better for my husband. He had surgery (APR-w/perm.colostomy) on May 23..8 weeks today..by now we thought things would be better. He sailed thru 6 weeks of chemo/rad & did well thru the surgery & recovery process (except for a UT infection) & now he is having a…
-
question 2nd opinions
My family history contains a large number of cancers including colon cancer. My sister had a colonoscopy and they advised the 2 polyps were non cancerous. They told her that she could have the colonoscopy redone in 5 years. She is 40. I had her contact a specialist a few hours away. They reviewed her file. They were…
-
Book Recommendation?
I am a fairly avid reader and am looking for a book - a novel - about someone's battle with cancer. I know it seems weird... and i may change my mind once i start reading, but for now I am looking for suggestions. Maybe blogs are a little too real.... Does anyone know of a book or two? Thanks. Robin
-
protein and blood in urine
I had treatment today after skipping last week because of low platelets. The oncolgist wanted urine sample today. I have had problems emptying my blatter. After I got home the nurse calls saying I need to go in tomorrow andcgive another urine sample. Also they want me to take a big urine jug home and every time I pee i…
-
Need some positive thoughts please
Hi guys, back on the board... Mum was diagnosed last year with advanced ca cancer, some sports in abdomen area. Had 6 months of chemo- infusion and oral ... first blood work and scan NED..... this was about 6 months ago...seems we are not over the worst of this yet!!! Today second scan results back and some small spots…
-
Talking to the kids
On Friday we told my two kids (5 and 8) about the fact that I am going to have an amputation to treat my cancer and, have to say, it was one of the hardest things I have done yet on this journey. They already knew I have cancer, that it is something growing in my pelvis that gives me a 'poorly leg', which limits what I do…
-
Huggggh! Back in the city and completely Burnt !
Got my face burning ! F......ng chemo!,I know ,I know I was aware about it but........ Any magical home solution?
-
Ghost
I am starting to feel like a ghost in my own life.. do you know what I mean.... i feel like I am watching all this happen... it can't really be happening... but I feel like others are leaveing me out of things. I see these postings on FB that I would normally be included in and I have not been invited anymore.. it's like I…
-
back from lil break
hey everyone well first on may 30th i fired my onc,got new one and he lowered my dose of fu5 cause i ended up being real sensitive to it, and i now have s last week a cea count of 6.1 but now i have a growth in my back we are checking out, but i have not gave up yet. john
-
CEA
Sorry Robin, I couldn't think of a music related subject title. For the third consecutive treatment, my CEA has gone up. Four treatments ago (29 May) it was 129 and today it's at 276. I'd been being optimistic that this was dead cancer cells being sloughed off, but now we know it's a trend. The first two rises were pretty…
-
Folfox kicked me down(help)
Had my first treatment on Tuesday and I'm still not feeling good. Could not eat or drink anything. All I want to to do is sleeep. Any ideas how go get through this.
-
Gangsta Gail
I thought it was time to change my profile photo here, and thought I'd surprise y'all. If you haven't already seen this on facebook, yes it really is me. *L* I was in gangsta mode, ready to do a rap written by a youth and myself. We were in the same "family" group on the mission trip I went on in June, and our group was…
-
Hi Mates it is FRIDAY here! Any interesting plan for the weekend?
I'm already at the beach , tomorrow sea ,sand,sun.( if diarrhea allows) LOL. what about you?.
-
anyone taken this mix of chemo?
Mitomycin,5-FU AND Cisplatin along with radiation?I should be stating this cocktail sometime next week and wondered if anyone has taken these together and what their reactions were.thanks in advance Patsy
-
Sympathy Cards to Cheryl's Dad and three siblings
If you wish to send a card of sympathy to Cheryl's father Bill and her three siblings the address is posted below. ... For those wishing to send condolences to Dad Bill and family, here's Bill's address. Any cards of sympathy will be appreciated and will be shared with her three siblings. W. Hutcherson 6466 Wade Road,…
-
Colon Cancer Alliance - Baltimore, MD: Anyone going???
About a month ago someone sent me info on the Colon Cancer Alliance, National Conference in Baltimore, MD. Timing is strange, as I'm feeling better than i have felt in 6 months... and with a break in chemo prior to my colon resection and bag-take down on the 26th of this month, i was thinking... man, it feels like i should…
-
Emotional/personality changes
Hello all! I don't post much but do stalk and keep you all in my thoughts and prayers daily. We've been living without cancer for about a month after my husband's last scan came back clear! He does not have to go back to the doctor until sept. yay! (stage iv orig. dx kept. 09). Anyway, after this long road with finally a…
-
Anyone had HAI
I hv stage iv colon have hd numerous surgeries and chemo now being offered HAI to the liver??
-
More News on Bill
Well I went to see Bill for the first time since he is awake and alert. He is very confused. When I walked into his room I thought he would be so happy to see me, but he actually had no expression at all. He can't talk because the vent is still in. So he gestures for me to try and understand what he wants, which is quite…