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Chemo in three days
I start my follow up chemo of Folfox5 on Monday so I have two days to go. I've been miserable and stressed all week. I can't sleep and I'm angry and cry a lot. I'm hoping it won't be too bad but I think it's naive to think it might not be. I've had a charlie horse in my calf for days that's so bad I can't sleep well and…
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Taking care of your teeth during treatment
I went to the dentist today to have my teeth cleaned and found out I have nine fillings to do. Three are replacing old ones but still I was shocked. I've always had good teeth and take care of them. But, while I was in treatment I was too tired to care enough to brush them regularly and would go days without doing it. I…
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First cycle down...PET scan today
Made it through the first cycle. Tuesday through Thursday weren't bad, but Thursday afternoon through Saturday were miserable. Nausea, diarreaha, and feeling like I'd been run over by a truck. Just exhausted now...Surprisingly, I didn't have much of an issue with the cold with the oxi... I have a PET scan today because the…
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Scan Buddies
Scan and CEA tomorrow.....anyone else this week? Jeff, I remember you have a scan, too. Prayers and good wishes. CM
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My scan is today.
On my way to Stanford to get news on the effectiveness of the chemo augmentation. Die Tumor! Die! :)
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Spam CSN email. FYI
I received this today and of course it's a Hoax. rita44556 10/02/2014 - 1:22am Dearest one, I do sincerely apologize for my intrusion of your privacy in CSN, I have a serious concern with which I believe you might be of help and for this reason, I cannot but reach out to you. My name is,Mrs Rita Chung. A Nationality of…
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Feeling blah
I'm in the middle of FOLFOXIRI 3 of 6. Was at UMHS from 7:30am to 4:30pm yesterday. Disconnect is tomorrow. I'm beginning to get a sense of the pattern of side effects. Nausea/vomiting, followed by constipation, followed bi diabetes, then more comstipation. And exhaustion, disseyness throughout. Also jaw hurting, teethe…
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Clinical Trial - Anti KIR, Anti PD-1
Well, I am officially a rhesus monkey! I got accepted into a clinical trial and my first treatment starts... tomorrow! I am excited and scared at the same time. This is the trial: http://clinicaltrials.gov/show/NCT01714739 I found out about the PD-1 trials through Maia, who mostly posts on the Colon Club forum. Thank you…
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Interesting. Free Cancer course
Interesting. http://trulyheal.com/course/truly-heal-cancer-guide/ Anyone try Bentonite clay? I'm taking it internally and externally. If it doesn't kill toxins, it does totally relax you and clear up your face. http://youtu.be/Fp3getUzKXA
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Cut that sucker out!
Hey All, Liver resection surgery is scheduled for 7:30 am tomorrow at UCSF. Wish me luck as I hope to be NED for a long time after this! Fingers crossed again, docs are optimistic and so am I. Whatever happens I'm grateful for the support, prayers, good vibes, happy dances and swinging chickens! Who knows why things happen…
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Brecon Cathedral
Today I visited Brecon Cathedral (among other places) in Wales, and they had a book to write down the names of people who needed prayers, so I wrote down your names, collectively, knowing that the powers above knows who you are. It is a beautiful and ancient building (1093), and had a wonderful, reverent feeling. My…
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Pain in the femur
I had colorectal cancer and went through all the normal protocol, chemo, radiation, and chemo again. I have been off chemo since last September (2013). Have had a sore rectum forever. Was on a drug called canasa for 42 days - inserted into the rectum at bedtime. It did help some. But as long as there is stool in the rectum…
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Winter Marie
How are you doing, are you gaining some weight and strength back I hope.
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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How to make a stronger Vitamin C for those taking this supplement. FYI only.
http://www.youtube.com/watch?v=jYRIjhReC8o&sns=em I always let let my doctor know what I am doing or taking, please do the same.
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Cancer Tutor web site - FYI only
http://www.cancertutor.com
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FYI only - the truth about cancer summit
http://thetruthaboutcancer.com/fall_quest1b.php?af=1605727
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Pain long after cancer treatment
I want to thank all of you who shared your experiences about pain long after cancer treatment - i am a 7 year survivor of colorectal cancer and have recently been diagnosed with Hashimotos Thyroiditis. In conjunction with the new diagnosis my entire body is wracked with arthritic like pains in my muscles and joints - feel…
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New here, need some advice please
Hello everyone! I really need some help and I'm hoping I'm not bringing up something that's already been addressed but I probably am. I was diagnosed with colorectal cancer on Dec 31, 2013. I had an ostemy done at the end of January and a port-a-cath inserted in February. The tumour was advanced enough that my surgeon…
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My grandmother's cancer story
My grandmother was diagnosed with bowel cancer in the 1950s. Her story is what gives me hope during all of this. I hope it will give others hope as well so I'm going to share it. We called her nana. She was born in 1898 so in the fifties when she was diagnosed she was in her fifties. She worked as a nurse so possibly it…
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Raleigh and Virginia Beach are my travel plans
Getting on a flight Friday to Raleigh, then driving to VG Beach and back. Anyone live on this route? I'll hopefully meet up with Gail in Raleigh.
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Nutrition. Just sharing.
http://www.beating-cancer-gently.com I'm not recommending, just sharing for anyone that may have interest I'll do the walking, you do the reading :)
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I miss my dad =(
Hello there everyone! I am new here. My dad passed away on 2013 Christmas night and he was only 56 =( I am originally from Brasil but I have lived in Chicago for the last 11 years. When they suspected my dad had "something going on" , firstly they said it was pneumonia, they gave him meds and he went back home. After a few…
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Out of options
This has been a hard week. I brought my husband into the ED last Thursday because of vomiting, thinking he had another obstruction. CT scan that night showed lymph node tumor pressing on duodenum not allowing anything to pass from stomach so it was an obstruction, but from the outside of gi tract. Nasty NG tube needed to…
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Our quest: to find some amazing surgeon somewhere in the world that can operate on metastatic colon
2014-09-16 My wife , Anne, 63, was diagnosed with colon cancer metastatised to her liver on May 2013. We live in Ottawa, On and she has been receiving FOLFIRI until August 2014 and then she was switched to FOLFOX which she didn't tolerate very well. After the third injection , the onc gave her a break and she has been 9…
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Discomfort in rectum
Now that I've found this site I'll probably post like crazy, sorry everybody! I've been having rectal pain since about two months after the resection surgery. It feels like I'm constipated but no matter hom long I sit on the toilet I never go or feel better. Some days it's so bad I can hardly sit and standing for any…
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Bon Voyage, Trubrit
Blessings galore on your trip back to your beloved England! Savor every moment. Can't wait to hear all about it when you return. Leave cancer here. Enjoy! hugs, CM
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SBRT
My husbabd is getting ready to have SBRT in the next couple weeks... I'm just wondering if there is anyone who has had this treatment and how it went. Thanks Brenda
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chemo maintenance
get my 12th treatment this mon folfox with advistan, my dr told me today after ct scan go on advistan and one other in pill form every 3 weeks for 6 mths my last scan came back clear, i know they want to make sure but i just don't know. yolllmbs they knocked off oxi for the last one
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Stage 4
My husband was diagnosed back in 2011 stage 4. He had a resection and they removed everything they could see. Everything went good until it showed up again. A mass in his liver near the main artery. The doc said he thought he could remove it but he went in and closed him back up and said he did not want to risk it, to…