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I Don't Think This Is What They Meant
First and foremost, greetings friends! It's been awhile since I posted here, but I've been lurking. Between lack of energy, a concussion, and a bad cold and fever, I've just not been feeling the social. But I think of you guys all the time :) I wanted to talk about diet for a minute...or specifically, a lack thereof. When…
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Craig's surgery
I believe it is at 12:30 CT today. We should all be keeping him in our thoughts and prayers for the next few hours for a successful surgery and uneventful speedy recovery and that he retains his new refound appetite.
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moving article
This one had me in tears for hours... http://www.washingtonpost.com/news/inspired-life/wp/2015/03/12/before-i-go-a-stanford-neurosurgeons-parting-wisdom-about-life-and-time/?tid=sm_fb But thank you to all who help treat us. Chip
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Finished my chemo 1 year ago today.
Don't know when NED starts. For me when I finished my treatment a year ago which lasted for 10 months. Lot of things happened since last April. I went back to wor full time really enjoying being productive again. Although my colostomy gives me a lot of grief, I feel pretty healthy most of the time. I think about the cancer…
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Fly Little Bird
A couple weeks ago I had my regular CT scan and CEA tumor test. The CT scan came back clear and my tumor marker is staying stable. I finished chemo on July 4th. It has been just about 18 months since they found my small recurrence. In that time I have had major surgery to remove the tiny little less than 1/2 inch…
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Alergic reaction Oxaliplatin help (for the moment only in 6º cycle)
Hi, mom took 6 doses CAPOX Avastin (Oxaliplatin at 100mg/kg), and today, the day of the 6º cycle, (unlike the other five times) had what chemocare site describes as: "Allergic reaction: a rare side effect, however, call for help immediately if you suddenly have difficulty breathing, your throat feels like it is closing, or…
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Learning to drink cold water while on Oxaliplatin
Mar 22, 2015 - 6:49 am After 5 years of chemo and three rounds of Oxiplatinum I have done experimentations. The greatest experiment that has worked for me was drinking ice water and holding on to two small iced water bottles as long as I could stand the cold in my hands. Drinking ice water before, during and after infusion…
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Interesting trial involving curcumin and FOLFOX
www.trialsjournal.com/content/16/1/110/abstract I've come across much to recommend tumeric with nothing negative (m0st recent here www.chiroeco.com/news/chiro-article.php?id=15976 I just came across this item on Tivozanib and mCRC at…
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12 Folfox treatments and then surgery
I joined this board back in May when I was diagnosed with 4th stage colon cancer. It was in the cecum, 2 lymph nodes, the small intestines, and a couple spots on my liver. I usually just read on here but I have a few questions. After the 12 treatments my Dr decided I was a candidate for surgery. I had surgery 5 weeks ago.…
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SCANS AND TESTS
HOW OFTEN IS IT SAFE TO GET PET CTS AND MRIS - IT SEEMS LIKE EVERY CHANCE THEY GET TO GIVE ME ONE THEY WILL - I AM CONSTANTLY GETTING ANOTHER TYPE OF RADIO TEST. I NEED TO HAVE THE SIRT DONE AND THREE WEEKS AGO THEY DID AN MRI OF 200 VIEWS WHICH TOOK 40 MINUTES IN A CAPSULE THAT WAS VERY DIFFICULT FOR ME. NOW BEFORE I HAVE…
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avastin vs. cyramza
Hello dear friends: Does anyone now the difference between avastin and cyramza ?? I saw an ocologist yesterday for a 3rd. opinion and he said that he would use cyramza instead of avastin, He said that cyramza is like avastin but far more superior. Enjoy the weekend! Pilar Daly
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How long can one do chemo for
My dad, who is almost 78, has been doing IV chemo every other week for his colorectal cancer which spread to his liver for about 3 months. He has had about 7 treatments of IV 5-FU, Irinotecan, Avastin, & Leuucovorin so far. His last Petscan in February showed previous liver lesions and periaortic lesions to be no longer…
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Still Here!
Wednesday, Feb 25th was the anniversary of my 11th year of living with cancer. As many of you know, and many "newbies" don't know, I've been in treatment pretty much non-stop. While it's been a bumpy ride, I've been very fortunate to have great Doctors as well as great luck. There's no secret thing that I've been doing at…
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Hello
I have been reading these posts for some time and decided maybe I could find some help. I was diagnosed Stage IV colon cancer with mets to my liver in December 2014. My port was put in 12/24, a gift. I am 51. I am doctoring at Mayo. I had 3 rounds of folfox. A liver surgeon at Mayo has studied my images and has now started…
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Praying for a friend.
My oncologist introduced me to a 32 year old man who had the same rectal cancer as I and ended up with colostomy. He was after the surgery and we became close friends. I gave him advise about the colostomy bag and started preparing him for the chemo. However he wasn't getting better. Consent blockages and pain. They took a…
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Intereting article
Hi dear friends: My son sent me this article about medicine + integrative medicine that I think is quite interesting, it focuses on breast cancer but I think it serves us all. http://www.medscape.com/viewarticle/841801?src=medscapeapp-android&ref=carouselarticle?src=sttwit Best, Pilar
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Newbie
Hi, Well my Mom had cancer at age of 26 and has been cancer free after receiving radiation tubes inserted in her thus her cervical cancer was cured she is today 85 living well. I was just diagnosed with Colon Cancer and am scheduled for surgery in a week. I am hoping like Mom after surgery and treatment I will be cured for…
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Surgery #19 - "Here at Last!"
Ok, we made it the surgeon consult..... I've got an unusual tale on what has transpired in the last 48 hours, so please be seated and let's talk about this one...as the Beatkes said, it was a magical mystery tour:) First, I was too ill to barely get from the bathroom and back into with gripping pain, so I said we will see…
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Started Chemo Today and My First NED From PET Scan Last Week
So far doing well, about 5 hours after hook up :) (Oxaliplatin not in mix until 2nd session) Pump looks like a giant Tylenol capsule, not battery or noise. Works on body heat and vaccum as internal balloon collapses. Also results of PET scan came back with no evidence of cancer elsewhere. There are a couple of real small…
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What does it feel like to die?
is this wha I'm feeling? Are these my last days? cant even watch tv now barely listen....can't est just water. we changed from morphine making me very sick... Now I've dilaudid drip at high dose and just can't cut the pain. anywsy love you all no matter.....don't think I can get to surgeon consult...they may have waited…
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NED was fun while it lasted
A PET scan late July of last year showed no evidence of disease (from stage IV treated with FOLFOX and Avastin). By October I quit chemo, but stayed on Avastin so I'd have more energy and feel better through the holiday season. I finally had another scan last week which shows 4 active tumors in my liver. After my oncology…
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Some good news - still NED after all these years!
I just had my 8 year scans and checkups (well, about 6 weeks before my 8 year cancerversery) and all remains fine. NED and I remain best friends. Next scans in 1 1/2 years! For those who don't know me, I was diagnosed with Stage 4 metastatic appendix cancer (mucinous adenocarcinoma) in April, 2007. I completed treatment…
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The Rumor Was True - Sundance Was Full of $hit After All. (Updated below)
Well, it's yesterday's news now...but I did clear that major impaction. I never thought I could it was so bad...half a colon full of rock stool. It took 5 jugs of GoLytely...many chemical and warm water enemas, a couple of mag citrates...manual de-impaction to finally get it....it was a mess and one of the hardest things…
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nausea not sure what causeing it
Can someone tell me what causing my wife severe nausea ? she has colon cancer stage with 4 liver mets she had colon surgery but has not started chemo yet. For pain she take morphine 15mg oxy 5mg Also saffron and adavain. I don’t know what make her have severe nausea. she thinks maybe pain meds I dont know? any help would…
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NED NED.... or not so NED Today
Its certainly a roller coaster ride. Yesterday, we wer celebrating NED (no evidence of disease). I receive a call from my surgeion this morning who is referring me to the oncology surgeon. The mass is the size of a grapefruit. It was not there last year when they did the ct scan. The biopsy came back benign but my…
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Simpsons co-creator Sam Simon passes after battle with colon cancer
http://www.dailymail.co.uk/news/article-2986891/Simpsons-creator-Sam-Simon-gave-away-100million-fortune-animal-charities-dies-colon-cancer-aged-59.html
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Do you prefer results face to face?
Just curious. My husband's doctor will not give scan results over the phone or email. Insists on face to face and the waiting drives me crazy. It would be my preference, and my husband's, to get the results as soon as they are available and have a chance to process things and then meet with her. I don't understand the…
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Duke N.C anyone been treated for colon cancer?
I was looking for anyone that was treated @ Duke Colon Cancer Center and what did you thing of the care? we are going to start chemo there soon
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Today's Test Results
I had all my scans on Monday. I don't have my oncologist appointment until March 23rd. I was pretty stressed as you can imagine and worried sick about waiting 2 full weeks for results. I asked my counselor for advice and she suggested I email my Dr and let her know my stress level over waiting 2 weeks. I did. I got a call…
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Help With Medical Expenses
I'm not sure if information of this type is allowed on the site. My apologies to the mods if it is not appropriate. Earlier today, a couple friends came by to brighten my day with some tea and conversation. They inquired about my health and how I was doing and what they could do to help with. They also noticed the pile of…