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Another 'Bus' trip -- Monday, 7/25/11 -- for Laurrisa and Vicki Sam
Our bus is gassed and ready for another trip in support of Miss Laurissa -- awaiting results from her liver scan. Myself, annual trip to Oncologist for blood work and check up -- scan is scheduled for late September. We try to be strong, keep ourselves occupy during the days and nights leading up to our visits -- but,…
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Started to watch the Big C recently.
My neice has a small part that will be aired in October. My neice is a senior in high school. I am surprised by how much foul language and nudity is in it. Well acted and I understand now how someone who is stage 4 will try anything. I'm cheering for the clinical trial to help her. I'm also glad it deals with how the…
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Has anyone heard from Meena or Bjmom1?
It seems so long since either of them have posted. I didn't know if anyone had gotten an email or anything from them. Lex
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Chills after Herceptin
My Mom started Herceptin yesterday. Previous to this, she was getting Cytoxan/Taxotere--4 cycles with no side effects. After the Herceptin, she experienced chills and went to bed early that evening. Just wondering if this is to be expected with each treatment, especially since she did so well with the TC combo. She is 72…
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How do I get off my pity pot?
The last couple of weeks have been tough, not feeling well, lots on my plate, blah, blah, blah. didn't get into the clinical trial I was hoping for, new scans showed progression of disease. I spent yesterday puking and now today feel a little more like myself but no clue if I will go through what I went through yesterday…
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CC aka Cypress Cynthia
I was thinking of you, how are you? Love, Ayse
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OT -THE HEAT SPELL
My husband came home from work today and told me a worker died last evening from the heat.He passed out. He was taken to the hospital where he later died.Today they had ice water for the workers.My husband took his and poured it all over him.It was 115 at 7:00 this morning. Then I called a lady I know.She just got home…
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Stepping off the pot and going out tonight :)
Thanks for all the support on the previous post. Each summer a small group of parents who have children with Down syndrome going swimming on Monday nights. I have not made it one night this summer, either sick or getting a transfusion or it was canceled. My hubby took our son once. They call me every Monday and ask if I…
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Liver catscan results on Monday
Thank you all for your good thoughts and prayers! I have an appointment on Monday, so I wont know whats going on til then. Doctor is out of town this week and nurse is tight lipped. Hate that, don't you? Liver area feels bloated and tender and my digestion is out of sorts for sure, not much appetite right now. Hoping it's…
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Pain in my side - possible lymphedema?
Hi everyone, I am tender in my side on the side of my body where I had a lumpectomy. My surgeon could not see anything bad, but referred me to a physical therapist for an evaluation and to learn "lymphedema massage". What do you girls think? Did anyone have their lymphedema start this way? I only had a sentinal node biopsy…
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stupid stupid pain
I have been talking about my severe PMPS/neuropathy I have had since I woke up from my BMX with SNB and AND in jan 2011. Finally, I have been seeing the pain clinic and I have been doing wonderful up until last friday. the doc likes me to have light occupational therapy on days i have my shots. well, i forgot to remind the…
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femara & weight gain
I am almost done with my first year on femara (one down, four to go), after having switched from tamoxifen. Recently, within the last few months, I have noticed I am putting on weight, although this morning's doctor appointment only shows a 5 pain gain from 6 months ago. I feel tight in my clothes, swollen, and at least 20…
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Crappy Nurse, way out of bounds, do i tattle?
I had a BMX w/SNB and have had severe PMPS/neuropathy since I woke up from surgery. I have been going to a pain clinic lately and have been utterly impressed with the staff ( I have had so many incompetent, unprofessional drs, surg techs, nurses it is unbelieveable). This morning, I went to register like usual, and they…
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New flower you left me no choice (:
I have asked about you several times in my private messages to you but for some reason or the other never got an answer out of you. Maybe the sisters can help me to persuade you to answer my question. So HOW are you doing? (; Love, Ayse
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Starting xeloda with radiation - any experiences?
Hi all: Meet with my Doctor on Tuesday and due to lymph node involvement shown in path report he's decided to do xeloda with the rads. Anyone have experience with this drug, side effects, etc? Thanks! Laura
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Totally OT SNAFU slows in
"SNAFU slows in" That's me. Well - it's an anagram of my name. www.wordplays.com/fcgi-bin/anagrams.pl This was posted at one ot the horse forums I go to and it give you 100 anagrams for your name or any anything you type in. Some are quite interesting LOL! Well for Rague I only got 3 and for Benelli (my other mare) I got…
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Back to my normal life yaaaaaay!!!
After reading Sunrae comment about the ladies that just vanished after hard time and we dont know if they healed, I decided to inform with happiness that I am almost fully recovered after bilateral mastectomy 6 weeks ago, plus shingles 1 month ago. I am working now, and little by little I am returning to my usual…
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I found a pink dump truck
to accompany the big pink bus. I posted a picture on my expressions page (yes, me! posted a picture! Hope I can do it again!) I want to hear suggestions for the use of this truck! Sue
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Met SueRelays
Yesterday I was able to have lunch with Sue. It was great! It seems we only live about maybe 5 miles apart. We got to chat a little about our bc and other things as well. It was a short lunch but I am looking forward to doing it again. It was reallly nice to actually meet another pink sister. Hugs, Georgia
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Back from vacation-8wks post hysterectomy
So happy my dr okay'd I could go back to regular activities the day before our camping trip> I biked, went canoeing, kayaking, hiked up white face, biking, swimming, waterskiing etc. GOOD timing if I had to have surgery...I HAD NO service for almost 2 wks so lots of catching up on this board
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done
well friday will be last day of radiation whewhavent posted in a while just been tired run down and on top of it all I think tamoxifen is giving me UTI but doctors say no and cramping they say it doesnt do that but its only since tamox that im having this problem again any way hope all u ladies r doing well wish u all the…
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Breast Cancer and Heart Disease
My goal is never to scare anyone, but I think this article is important because there are many proactive things that we can do to prevent heart disease. It may be worth it for many of us to take this article to our oncologists and begin to ask for cardiology referrals. Unfortunately, there are not many cardiologists aware…
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Nipple reconstruction Q's?
What type of nipple reconstruction have you had/heard about or discussed with your PS? Are you ok with the results? Did you have complications? How long did it take and was it an outpatient procedure? What style did your PS go with and were fillers used? Who did your tattoo? Was it a lot darker at first? Just sort of…
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Did you know that with certain nuclear dyes your pee turns bright blue?????
Hi all...back home from mastecomy on the left side. Whatever they game me in nuclear medicne (which, btw hurt like HELL).....turned my pee electic blue for three days. Interesting color to excude from the body! And...they found about 10 more things I'm allergic to, including the packaged bath wash stuff (I turned bright…
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MY TURN NOW, How are you doing?
I don't know where you are at with your tests, and, if you have had them, what are your results? Think about you so often and pray for you daily. Hugs, Lex
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The Pink Bus Is On The Move For My Turn Now On Friday, Can You Make It?
Debbie has already had a PET scan and a MRI. But, tomorrow morning she is going to be undergoing a CT guided biopsy of her liver. Can you all make it? I know she would appreciate it, as, this is her 3rd time with bc. :( I know we are loading up for cavediver, so, let's make one more stop to support Debbie! I know I can…
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Update on New Drugs
Just wanted to let everyone know that I have made it through the 2nd treatment of the new drugs. It has really slow me down I spike a fever after the first treatment and it just washed me out real bad the 2nd treatment was not as bad. I am off this week and go back on Aug 2 for the 3rd treatment which I think I will get…
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How to buy a decent wig? Online or in a shop? Anyone know shops in the San Francisco Bay?
Hi everyone! I did not think I wanted a wig. But now when I am about to go back to work, I changed my mind. I went to wig shops close to where I live. There, the wigs did not look too great. The most expensive wig they had was around $100. My insurance pays up to $350. Im willing to add my own money to that. But Im not…
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My meeting with my oncologist...
He could not have been sweeter. He said that he thought getting a second opinion at MD Anderson was a "very reasonable thing to do" and he said that he would be happy to work with them. He said, We work well with others." And he reassured me not to worry about it at all. He also ordered another PET and full body bone scan…
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Still gathering info after 6 weeks
Dx with invasive lobular breast cancer 6 weeks ago. Bilat. mastectomy scheduled for 7/27/11. The tumor per MRI done 2 days ago shows dramatic increase in size. I am scheduled for TRAM flap reconstruction, but after getting the horrible news about size change I am thinking I should probably forgo that and concentrate…