Avastin
Anyone have experience with Avastin? I will be starting it with Lonsurf soon.
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My husband just started Avastin, I’m here looking for the same information ❤️
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Hi Abita,
I have had many, many Avastin doses (approx 48 ) over the years. I received it along with the FOLFOX, FOLFIRI and Xeloda regimens. Its difficult for me to parse out which side effects are from what. But, I believe my bloody noses can be attributed to the Avastin, as well as an elevation in BP. Although the BP could just be a normal aging thing…who knows?! I also had watery eyes and runny nose which may have been from the Avastin
Hope you do well on your new regimen.
p
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He is taking it with the 5FU
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Those same symptoms are what we are seeing too! Except the bloody nose haven’t had one of those yet.
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My dad had Avastin with Folfiri. The major issue for him was Nose bleed and for the vary reason it was stopped after 3 or so cycles. But beside that no major side effects.
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This is the one that worries me. But it sounds like it has a bit of a warning. The person who told me oh, you can have blood clots to brain, which can cause a stroke, so know these symptoms in case it happens to you. But it isn't a common side effect or something like that. But didn't answer when I said wait, are there warning signs, or does it just happen out of the blue?
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I was taking Avastin with FOLFIRI. Drove up my blood pressure. They can give you a medication to regulate your BP if it becomes a problem. If clotting becomes an issue you will be prescribed an anticoagulate. That actually happened to me without Avastin on FOLFOX. It's likely to be helpful for any clotting issues, though. I would try not to worry too much about those things.
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I took Avastin and with 5FU, Oxaliplatin, Irinotecan, and Xeloda (sequentially) over a period of approximately six months. It caused severe stiffness in my arms and neck. The stiffness started in month four and came on slowly. By month six, I could barely turn my head; I couldn't reach my arm out to push the buttons on the radio in the car; I needed help putting on a cardigan and could not put on a pullover. I could raise my arms only half-way - they would not go higher unless I used one hand to lift the other arm. This meant I couldn't open kitchen cabinets, etc. Symptoms eased when I went off the drug and then disappeared completely a few months later.
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Hello. I'm new to this site. I was diagnosed with colorectal cancer in 2009 and I was treated with Folfox and Avastin after a resection of my colon (Hemicolectomy). The only major side effect I experienced from treatment was peripheral neuropathy, which I still have to this day. I manage it to the best of my ability depending on the weather.....burning sensation in feet during hot weather and stinging pins and needles in colder weather, hands and feet. The Avastin drug was fairly new in 2009. My oncologist strongly recommended it and it worked for me. All my scans and colonoscopies since then have been clear.
I wish you all the best.
Frank
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Abita
just checking on you, how are you doing?
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I do have more bouts of fear and sadness than before. But I am still hopeful and optimistic. You know, I think about you a lot when I buy mascara :) My new meds don't cause hair loss so my eyelashes and eyebrows are back, and my hair is growing back, slowly.
How are you doing?
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Ok I am not sure this is going in the right place or if you will see it, the new format is hard for me, not sure why though.
I hate that your feeling sad and scared more, No one should live with that kind of fear. I am hoping this next round goes well for you! I am so happy your hair is coming back! I love that you think of me then! I do think of you often, I really do. Coming here is hard for me, I miss him so much. I was doing well, but now I have hit a rough patch. I have been crying for days my eyes are puffy and I have not been using my waterproof mascara lol
please message me any time or find me on Facebook Ruth Schilkowski
xoxo
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