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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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late effects with teeth
We have been told that children who undergo chemo often do not form adequate enamel on their teeth. This may be the case with my son, who is a survivor of 11 years. He is feeling quite self conscious of the yellow color of his teeth. I notice he tries to smile without showing his teeth. We feel concerned about using a…
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Mother of a Malignant Rhabdoid Tumour survivor....
Hello! My beautiful nearly two year old boy was diagnosed with MRT in 2010. He followed the European protocol for this type of tumour and he's now a healthy, bursting with life, wonderful six year old. I feel like the luckiest mother in the world. However, every now and then, I experience complete terror of what the…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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Help!! 14 year old son Nasopharyngeal Carcinoma
Help! My 14 year old son wa diagnosed 3/19 with Nasopharyngeal Carcinoma. He has had his first round of chemo ( Cisplatin and 5fu). His treatment plan consists of a total of 5 chemos and 7 weeks radiation. THere will be 3 rounds of chemo every 3 weeks. The last two rounds of chemo will be combined with the radiation. I…
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Looking for Parents of children that is fighting the battle with their child
My 14 yo son was diagnosed with Nasopharyngeal Carcinoma in March of this year. We have done chemo and radiation. Radiation has been over about 6 weeks and now.....it is time for the scans! Really, I just just need someone to chat with. I have tons of friends and relatives that try their best to help and comfort me. I know…
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12 Years old daughter with papillary thyroid cancer
Is there anyone out there who was diagnoised with papillary thyroid cancer at such a young age. My daughter had a total thyroidectomy January 2010, and is now dealing with getting her TSH level under control.
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Osteosarcoma
My18yr. old son was diagnosed with osteosarcoma in April, 2000. Looking for people that are willing to share experiences, information and support.
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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I need some advise
My little boy is turning 2 next month and about 7 months ago I noticed a lump on his neck... The lump has gotten a little bigger but not much... I have been taking him to the doctors and he keeps telling me he is fine that its just viral... I don't believe that's the case.. He had blood work done it came back normal he has…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Neuroblastoma survivors in their 20's and 30's
Hi everyone I am just curious to know if there are any survivors of Neuroblastoma here that have had chemo,radiation, surgery or combination of any 2-3. I currently don't know any other survivors of NB so I thought I'd do a survey. While every one is different and their dignosis and treatments are as well I have been…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Will a stomach bug, fever or cough ever again be just that?!
Hello all, I am new to this board and I hope there are some parents of kids who battled cancer that can relate. My daughter was diagnosed with Orbital Rhabdomyosarcoma last year in March and went thru 6 months of chemo and 25 sessions of radiation. In September of last year we got the hear the magical words of NED (no…
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Recipes
Martha stewart has a good looking Cleansing Broth and smoothies under Detox Soup and smoothies. They look pretty good. I am using my I phone so I can't post the link but search Cleansing Broth and Detoz Soup and SmoothieS.
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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My 16 year old has a gallbladder polyp and I need opinions
Hi, I'm Helen and I'm 44. I just spend two years of my life in treatment/surgery for colon cancer. After I got diagnosed, I found out that my father's family has colon. breast and kidney cancer history. I knew about the breast thankfully and get regular mammograms. My son happened to have a non cancer related kidney…
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Pentoxifylline + Vitamin E for radiation-induced Muscle Atrophy? Anyone?
Good day fellow survivors I'm a new member who accidentally found this site while searching for a solution regarding one of the late radiation side-effect that i have been experiencing. I was treated for NPCA on 2005 when i was 21 yrs old and there were no recurrence since then. Among some of the side-effects that i'm…
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Ganglioneuroblastoma...
Hello to all Just felt i had to tell our story! Around Easter 2008 my girl (7yrs) had a slight cough...(how many kids visit there doc with a cough?!) After some 4-5 weeks it had'nt cleared so i took her to our GP. A course of antibiotics did'nt help and GP, i beleive, on gut instinct, asked for an urgent x-ray... Thursday…
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Diagnosed with a new cancer
Well..I've recieved news very recently that I have cancer once again. It really did come as a huge surprise being that I have been in remission for 7 years, but then again I knew it could be a possibility being that I had cancer before. My first diagnosis was Soft tissue sarcoma under my right arm. Apparently it was a rare…
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Wilm's Tumor Survivor
hi im 22F and i had wilms turmor stage 3-4 when i was 3yrs old. i survived with out having cancer again. i want to know if there is anyone else who like me has a very large indentation where their kidney used to be. ive never seen anyone like me before and my docotors say they dont know if other survivors grow up to have a…
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Are there any other 20 plus year since siagnosis childhood cancer survivors out there?
I'll be 26 yrs past dx in February. I'd really like to find some other childhood survivors that are 20 years or more past diagnosis. If you are, please reply to me here or better yet e-mail me at my member page. God Bless, Christy aka btcat
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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6 YEAR OLD SON BATTLING NEUROBLASTOMA
MY SON IS 6 YEARS OLD AND BATTLING NEUROBLASTOMA CANCER I WANTED TO KNOW IF ANY BODY HAD ANY INFORMATION TO SHARE WITH ME OR SIMILAR SITUATIONS. HE HAD A TUMOR THAT CHEMO WASN'T SHRINKING SO THEY HAD TO DO A EMERGENCY REMOVAL OF THE TUMOR AND JUST WHEN WE THOUGHT HE WOULD BE STAGE ZERO THEY FOUND A SPOT ON THE RIGHT SIDE…
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Neuroblastoma survivor with ?'s
Hi, I am a 31 yr old female who had been diagnosed with Abdominal Neuroblastoma at the age of 5 months. I was treated in Boston, Ma in 1975-76. My parents didnt speak much about it or inform me with any details of the treatments I recieved. Unfortunetly I have lost both my parents to different types of cancer and now I am…
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Acute Lymphoblastic Leukemia (ALL) 3rd set of chemo, what if it doesn't work?
My sister got diagnosed with ALL about 8 weeks ago, she is 11 years old. She has gone through 2 different chemotherapy and have been unable to achieve remission. She got started on the 3rd set of Chemo this pass Thursday (01/24/2013), which are: * Cyclophos * Etoposide * Clufarabine I was told today that there is a big…
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Mucoepidermoid carcinoma
My 7yr old daughter was diagnosed with muco epidermoid carcinoma of the parotid gland. She had her parotid gland removed 1 yr ago. She had surgery to remove the mass and completed 33 radiation treatments. It was stage 2(intermediate.) I have heard alot of people say that she's at a higher risk for leukemia and other major…
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Education and Cancer
Hi, I'm completing a research paper on the importance of education for children with cancer and the vitatlity of outsiders to volunteer and help fight all types of cancer. My question was, do any of you have a strong opinion of a child with cancer completing and/or continuing their education? Thanks so much. Please reply…
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Looking for Others Radiated in Infancy
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…