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What do you call FOLFOX without the Oxaliplatin or Avastin?
I have completed 11 of 12 rounds of FOLFOX, sort of anyway..... I finally called a halt to the Oxaliplatin after two dose refuctions - neuropathy was getting to be more concerning. I can easily live with the neuropathy I have, but dont wanT more. My onc and surgeon called a halt to the Avastin, as they wanpt me off of it…
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Counseling and figuring out what is next
Hi all, I have been quiet lately. I guess I have been trying to figure out where my head is. I have been doing my cancer counseling and having a lot of emotional adjustments to make. Along with figuring out how to move forward is the guilt I feel for not being able to just move on. I have a dear friend who has ALS. I see…
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Scan results
iT is a mixed bag. The 2 ablation sites from December still look great, especially the liver so that is great news. There was a small spot below my lung that showed up in December then was not visible in January, is not visible again but larger so most likely a metastasis. My IR said that is easily ablatable, so more good…
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Happy Birthday Ron! (Ron50)
Another year has rolled around, Ron. We are so glad that you have rolled around with it. (Gosh! Doesn't that sound awful. But we deal with the nitty gritty of life and death here, so its normal) I hope you get to enjoy the good things in life today. Spoil yourself rotten, and know that we are thinking of you. (of course,…
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Wishing all a Happy Easter. A Happy Spring
I wish you all a wonderful Spring season, and I pray we all have the energy or some energy to enjoy the beauties of the spring season, and for those inclined, the joys of the Easter celebration. Today I made my Hot Cross Buns, which I usually make on Good Friday. My mum always made several batches and shared them with…
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Wish me luck...
Scan tomorrow, so far 6 months NED since liver resection. Here we go again, fingers crossed!
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Warning: this is a hard subject to talk about....death and dying
With so many recent 'goodbyes' in my life, I sought out a way to make some sense in letting a loved one go on... I just watched a webinar on Death and Dying....and how to help transition during the process....I believe in much of it... The last message there is quite clear.....Live your life in joy......transitioning in…
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just a short hello - travelling again
Hi dear CSN friends. I just wanted to send you a short message all the way from India. Husband and me are travelling again - 1 week done, 3 weeks left. Staying in Varanasi now - what an incredible town. All the best to you and a big hug from Petra
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Afraid I have colon cancer
Hi, my name is Sharon and I have always posted in the breast cancer group. I am close to 5 year survivor. I have always had an intolerance for fats but for the last few months have severe diarhhea and more recently have gas, bloating, feeling that my bowels don't empty. I took some Immodium Plus and the symptoms went away…
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Personal issues!
Some of you who know me for awhile know that I had problems with my teenage daughter who under the influence of her mother accused me of being sick in order to avoid child support. The troubles really didn't stopped they were just managed. A few months ago I found out that her mom cancelled her health insurance she was…
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Just not feeling well. Neuropathy in feet just struck full force out of no where.
I know you'd think after cancer, I'd be running to an orthapedist about my feet but I just dread yet another doctor's visit. My feet have been feeling painful but always tolerable. Some days I even forget that I have pain in them, it's just something you get used to. Today, I stood up and was washed over by general…
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SIRT
Having the mapping done 2moro has anyone had this done and how'd it go???
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Colon Cancer Stage 4, Obstruction and dealing with Chemo/Nutrition
My boyfriend of 5 years was diagnosed with Colon Cancer a year ago. Long story short, he started the chemo 2 months ago. The issue is that he cannot eat, even full liquids diet cause him cramping that last 24 hours, comes in waves and are really painful. So the Dr. put him on TPN which causes some other side effects. He is…
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New poster Shelana, Insurance question
Shelana posted this question in another thread and re-posting in hopes others may have insight for her. Amy Hi: I have a friend that is battling colon cancer with mets to liver. Recently they implanted a port in his groin area for a procedure where they deliver the drugs (chemo/radiation) directly to the liver to kill the…
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If you're currently doing chemo,check latest on consuming fatty acid in fish /fish oil:
http://medicalxpress.com/print347194247.html and some other interesting stuff......(this site is pretty good,if you're so interested) http://medicalxpress.com/print347117383.html a study with a too-long link suggests adding regorafenib to cetuximab if/when cetuximab stops working (does same apply if using vectibix? as i…
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Neupogen
I just had my 3rd round of folfoxiri. This is hitting me much harder than the folfox. My white count went down so I am now taking 5 shots of neupogen on the 5 days after the pump is off. This seems to really drag me down. Does anyone else have expriance with Neupogen?
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To Remove Port or Keep it?
Hi Everyone, I have a question. A month ago, when I saw my oncologist, she told me that if my next scans were clear and my CEA was stable, she would recommend I remove my port. She feels that keeping it in just in case I have a recurrence makes it harder to move forward after treatment. I have spoken to my counselor about…
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Anyone see 60 minutes last night???
Hello All, wishing everyone on this site a few smiles, some laughter and A lot of positive energy today :) was wondering if anyone caught 60 Minutes on tv last night?? Could it be possible? Polio the "kryptonite" of the big C ? my jaw dropped as I watched in amazement last night , how one killer disease might be a answer…
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Potential solution to neuropathy looks good at Phase IIb trial
called PledOx from PledPharma,supposedly reduces neuro while not hindering efficacy of FOLFOX (further down the road,an Australian company working on something called Cantrixcil for CRC;others being investigated elsewhere include Tivozanib,Xilonix;MCV)
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Chemo and blood clots
Hi everyone! Sorry I was gone for so long. I've been in the hospatal from Dec 9 until the other day. If anyone remembers, I'd been asking about blood clots and chemo because I'd had 3 superficial blood clots and was worried. I completed 8 of the 12 suggested rounds of chemo and was miserable with fatigue and neuropathy.…
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Husband
Thank you all for your prayers, concerns, and well wishes. My husband's surgery went well - longer than expected due to scar tissue, but successful. They removed the complete kidney. He will have to have six month scans for the next couple years. We will get the pathology report back in about a week. Didn't realize that…
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colon cancer stage 4 liver mets
Hello everyone I am a newbie to this forum I recently found out my wife was diagnose With Colon Cancer stage 4 liver mets I am told it’s not operable @ this time I hoping if anyone knows any new information? please let me know I am optimistic And will never give up on my wife of 30 years. I feel this site will be a good…
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blood clots
Janjan63 I too have superficial blood clots . 3 so far and my oncologist doesnt seem very concerned. I have had4 rounds of chemo and currently suffering from constant diareah. I am going to discuss these blood clots further this visit after reading your post Good luck to you and may God bless you.
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Want to know more about who Sundanceh is?
Sundanceh – the man For those of you who have not had the opportunity of a long association with “our” Craig, I thought maybe a summary would help you understand how he became so important to so many of us. What I share here, he has already shared in his posts and his profile page, so I don’t tell you anything he hasn’t…
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How do you know?
My husband Mark has been on new chemo for 2 rounds now. I think its Avastin and i can't think of the other one. He is miserable, never feels good and says often "this isn't worth it". He's pretty depressed but doesn't want an rx for it. I've noticed his skin color is yellowish/grayish and he's just lost his umph. My…
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5 yrs war
For me, it officially began just over 5 years ago. We'll never know exactly when for my wife. She began to obstruct and have diarrhea a month earlier, right after a first trip to Bangkok. (I've still never been to Thailand) At first the dr thought amebiasis, and tried several rounds of antibiotics without success. She lost…
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Hubby is Home - Wow I'm on the other side
Hubby is home and thank you all once again for your prayers and thoughts. This is so different being on this side of things when being a caregiver instead of being a patient. I'm sure that me being a patient wasn't very easy as I'm so emotional anyway, but being on this side of things is totally different. The doctor says…
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Does anyone feel pain in areas where the Cancer is?
Sometimes out of the blue when a brief twitch of pain appears. It isn't a constant pain. But it can appear in my liver area(I just found out I had a nodule on it) or on my stomach area. It's almost like a fluttering. Thoughts?
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its back 2
started my second round of chemo last wed 1 of 12 only 11 more to go at least i know what to expect this time. what fun cancer is :}
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Avastin and muscle pain?
Have any of you experienced muscle pain while on Avastin? I'm not sure if it's related, but it's currently the only drug I'm taking while NED. I've had pain in my left shoulder (rotator cuff) for about 4 months and now pain in my neck for the past 2. it seems to get better when it's almost time for my three week IV push,…