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stupid stupid pain
I have been talking about my severe PMPS/neuropathy I have had since I woke up from my BMX with SNB and AND in jan 2011. Finally, I have been seeing the pain clinic and I have been doing wonderful up until last friday. the doc likes me to have light occupational therapy on days i have my shots. well, i forgot to remind the…
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femara & weight gain
I am almost done with my first year on femara (one down, four to go), after having switched from tamoxifen. Recently, within the last few months, I have noticed I am putting on weight, although this morning's doctor appointment only shows a 5 pain gain from 6 months ago. I feel tight in my clothes, swollen, and at least 20…
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Crappy Nurse, way out of bounds, do i tattle?
I had a BMX w/SNB and have had severe PMPS/neuropathy since I woke up from surgery. I have been going to a pain clinic lately and have been utterly impressed with the staff ( I have had so many incompetent, unprofessional drs, surg techs, nurses it is unbelieveable). This morning, I went to register like usual, and they…
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New flower you left me no choice (:
I have asked about you several times in my private messages to you but for some reason or the other never got an answer out of you. Maybe the sisters can help me to persuade you to answer my question. So HOW are you doing? (; Love, Ayse
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Starting xeloda with radiation - any experiences?
Hi all: Meet with my Doctor on Tuesday and due to lymph node involvement shown in path report he's decided to do xeloda with the rads. Anyone have experience with this drug, side effects, etc? Thanks! Laura
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Totally OT SNAFU slows in
"SNAFU slows in" That's me. Well - it's an anagram of my name. www.wordplays.com/fcgi-bin/anagrams.pl This was posted at one ot the horse forums I go to and it give you 100 anagrams for your name or any anything you type in. Some are quite interesting LOL! Well for Rague I only got 3 and for Benelli (my other mare) I got…
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Back to my normal life yaaaaaay!!!
After reading Sunrae comment about the ladies that just vanished after hard time and we dont know if they healed, I decided to inform with happiness that I am almost fully recovered after bilateral mastectomy 6 weeks ago, plus shingles 1 month ago. I am working now, and little by little I am returning to my usual…
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I found a pink dump truck
to accompany the big pink bus. I posted a picture on my expressions page (yes, me! posted a picture! Hope I can do it again!) I want to hear suggestions for the use of this truck! Sue
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Met SueRelays
Yesterday I was able to have lunch with Sue. It was great! It seems we only live about maybe 5 miles apart. We got to chat a little about our bc and other things as well. It was a short lunch but I am looking forward to doing it again. It was reallly nice to actually meet another pink sister. Hugs, Georgia
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Back from vacation-8wks post hysterectomy
So happy my dr okay'd I could go back to regular activities the day before our camping trip> I biked, went canoeing, kayaking, hiked up white face, biking, swimming, waterskiing etc. GOOD timing if I had to have surgery...I HAD NO service for almost 2 wks so lots of catching up on this board
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done
well friday will be last day of radiation whewhavent posted in a while just been tired run down and on top of it all I think tamoxifen is giving me UTI but doctors say no and cramping they say it doesnt do that but its only since tamox that im having this problem again any way hope all u ladies r doing well wish u all the…
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Breast Cancer and Heart Disease
My goal is never to scare anyone, but I think this article is important because there are many proactive things that we can do to prevent heart disease. It may be worth it for many of us to take this article to our oncologists and begin to ask for cardiology referrals. Unfortunately, there are not many cardiologists aware…
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Nipple reconstruction Q's?
What type of nipple reconstruction have you had/heard about or discussed with your PS? Are you ok with the results? Did you have complications? How long did it take and was it an outpatient procedure? What style did your PS go with and were fillers used? Who did your tattoo? Was it a lot darker at first? Just sort of…
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Did you know that with certain nuclear dyes your pee turns bright blue?????
Hi all...back home from mastecomy on the left side. Whatever they game me in nuclear medicne (which, btw hurt like HELL).....turned my pee electic blue for three days. Interesting color to excude from the body! And...they found about 10 more things I'm allergic to, including the packaged bath wash stuff (I turned bright…
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MY TURN NOW, How are you doing?
I don't know where you are at with your tests, and, if you have had them, what are your results? Think about you so often and pray for you daily. Hugs, Lex
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The Pink Bus Is On The Move For My Turn Now On Friday, Can You Make It?
Debbie has already had a PET scan and a MRI. But, tomorrow morning she is going to be undergoing a CT guided biopsy of her liver. Can you all make it? I know she would appreciate it, as, this is her 3rd time with bc. :( I know we are loading up for cavediver, so, let's make one more stop to support Debbie! I know I can…
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Update on New Drugs
Just wanted to let everyone know that I have made it through the 2nd treatment of the new drugs. It has really slow me down I spike a fever after the first treatment and it just washed me out real bad the 2nd treatment was not as bad. I am off this week and go back on Aug 2 for the 3rd treatment which I think I will get…
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How to buy a decent wig? Online or in a shop? Anyone know shops in the San Francisco Bay?
Hi everyone! I did not think I wanted a wig. But now when I am about to go back to work, I changed my mind. I went to wig shops close to where I live. There, the wigs did not look too great. The most expensive wig they had was around $100. My insurance pays up to $350. Im willing to add my own money to that. But Im not…
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My meeting with my oncologist...
He could not have been sweeter. He said that he thought getting a second opinion at MD Anderson was a "very reasonable thing to do" and he said that he would be happy to work with them. He said, We work well with others." And he reassured me not to worry about it at all. He also ordered another PET and full body bone scan…
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Still gathering info after 6 weeks
Dx with invasive lobular breast cancer 6 weeks ago. Bilat. mastectomy scheduled for 7/27/11. The tumor per MRI done 2 days ago shows dramatic increase in size. I am scheduled for TRAM flap reconstruction, but after getting the horrible news about size change I am thinking I should probably forgo that and concentrate…
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Rodeo -- Tough Enough To Wear Pink
Tuesday night with 10 family members and friends, went to the Days of 47 Rodeo here in Utah. It was tough enough to wear pink night, where all proceeds for the day went to the Huntsman Foundation for Advanced Breast Cancer Research here. Was a really fun night with about 80% of everyone in the stands and the contestants…
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A little history on the pink bus for a newbie :)
Hey Ladies First of all, I think you are all INCREDIBLE!!! Thank you for being such a refreshing site~~~ Just curious who started this great little idea of the Pink Bus? What a wonderful idea one of you had :) !!
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Had first Mammo ...maybe not good news
Had my first Mammo last Wed, since all this began two years ago. They found a suspicious area, a shadow. They asked a lot of questions about what type of cancer I had. I sat in my car and cried. Now they want to do a needle biospy. They, the radiologist, said they would send an order to my oncologist. I probably should…
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Chemo Gone Horribly Wrong
My 68 yr old mother was an extremely healthy woman who was diagnosed with triple negative stage one breast cancer back in March. Her lumpectomy surgery in May was successful however given the rarity of her cancer, she elected for chemotherapy. Now, after one round of chemo treatment, she is fighting for her life. Seven…
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signing off for awhile....
ITs been almost 2 years since i was diagnosed with cancer and by the grace of God and you ladies on here i got thru it. Within the past year ive also dealt with my grandpa passing away and also my best friend Stacy (who was my sister/cusion...i was raised by my aunt making her my sister) and a friend of mine was murdered…
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ARTICLE: Most Breast Tumors Have Unique Genetic 'Fingerprint,' Study Finds
I just wanted to share this article with you that I found on Yahoo news. http://news.yahoo.com/most-breast-tumors-unique-genetic-fingerprint-study-finds-20110402-090404-467.html
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Hey Pink Sisters * It Is HOT here * What's Your Weather Like?
From the news, it looks like it is HOT in a lot of states. So, what is your weather like? ♠♣ Love, Susie ♠♣
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Reconstruction Nightmare
Okay, here is my story, my current dilemma. I started my breast reconstruction on July 7th. I had my expander surgery. The surgery is considered outpatient and was done in my doc’s surgical suite, in his office, his office is in a med building three steps from the admissions desk at one of our local hospitals. I went in…
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First Fill
Boy, I am full of questions today! I had my expander put in two weeks ago (see Reconstruction Nightmare for details!) I am scheduled to have my 1st fill tomorrow. What can I expect. I am still very sensitive and sore from the surgery. Thanks!
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DCIS/Double Mastectomy/Chest Wall Ultra Sound
In 2001, I was diagnosed with DCIS in one breast and decided to have a double mastectomy as a precaution to getting breast cancer again. I had expanders and then implants. Now ten years later, I found a small node under my left arm which was removed two days later and found to be malignant. They also removed 15 other lymph…