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DC/Maryland/Pennsylvania area -- check in here!
In response to Pat's (padee6339) and Linda's (linpsu) questions about organizing a possible CSN get-together in their area, here's the list of folks in Washington DC, Maryland, and Pennsylvania that I put together back in June. If I missed you, or if you're new and live in this area, please check in and let them know. You…
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8 months later still have fluid
Good Morning, I had bilaterals Jan 5,2010 and just had more fluid drained from the left side! My surgeon is also unhappy how the right side has developed a thick ridge of scar tissue below the incision site. Perhaps because of all the fluid that side had also. My left side but developing ridging also but with fluid still…
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GRADUATION DAY
Sitting quietly reviewing the last 6 weeks and boy have I learned a lot about myself and about people. I feel complete now and can get on with life but in a new amazing way. I feel more alive now, I notice every leaf and rain drop, every act of kindness, and now it is time to give back. Today I said goodbye to the women…
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Lanie, Lanie, where have you been?
Lanie, i saw a couple posts from you. Let me know how you are and where you have been. Havent talked to you for so long
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I Love This Inspirational Saying
Courage isn't always a loud roar. Sometimes courage is a quiet voice at the end of the day that says, "I will try again tomorrow!" Hugs, Renee
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Raw fingertips
My fingertips are peeling, dry and very raw. I keep using cream but it's not working. Anyone having this problem? I'm on Taxol and have 4 more weekly treatments. I'm glad that I don't have the tingling in my fingers that they speak of as a common side effect but this is really annoying. I know it could be worse but I wanna…
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Baby Troy
Natly, How is the little guy doing? Hoping that no new is great news?!
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How close are you to Philadelphia, PA?
I did some brief calculations and it looks like 9 of us are within 2 hours of Philadelphia. At least 3 more are within 3 hours. Is anyone interested in trying to get together in or near Philadelphia? There is another post "DC/Maryland/Pennsylvania Area" that you may want to read. Meena says the hoagies and steak sandwiches…
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not depressed....BUT
Today, I just fell like screaming to the rafters "Cancer Sucks"!!!!!!! There, it is said. As all of us, I read the good news and the sad news.....what we all probably thought was going to be just a bump in the road of life for us, has turned out to be a much longer and harder journey than we imagined. I was/have been lucky…
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How do I send a pm???
Need to send a pm and don't know how. Help please. Char
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NED...Almost
Hi everyone, almost dancing with NED...just wanted to share my new update news on my Mammo & MRI, well so far the test was good enough for Doc and pathologist not to worry about my left breast (the one I had the C tumor in) is a little swollen but of course they say its nothing to worry about. So how come I'm still worry?…
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Strange New Side Effect
Ladies, Has anyone else experienced a peculiar sensation running up your spine? It is not really pain, but more like a throbbing sensation that starts at the base of the spine and runs up to my neck. This is a brand new 'side effect'. I don't know if its from the chemo, the Neulasta or the pharmacy full of other meds to…
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Zometa treatments
Hi all. Been busy with work and having to get up at 5. I have just finished my 3rd Zometa monthly treatments and noticed I'm more achy this time. Are the effects increasing with each one? My first one I had no effects at all. Now I'm feeling more sore and stiff. Maybe cause I've gained a few pounds.
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depressed about side effects/want to hear from others
I know this is whining, but please indulge me my pity party for a few minutes: I was diagnosed with stage I bc in 2008, but because I am BRCA 1, I had a double (preventive on one side/for cancer on the other) mastectomy. I tried to do everything I could to prevent the cancer coming back, so I enrolled in a clinical trial…
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more pain 1 wk after lumpectomy
I woke up yesterday laying in my insision with my arm stretched up under my head. So I understood my increased soreness yesterday. Last night I slept on my back and woke up feeling better. But as the day has gone on it has become more painful. I didn't do more stuff so thats not to blame. Did anyone else experience…
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osteonecrosis of the jaw
I have not posted for a long time, mostly because I have been doing well...until now. I had stage I breast cancer in 2008, but I had the BRCA 1 gene so I wanted to do everything possible to prevent a recurrence. I had a double mastectomy (one preventive and the other breast was cancerous) and decided to be in a clinical…
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Hi, Everyone!
I just wanted to check in and say "Hi" to everyone again. I have been gone for a couple of months while I had rads. I chose to have it at a Cancer Center that was a little farther away so it took 2 hours a day to get there and get back (they were very efficient but the drive was about 40 minutes each way). Trying to keep…
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Have that burned tongue feeling?
I never had "mouth sores" so to speak. I did for 1-2 weeks after each chemo have a burned tip of tongue feeling, like if you drank something really hot. It impared my taste and was actually painful when eating. I had been using bioten mouthwash, toothpaste & "Magic Mouthwash" prescribed by onc. Nothing worked for the…
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Good Day!!
I had my follow up with my surgeon today (my bilateral mastectomy was on 8/27). They pulled my drainage tube in the right side. The left one will be there for a while since I had chemo before surgery and that is the side they did the lymph nodes. Anyway...right side benign. Left side there was no evidence of any invasive…
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How do you deal with Survivor Guilt
My mom is on her last days after being diagnosed with Breast Cancer just 8 months ago. I have lived / survived through three separate diagnosis of Breast Cancer. The most recent being in 2008. During my treatment days my mom never left my side. She cleaned me up (I couldn't make it to the bathroom often) and never…
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STOPPING TAMOXIFEN
hi everyone, i would like some advice or experiences. june was 5 years from my cancer surgery. yeah!! stage 1, lumpectomy, chemo and rads. the end of oct. will be 5 years from end of treatment. this month, sept., is 5 years that i've been taking tamoxifen. my tumor was 90% hormone positive and i was pre menopausal at the…
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Thanks to Greta & Mods
Thanks for acting so quickly to get rid of those damned robo-posts. It was so irritating & messed with the flow of the boards. Just want to let you know you are appreciated. Cindy
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Great book---but not cancer related
Hi all! Hope everyone is enjoying the long weekend. I just wanted to let you guys know about a new book I am reading, it is called "Girl with the Dragon Tatoo". You have probably heard about this book since it is very popular and i do not know how i missed it. It is a great book. I can't stop reading it, and it has given…
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Daughter Wants to Know if You Breast Fed Your Babies
I am the one with breast cancer. My daughter has breast fed all her babies (so far 4). She would like to know if you breast fed your babies. Theory is that if you breast feed, you are safe from breast cancer. I did not breast feed my babies. Look forward to your answer. Janelle
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JoJo and I met yesterday, 9/8 .. she is as lovely and wonderful as she sounds on our boards ..
I also had the opportunity to meet her boyfriend, Tony - who is as loving and caring as she describes. We spent 2 hours - gabbing and laughing! Yes, we did compare our new 'ta-ta's -- We decided ==== we are extremely happy with the size, form and fit of our girls. We both experience a drop in 1 breast - funny ---. JoJo is…
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1st Chemo Today, 9/9, at 10a EDT
Hi Ladies, As I'm sure you can imagine, my last week before starting chemo today has been crazy full of tests, MD appts, dentist appt, shopping/errands, and the like -- but I think I am as ready as I will every be. As you all have said, until I get thru this first one, I really won't know what to expect longer term. Right…
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I tried to delete my picture
and replace it with a different one of myself and 3 sisters and it keeps coming back to the old picture that I deleted. I sent CSN an email but I get so frustrated because I'm not computer literate )-: I could just scream! Char
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phyllodes tumor
Was diagnosed on 8/1/2010. Had simple mastectomy on 8/18/10. Am scheduled for consultation with radiologist on 9/23/10 to dicuss radiation treatment. Any words of wisdom from anyone?
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Questions For those in Fl
How many ladies of use Gulf Coast Oncology as a treatment center. I got a referal to them for treatment. Sorry ladies if my speller broken tonight.
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surgery scheduled - send those prayers my way, please!
mastectomy scheduled for september 15 - appt. with plastic surgeon tomorrow (although i know i can't have immediate reconstruction). pre-op tests on friday afternoon along with teaching class about the mastectomy. i will have my mom and sister with me for the next two days- first time since my cancer journey started that i…