It's back

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jen2012
jen2012 Member Posts: 1,607 Member

No surprise really, but frustrating that it's taken 2 months to figure out.  Back in the bones again.  Meet with the oncologist tomorrow to see what her plan is.  Folfiri I think.  She also wants to do a brain MRI to make sure there isn't anything else going on.

besides the perforation from the colonoscopy last week, he's been feeling okay.  If not for the rise in CEA, we wouldn't have expected anything.

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  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
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    Oh, damn, Jen, I'm sorry.

    Oh, damn, Jen, I'm sorry.  This has been such a roller coaster ride for your family. Prayers and wishes for a good plan and the strength to enter treatment again. You are an amazing supporter aand Mom and wife and.....so much on your plate.

    hugs,

    CM

  • Trubrit
    Trubrit Member Posts: 5,800 Member
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    Damn it!

    I am so very sorry to hear this. I know it was not a surprise, with the CEA rising and all, but hard to hear, even when expected. 

    Give your man extra hugs from me. And I'll hug you too. You must be heartsick. 

    Sue - Trubrit

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
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    So sorry jen

    :)

    did not want it to come down to this for you both...

    time for the next  step and will pray hard for you both .

  • herdizziness
    herdizziness Member Posts: 3,624 Member
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    Jen, I'm so sorry

    That is has once again showed up, but at least with the rising CEA you are no longer wondering where It is, but now onto how to fix it.  This cancer sure isn't a walk in the park, it's more like walking through gang territory in a ghetto somewhere wondering when a bullet's going to hit you, it down right SUCKS big time, I think I'm in my pissed off at cancer mode right now, it's being pretty darn cruel to us all at the moment.

    But... on the other hand, since we can't change what is, we might as well go forward kicking it's arse as we rid our bodies of it. Here's to the chemo attacking his cancer cells and tumors well, a good MRI and getting that CEA down once again and having a long break in the future from cancer.

    Definitely sending hugs and an arm around the shoulder your way,

    Winter Marie

     

  • Easyflip
    Easyflip Member Posts: 588 Member
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    Sorry

    There's radiation treatments for bone mets and luckily they're not fatal. Tumors in organs are but not the bones. A sensitive CEA is a good thing to have, it's a warning beacon so you can catch things early. Having said that it totally sucks that it's back for both of you. Modern medicine simply does not have a way of eradicating all tumor cells in us, the chemos are also ineffective much of the time. There's hope in more sophisticated targeted approaches like immunotherapy, gene mapping and cancer stem cell research but I sure wish they would hurry up! Keep the faith and good luck!

    easyflip/Richard

  • LindaK.
    LindaK. Member Posts: 506 Member
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    F cancer

    I hate this disease and what it does to all of us.  I, too, am still in the anger phase of grief.  So many errors and bad treatment for my husband.

    Recurrence is a word we all hate, but it is always lingering there in our minds.  It's time for you to get back into fighting mode.  My husband did pretty well on Folfiri, better than Folfox anyway.

    Good luck with your next steps

    Linda

  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 509 Member
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    Just Relentless!

    So sorry Jen!  Hope he can get a good plan going and knock it out.  He is young and strong, he can fight this off.  I know this is scary for you, I will be thinking about you and hope for the best!

    Sandy

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
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    Just Relentless!

    So sorry Jen!  Hope he can get a good plan going and knock it out.  He is young and strong, he can fight this off.  I know this is scary for you, I will be thinking about you and hope for the best!

    Sandy

    arrgh

    Just when you guys were ahead, one step backwards. Sorry about this. Hope they figure out an appropriate treatment plan for him.

     

    atb

    Karin

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
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    Damn it. I am so, so sorry. I

    Damn it. I am so, so sorry. I didn't even want to open the post. Cancer sucks. I hate it and am so sorry for you and your family.

  • NewHere
    NewHere Member Posts: 1,427 Member
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    K-Rap

    Sorry to hear about this.  :(

  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
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    I was going to ask how your

    I was going to ask how your husband is doing  and saw your post. My husband's last CEA became 39.6, and the scan in the middle of Feb didn't show anything. I am sure cancer is somewhere, but I hope it is in a place where can be easily removed. I understand your frustration. We are in the same boat. Hang on there.

  • Helen321
    Helen321 Member Posts: 1,459 Member
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    My first word was **** so I'm

    My first word was sh** so I'm just going to go with that even though it's going to be censored.  Just plain old sh**!

  • annalexandria
    annalexandria Member Posts: 2,571 Member
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    Oh no...

    I am so f'ing sorry, Jen.  This is SO UNFAIR.

     

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
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    Oh Jen!

    Oh Jen,

    I am so very, very sorry to hear this.  I'll be thinking of both of you.  I know how very difficult this news is.  We will be here.

    Aloha,

    Kathleen

  • jen2012
    jen2012 Member Posts: 1,607 Member
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    Thank you all!  You guys know

    Thank you all!  You guys know what to say, like no one else does.  

     Hoping the folfiri isn't too hard for him to handle.  It's important for him to be able to work, do activities with the kids and his volunteer activities.  I know it will be hard on him if he gets really wiped out.  Hopefully the timing with spring will give him some extra energy.  Mostly hoping it knocks out/down the cancer and we can continue with life hoping for a cure or really good trials.

    So we went out last night to a fancy restaurant in town that he's never been to.  I only recently went with friends.  We've lived in this town for 19 years and have never been there because it's kind of pricey.  He is very concerned about money, but I convinced him he needed to try it.  We both thoroughly enjoyed ourselves.  He even ordered dessert.    I think we both needed it...we didn't even talk cancer - or the kids the whole time we were there :)

     

    Thank you all.  I appreciate you all so much.

  • jen2012
    jen2012 Member Posts: 1,607 Member
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    I was going to ask how your

    I was going to ask how your husband is doing  and saw your post. My husband's last CEA became 39.6, and the scan in the middle of Feb didn't show anything. I am sure cancer is somewhere, but I hope it is in a place where can be easily removed. I understand your frustration. We are in the same boat. Hang on there.

    Have they done a colonoscopy

    Have they done a colonoscopy or a brain MRI?  It's so concerning and frustrating when they can't figure it out.

  • jen2012
    jen2012 Member Posts: 1,607 Member
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    Easyflip said:

    Sorry

    There's radiation treatments for bone mets and luckily they're not fatal. Tumors in organs are but not the bones. A sensitive CEA is a good thing to have, it's a warning beacon so you can catch things early. Having said that it totally sucks that it's back for both of you. Modern medicine simply does not have a way of eradicating all tumor cells in us, the chemos are also ineffective much of the time. There's hope in more sophisticated targeted approaches like immunotherapy, gene mapping and cancer stem cell research but I sure wish they would hurry up! Keep the faith and good luck!

    easyflip/Richard

    You are right Richard - we

    You are right Richard - we are thankful it hasn't gotten to the organs yet (and hopefully won't).  They are hesitant to use radiation as he's had it in the past for testicular cancer.  Plus I think the bone mets are wide spread and they do seem to respond to the chemo.  

    Yes, hurry up with the damn cure already.

  • jen2012
    jen2012 Member Posts: 1,607 Member
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    Jen, I'm so sorry

    That is has once again showed up, but at least with the rising CEA you are no longer wondering where It is, but now onto how to fix it.  This cancer sure isn't a walk in the park, it's more like walking through gang territory in a ghetto somewhere wondering when a bullet's going to hit you, it down right SUCKS big time, I think I'm in my pissed off at cancer mode right now, it's being pretty darn cruel to us all at the moment.

    But... on the other hand, since we can't change what is, we might as well go forward kicking it's arse as we rid our bodies of it. Here's to the chemo attacking his cancer cells and tumors well, a good MRI and getting that CEA down once again and having a long break in the future from cancer.

    Definitely sending hugs and an arm around the shoulder your way,

    Winter Marie

     

    Winter, I printed your

    Winter, I printed your message on the other thread about how you decided to not sit and wait to die, you kept living.  I also printed your entire history from your profile page.  He's not a reader, but he read through the entire thing and really appreciated your insight and all you have been through.  

  • jen2012
    jen2012 Member Posts: 1,607 Member
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    Oh one thing the oncologist

    Oh one thing the oncologist mentioned.  I don't think I asked about this yet, but she said his spleen is very enlarged.   She seems to think it's holding onto his extra platelets and shooting them out when needed...or something like that.  Anyone have any thoughts on that?  

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
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    jen2012 said:

    Oh one thing the oncologist

    Oh one thing the oncologist mentioned.  I don't think I asked about this yet, but she said his spleen is very enlarged.   She seems to think it's holding onto his extra platelets and shooting them out when needed...or something like that.  Anyone have any thoughts on that?  

    I have a very enlarged spleen

    I have a very enlarged spleen as well. My oncologist and interventional radiologist agree that it is holding my platelets giving me low counts. They think it is fromportal vein tension in my liver due to the surgeries which is causing the spleen to back up with the limited blood flow through my liver. My interventional radiologist said he can embolize the spleen to make it shrink but wants to wait until if and when my platelets drop to 50. I have a scan in 1 1/2 weeks so I am interested to see if the spleen grew more and how the ablations look 4 months later.