Learning to drink cold water while on Oxaliplatin

herdizziness

Mar 22, 2015 - 6:49 am

After 5 years of chemo and three rounds of Oxiplatinum

I have done experimentations.  The greatest experiment that has worked for me was drinking ice water and holding on to two small iced water bottles as long as I could stand the cold in my hands.

Drinking ice water before, during and after infusion has allowed me to continue drinking ice water all day everyday including day of chemo day after etc., before I had to actually warm up room temperature water in order not to feel that ice shards feeling in my throat when drinking.  I began to hate hot apple cider, cocoa, tea and coffee because all I wanted was a cold drink and was denied it.  It first was five days before I could drink something cold, then it extended to ten miserable days.

Then this time, I thought about what my oncologist had told me, that chemo hates the cold and if I could keep my hands and feet in ice water during the chemo, I wouldn't have the neuropathy that goes hand in hand with the Oxi.  I looked on the net and they do sell hand and feet gloves that do this, keep your hands cold, and in another oncology unit (I forget what country) they now have a cold hat system that keeps the chemo away from your head and stops the hair loss.  So, I thought to myself if wearing cold stuff keeps the Oxi away from the cold area, would drinking ice water keep it from my throat.  And while I was scared to try it, it was a darn miracle to me.  I drink it all the way through infusion with no troubles, but you have to keep drinking every few minutes, to keep the throat cold I order for it to work.

I hold the two small iced water bottles as long as I can in my hands, this has allowed me to hold cold things, like cold yogurt etc., (which is another nice thing about drinking the ice water effect, is I can eat cold things and ice cream without worry or waiting) I still get the tingling and nueropothy because I waited to try the ice cold water bottles because well, they are so darn cold to hold!  But at least I can hold on to cold things and reach in my refrigerator and get what I want.  And it's nice to be able to eat cold cereal with cold milk without the worry of feeling ice schards.

http://youtu.be/G7d6WYI0Hd0

That is my YouTube of how I drink the ice water

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lilacbrroller

the right post

I just responded the wrong post - I read yours, and then somehow ended up responding to a different thread. D'oh.

Nifty to see a CSN person talking, live and on video.  I still think you're a mutant to tolerate that much oxi - hah! When I took it, I couldn't even breathe air conditioned air at the infusion clinic without feeling uncomfortable. 

There is actually something to your technique - platinum drugs are used in breast cancer treatments, and somebody has discovered that wearing ice filled hats during chemo prevents hair loss in breast cancer patients taking said drugs:   http://well.blogs.nytimes.com/2015/03/09/keeping-your-hair-in-chemo/

good on ya

Karin

NewHere

lilacbrroller said:

the right post

I just responded the wrong post - I read yours, and then somehow ended up responding to a different thread. D'oh.

Nifty to see a CSN person talking, live and on video.  I still think you're a mutant to tolerate that much oxi - hah! When I took it, I couldn't even breathe air conditioned air at the infusion clinic without feeling uncomfortable. 

There is actually something to your technique - platinum drugs are used in breast cancer treatments, and somebody has discovered that wearing ice filled hats during chemo prevents hair loss in breast cancer patients taking said drugs:   http://well.blogs.nytimes.com/2015/03/09/keeping-your-hair-in-chemo/

good on ya

Karin

Me Too

I had it happen twice.  The first time i thought I messed up, the second time I was real careful to make sure I was replying in the right thread to the right post, and it still wound up in the other thread

coloCan

NewHere said:

Me Too

I had it happen twice.  The first time i thought I messed up, the second time I was real careful to make sure I was replying in the right thread to the right post, and it still wound up in the other thread

You should see the other video Winter posted,

the one in the bubblebath with the.............................whoops,wrong site!

herdizziness

coloCan said:

You should see the other video Winter posted,

the one in the bubblebath with the.............................whoops,wrong site!

Colocan

You've got me busted up laughing here. Thanks!!!!

Trubrit

coloCan said:

You should see the other video Winter posted,

the one in the bubblebath with the.............................whoops,wrong site!

Love it!

That gave me a giggle. Thanks CC.

Sue - Trubrit

Lovekitties

Another Pioneer

It is just wonderful that you have found something to help with the side effects of the oxi, and even more so that you have shared it with us.

We need a spot on this site for this type of info, so one doesn't have to go searching in the future.

By the way, you look great on your YouTube...that would be the one about oxi...lol...since you didn't link to the other mentioned by CC!

Hugs,

Marie who loves kitties

traci43

Cool! (pun intended)

Thanks for the info if I need chemo again I will be asking for oxi and trying this.  Traci