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Today HAS to be better....
Whew! Up early here...I am hoping today is a "feel much better" kinda day! Took the upped dosage of the clinical trial chemo last Thursday...Started feeling bad on Sunday...Monday worse....yesterday it was the hit by a truck, truck backed up and ran over me again! So today HAS to be better! Also met with my previous…
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Starting taxol today.....
The trial is out for now. I start the weekly taxol today with herceptin. I am a little scared but I am so frustrated with my leg hurting. I can barely move around the house let alone go to the store or do anything fun. I went to a rads doc yesterday and I start that tomorrow. I just pray for some relief!! She said…
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Frustration and starfish
Hi everyone, we had so much bad news lately on this board and I can see how that may get a little frustrating at times. And some feel overwhelmed and feel they need to stay away. Here are two things that help me get things back into perspective. 1) The way I was welcomed and guided through my journey when I first stumbled…
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How to Live Fovever
I met a fairy today that would grant me one wish. "I want to live forever," I said. "Sorry" said the fairy, "I'm not allowed to grant wishes like that!" "Fine," I said, "Then I want to die after Congress gets their heads out of their ****!" "You crafty ****," said the fairy.
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Surgery, Radiation, and Frustration
Up until today everything was 80% fine. I am in remission and I have started plans of eventually paying off our bills. I may need some sort of financial counseling in my future to have a concrete plan of attack but medically all everyone seems to be doing is adding not subtracting. I started getting a handle on what things…
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Good Things Happen When You Travel On The Pink Bus~ Thank You, Kindreds!
Home at last~ I was a very good patient! The IV didn't want to drip very quickly, so it took a long time for the Nuclear meds to infuse~ but the person who did the actual PET scan was so nice to me! He wrapped me up in a warm blanket, and actually told me I was soooo cute! HA~ that made me laugh out loud~I was so relaxed…
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Arm BP vs. lower leg BP
I have been refusing any type of bp on either arm lately. I go to the pain clinic every week now, and have noticed that my bp is sky high. I know I have some anxiety about going there period, some anxiety about what kind of nurse I am going to have (I have had a different nurse every time which mentally, is very very…
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OT: Thank goodness I called the train company!!!!
called to check on our trip from Zwolle to Hamburg, just to confirm seats, etc.... And found out that I had checked a box when reserving that was only for dutch people with year passes on the train. Bottom line, we did not have tickets for the train for the dutch part of the trip. Silly American! I should know better!!!!…
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anybody have a temperpedic mattress?
I went away on vacation and slept significantly better, less hot flashes. came home, hot again and realized it could be my mattress. I just order a special cooling pad online. go figure stay tuned I'll let you know how it works out!
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OT: Travelogue for trip....
OK, so I took the silence wrong...sorry...just feeling weird these days.... So my big trip starts tomorrow! We leave by train early in the morning for Hamburg, Germany. It's going to be fun....highspeed train will get us there in 4 hours! Then, to the docks to board the ship. This is a new Celebrity line ship, maiden…
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Thank you to dbhadra
I wanted to thank you again for your fortune cookie story. I mentioned in your other post that I will be using turn your scars in stars as part of my visualization for my pain management for neuropathy after my bmx. I also told one of my occupational therapist who loves the idea and has incorporated it into my therapy!!I…
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Let's shift gear...
Fill in the blank: I am looking forward to " ................................................................" I'll start. I am looking forward to seeing my family in October after 17 years of being away. Cancer prevented me from going 2 years ago but I am going now. And best of all, they have no idea I am coming and sure…
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Good luck today Lighthouse_7/Wanda!
I read on a post where you have an oncologist appointment today and that you were nervous. So, I wanted you to know that I am hoping and praying that everything will be fine. Hugs, Lex
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Arimidex
Ok, I tried to search but there are too many to sort through and my connection is painfully slow. I started Arimidex last night. When do the side effects kick in? I am already having serious hot flashes from having my ovary out. I didn't expect any side effects to kick in for a few days but when I woke this am I was weak.…
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a setback in "personalized" cancer treatments
Here's an article from the New York Times... http://www.nytimes.com/2011/07/08/health/research/08genes.html
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Today is DisneyFan2008's Birthday!
HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR DENISE HAPPY BIRTHDAY TO YOU!! AND MANY MORE...!!! Wishing you Health, Happiness, & Love on your special day & always! ♥ Cat
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Army of Women
For anyone interested, yesterday Dr. Susan Love had a Webinar called Breast Cancer 101 and it had a lot of great information to share. It is available on Facebook or at ArmyofWomen.org If you haven't joined yet, please consider signing up to help find the "CAUSE"! ♥ Always, Cat
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OT Don't Worry
"It makes no sense to worry about things you have no control over because there's nothing you can do about them, and why worry about things you do control? The activity of worrying keeps you immobilized." Dr. Wayne Dyer
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Mammo Monday
(Didn't mean to rhyme!) This is the first mammo since my right mastectomy in December. That breast is clear per teh PET scan in Feb. but there's a "nodule" on the left that they want to watch. They don't think it's anything to worry about but want to keep an eye on it. Is the pink bus available? Could really use some moral…
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Had more blood work to rule out
blood clotting issues. Last Thursday a large bruise started to show on my mastectomy chest. I had not had any trauma since Memorial weekend when I fell. The bruising from that fall lasted a month but this new bruise just appeared after starting to take my aspirin again. I'm tired of having to worry about what could be…
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Are you on any vitamins besides taking a multi-vitamin?
I take a multi-vitamin and a calcium tablet. Do you take any other vitamin? Thanks, Jan
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First Mammogram after chemo
I finished chemo January 28.2011 and just had my 1st mammogram today.now most of you know or can read on my "about me page" that i had a mastectomy well when i went to the hospital to have my mammo you have to register like your going to have surgery anyhow the lady registering me calls upstairs and ask the "mammo tech"…
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My Chemo Drugs??
Good evening everyone. Today I had my first chemo consult,I was so confused halfway into it,he kept refering to things other patients had gone through or giving examples using cars and motors.He is a very highly recommended Oncologist,well respected in the medical field here. My surgeon had told me that I would need 4…
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7 years, but...
Hello! Last Saturday was my seven year "cancer-versary!" and I'm greatful and happy to be here - BUT I have also been sort of depressed ever since. I was feeling normal right up until the actual day, when I recieved tons of congratulations and well wishes from my friends (I'm still getting those! I love my friends!) but…
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Writing to Heal, Learn and Grow
I wanted to share something I posted on my personal blog today...I hope it will encourage others. Writing is something I've always done ever since I was really young. I believe I was six or seven years old. I remember writing little stories, poems, prayers, and my thoughts and feelings about things I was experiencing at…
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Well "the"call came in.....not good
Earlier I posted I was waiting for news from scans Friday. The nurse called and said the doctor wanted to see me this afternoon. I completely freaked out. I told her no they could tell me over the phone I had things to do and he needed to call me back. He did. Looks like my disease has advanced to liver and lungs. Holy…
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PTSD from breast cancer and really horrible medical unprofessionals?
I have mentioned here and there the awful, and I do mean awful time I have had with drs since my cancer diagnoses. Some were cancer were related, one was a neurologist. When my oophrectomy was cancelled the afternoon before surgery, I went bullistic. The surgical technician had gotten paperwork I was supposed to sign 31…
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Thank you all for thoughts and prayers, now venting on insurance problems.
Thank you all so much for your thoughts and prayers after my surgery last week. I am feeling very good, and am really trying hard to keep off my bike for a week or so at least. I do have a little swelling and tenderness in my right arm pit, but other than that I feel pretty normal. On to worse things - it sucks having to…
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AnoThEr hair/health update...
Hi, can't believe I haven't been on here since February. I guess no one needs my advice or experience expertise...anyhow, as for my hair...It's just growing. I had my last chemo May 2010, so it's been over a year. I got a perm this past April. My hair was fine before and now it is more fine with a better texture. I get a…
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Wish me luck
Wish me luck please. Tomorrow morning is another mammo. Cynthia (CC) I can't be on the bus for you but you'll be in my thoughts. Hope everything goes better than you could anticipate. marge