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WHAT IS A REAL SECOND OPINION!
When I was diagnosed I got plenty of "second" opinions, but I believe these were not incompletely independent second opinions. I had my oncologist and my radiation oncologist of the same institution, which is good as long as it is just routine chemo. As soon as you have options of different chemo drugs or type of…
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Narrowing of stools during Rad
Hello Friends, I completed 10th day of my Rad & enjoying the 2 days off. Another 18 more fractions to go I took the advice of Coopercent & drinking Lemon juice daily. So far no issues in passing Urine & not sure whether it is too early to comment on that. But I am experiencing a narrowing of stool & a mild burn when I go…
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I'm new here... stage 4 colon cancer Good News!
Hello everyone, I Have been reading this forum since I was diagnosed with stage 2 colon cancer after having my 1st colonoscopy at age 42, just over a year ago. I finally decided to join so I could give others hope. Soon after my stage 2 diagnosis I was called in for more tests... ultrasound, MRI, and a liver biopsy (ouch!)…
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Leaving hospital today.
I have been here a week and as it has been planned they are letting me go home. My brother is coming to get our stuff since my wife has been here with me the whole time we have some laguagge. She will drive us home that will take about two hours. Have to make stops cuz I can't sit yet, so ill be laying down on the back…
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some interesting articles of late
http://eon.businesswire.com/news/eon/20131014005426/en/oncology/biomarker/EGFR http://online.wsj.com/article/PR-CO-20131011-908185.html http://medicalxpress.com/print299932834.html http://ecancer.org/news/4575-licorice-compound-offers-new-cancer-prevention-strategy.php…
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Update on Zach/BigmanforChrist-UPDATED
I just wanted to let you know that Zach is in the hospital today. His wife came home yesterday afternoon to find him on the couch, unable to speak or move. He is doing a little better now, a little more responsive, and is having an MRI done to check for tumors pressing on the spine or brain. I'll let you all know how he's…
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Changing to FOLFIRI next week, can anyone compare to oxaliplatin xeloda avastin combo?
Hi Everyone, My onc is switching me over to FOLFIRI for my next treatment. It will be every two weeks, with a pump for 46 hours. I know that we are all different, but I am interested in how others tolerated this regime. I got into a rythym with the oxaliplatin/xeloda/avastin combo and liked being able to plan things around…
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Unstoppable constant hick-ups.
Ever since I woke up from surgery about 80% of the time I have hick-ups. It stops me from falling asleep And wakes me up at night. The doctors don't seem to be concerned and say that this is pretty common after abdominal surgery. I'm ok, but after 5 days now it's getting really annoying. I tryed all the conventional…
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Stage IV - Oncologist Appointment Very Positive
Hello all, I posted a few weeks ago stating that my father was diagnosed with colorectal cancer and it was determined through a PET scan that there is a .7cm nodule on his liver and two .7cm nodules on his lungs. Therefore, Stage IV. However, the appointment with the oncologist was interesting and in my opinion very…
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inoperable, really?
My wife was told at dx that her colon cancer was inoperable. I refuse to believe this and I know there must be someone who was told this and proved them wrong. The problem is, how do you go about finding the right surgeon who is willing to take a chance. My wife is running out of options when it comes to chemo. Folfox and…
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Awesome Update
I went to my Oncology appointment yesterday and received wonderful news. My CT Scan came back "great" It was NED!!! Also my CEA went from a 35 at the start of chemo in June to 3.8 as of yesterday!!!!! They said I am NOT cured, but I am in remission!!! I don't want to celebrate too much because it could come back, but I…
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Protein additive?
I remember reading a post a few months ago about a protein powder that is unflavored that can be added to soups, etc. I think it may have been JBG that mentioned it, but not sure and I have been searching through posts for 1/2 an hour now and can't find it. Anyone know what it is? I think it was little packets and I found…
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Sharing a news article
I hope this is not against any forum rules, but I read this in the BBC online news this morinng. I was just thinking what a wondreful bunch of people we are and even though this family may never know it, our prayers and good wishes will still reach out and touch them. I think they need it.…
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In ER and pain
Hi Friends, Well since the scan on September 13th, things have been getting harder. **** started on Regorafenib on Tuesday and he only took it for 4 days and now we are in the ER. I am asking you how to deal with the pain. I know that is a very open question but fortunately for **** his pain centered around his 2 surgeries…
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Still plodding along, fourth year in remission.
I haven't posted an update in ages, and I am sure most of you will have forgotten me To the newbies I was diagnosed with stage 3 colon cancer in February 2009, 10/11 lymph nodes infected. Had my final dose of chemo in December 2009. My marriage crumbled because of my ill health and depression in the same year, so I lost…
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results of genomic test
After a little over three weeks I finally got the results of the genomic test. There were only 2 genomes that appeared hopeful for more direct chemo. Unfortunately only one of those is currently in a stage one trial in Massachusets. I can't travel back & forth and can't afford to go for an extended stay. We have opted for…
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RENW Your Surgery
Just wanted to wish you good luck, health and speedy recovery on your upcoming liver surgery! Winter Marie
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Pepe
Hi! Just checknig in on you!
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guidance...help please
Hi Everyone, As I shared **** had a scan 10 days ago that showed growth in the lung mets and lymph nodes. We have been pursuing opinions and some opinions have come to us from contacts. His onc here in Hawaii still things Regorafenib is the way to go and scan in 6 weeks. Dr. Lenz at USC thinks he should go on Folfox +…
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Still Dancing with NED!
6 1/2 yrs out from diagnosis with metastatic appendix cancer; 5 1/2 years out from the year of hell of multiple surgeries, inumerable complications, treatments, inumerable complications, I remain healthy and free of the beast. I have been NED since my major surgery in July, 2007. After 2 long days at MSK for tests, scans,…
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Never Give Up...From Hospice to Cancer Free
I just wanted to offer some hope to others. I've been fightinig cancer for about two years now. Seven surgeries, months and months of hospitializations, at one point unable to walk, 5'11 and weighed 90 pounds, feeding tubes, iv nutrition,...the list goes on. In January I was put on hospice and told I had a couple of days…
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ONC visit - keep doing what your doing
Two years ago my husbands ONC mentioned that there was a good possibility that the cancer would come back on him. Since then we have made many changes to our lifestyle and diet. Not sure if all the changes made the difference but all his scans and blood work have been normal for the past two years. Our Onc told us to keep…
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Anyone familiar with Dr Nancy Kemeny?
She invented the Hapatic Artery Infusion therepy. She is located at Sloan Kettering memorial hospital? I was wondering if anyone checked it out or had the procedure done?
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Medicare Options
My brother will be eligible for medicare on December 1st. I was told he should add part D and get a supplemental plan to help with the cost of chemo and all the other issues with cancer. He lives in Dutchess Count NY. Do any of you have any suggestions on good plans for part D and good supplemental plans? He is only 49, so…
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HERNIA
HI! TO ALL OF YOU ALMIGHTY WARRIORS. REALLY MISS TALKING TO YOU GUYS BUT I WORK AND AM VERY BUSY AND BY THE TIME I GET HOME I'M EXHAUSTED. BUT I DO HAVE A QUESTION FOR ALL OF YOU EXPERTS. I AM SCHEDULED TO HAVE AN ABDOMINAL HERNIA REPAIRED AND AN EXPLORATORY OF A POSSIBLE MET ON MY LIVER W/ABLATION. HAS ANYONE EVER HAD…
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Floating stools, nausea, bloating and lower back pain
Hello, I was diagnosed with stage 2 colorectal cancer in Jan 2012 with no nodes and had LAR surgery in April 2012 and had reversal of ileostomy in September 2012. Tumor was removed with LAR with clear margins. Colonoscopy in January came all clear and PET Scan in October of this year showed an 8 cm mass in the presacral…
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Crazy/odd questions
I have a question...my last CT 3months ago showed enlarged lymph nodes toward by back near my aorta and somewhere that I can't remember...dang...anyway, I'm scheduled for another CT on the 18th to see what they have done...but over the last month or so, I find myself rubbing my tummy between my belly button and my breasts…
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helping
I have just been reading articles in FORBES about Giving. To give to the american cancer society is good. But where do the funds go? I hope not a raise for the executive director!! It has been my experience that the real help is one on one. To give some financial help to the cancer patient who cannot afford the test their…
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DPD Deficiency
Hi All, Does anyne have any info on finding an Oncologist that specializes in DPD deficient patients with colorectal cancer??? The test was never mentioned until after I had first treatment of 5-FU and didn't die from all the side effects. I tested positive. I live in Connecticut. Any help would be appreciated. Thanks, KD
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Cea going up but still normal range
Can I say its been a really **** day or is that a no no on the crc board? Hubby had blood work last week and I kept myself from asking the nurse for the # because we were celebrating the babies 2nd birthday and I didn't want to think about it. Ive spent all day today trying to get my mom in to a short term care facility…