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does it get better
Dear Cyber Friends, Its been 3 months since my brother passed away. I thought by now the pain would have been better but its only gotten worse. I cant get past this. I have so many questions in my mind and in my heart. I miss him so much that my heart just aches. Everything in my home reminds me of my brother. Yesterday I…
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Wish me luck!
Hey everybody, my liver resection surgery has been set for September 23. The GI oncology center at UCSF does 5-10 liver resections a week, sadly we're not alone. I have a 1.6 cm tumor in lobe 7. The surgeon is very optimistic and thinks he might even be able to do it laporoscopically. I told him whatever size incision he…
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Sore muscles
After 3 1/2 years of chemo anyone experince sore aching muscles. My oncologist said it's not them. Could be menopause ? Oh pls! I did fall four weeks ago and get avulsion frac in pelvis, which takes long time to heal. But this is crap. Mind u went walking in pool two days ago. Coud explain why good leg aching
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RAS mutation may be even more important than determining treatment options, according to MDAnderson
www.mdanderson.org/publications/oncolog/ras-mutation-status-may-predict-outcomes-after-surgery-for-colorectal-cancer-liver-metastases-oncol Direct link doesn't seem to work,but if you type in "ras mutation" in search box of page that appears, you'll get this interesting article,if so interested (key word:"MAY") (something…
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Question about a CT Scan
In regard to a CT scan, does a finding of "no evidence of metastatic disease" suggest there is no cancer in lymph nodes? If "no evidence of metastatic disease" is the finding based on a CT scan, approximately how reliable is that finding in regard to whether the cancer has invaded the lymph nodes? Also, the CT scan report…
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One reason drugs cost so much?
This is for ONE individual only at twenty companies........ www.genengnews.com/insight-and-intelligence/what-the-top-20-biopharma-ceos-are-making/77900249/ (yeah, i know this sort of pay applies to just about every business,including nonprofits;that's one reason such NGOs are nonprofit:by the time all those on the board of…
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Jucing, advice and recipes
So, I thought I would give juicing a go. I started by purchasing some different kinds of bottled juice at the store, being careful to look at the ingredients. I find that certain ones make me head to the bathroom rather often (or more rather often, as I already head there allot). But it also proved to me that I like juices…
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FOLFOXIRI/bev Treatment 1
I'm on the tail end of treatment 1 of FOLFOXIRI/bev. I have to say this was the hardest on me compared to FOFOX and FOLFIRI/Erbitux treatments in the past. I had a lot of nausea/vomiting over Friday and Saturday. It was very hard to eat anything. Managed to eat some saltines and mashed potatoes. I feel a ton better this…
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Happy 50th Birthday, janderson1964
Jeff, you deserve a special thread, because a birthday is a special day and 50 is a special number. Half a century. So, Jeff, our wonderful forum friend, I hope that in spite of all that is going on in your life, that you are able to set a little time aside to do something very special for yourself, even if its just a…
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Considering stopping chemo while things look good
I was diagnosed with stage iv rectal cancer (spread to lymph nodes and liver) in February of this year and have about run my course for the initial heavy chemo regimen. My last PET scan showed that my tumors are no longer visible, so they say I'm in remission. I'm not sure if that's out of the norm, but happy that my 9cm…
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Hip Pain Continues
I'm going in to an Orthopetic (now Sport's Medicine) doctor on Tuesday to find out about my hip/leg pain that has been bothering me since beginning of the year. It has been on and off for the last year but worse the last two months. Don't like taking pain pills every day but seem to be taking Neproxin almost every day just…
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Loma linda/ Regorafenib
Dr. Wants to try REGORAFENIB for George I feel very negative about this drug, because of side effects. I am wondering if anyone on this site has had any experience with Loma Linda in So. Calif? Also please give your experiences on REGORAFENIB OR STIVAGA I am also sending prayers out to Winter Marie, hope she checks in soon…
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PET scan tomorrow
PET scan tomorrow. It's been 14 months since I finished Chemo and everything has been clear so far. Also 26th wedding anniversary tomorrow so the scan has to be good!
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Going in for 8th round of folfox
I'm heading to the hospital with my friend for the 8th round of Folfox. This last one was mighty tough. I know with all the love and support, I'll be fine. I am talking to the onc this morning about the black toes and hands. The neuropathy has definately raised it's ugly head. Yolanda update at bottom
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Its been 22 days
Hi everyone, it has been 22 days since my husband passed. So far this has been the hardest 22 days of my life; i am really grieving the loss of my husband. i know he is in a better place and not in pain or suffering anymore, but i just want him back. I would gladly take on all the caregiving all over again, to just have…
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Beautiful memorial to our Lisa
I have permission to share this Youtube video memorial to our dear Lisa. https://www.youtube.com/watch?v=66ys2DFzEqQ&feature=youtu.be
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****'s Celebration of Life
Dear Friends, Tomorrow it will be one week since **** passed away. It seems very, very surreal in so many ways. We have had family and friends loving on us in abundance and we are very grateful. We had ****'s Celebration of Life yesterday on the beach by our house and it was a beautiful event. I know that he loved it. We…
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How Cancer Can Change On You In a Week's Time
Well, I've slipped off the slippery slope, folks:( The operation has just about worn out and run it's course apparently...the pain has ramped up exponentially this past week. It's hard to breathe, hard to talk, hard to walk, hard to sit, hard to lay down and hard to sleep. For 13 months I've dealt with 24 hour a day pain…
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Cancer Summit Replay podcast - Worth listening to
Here is the repley link if you missed my last post. If you can listen to the cancer ones at least, they contain a lot of good information. Somethings discussed on the podcast I istened to Many bllood tests to determine if cancer cells are in your body, as early as 10 years prior to a tumour. Nagalase Blood Test: Herpes,…
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What to do...
We went to the onc and the liver surgeon to see if there is anything other than chemo that we can do for my brother. Both doctors said that it is ultimately up to my brother, but it looks like in order to do the surgery, ablation or embolization, my brother would have to come off blood thinners and chemo. For surgery, it…
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My Wife
My wife of 57 years died last night of Alzeimers disease!
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Good Thoughts Please!
Going in tomorrow for a colonscopy/anoscopy a year after my surgey. I swear, the prep is different every time I go. This time the goodie bag is full of dulcolax and zofram and magnesium citrate. I'm pretty sure this is the worst yet. The dulcolax has me in an incredible amount of stomach pain, and the magnesium citrate is…
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My Sweet Husband is Gone
My beloved husband and best friend left this world last night. I got to spend the whole day by his side talking to him, loving him, and telling him it was ok to go. He went peacefully and quickly. I was so lucky to have him for 27 years and my heart will forever be filled with his love and precious memories. He fought so…
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Pet Scan Results
Hi all - we've had lots of sad news here lately and I wanted to share my husband's good scan results. He had a pet/ct last Friday and we met with the onc yesterday and she said it was a perfect scan - nothing of concern. First scan since he was diagnosed 2 years ago that had nothing of concern. I know I have to update my…
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It's official I'm stage 4
Hey everybody, Its been confirmed that the spot in my liver is a 1.6 cm met. It's discouraging because there was a small chance it was something else. I prepared myself for it though and I'm ready for this next step. Compared to what others have been through and what they're facing I can certainly handle this. My daughter…
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We are near the end of our journey
I don't post often but have been on this site for almost the entire seven years my husband has been fighting this horrible disease. After two months of home hospice I had to move my sweet husband of 27 years to the hospital. We could not keep him comfortable or deal with nausea/vomiting at home. I am by his side. He is on…
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Labor Day...any plans?
I can't believe summer is almost over! The older I get, the faster time seems to go by. (I read an article recently that said this is due to the fact that as we get older, each period of time is a smaller percentage of our overall lifespan, so that's why a summer seems to last forever when you're 10 but not so much when…
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I'm scared, tired, and frustrated..... I need a friend
My husband was diagnosed with stage IV colorectal cancer January 2013, by a uncaring emergency room doc. Started folfox, got two colonic stents, chemo biweekly, at this point he has lost 60 pounds. Folfox 10 months, started folfori, ended up in hospital severe esophageal sores, not eating, feeding tube put in, horrific…
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Nanab & Trubrit rock Reno
Today I have the privilege of spending time with NanaB. What a lovely lady. I think we should do this more often. Update: OK, I'm home now, and not fighting with my iPhone. I had to convince Nana that she looked beautiful without her hat. So now I am posting both pictures. I had a wonderful time with her. She is a…
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Colonoscopy Biopsy Result
Hi. Colonoscopy on 8/18/14. I had three polyps and one mass between 3 to 4 centimeters. GI said the mass was colon cancer right after the colonoscopy. However, GI sent biopsies of the polyps and the mass to a lab. I spoke with GI yesterday. The lab results indicate that the polyps were precancerous. The mass was identified…