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Radiation Question for those who have had it
Hello Dear Survivors - My CC returned to my right lung in 2016. Original diagnosis was 2009. NED for 8 years. Here we are. In June of 2016 I had my right tumor removed, along with my entire right lung. I have done very well since surgery but those dam pesky cells are still growing in the area where my right lung was, and I…
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I have a question
I have a question for all... I had my first treatment of Chemo last Wed. I am feeling really good, some small side effects, but one that the nurse had not heard of, my saliva glands hurting. It seemed that no matter what I ate for the first three days I would have a lot of pain for the fisrt few bites, like when you take a…
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Great website... Signet Ring, Mucinous Adenocarcinoma, appendiceal cancers ,pseudomyxoma peritonei.
Just happened upon this website while at work(UPMC) and thought it was great. I know for those that have appendiceal cancer it seems as resources of info are limited...there is even a blog to connect with others and for those who might need HIPEC there is a listing of facilities and physicians that provide this treatment.…
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Long, long time on chemo..
My husband is in his second year of continous chemo. Started in September 2015 with Folfox w/Avastin then switched to Folfori w/Avastin. He has had 30 treatments so far and counting. Just had his 6th scan, hoping that the remaining spots left have not grown and that the cancer has not spread!
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I am dying! Am I dying? We're all dying!
I am having an issue with the 'We're all dying' phrase. I know for some its a great way to take the pressure off of the emotional issue of acceptance of death, to say 'You could get run over by a bus tomorrow' or 'We're all dying', and that is good for them, but for me, it does nothing but make me feel like they are saying…
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2 Chemo treatments under my belt
It feels so good to be underway with treatment since my stage 3 diagnosis in early September. I had the port installed and all is good with that and the pump is so much more tolerable then I thought it would be. I have been back to work and I am actually getting back to my weekly volleyball games and daily workouts and…
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New here
Hi all, just signed up for this site. I have locally advanced rectal cancer and had agressive chemo/rad at the same time which destroyed my body. Was supposed to have surgery within 4 months of treatment but didnt feel physically able to do this until 11 months later. They removed all my internal plumbing resulting in a…
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Patty Smith with the angels...
I just found out through facebook that our friend Patty Smith has passed away. I don't remember what her CSN user name was; maybe someone else will remember. She had only recenty begun being active again on fb, and she never whispered a peep about being sick again; if that is, in fact, what took her. I've noticed that…
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is anyone who has had an APR and/or radiation having lower spine issues?
Want to go into this appointment knowledgeable enough to help myself and get the right answer the first time. I'm finding with APRs in general, doctors outside of the cancer center are trying to figure it out.
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New Here
My mother ( 78 years old )was diagnosed with colon cancer . Stage 4 After having stomach issues all spring and summer. Having multiple test they did a cat scan that showed a mass on her right colon . Had a colonoscopy a few days later confirmed it . On Aug 30 she had the mass removed along with 24 lymph nodes . 7 of them…
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Neuprogen for low WBC - bone pain
I have had 4 shots of neuprogen to raise WBC (having 5 before next chemo), as my chemo has been reduced 20 and then 30% so far. Today when I got up (after 3rd shot yesterday) had some weird , fairly sharp spinal pain and in area of a hiatal hernia I have - especially when I laid down or sat. Better if stood up. Took 2 more…
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Pain Questions
Hello All, I am writing in concern for my sister. She started folfox and 5FU on 10/07/16, and she is still extremely fatigue. Her next treatment is this Friday, 10/21/16. She said she is so tired, she does not feel like getting out of bed. Granted, she is enduring a lot of pain from the obstruction and fistula and heavily…
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HIPEC for Peritoneal Carcinomatosis from Colorectal Cancer
I was diagnosed with IIIc colon cancer (6 lymps) in August 2013 and had surgery then folfox. A recent scan showed shadows in the peritoneaum and a recent lapo biopsy revealed cancer reoccurrence. Today I started 3 months of Folfiri after which I have a planned HIPEC surgery. I hear it can be rough. Any war stories out…
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Lymphodema and Spiking Fevers
Hi everyone. Robert actually asked me to reach out to you all tonight - get some feedback. He has not had chemo in 3 weeks - his last WBC count was 1.6. With all these kids going back to school and such he just keeps getting sick. Good news is he has had very little rectal pain the last few weeks - now it's just the…
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31 year old Stage 2A.
Hello friends, My name is Erica, I was diagnosed with rectal cancer on August 2016 after a 5.5 cm tumor was found during a colonscopy (no family history). I had a resection surgery that removed part of my rectum, the surgery was successful and I did not require a coloctomy bag. I started my first cycle of chemo today with…
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Dendritic Cell Treatment
Hello, all. I just started dendritic cell therapy, through the Dr. Nesselhuts' clinic in Duderstadt, Germany http://immune-therapy.net and Dr. Raymond Chang in New York City at the Meridian Medical Group. http://www.meridianmedical.org. I will be posting about my experiences, and results, on this site, throughout…
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Uncle Buddy is soaring with the angels!
It is with great sadness that I annouce the passing of my sweet brother. He passed away at home yesterday. I will be back once I can pull myself together. Hugs to all! Lin
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Lung Mets Question
Okay, so I get it that the lung mets are still colon cancer that's in my lung now. I should have asked this of the onc when I was there but I didn't think about it at the time so I'm hoping you guys can tell me. I'm going to give it the best shot I can to not let them get bigger and try to keep myself healthy and with as…
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Nausea med
Hello All - I currently have a nausea pill that I can take every 6 hrs as needed. When I had chemo, I was given an anti-nausea med before, then had a pill to take in the am and pm for 2 days afterwards, plus this other nausea pill that I can take every 6 hrs as needed. It is called Metoclopramide Hcl 10mg. On the med info…
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New flavoured Colonoscopy prep being tested
http://edition.cnn.com/2016/10/17/health/colonoscopy-drink-food-bars/index.html It sure would be nice to have a prep that didn't taste bad. SUE
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Metastasis to liver - treatment options
Hello - I am an 11 yr survivor of AC and was recently diagnosed with liver Mets through a biopsy - CT scan said several lesions in right lobe. Wondering if there are others who have been diagnosed with liver mets and what your treatment options were, or what treatment you had. Have posted on the AC and Liver sites as well.…
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Miserable Week and Not Happy at All
Okay, where do I start. First, I got a partial blockage on Sunday. This one really knocked me on my butt so I've been either in bed or on the couch for the past 6 days. The chills, abdominal pain, nausea, incredible weakness, severe dehydration, the whole gamut. So weak the first day I wet my pants 3 times because I…
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5 year lifeaversary
5 years ago today I was diagnosed with stage 3 colon cancer. I heard the words "you have cancer" for the first time. I have "survived" 5 years. My life has been changed forever by those 3 words. Unfortunately I heard "your cancer is back" a few months after completing the first 8 months of treatment. Then again just 6…
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Good Rectal Cancer Survivor Stories??
Hi all, I am doing really well..about 3 months post treatment. Getting back into exercise, eating well. Went away last weekend to a really neat lake in the north cascades here in washington to beat the heat. I read here often....and want to try to post more especially to new folks just starting treatment. You will get…
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Jeff Anderson
passed away this morning. His wife, Misun, thanks everyone for their support and concern. Jeff's battle was epic and inspirational. I'm picturing him now riding his beloved motorcycle. Rest In Peace Jeff. Easyflip/Richard
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Did folfuri chemo help to reduce rectal tumour - how know?
Hello all - Started folfuri chemo + avastin for CRC with mets to liver. Have a few questions for all on this site who have/had colorectal cancer. Was your tumour reduced in size by your chemo treatment? Would the chemo cocktail stop the tumour from blocking the intestine? How did you know if the chemo was working to reduce…
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Suggestions on the never ending bathroom topic
Hi all - Robert's wife Alyssha again. One of htese days maybe he will get on here and see how wonderful you are ;) After his trip to the hospital with the terrible stomach pain a few weeks ago he did start chemo. I think I updated that. The chemo causes major explosive diarhea but for him that is a bit of a relieff. He has…
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/panitumumab-vectibix
Hi! hope every bodies staying on top of this winning battle! I haven't been on in awhile writing but I do check in now and then to see how things are going and to know I'm always praying and thinking of all of you NOW I just started this new infusion called /panitumumab-vectibiX And so far developed a mean rash on my face!…
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So Much I Want to Do, So Little Energy
Just wondering if anyone else relates... I start out the day optimistically with a mental list of 5 things that I want to get done today. By 1pm I've done 2 things from my list and I'm physically done in. On the couch, tired out and pissed off because I'm 36 but feel like I'm 80. Chemo always knocks me on my butt for 4 or…
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All systems are Go
But I'd love a little more warning! Normal diet, healing rapidly. Tomorrow I start EPIC, 3 days of intraperitoneal chemo using FUDR, a form of 5FU. 2 liters pumped into me belly tomorrow, then one more liter each day on Tuesday and Wednesday. Scared of that because I had rare problems with it lasr time . I'm hoping…