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12 Years old daughter with papillary thyroid cancer
Is there anyone out there who was diagnoised with papillary thyroid cancer at such a young age. My daughter had a total thyroidectomy January 2010, and is now dealing with getting her TSH level under control.
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Osteosarcoma
My18yr. old son was diagnosed with osteosarcoma in April, 2000. Looking for people that are willing to share experiences, information and support.
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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I need some advise
My little boy is turning 2 next month and about 7 months ago I noticed a lump on his neck... The lump has gotten a little bigger but not much... I have been taking him to the doctors and he keeps telling me he is fine that its just viral... I don't believe that's the case.. He had blood work done it came back normal he has…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Neuroblastoma survivors in their 20's and 30's
Hi everyone I am just curious to know if there are any survivors of Neuroblastoma here that have had chemo,radiation, surgery or combination of any 2-3. I currently don't know any other survivors of NB so I thought I'd do a survey. While every one is different and their dignosis and treatments are as well I have been…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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Will a stomach bug, fever or cough ever again be just that?!
Hello all, I am new to this board and I hope there are some parents of kids who battled cancer that can relate. My daughter was diagnosed with Orbital Rhabdomyosarcoma last year in March and went thru 6 months of chemo and 25 sessions of radiation. In September of last year we got the hear the magical words of NED (no…
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Recipes
Martha stewart has a good looking Cleansing Broth and smoothies under Detox Soup and smoothies. They look pretty good. I am using my I phone so I can't post the link but search Cleansing Broth and Detoz Soup and SmoothieS.
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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My 16 year old has a gallbladder polyp and I need opinions
Hi, I'm Helen and I'm 44. I just spend two years of my life in treatment/surgery for colon cancer. After I got diagnosed, I found out that my father's family has colon. breast and kidney cancer history. I knew about the breast thankfully and get regular mammograms. My son happened to have a non cancer related kidney…
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Pentoxifylline + Vitamin E for radiation-induced Muscle Atrophy? Anyone?
Good day fellow survivors I'm a new member who accidentally found this site while searching for a solution regarding one of the late radiation side-effect that i have been experiencing. I was treated for NPCA on 2005 when i was 21 yrs old and there were no recurrence since then. Among some of the side-effects that i'm…
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Ganglioneuroblastoma...
Hello to all Just felt i had to tell our story! Around Easter 2008 my girl (7yrs) had a slight cough...(how many kids visit there doc with a cough?!) After some 4-5 weeks it had'nt cleared so i took her to our GP. A course of antibiotics did'nt help and GP, i beleive, on gut instinct, asked for an urgent x-ray... Thursday…
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Diagnosed with a new cancer
Well..I've recieved news very recently that I have cancer once again. It really did come as a huge surprise being that I have been in remission for 7 years, but then again I knew it could be a possibility being that I had cancer before. My first diagnosis was Soft tissue sarcoma under my right arm. Apparently it was a rare…
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Wilm's Tumor Survivor
hi im 22F and i had wilms turmor stage 3-4 when i was 3yrs old. i survived with out having cancer again. i want to know if there is anyone else who like me has a very large indentation where their kidney used to be. ive never seen anyone like me before and my docotors say they dont know if other survivors grow up to have a…
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Are there any other 20 plus year since siagnosis childhood cancer survivors out there?
I'll be 26 yrs past dx in February. I'd really like to find some other childhood survivors that are 20 years or more past diagnosis. If you are, please reply to me here or better yet e-mail me at my member page. God Bless, Christy aka btcat
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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6 YEAR OLD SON BATTLING NEUROBLASTOMA
MY SON IS 6 YEARS OLD AND BATTLING NEUROBLASTOMA CANCER I WANTED TO KNOW IF ANY BODY HAD ANY INFORMATION TO SHARE WITH ME OR SIMILAR SITUATIONS. HE HAD A TUMOR THAT CHEMO WASN'T SHRINKING SO THEY HAD TO DO A EMERGENCY REMOVAL OF THE TUMOR AND JUST WHEN WE THOUGHT HE WOULD BE STAGE ZERO THEY FOUND A SPOT ON THE RIGHT SIDE…
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Neuroblastoma survivor with ?'s
Hi, I am a 31 yr old female who had been diagnosed with Abdominal Neuroblastoma at the age of 5 months. I was treated in Boston, Ma in 1975-76. My parents didnt speak much about it or inform me with any details of the treatments I recieved. Unfortunetly I have lost both my parents to different types of cancer and now I am…
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Acute Lymphoblastic Leukemia (ALL) 3rd set of chemo, what if it doesn't work?
My sister got diagnosed with ALL about 8 weeks ago, she is 11 years old. She has gone through 2 different chemotherapy and have been unable to achieve remission. She got started on the 3rd set of Chemo this pass Thursday (01/24/2013), which are: * Cyclophos * Etoposide * Clufarabine I was told today that there is a big…
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Mucoepidermoid carcinoma
My 7yr old daughter was diagnosed with muco epidermoid carcinoma of the parotid gland. She had her parotid gland removed 1 yr ago. She had surgery to remove the mass and completed 33 radiation treatments. It was stage 2(intermediate.) I have heard alot of people say that she's at a higher risk for leukemia and other major…
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Education and Cancer
Hi, I'm completing a research paper on the importance of education for children with cancer and the vitatlity of outsiders to volunteer and help fight all types of cancer. My question was, do any of you have a strong opinion of a child with cancer completing and/or continuing their education? Thanks so much. Please reply…
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Looking for Others Radiated in Infancy
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
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Sadness of cancer
Here is what i dont get, why is it that everyone is so worried about breast cancer when actual cancer is just as bad. I mean think of all these little kids and babies that don't live but a couple of weeks if that, but no one seems to make something for them to show that you care. Here is something else to think about,…
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Anyone else having this problem?
On 8/7/09 my daughter, Courtney was dx with Pre-B ALL at age 13. As of 1/2010, she became weak and lost her ability to walk,she received vincristine that was stopped and continued with 6mp and MTX, she has been wheelchair bound since then. During her treatment we found out that she could not tolerate the full dose of her…
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Research treatment - did anyone else have this?
Did anyone else have research treatment? What was the protocol? Any known side effects? For me it was a combintion of chemo, I can't think of the drug names off hand. Plus a combination of radination to my head. Though test showed I had no cancer there. They had to follow the protocol. This was back in the early 80's. I…
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Lump in 3 yr thigh lumphnode
My 3 year old son has had a weekend ammune system for as long as I can remember, he's struggled with sever anemia and low red blood cell count. He recently has developed a large lump in the lymphnode in his thigh, along with worsening of other symptoms he's struggled with such as extreme tiredness, facial flushing,…
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neuroblastoma long term effect
hi Iam Kim a 35 year old female My story begins in a early stage of 2 years old, I had a very thick tummy but the childnurses where my mom went to said that i eat to much. but finally and lucky for me there was one day a doctor who's recognized my tummy. from 1 to another in a few hours the world turned upsidedown for my…
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Anyone in there 20s that has survived bone/child cancer
I am a nine year survivior and am dealing with survivors guilt. I am going through alot of mental stuff and was just wondering if there was anyone who has survived this form of cancer that is a young adult. If someone would respond to this I would greatly apperciate it.