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Take a deep breath ...
A spam message I read today brought forth an old message thread from 2012. There were many messages in the thread ... but I am sharing this one from former board member Devotion10 that many old timers will remember. I have cut and pasted her message below because it is relevent to the journey of many here and I think it…
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Article
Not sure how many on here recieve a magazine called Cure. It's a magazine tailored to cancer patients/survivors and thier caretakers. It is published on a quarterly basis. Really a great magazine. Full of information on all types of cancers. Yah, I'm going somewhere with this. This issue has a awesome article on CRC called…
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Today is my 3 year cancerversary
I was diagnosed 3 years ago today stage IV Rectal cancer. I never thought I would still be alive. My twin boys were 14 and now they are 17 and graduating high school next month and starting college in a June. I have twin grand babies girls that are 10 months old and never thought I see grandchildren. I am happy to be NED…
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Grit and Determination
Hi friends, In a prevoius post I mentioned my dear friend who has ALS. This past weekend was her daughters wedding. I have never seen such an amazing example of grit and determination. My friend, bless her heart, managed to stand, using a walker and being held by her husband on one arm and her daughter on the other, and…
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Question not for the faint of heart- colostomy
Ok, I have searched high and low and I can't seem to find anywhere the answer to my questions A) Does it bother anyone else when poop stays stuck to the top of your bag instead of going down into the bag? When I have this problem I push the poop down B) Does anyone else have days where they don't feel clean enough, like…
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Has anybody had HIPEC procedure?
Has anybody had this procedure? If so how long ago? I have mets to the peritoneum and lymph nodes. They previously thought I had it on my liver, but my second opinion believes I have a cyst. Thoughts??
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Yolllmbs is your appointment on mass tomorrow, the 30th?
hey hon, my memory sucks, but is tommorow when you find out when they'll be doing surgery? wishing and hoping good news, will be thinking of you. Winter Marie
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On PBS - Cancer: The Emperor of all Maladies
On your local PBS station for those in America. A documentary based on the book of the same name. It is in three parts. It is on as I type but repeated tomorrow and maybe other days. I have the book, have not completed it, but it is deep and not an easy read. The documentary is going to be good, I believe. Sue - Trubrit
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What do you call FOLFOX without the Oxaliplatin or Avastin?
I have completed 11 of 12 rounds of FOLFOX, sort of anyway..... I finally called a halt to the Oxaliplatin after two dose refuctions - neuropathy was getting to be more concerning. I can easily live with the neuropathy I have, but dont wanT more. My onc and surgeon called a halt to the Avastin, as they wanpt me off of it…
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Counseling and figuring out what is next
Hi all, I have been quiet lately. I guess I have been trying to figure out where my head is. I have been doing my cancer counseling and having a lot of emotional adjustments to make. Along with figuring out how to move forward is the guilt I feel for not being able to just move on. I have a dear friend who has ALS. I see…
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Scan results
iT is a mixed bag. The 2 ablation sites from December still look great, especially the liver so that is great news. There was a small spot below my lung that showed up in December then was not visible in January, is not visible again but larger so most likely a metastasis. My IR said that is easily ablatable, so more good…
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Happy Birthday Ron! (Ron50)
Another year has rolled around, Ron. We are so glad that you have rolled around with it. (Gosh! Doesn't that sound awful. But we deal with the nitty gritty of life and death here, so its normal) I hope you get to enjoy the good things in life today. Spoil yourself rotten, and know that we are thinking of you. (of course,…
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Wishing all a Happy Easter. A Happy Spring
I wish you all a wonderful Spring season, and I pray we all have the energy or some energy to enjoy the beauties of the spring season, and for those inclined, the joys of the Easter celebration. Today I made my Hot Cross Buns, which I usually make on Good Friday. My mum always made several batches and shared them with…
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Wish me luck...
Scan tomorrow, so far 6 months NED since liver resection. Here we go again, fingers crossed!
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Warning: this is a hard subject to talk about....death and dying
With so many recent 'goodbyes' in my life, I sought out a way to make some sense in letting a loved one go on... I just watched a webinar on Death and Dying....and how to help transition during the process....I believe in much of it... The last message there is quite clear.....Live your life in joy......transitioning in…
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just a short hello - travelling again
Hi dear CSN friends. I just wanted to send you a short message all the way from India. Husband and me are travelling again - 1 week done, 3 weeks left. Staying in Varanasi now - what an incredible town. All the best to you and a big hug from Petra
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Afraid I have colon cancer
Hi, my name is Sharon and I have always posted in the breast cancer group. I am close to 5 year survivor. I have always had an intolerance for fats but for the last few months have severe diarhhea and more recently have gas, bloating, feeling that my bowels don't empty. I took some Immodium Plus and the symptoms went away…
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Personal issues!
Some of you who know me for awhile know that I had problems with my teenage daughter who under the influence of her mother accused me of being sick in order to avoid child support. The troubles really didn't stopped they were just managed. A few months ago I found out that her mom cancelled her health insurance she was…
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Just not feeling well. Neuropathy in feet just struck full force out of no where.
I know you'd think after cancer, I'd be running to an orthapedist about my feet but I just dread yet another doctor's visit. My feet have been feeling painful but always tolerable. Some days I even forget that I have pain in them, it's just something you get used to. Today, I stood up and was washed over by general…
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SIRT
Having the mapping done 2moro has anyone had this done and how'd it go???
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Colon Cancer Stage 4, Obstruction and dealing with Chemo/Nutrition
My boyfriend of 5 years was diagnosed with Colon Cancer a year ago. Long story short, he started the chemo 2 months ago. The issue is that he cannot eat, even full liquids diet cause him cramping that last 24 hours, comes in waves and are really painful. So the Dr. put him on TPN which causes some other side effects. He is…
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New poster Shelana, Insurance question
Shelana posted this question in another thread and re-posting in hopes others may have insight for her. Amy Hi: I have a friend that is battling colon cancer with mets to liver. Recently they implanted a port in his groin area for a procedure where they deliver the drugs (chemo/radiation) directly to the liver to kill the…
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If you're currently doing chemo,check latest on consuming fatty acid in fish /fish oil:
http://medicalxpress.com/print347194247.html and some other interesting stuff......(this site is pretty good,if you're so interested) http://medicalxpress.com/print347117383.html a study with a too-long link suggests adding regorafenib to cetuximab if/when cetuximab stops working (does same apply if using vectibix? as i…
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Neupogen
I just had my 3rd round of folfoxiri. This is hitting me much harder than the folfox. My white count went down so I am now taking 5 shots of neupogen on the 5 days after the pump is off. This seems to really drag me down. Does anyone else have expriance with Neupogen?
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To Remove Port or Keep it?
Hi Everyone, I have a question. A month ago, when I saw my oncologist, she told me that if my next scans were clear and my CEA was stable, she would recommend I remove my port. She feels that keeping it in just in case I have a recurrence makes it harder to move forward after treatment. I have spoken to my counselor about…
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Anyone see 60 minutes last night???
Hello All, wishing everyone on this site a few smiles, some laughter and A lot of positive energy today :) was wondering if anyone caught 60 Minutes on tv last night?? Could it be possible? Polio the "kryptonite" of the big C ? my jaw dropped as I watched in amazement last night , how one killer disease might be a answer…
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Potential solution to neuropathy looks good at Phase IIb trial
called PledOx from PledPharma,supposedly reduces neuro while not hindering efficacy of FOLFOX (further down the road,an Australian company working on something called Cantrixcil for CRC;others being investigated elsewhere include Tivozanib,Xilonix;MCV)
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Chemo and blood clots
Hi everyone! Sorry I was gone for so long. I've been in the hospatal from Dec 9 until the other day. If anyone remembers, I'd been asking about blood clots and chemo because I'd had 3 superficial blood clots and was worried. I completed 8 of the 12 suggested rounds of chemo and was miserable with fatigue and neuropathy.…
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Husband
Thank you all for your prayers, concerns, and well wishes. My husband's surgery went well - longer than expected due to scar tissue, but successful. They removed the complete kidney. He will have to have six month scans for the next couple years. We will get the pathology report back in about a week. Didn't realize that…
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colon cancer stage 4 liver mets
Hello everyone I am a newbie to this forum I recently found out my wife was diagnose With Colon Cancer stage 4 liver mets I am told it’s not operable @ this time I hoping if anyone knows any new information? please let me know I am optimistic And will never give up on my wife of 30 years. I feel this site will be a good…