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Myelocyte Values
I had my every three months blood work and doc visit today. While I continue to have some of the typical challenges to recovery, I was told my labs looked pretty good and there was nothing of concern. I can never quite tell if this makes me paranoid or actively involed in my care, but I always look at my lab reports after…
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Oxaliplatin: for how long can be taken?
Which is the longest period of time (and/or how many cycles) you have taken of Oxaliplatin? I ask this because mom here can need several cycles, due to liver metastasis, before the secondary effects make it think on other options? I ask either about personal experiences, or what you read/hear anywhere, thanks
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Anyone taken TAS-102
My wife has been prescribed TAS-102 since the Folfox and Folfiri stopped working and the tumors on her lungs keep getting a little larger. I have read some things on the internet and the info the Dr's at Mayo gave her but wondering if anyone here ever did any of the clinical trials. It is close to FDA approval. Just…
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New to this community-How to cope with what if's
Hello everyone. I am new here. My story began almost 4 years ago. I was diognosed with stage 3 colorectal cancer. I had the usual major surgery and my surgeon was very pleased with the outcome. He felt strongly he had gotten all of the tumor. I then underwent nearly 8 months of chemo. During chemo I worked. I am not sure…
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Oxaliplatin vs Irinotecan myelosuppression?
I'd like to know which is harder on blood, that is, which has more myelosuppression, between Oxaliplatin and Irinotecan, thanks in advance
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NED. NED
Thank you for all the love and support! I am exhaling now! I had my colonoscopy today. every thing was clear! He checked pathology and the biopsy from last week is benign. I'm so relieved. The next step is removing the port. I didn't even realize how tense I've been. I know there are new people on the board starting the…
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How to avoid cough
I'd like to know what supplement or anything can be taken/drink to avoid cough, it seems Oxaliplatin gives my mother some, did you have cough with this or other drughs, how to avoid it, thanks
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Husbands scan results today
Weren't good. The cancer is growing after 3 months of treatment. they started him on a new cocktail today. I'm just devastated.
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Haven't been here in a while
It's been awhile since my last post. My mom has stage IV mets to the liver and peritoneum. She was NED for a little while after she finished Folfox and Avastin. Her cea started climbing from 4 to 37 in 5 weeks so oncologist started Folfieri and Erbitux. She is doing great still works full time. As I sat there with her…
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It Is Official: Stage IIIC and FOLFOX Starting Soon
From what I was told last week, before report really reviewed, sounded like Satge III C and FOLFOX (like NED, another term I had not idea about a month ago). Meeting with Oconologist next week to start the next part of this off. Infusion vs pills and all the rest. I am a little over two weeks out from surgery, but seem to…
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Home and surprised
i am home fromy biopsy. I was surprised when I got to the lab to find out it was not a liver biopsy. They biopsied a mass in the lower left abdominal cavity. I was totally taken aback. i am home very tired and no pain. I haven't had time to research any of it. The doctor said 7-8 days for results. Yolanda
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Newbie Here - It's official
I'd posted in the Anal Cancer board last week but can't seem to find it. Since my primary doctor refered me to a "colorectal" specialist I figured I might have been posting in the wrong area anyway. After a colonoscopy on 2/26 with the discovery of a mass, subsequent biopsy, today they made it official. Malignancy -…
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getting on that roller coaster again Update!
It's 7 1/2 months post surgery to remove three tumors and what was supposed to be a temporary colostomy that became permanent. CEA was holding steady at 1.5 (3 two-month interval checks) and yesterday shot up to 2.1. Never a good sign for me. Trying to be positive, will check again in one month. Way too early for a PET…
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Sandy - did you get good scan results?
I hope so!
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My update. Liver biopsy tomorrow
I've been a little quiet lately. During the week of NanaB's passing, I lost two additional people in my life. I lost my friend of 30 years. He passed away suddenly from heart problems. I also lost my uncle (by marriage). He was a doctor at the Mayo clinic. He was the second or third opinion in my cancer battle. I depended…
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Louswift
Was anyone in touch with him outside of the boards?
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Hello and newbie for my husband
good day, I am so glad to find this group and want to send you all good healing vibes today and everyday. I'm looking for some help and feeling a bit overwhelmed, and by but, I really mean bit as my husband was recently diagnosed with colon and rectal cancer ,but not yet staged. his pcp said he'd refer him to a radiation…
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Husband's scan today
Hi, i would like anyone that believes in prayer to please say one for my husband Mark. He had his first ct scan since starting treatment in December. Tension is high and nerves are frazzled and i'm praying for peace and for healing for him. We should get results on Monday when he goes in for his next treatment. Thank you…
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Husbands stage 4 colon ca w/mets
It's been awhile since I've posted anything. My husbands cancer has had it's ups and downs and now as I write this he is in the dying process. He hasn't had any fold and just enough water to get meds down I called hospice in and the kit they send is just a cocktail of drugs to murder the patient (my opinion) I'm thankful…
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FOLFOX or FOLFIRI
Dear all: I just came back from my oncologist and my head is spining......... I was diagonosed with colon cancer stage IV with mets on the liver, november 2013. Did 1 year of FOLFOX every other week. I had surgery 2 months ago, they removed my primary tumor (the size of a greapfruit) from my sigmoid colon. I am feeling…
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NED 5 Years & Counting
I wanted to share my good news for the benefit of the newly diagnosed and terrified out there. I remember how I felt when I -- in the middle of the night, unable to sleep from worry -- found this website and discovered that it was possible to fight and survive this dreadful disease, even starting from a Stage 4 diagnosis.…
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Tea Tree Oil / Erbitux rash
Has anyone used Tea Tree Oil to treat the Erbitux rash? Someone mentioned it to me to try and now I'm curious.
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Thxmiker, Where Are You?
Have not seen your smiling face for a while. Hope you are feeling much better & that all is going well with your upcoming move. Luv Ya, Wolfen
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HIPEC surgical consult tomorrow
I have an appt with Dr Gary Mann at Univ of Washington Medical Center tomorrow to talk about HIPEC, in my dreams I'll walk out of there with a surgery date. :) From all my reading and in the opinion of my med onc, I'm a good candidate For HIPEC. I have a ton of anxiety over the appt and am terrified, the surgeon won't…
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Nanab passed away
Unfortunately, NanaB is no longer with us. It's sad. Rachel had such a presence. She was a fighter! Her imput on the board as well as our personal conversations will be greatly missed. i had hoped to meet her in person, but it didn't work out. It's so hard to digest. She will be greatly missed. Yolanda
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Thank you for cards
Thank you Marie for this idea and thank you to those who sent me one...very thoughtful and sweet. sorry it took this long to respond back to you.
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John23
Just was so pleased to see your post. Hope that you are doing well and hope that you continue to post on the boards again. You are a wealth of information. Not everyone agrees with alternative approaches but you were always so knowledgeable in your direction that you went and never forced anyone to only "see it your way"…
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Post op Pet scan
I am post op receiving chemo.Had 3 out of 21 lymph nodes come back positive.I have not had a pet scan and was wondering why.Seems most people were informed what stage and had a pet scan.
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Miss Ellie is NED
Hi everyone, I just wanted to post our good news. We went to see the oncologist today and Mom was discharged from his care. It will be 5 years in March when she was diagnosed and he said she was cancer free! She will need to have blood work once a year and a colonoscopy every 5 years, but no more pet scans or office…
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Clinical trial - Nintedanib
hello, I'm not new to the forum, but I do not post often. I have a question to any member with experience with the above clinical trial. My wife is about to embark on this new journey. She has been fighting the desease since 12/2009 (multiplsurge furies and chemo cocktails). She took tests yesterday and will be informed…