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Just feel like sharing...
After waiting the 6 months post radiation and a cross country move just to mess things up a bit, I am FINALLY scheduled for my reconstruction on 9/2...1 year and 1 week after my mastectomy (and 18 months after all of this nonsense started)!!!!! Dana
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It's finally setting in....
Friday is my first chemo treatment. Even though I've been through this before, I am now starting to realize how different life will be for the next several months. Kind of had put it in the back of my mind with family visiting and trying to get in all the FUN I can before chemo starts. I'm always upbeat and positive, and…
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lumpectomy done, waiting . . . . .
I had my lumpectomy yesterday and wanted to say I feel surprisingly better than I thought I would, even though everyone told me it wouldn't be that bad - I guess next time I will listen. They removed the lump, the sentinal node and another lymph node, the doc told my husband that the nodes did not appear to have cancer in…
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Oh Shucks! I spoke too soon
I've been on Arimidex for a year now. Up until last week--I had a few aches and pains and a few hot flashes but nothing I couldn't handle and it really didn't affect my life a whole lot. I thought, okay, I sure can handle this. For the last few days I've had joint pain--not just one or two joints--more like EVERY joint.…
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OT - Latisse
Anyone ever try it? I want better eyelashes, but not at the cost of eye problems. And I like the color of my eyes, green, and wondered if the side effect is common. Also, I'd want the generic @ half the cost. Thanks, Sue
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Fosamax anyone?
My oncologist recently started me on Fosamax although he did say I could wait until I got home from vacation. So I took the first dose on Thursday morning - that routine is a pain by the way. I read all the instructions on how to take the stuff but not the possible side effects 'cause I figured if my brain didn't know my…
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When to have mammo after BC diagnosis
I was diagnosed right before Thanksgiving 2010, had a mastectomy in Dec and 4 rounds of chemo. My doc says I will have my 1st mammogram this Dec 2011, a year post last mammo, MRI, Mastectomy, chemo. I thought I would be on a six month schedule.
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OT _This site yesterday
Did anybody else have trouble getting on here yesterday? I tried several times throughout the day and never managed to get on.
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Almost Half Way Through...Update
Hi there. First, and update on how RAD is going. I had my 12th out of 28 scheduled RAD treatments yesterday. I'm fatigued and my skin is red, itchy, sore and uncomfortable. The skin and muscles feel tight and my lymphedema had definitely gotten worse. I'm doing everything I can to alleviate all the side effects. Next, my…
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Mama did not warn me about days like these.....
If she did I would have stayed in the womb!!! WOW, so not a great start to treatment. First, my port wouldn't work. Had to go to the hospital yesterday for a dye check only to find out I had to have a new one put in. Saturday after chemo on Friday, i actually felt normal......then BAM it hit me hard on Sunday. I never even…
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SHINGLES!!! after 5 weeks of mastectomy Oh nooooooo!!
Well everything looked sooooo good to be true after my surgery. And it was until the shingles came.... OMG!! they are horrible, I thought it was mosquito bite then it blistered all over left part of my trunk, very painful. Doctor says it's the way my body is reacting to the stress after all ca, surgery and medication.....…
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<<<<<<<<So Mad and upset>>>>>>>>>>
I was suppose to finish my last toxol on the 18 ..Well i haven't been feeling well at all no energy tired all the time. Well turned out they needed to give me 2 units of blood thats why I was not feeling good. I thought that I was just getting lazy or something i knew something was wrong.If i wouldn't have comnplained they…
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Dancing with NED
Good morning ladies and gentlemen, Mammo was done this morning at 7am. Not only am I dancing with NED (and a little dizzy, might have been too early for "brownies") but I can now go back to annual mammos on both sides. Yay!!!! Thank you all for your support, prayers and kind words. Now let's get Cynthia thru her pet scan.…
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4 hours to go..........and my life changes forever.
It's 3:30 in the morning and I have to be at the hospital at 8:00 am to start the process for my mastectomy. Nuclear medicine first, then on to the OR. I have no clue what my stage is, what comes after this. I'm feeling very alone. Something a friend sent me recently says "Grieve, cry, and move on. The only person who is…
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Wish I had better news :(
Well, my PET scan revealed why I'm in so much pain and my tumor markers are on the rise :( The Xeloda that I've been taking for 6 months has not been working. My cancer has spread from two areas of my spine into three more areas, back into my lymph nodes, including my supraclavicular node, and into my hip :( The news was…
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Update: Graduated to Annual Mammograms!!!
I met up with my oncologist on Tues., July 19, and was told I will have annual mammograms, no MRI's, and will be seen semi-annually! I was so relieved. He did highly recommend I continue exercising. That is a given as I am committed to keeping my Temple( Mind, Body, Soul) Strong! Take care, God bless to all.
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All is well....:)
Just returned from Oncologist visit. All is well, (smiling) I can go every 6 months now instead of every 3, also makes me smile. Thanks for asking Ayse so I figured I'd post it. Too funny though and you sisters might get a kick out of this one. I say to him, " Gee doc, I can't believe that I gained more weight", hoping for…
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Jusy one more (YAHOOOOO)
Just one more taxol then on to radiation wow it has been a long road seems like i would never see the light.............
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Pink Bus request for Friday, 7-22
I really need you all on the bus with me this Friday......another PET Scan ....... last one was in February......but I am more anxious about this full body one. Its not a long drive......but I need you all!
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Laurissa, how did the PET scan go?
Laurissa, just wondering how your PET scan went and when will you have your results? And, how did your husband's back surgery go? I pray well and the he is resting and recovering now. Please update us when you can. Hugs, Lex
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Today HAS to be better....
Whew! Up early here...I am hoping today is a "feel much better" kinda day! Took the upped dosage of the clinical trial chemo last Thursday...Started feeling bad on Sunday...Monday worse....yesterday it was the hit by a truck, truck backed up and ran over me again! So today HAS to be better! Also met with my previous…
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Starting taxol today.....
The trial is out for now. I start the weekly taxol today with herceptin. I am a little scared but I am so frustrated with my leg hurting. I can barely move around the house let alone go to the store or do anything fun. I went to a rads doc yesterday and I start that tomorrow. I just pray for some relief!! She said…
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Frustration and starfish
Hi everyone, we had so much bad news lately on this board and I can see how that may get a little frustrating at times. And some feel overwhelmed and feel they need to stay away. Here are two things that help me get things back into perspective. 1) The way I was welcomed and guided through my journey when I first stumbled…
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How to Live Fovever
I met a fairy today that would grant me one wish. "I want to live forever," I said. "Sorry" said the fairy, "I'm not allowed to grant wishes like that!" "Fine," I said, "Then I want to die after Congress gets their heads out of their ****!" "You crafty ****," said the fairy.
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Surgery, Radiation, and Frustration
Up until today everything was 80% fine. I am in remission and I have started plans of eventually paying off our bills. I may need some sort of financial counseling in my future to have a concrete plan of attack but medically all everyone seems to be doing is adding not subtracting. I started getting a handle on what things…
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Good Things Happen When You Travel On The Pink Bus~ Thank You, Kindreds!
Home at last~ I was a very good patient! The IV didn't want to drip very quickly, so it took a long time for the Nuclear meds to infuse~ but the person who did the actual PET scan was so nice to me! He wrapped me up in a warm blanket, and actually told me I was soooo cute! HA~ that made me laugh out loud~I was so relaxed…
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Arm BP vs. lower leg BP
I have been refusing any type of bp on either arm lately. I go to the pain clinic every week now, and have noticed that my bp is sky high. I know I have some anxiety about going there period, some anxiety about what kind of nurse I am going to have (I have had a different nurse every time which mentally, is very very…
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OT: Thank goodness I called the train company!!!!
called to check on our trip from Zwolle to Hamburg, just to confirm seats, etc.... And found out that I had checked a box when reserving that was only for dutch people with year passes on the train. Bottom line, we did not have tickets for the train for the dutch part of the trip. Silly American! I should know better!!!!…
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anybody have a temperpedic mattress?
I went away on vacation and slept significantly better, less hot flashes. came home, hot again and realized it could be my mattress. I just order a special cooling pad online. go figure stay tuned I'll let you know how it works out!
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OT: Travelogue for trip....
OK, so I took the silence wrong...sorry...just feeling weird these days.... So my big trip starts tomorrow! We leave by train early in the morning for Hamburg, Germany. It's going to be fun....highspeed train will get us there in 4 hours! Then, to the docks to board the ship. This is a new Celebrity line ship, maiden…