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HIPEC surgical consult tomorrow
I have an appt with Dr Gary Mann at Univ of Washington Medical Center tomorrow to talk about HIPEC, in my dreams I'll walk out of there with a surgery date. :) From all my reading and in the opinion of my med onc, I'm a good candidate For HIPEC. I have a ton of anxiety over the appt and am terrified, the surgeon won't…
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Nanab passed away
Unfortunately, NanaB is no longer with us. It's sad. Rachel had such a presence. She was a fighter! Her imput on the board as well as our personal conversations will be greatly missed. i had hoped to meet her in person, but it didn't work out. It's so hard to digest. She will be greatly missed. Yolanda
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Thank you for cards
Thank you Marie for this idea and thank you to those who sent me one...very thoughtful and sweet. sorry it took this long to respond back to you.
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John23
Just was so pleased to see your post. Hope that you are doing well and hope that you continue to post on the boards again. You are a wealth of information. Not everyone agrees with alternative approaches but you were always so knowledgeable in your direction that you went and never forced anyone to only "see it your way"…
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Post op Pet scan
I am post op receiving chemo.Had 3 out of 21 lymph nodes come back positive.I have not had a pet scan and was wondering why.Seems most people were informed what stage and had a pet scan.
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Miss Ellie is NED
Hi everyone, I just wanted to post our good news. We went to see the oncologist today and Mom was discharged from his care. It will be 5 years in March when she was diagnosed and he said she was cancer free! She will need to have blood work once a year and a colonoscopy every 5 years, but no more pet scans or office…
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Clinical trial - Nintedanib
hello, I'm not new to the forum, but I do not post often. I have a question to any member with experience with the above clinical trial. My wife is about to embark on this new journey. She has been fighting the desease since 12/2009 (multiplsurge furies and chemo cocktails). She took tests yesterday and will be informed…
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newbie to board
Ray here. New to this board. i'm looking for folks who have, or have had, signet ring adenacarcinoma. I have it metastisized in my lungs. Been on chemo for over 3 years, but 5 FU it's beating it. CT scans every 3 months show growth of 1 - 2 mm each time. Have three this size and numerous to small to measure... or so they…
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Other health issues
My brother has a kidney stone now. He has blood in the urine which concerns me since he is on Xarelto for blood clots. Geesh, how much more does this poor guy have to deal with? I take him back to urologist on Monday. I feel sad learning about Nana's passing. So many wonderful people on here and this dang disease gets…
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How were liver mets diagnosed?
Welcome to all the newbies. I've been a little busy lately. I started having pain in my right side. I went to the surgeon. She couldn't feel a problem but ordered a ct scan and bloodwork. She called today to say there was a spot in the liver she wants to biopsy. She couldn't tell what type of small mass. She said my cea…
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Husband has Cancer
I've been away from the boards for several weeks and have not really gone though all the posts, but I've seen some devestating news while just logging on. Came here to let you know that my dear, wonderful husband has been diagnosed with kidney cancer. We were away on vacation and he starting peeing blood. Took him to…
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It has been a little over 3 months
Hi, It has been a little over 3 months since my husband passed away. I have had so much support that I am grateful for. I have went back to work and taking it one day at a time. My kids are 18 and 24 and we all taking it one day at a time. It is so hard. We had 26 years together. Happy Happy years! My husband mother is…
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groin node
had one removed 4 months later cat scan shows another one above it go in and have it removed 3 weeks later get petscan approved finds a larger on above the one just removed maybe missed in cat scan or really fast growth going to have it removed this week and then i voulnteered for chemo round 2 any thoughts they keep going…
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It's 3:30 AM
Yup, I'm sure many of you can relate. I'm awake too early, and have too much on my mind... I'm currently NED. Finally feeling recovered from my latest surgery (40% of liver removed this past December - along with three Mets). And I'm back to work full time, new bosses, crazy changes, etc. And I'm going in for CEA test and…
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PhillieG
I believe sometime this month will be your 11 years since diagnosis. How are you doing.
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Eus results...From a new member
So i had a cea of 7.8, clear chest cat and andominal cat. The endoscopic ultrasound revealed tumor growth not fully entering into muscle lining. There were two lymph nodes that looked slightly inflamed. Next visit to oncologist. Was told stage 3. Recommended radiation first, then surgery, then chemo. Any thoughts?
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NED, Erbitux, Fever
So I had my liver resection on 12/5 (40% of liver and gallbladder removed). After surgery my CEA has remained under 1.0! Yay! However, given my very fast recurrences in the past my onc wants to treat me with Erbitux (alone) for a year.I went into treatment 1 thinking this would be a breeze compared to FOLFIRIFOX (basically…
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Craig and nanab updates?
Marie, or anyone, have an update. I've seen Craig pop in with a quick post here and there but wondering if he's home ,etc? Nana still in Mexico?
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Opted out of doing the Treatment
My Dr said that Chemo could not get rid of the Cancer 100% at stage three that I was too advanced...T3N2 .. That the reattachment could be compromised by the chemo and it would postpone the surgery for 6 months. So after a lot of thought and consideration of all the facts... I am not going through with any treatment. The…
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Elderly father, 97 yrs old
I am the caregiver of my dad. He was diagnosed with Colon CA at age 94. He had surgery to remove the ascending and descending colon. It has been 3 yrs as of last Dec. My question is he now has CHF( congestive heart failure), S/P mild MI (slight heart attack), Anemia, Aortic Stenosis, Bifascicular Block (usually resulting…
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NanaB update
I know that Sue (truebrit) posted in the other thread, but didn't want any to miss this news. NanaB is in ICU and is giving it her all. She needs your love, prayers and good vibes. Please keep her and her family in your thoughts and prayers. Marie whol oves kitties
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Maintenance therapy - What does it mean?
Hi everyone, here re I am again with questions My fiancee has stage IV colon cancer into the 5th year now. He has had more than ten surgeries (minimal-invasive and major) for the primary, liver Mets and lung mets As well as all normal chemo protocols and antibodies. Unfortunately, while being resectable, his mets always…
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newbie can't get passed the doom and gloom
Hi I'm a56 yr old female diagnosed in Nov with stage 4 colon cancer multiple mets to liver and lungs. I'm having a hard time getting passed the doom and gloom. I'm on an antidepressant helps some and I'm very anxious major panic attack landed me in the er. I had surgery to remove mass in my colon and have had 2rounds of…
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Cea continues to rise, pet/ct next and then?? Folfiri and avastin?
Since my husband's clear pet/ct on jan 2nd, his cea has been checked every three weeks and has gone from 2.5 to 8 and now 27 yesterday. So she's trying to get him in for a pet/ct ASAP and most likely starting folfiri and avastin next week. He hasn't done folfiri yet...hope he has good response like he did on folfox. I…
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Semi Colon ROLL CALL
Hi Everyone, Back in 2007/2008 when I was deep in the fight I remember a thread that everyone listed where they lived and being amazed at how many people actually read this board (there are many more lurkers than posters!!!). I will start a new one with a little twist, stage and current status (in treatment, starting…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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First NED
Finally, today I got back the last result from my last test, the follow-up colonoscopy. The gastro doc had snipped one polyp and today I got the word that it's benign so officially NED as of today, just more than 1 year following my colectomy and resection. I think there will be wine with dinner tonight. This does NOT mean…
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pain in jaws after chemo
I get 5FU and oxaliplatin I get the finger and toe pain but also get similar pain shoot up the sides of my jaws when I put anything hot or cold in my mouth. It usually is only the first 2 or 3 bites of food. I mentioned to my oncologist but he doesn't seem to have heard of it before. Has anyone had this problem?
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Another New Member
Not even sure what to ask or say. This is happening very quickly, just diagnosed out of the blue. Surgery coming up shortly, the whole thing will be less than 6 weeks. Right now just concerned about the surgery and recovery time, with finders crossed that it is not too far.
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Eat Ice Cream for Breakfast Day in honor of a little girl named Malia
Today I participated in Eat Ice Cream for Breakfast Day for a little girl named Malia who lost her battle with cancer. It was her birthday today. I bought ice cream and shared it with people in my office as well as made a donation to a kids' organization. I can't eat ice cream any more but I did enjoy a lovely frozen fruit…