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Ketogenic Diet
Now a question for any of you on a ketogenic diet. Since my onc told me he doesn't have anything else for me and turned me over to the Mary Crowley Cancer Research Center and now they have found problems with my blood work that may exclude me from their trials, I have turned to a ketogenic diet to at least be doing…
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Go my port out today!
I haven't been here in a while but wanted to share my news with all the wonderful people here. After having finished chemo in September of last year, having a clear colonoscopy, clear blood tests, and another clear CAT scan...I decided t get my port out. I decided to get it removed in the hospital surgical center with…
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Hello old friends …
I do not come to the board often anymore after my husband passed over the summer. This has made me feel that I do not have much courage as there are others here that stay to help long after their loved ones are gone. I just have not found my way yet to have a helpful voice for those of you who are suffering this dreadful…
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Colonoscopy after having a colonostomy - nervous
Hi everyone...It's been a long time since I've been here..Husband, who had rectal cancer & a perm colostomy is having a scope done tomorrow morning. He has started the prep work. Yay..let the "fun and games begin!" anyway..just wondering how much different it is having this done with an ostomy. I am worried about such…
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I hate hospitals
Went there to see my brother and he looked better. The doctor who was there said his platelets were low. They dropped since he was admitted. They sent in a hematologist who said that they wuold do a scan of his body to check for bleeding. As of 8pm tonight, no scan. I put in a call and spoke to his nurse on duty and he…
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petscan result and bloods from yesterday
clear peritoneum, liver and pelvis, only active disease lungs two small stable spots, see blog. one year since removab worked so well for me. still ketogenic and qigong and supplements. I am overjoyed and grateful, back to Germany for more treatments focusing lung spots, feeling very well.…
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Day 14 in hospital - improving
Hi Everyone, We are spending our 14th night in the hospital tonight and things are moving along. Looking back 2 weeks, I can't believe what terrible condition **** was in when he entered the ER. His pain was at a constant 9-10 and he was on heavy, heavy pain meds. Pain was just relieved for about 15 minutes at a time.…
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Port coming out!
Hi All! Tomorrow I'm getting my port out. Whoo hoo!!! I hate looking at that stupid thing and it's a constant reminder of what I've been through. Since I'm on Cumadin, I've been having to get the lovocan (sp) shots in my stomach twice a day which sucksl My poor husband gives them to me since I hate needles. But if my labs…
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Cea 3.8 and pet scan clear, post 3447 is my most important by far. "HOPE AT LAST"
https://docs.google.com/file/d/1u1yfZFuumGcHCs0vVBvvMzkPk7S0qSzWLFxRFPnMeveq3pfNwQ9DfPij4_Fr/edit the german medical report detailed, the english is not great, but the results more than make up. I am filled with gratitude to everyone who has helped me. To blake, kerry, rodger, lisa, cheryl and jennie and so many others.…
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Update on sister
Some of you newer folks may not know but I first came to this board because of my cancer diagnosis nearly 4 years ago. I found friends and wonderfully caring folks and have remained to try to help others as I can. It was only natural to share with you when my sister was diagnosed with stage 4 endometrial cancer a little…
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Waiting for results
My mom had a Bronchoscopy last Monday to determine if the "hot spot" that they saw on her PET scan is from the rectal cancer or a new cancer. It's now Friday and we still have not gotten the results of the biopsy........they said it could take a week to 10 days. Is this normal? The waiting is unbearable.
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Ecoli and CEA rise??
Just been to oncologist. I found out I have an e coli infection. More antibiotics! Bit concerned CEA last week was 3.4 and this week jumpe to 6.4! anyone experience rise from infection? Bit nervous
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Avemar for Colon cancer?
Hello, my name is James, and my mother was recently diagnosed with Colon cancer... and I'm truly terrified. She already suffered from esophageal cancer 2 years ago, and they said she was really lucky to survive it (they removed her esophagus), but she had to endure a lot of pain because of that cisplatin therapy and other…
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philieg
Phil how are you. I had hoped you would be checking in now that election day has passed.
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Looking for experience with TACE
Hi all, My father, stage iv rectal cancer, was recently told TACE would be a good option for him. We were hopiong for surgery but with the last MRI done it showed 2 new turmors so the door was closed to that. The liver surgeon said next step is TACE. He's been on chemo every 2 weeks, had rectal surgery, and has been…
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Anyone on chemo pill Stivarga Regorafenib
Has anyone started to take Regorafenib? I will be starting on this next week if my insurance approves it. I read the side effectswhich seem to be similar to other chemos. I pray the side effects arent to severe. If anyone has taken it I'd be interested how it was. Thanks. Jeff
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Partial blockage
Anybody have advice for dealing with a partial bowel obstruction. Have spent the last 2 weeks trying to get back to where I can eat again. Have been trying liquids and moving up slowly but still having vomiting issues. Can't seem to get bowel back in sync even with reglan on board. Any help appreciated.
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Started FOLFOX - Questions
After small bowel resection to remove the tumor, I began FOLFOX chemotherapy last week. Even though I was diagnosed at Stage 2 and the surgeon was pleased with the surgery and lack of evidence of cancer in the lymph nodes and surrounding tissue, there were enough risk factors (including T4 tumor size, partial obstruction,…
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Erbitux Rash Nana b check out these suggestions too
Hi guys! You were all wonderful when it came to my brother's "butt rash" from loose stools. That has cleared up and now he has the wonderful erbitux rash. We're not complaining because his CEA numbers are coming down. The doctor has ordered monocycline and a strong hydrocortisone creme and told him to use a gentle…
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annalexandria
Just was wondering how you have been doing going off of your medication and if you are almost through the worst part and if you are dealing with any pain. You have been through a rough road on this issue and wishing the best for you. Kim
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Crazy 24 hours (UPDATE 11/14 pm see bottom post)
Yesterday I told you that my brother went for his chemo and was having problems breathing. My sis noticed it when she brought him from the car to the office. The doctor did a CT scan and they found several thoracic embloi, so he was admitted and put on blood thinners. When we left him last night, they had him on oxygen,…
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Wawaju04976
I am worried about Judy. She hasn't logged in since Oct 1. Judy if possible can you give us an update. You seemed to be really struggling a couple months ago. It's unusual for her to go that long without checking in. Does anyone know anything about Judy? Chelsea
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Do You Believe In Miracles?
Not sure what has happened, but I am going to think of it as a miracle, perpetuated by all of you & JBG's faith in a higher being. I just spoke with her & she sounded like a different person. Her pain is gone, no more bleeding, cramps, diarrhea, nausea. She said "the most wonderful doctor in the world"(her surgeon) had…
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CEA result,please help...
Dear Everyone, Im so afraid, so I was thinking to write a letter here, and ask for help... To my Mom, mwas made CEA, and the result is 0.60 mg/ml. The result will be read only in December, but until this time, I guess, I will loose my mind, I am so so afraid;( I dont know, this CEA level is so dangerous? Can somebody give…
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Checking in.
Hey just want to check in to see how everyone has been? It has been almost 3 months since my mom passed. This board was a very important tool for me in dealing with her diagnosis and battle. As time goes on I miss her more and more . I hope everyone is doing well and I hope we find a cure for this horrible disease . I…
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Grant for caregivers
Hey folks! Just wanted to put this out there. It's a grant for caregivers of patients with colon cancer. I know we have a lot of you wonderful folk on this site, so wanted to make sure you got a chance to see this. http://www.getyourrearingear.com/caregivers/
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Johnnybegood Doing A Little Better
The bleeding has finally stopped, but still no answer as to the cause. She is still having severe diarrhea & abdominal cramps. Crazy doc asked her if she felt comfortable going home tomorrow with the dairrhea & cramps & no answer. She told him "NO". She lives 100 miles from the hospital. Makes me angry that hospitals just…
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Xeloda- Dose- Mouth Sores
I recently finished my first round of Xeloda. Two weeks pills and I am in the 5th day of no drugs. My dose was 2800 mg twice a day. I am a big man, 250lbs, 6ft. I am wondering if this is a normal dose. and, what did your Onc give for minor mouth sores? Mine prescribed a Lidocaine "swish and swallow" and I do not like it.…
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"Renw" Ren has passed away
Acoording to a post by Ren's brother David, Ren passed away October 27th, at age 45. May he rest in peace. Winter Marie
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Craig home from hospital
Just to let you know that Craig got home from the hospital Wed. evening (10/30/13). I beleive that he will have home health care coming in to help take care of his surgical wound. There is no place like home. Hugs and love to Craig and Kim. Marie who loves kitties