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so confused
My 79 year old mother was diagnosed with rectal cancer last month. She has seen the radiology oncologist to discuss the 6 weeks of radiation she will have prior to surgery. She had a PET scan on Monday. They saw a "spot on the lung" and now want her to see a thoracic surgeon to have a biopsy done. They won't start the…
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son has stage 4 colen cancer
Hi my names Patty my sons got stage 4 colen cancer,HE was staged three till he got his organs looked at then they said its 4 its in his liver a big spot in the miiddle and small one on the side.hes had surgery to remove the mass in colen then had the port put in and he gets cemo twice a month hes hooked up for 5 hours then…
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Hi Craig i have recived your magazine!
Thank you so much ! Hope and praying you get better ASAP! Big hug Dr.
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Pepe check in
How are you doing?
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MoviPrep vs Miralax
Last night I prepped for my 3-year colonoscopy using MoviPrep. That stuff tastes awful! The doctor's office said to hold my nose, drink through a straw, and then suck on a lemon, lime, or orange after every sip. Then brush my teeth after each 8 oz. glass. Really??? Today I told the GI doc that I would never use MoviPrep…
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Good luck Janderson
I think you said your appt is tomorrow to go over your last scan? I've been thinking of you and hope you get good news to share with us!
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Calling for Joe, Craig, kennyt, Beebee, Judy, Zach.
Please let us know how you are doing. Miss you and hope things are all right. Laz
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I'm back
Hi. I'm Biz. I was here in 2011 after my colon resection. I did FOLFOX. Then in 2012 they found a lemon-sized tumor in my liver. That was cut out, and I was put on Xeloda. Now in 2013 I have multiple lesions in my lungs and one in my spleen. Three months of FOLFIRI w/ Avastin. Then if that works they will put me on…
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Worried need spme infp
Hello everyone. I have not been dx with colon cancer but I have a few questions for you who have. First about me.. I am 33 southern I'll I have be dx with ovarian cancer last yr that spread to liver gallbladder spleen pancreass tip. I had gallbladder a smal tip of pancress left ovary 6 lymphnodes tumor taken off spleen and…
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Any word from Craig's wife yet?
has there been any word on Craig's surgery yet? Still sitting here worried! Winter Marie
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Anyone hear from Ren?
His news about the ALPPS surgery not going forward was distressing to say the least. I've been checking his blog and nothing new. Has anyone heard from him? I do hope he's doing okay. Traci
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Is it true?
Someone in Ren's comments on his blog said he passed. I am hoping that they are mistaken. It is so heartbreaking reading this kind of news. :( Lin
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Zaltrap queston.
I did a search on zatrap side effects but did not get the answer I was looking for. Anybody ever been on zaltrap? How rough was it? Were you still able to work while on it? Another question, My wife will be on the zaltrap and xeloda for her treatment, since folfox and folfiri with avastin didn't work for her. Has anyone…
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CRAIG! I got the magazine!
Just got home and got the mail, and there was a big envelope with a strangely familiar lion head on the address return label. So excited to see your work! It's a great article and signed too...by the author himself. You should be really proud that you pulled this off. I'm sure there are tons of people sending their writing…
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"Let your Faith be bigger than your fear"
the title of my post was sent to me from my daughter yesterday,im not doing so good these days.let me back up4 months ago...i had been taking 1600mg of xeloda+avastin and developed severe hand and foot syndrome.while on this cocktail i showed growth in my lungs(small growth)so even though it became toxic to me it also had…
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Scan results 90% positive
Well, I was really hoping for an "All Clear" but I guess it wasn't meant to be... The MRI, CT Scan, and CEA level were clear (e.g. N.E.D.). My CEA continued to be under 1. But the PET scan shows uptake on the outside of the colon, near the rectom (spot where the original colon resection was done). The last two PET scans…
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STAGE III COLORECTAL CANCER - ADJUVANT CHEMO/RADIATION THERAPY
I am 50 years old. I was diagnosed of having a Cancer in my rectum in early July 2013 & underwent a surgery to remove the tumour in late July. Post operative Pathology report confirmed that it is a stage III Colorectal Cancer with regional Metastasis in 4 surounding Lymph Nodes. According to the Surgeon who operated me,…
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Resection surgery opting out
Has anyone opted out of a resection surgery who initially have total removal of cancerous polyp with clean margin underneath? I was told that some consider it curative (mine was 2cm) in signmond colon, but they also recommend talking to a surgeon for resection of 12-18 inches to check lymph nodes. I was told CT scan lymph…
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Checking in
Hi everyone! I had my second CT scan last week and everything was good. Cancer still gone and my blood clot is gone. The doctor still wants me on the blood thinners for another 3 months. He also said I could get my port removed which is scheduled for Nov. 8th. Yah!! I want that reminder gone. It breaks my heart to see the…
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DNA, Genes, and Genomic structure
There's been some interest shown in how the science of genomic testing is evolving cancer research to new studies and testing to identify certain traits in the cancer cells that can be treated specifically. Genomic structure refers to the exact sequencing and structure if a gene. Just as none of us has the same DNA…
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Why does Cancer have a Stigma.
As probably most of you know, the name "cancer" for this illness comes from the ancient Greek doctors, who noticed that women with advanced breast cancer, the veins around their breast had a shape like crab legs. But why does cancer have such a stigma amoungst other degenerative disseases like multiple sclerosis, muscular…
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Certuximab and rash...
Greeting all, I've been on/off on Folfox and Certuximab for the last 3/4 months. All things considered, treatment has been going well. Up to this point I'v had 7 doses and up till a week ago all the side effects have been very manageable. This laste week I've got some major skin rash/acne on face, neck, scalp and upper…
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One sucessful milestone
Today we got to get sister out of the hospital and to her own home! It seems they have finally found a combo of meds which are taking care of the pain and nausea. She was more herself that she has been in months. The number of meds she is taking is daunting...I walked out with 8 new perscriptions in addition to ones she…
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It's just too much.
Hi everyone, I keep up most of the time reading your posts and praying for everyone who is going through the roller coaster of cancer. it's been four years of my husbands stage iv fight. Today I just need to Vent! 2 months ago my hubby had his second liver resection. Since then he just feels like crap! The past few weeks…
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- 1964 -
I've noticed several people with a 1964 in their screen-name here on CSN. How many of us colon cancer fighters were born in 1964? And, just how many times have YOU said your birthdate? (bahahaha!) 2-22-64
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Old member's Facebook update
Some of you should remember Diane. Username dianetavegia. She posted on Facebook that her PET/CT 18 months after her liver resection was 'completely unremarkable in every way with no areas of concern'. Blood work is very good, too. She posted a picture with her oncologist. She had one small met at 3 years after dx. She was…
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Big Billy
I can not begin to describe how excited I was today to receive a copy of "Coping"! I practically skipped back in to the house. Thanks to Craig for bringing brave Billy to us and to inspire us to keep on keeping on. Hope you are feeling well! Hugs, Mary Carol
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Soreness
These are the chemo drugs my brother takes: 5 -FU every 14 days, irinotecan every 14 days, leucovorin every 14 days, 5-FU over 2 days (infusion pump) and erbitux once a week. He is also on diphenhydramine and famotidine, zofran, and dexamethasone. Also atropine for the irinotecan. He is going to the bathroom a lot. He is…
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Tired of Pinktober
Having had enough of everything being breast cancer awareness (even my prescription refills come with pink breast cancer awareness caps), I posted the following as my FB status. I also made an additional significant donation to my surgeon's research project - if what he's working on comes to fruition, there will be a lot…
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Laz's Pathology Report.
Great news! Everything they removed was Dead cancer. There was so much crap in there, it's scary. The fibrous tissue that used to be the cancer was the size of a walnut. Plus a big abscess and 17 lymph nodes. All negative. I have to go through 5 rounds of chemo and should be done. Let's pray that's all that is. All of you…