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O.T. getting another opion on my BAD Arthiritis in hands Monday
I have had sugery on both hands, wear special clothes/ wrist supports etc..2nd dr handed me pain killers....said ntohing i can do..first dr i have gone to for year same thing... I have colitis so the pain killers not an option though he gave them to me New Dr monday / does infustions...we'll see
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Thanks for riding the bus with me !!!
Thanks for being with me at my oncologist visit yesterday. I felt all of your love and spirit with me. My doctor looked at the rash and feels that it must be an irritation or something other than a local recurrance. She would like me to see a dermotologist to further investigate. She did set my mind at ease by telling me…
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Unreal!
Well, went to have new port put in. And arrived on time, got registered, taken to pre op. Here comes the IV. NOT! After four attempts they decided to let intervention radiology put it in. So down we go. Pleasant nurse waiting for me. One smart lady, let's warm up the arm get the veins to "surface". After four or five…
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Herceptin Only - is working
Hello All: Just wanted to post this regarding my 81 yr old mother recently diagnosed with Stave IV Invasive Breast Cancer Her2 positive. She had her primary tumor in her right breast with one lymph node involved and two spots (one in each lung). They did not want to do surgery. They suggested chemo, but my mom decided only…
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Sleep.
All I have been doing is sleeping.,, improving my eating, at least today. :-)
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Today is Differentballgame's Birthday!
Happy Birthday! Best wishes for a great day - filled with lots of fun & surprises! much love, Jenny
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Endometrial thickness on Tamoxifen
I have a meeting with my oncologist in about 10 days and I have a question. I have been on Tamoxifen since Nov 2012 and I get endometrial ultrasounds every 6 months. I got one this December and the thickness is now 8mm. This is up from 7mm in June. It seems to be increasing a lot every time. Of course I will be asking lots…
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Pink Bus needed for Wednesday 1-14
I don't normally request the bus but I really need it this Wednesday for my onco appt.. For the past month I have been developing a rash under my breast where I had my lumpectomy and a rash in my armpit below where I had the node removal (all 28). It is slow growing and doen't hurt or itch but I am still very concerned…
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Today is VickiSam's Birthday!!
Happy Birthday!!! Hope you have a fantastic day and a healthy, happy year! Thank you for keeping all the Pink Sisters Birthdays - you are amazing! much love -Jenny
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Blood clots
has anyone else has issues with blood clots? I had them a couple weeks ago in the elbo of my arm. Got put on blood thinners and now had to go off the so I can have my port replaced. Now they are in my arm pit of the same arm. Yesterday I went to have a shot of a blood thinner. It worked, nopaw I am swelling again. Talked…
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Crabby day
I just want to go outside and scream! I hear daily that I am doing well. I am tired! TIRED. PEOPLE SAY DONT PUSH myself. I don't seem to be doing anything. People say they will come over and help me with taking down my christmas stuff, but something comes up. Hubby is afraid I will scratch myself on the fake trees I Have.…
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Side Effects of Chemo
Hi, I am 48 and was just diagnosed with breast cancer in Nov. My head is still swimming from meeting with all kinds of dr's and having tests last week. What seems to have me most scared is how sick will I be with the chemo? Will my hair ever come back, heck it's already thin now. I met with the plastic surgeon today and to…
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Staying healthy while on chemo
I am starting my chemo this week. Does anyone know if vitamins help at all to stay healthy. i know I should avoid being around sick people. But if my kids have colds or something what do I do besides handwashing and Lysol and not being right in their faces. Just wandering if anyone has some advice. mary
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Stage IIB grade 3 invasive ductal carcinoma with lympnode involvment
Hi my name is Mary. I havent been on this site since my moms battle with brain cancer ended in 2004. I am 39 years old and married with five children. I was recently diagnosed on Nov 14 with invasive stage IIB grade 3 ductal carcinoma breast cancer. I had a bilateral masectomy on Dec 4th. I will be starting chemo in a few…
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Chemo
First I want it thank everyone for being so open and helpful. I have a question about my chemo if anyone has a similar experience. I was to have my chemo start this week (today). The oncology office called and said they have to postpone it for a few more days due to insurance. They said insurance approved my chemo but dr.s…
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Grade and KI67 ratings
I'm curious....how much value do oncologists place on the grade and KI67 score when deciding treatmwnt? My grade was considered 3+ and my Ki67 was 38% and "unfavorable." I was told as soon as the stage is known (mine is 2A) that that is what doctors really rely on. What does the "unfavorable" mean on the Ki67 rating? I…
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The Long Haul
I see many posts from people who made a significant difference in my life when I went through my ordeal in 2010. Some of these women are now facing the beast again and this makes me so sad and sometimes fearful, but I'm well. I keep coming back here to check on all of you and to make connections and offer any support to…
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Joanne Doris Richmond (SIROD) is in a better place RIP
We have not heard from Doris for several weeks. As much as I refused to do it, I wanted to rule out my worst fears and did a google search. With heavy heart I have to share the obituary for Joanne Doris Dandurand Richmond who passed away on December 10. There is a beutiful picture and very kind words.…
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Results are in, trying to cope and carry on
Dear pink sisters, Thank you to all you has been supportive, took the bus and just follow my story through all these years. I had a phone discussion with my oncologist last night. So far we could not find a reasonable treatment to stop progression of my disease. Another treatment has failed and we need to move to a new…
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radiation on the spine?
Hi! I am wondering if anyone on here has had radiation on their spine to relieve pain caused by a bc mets lesion. I am getting ready to start soon and im nervous about it. All my doctors are not 100% sure its cancer and it hasnt grown in the last year and a half since it was found (along with other bc mets I had) but they…
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Good luck tomorrow Janice
2015-01-12. Good luck tomorrow.I will be Praying for you.hope everything goes well for you.
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Looking for advice on side effects of radiation
I usually post over on the anal cancer board but am looking for advice for my mom. She's 80 years old and was recently diagnosed with papillary breast cancer. Very early stage. She had a lumpectomy where they removed the mass. It was deemed non-invasive, encapsulated; they were able to get clear margins. The mass was in…
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Cancer treatment & Multiple Sclerosis
Cancer treatment & Multiple Sclerosis Hi, does anyone out there have Multiple Sclerosis and Breadt Cancer? I am facing a Mastsectomy, chemo,radiation and then pills. I am concerned about the treatment and an MS relapse. How will the MS respond with the toxins and poisons (chemo & radiation). If anyone has any advice on…
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Miss HeatherBelle -- Please check in with us
Hello our beautiful Sister in PINK -- Did you have a chance to contact your Oncologist? Flu shot taken? How are you feeling,? I will not pretend to know what you are going thru with this latest bout with the ugly beast, but please know that I am thinking, praying and sending out positive thoughts several times a day.…
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*Update on Eileen* 1/7/15
*posted by Eileen's sister - Patricia ... Eileen received her third dose of kadcyla-she says it's an easy chemo. She has had no nausea or vomiting, pain in good control, liver function tests improved. She sends love and good wishes to everyone. She is still weak but overall doing well.
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Positive Nodes - No Chemo
I seem to be in a gray area as far as Medical Community is concerned. Onco told me a year ago Chemo would not benefit me because my Oncotype score is a phenomial 2, even though I did have 2 positive nodes. (Stage 1, Grade 2, 1.6 cm tumor, had bilateral masectomy). She knew this as we discussed it and still recommeded no…
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We have made the decision to call in hospice
After talking with my oncologist and finding out that my mets on my liver and spine are still growing I talked with my kids and we made the decison to stop treatments and call in hospice. The chemo was doimg more harm than good. Due to the mets on my spine I am unable to walk without a walker and I have been told that it…
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How to manage radiation
I have round 5 this morning, already showing some side effects: not hungry, throat pain, exhausted, pain in area treated. I'm Starting side effects earlier than most, relate it to the spinal cord disease I have and spinal MS. What do others do to get through the side effects? I was sent home early from work yesterday…
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pink bus for my sister on 1/6
Hope it's okay to post here, since I have bc. Hers is rectal, and located right where her colon and rectum meet, requiring a bag. Her surgery is at 8 am, and will last about 4 or5 hours. Mine will be a bilateral mastectomy with Sentinel node dissection on January 15?
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HELP - No one truly understands
Hello Everyone. It's been quite a while since I was on the forum. I'm three years out since last treatment and so far, knock on wood, no recurrence. In the past, this forum has been my life-line to staying strong and sane. That said, I live with PTSD and depression and I am utterly haunted and terrified of a recurrence. I…