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Please read a very powerful story from 20+ stage IV survivor
Good morning Ladies, As many of you know CSN has a Long-term survivors board. Recently a very interesting thread was created generating amazing stories by stage III and IV survivors. Ladymonk told us a very powerful and inspirational story. Please read: http://csn.cancer.org/node/221910 New Flower
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Update on Brava Machine fat transfer
Hello everyone!!! I had my second "fill" on July 15th and it went well except for an allergic reaction to my pain pills. I found out I can't take Oxycodone so this next time they are going to give me demerol sp? Went to see my PS and he said to go ahead and schedule the next surgery, so it is Sept. 16th. This last "fill"…
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You Can Get Back to Normal After B/C!
Hello to all my wonderful and courageous sisters. It's been awhile since I've posted even tho I've stayed in contact with some of you and lurked here ever so often and kept tabs on what's happening here. Some of you know my history, Invasive Breast Cancer, (3 tumors)Stage 3, masectomy, 17 lymph nodes removed, chemo every…
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My oncologist visit
OK, oncologist said that the foot thing WAS noted on my report in February. Somehow they missed it. The radiologist then called it osteoarthritis, but my oncologist was a little concerned about it. Regardless, he feels the "serological evidence" (meaning because my markers are going up)is reason enough to change my meds.…
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Gas up the bus, girls!
All aboard! Oh wait, that's what a train guy says.....lol. Anyway....Having a CTscan at 7:00 am tomorrow....this is after my second upped dosage of the clinical trial, oral chemo....which kicked my butt big time! This will show if it's working.....I have to believe it is...both visually and by being able to feel the two…
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OT Iguana Story
OK, I give. Here is the poop. When Katherine was very little, she somehow talked me into buying this little itty bitty iguana. He was about 4-5 inches long. We named him Fluffy and bought the iguana book at the same time we got him. Big mistake, HUGE! Iguanas are not easy to care for. They are prone to metabolic bone…
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The Pink Sisters Will Be Praying For You On Monday Laurissa!
Laurissa, I know you go tomorrow for your PET scan results. I will be praying for good results for you. Hugs, Lex
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test frustration
OK, I'm almost 1 year since my lumpectomies (8/19/10) and I just went in for my 6 mth mammo/bloodwork. So I've gotten called back (for the left one this time) for another mammo and ultra sound. I know that in my 15 or so years of mammos, I always got a call back and it was nothing until last year when I was diagnosed with…
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wrong foot...
When looking for a photo to post of my iguana, believe it or not, I came across a photo of my injured foot and, unfortunately, it is not the same foot that is lighting up on bone scan now. I will talk with my oncologist about it tomorrow. If I do have a new lesion in the foot, it may explain the markers going up. Don't…
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OT: My "old" college roommate
The photo is of my college roommate (from 1972) and me from last night. She was my maid of honor in my wedding and I was one of her bridesmaids in her wedding. It was so much fun to visit. She is another adopted sister and it is always like old times when we get together.
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Having trouble giving up independence--Follow up with Onco
2 months ago I started on a new chemo that is really kicking my butt. I have it 2 weeks on and then 1 week off, then 2 weeks on and the cycle continues. By Thursday night or Friday morning the effects kick in headache, neuropothy, bone pain, weakness in my legs,and my step is not steady. By Friday, I am pretty much in bed…
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Swollen lymph nodes
I have many swollen lymph nodes around my neck, under my chin and behind my neck. Is this a bad sign of mets developing. I may have liver mets and will find out Monday about my petscan. I don't have a cold. Any one else had this hapeen? I still have alot of indigestion and wake up nauseous in the morning. I still have an…
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Any info on Tamoxifen would be much appreciated
So, I bit the bullet the prescription is in. I am really not looking forward to taking this medication for FIVE YEARS. But then reality catches up with me and says "Eey STUBID (yes it has a brooklyn accent), at least you get ay fighding chance!" I am reaching out to you for any advice on this medication. Hot flashes and…
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My Partner -- High Morning Fever and other symptoms
Hi, all! I decided to start a new thread, because of all that's going on this morning. My partner, who almost never has a fever, woke up today with a temp of 101. In addition, she's got a rash all across her chest and burning in the lower part of her body. I've gotten her to drink a protein smoothie this morning, and…
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can doctors tell by mammos
Do some of you think doctors can tell by mammograms and ultra sound if a lump is suspcious. Years ago it was just feeling the lumps.Then in 2 days the lump comes out.Not today there is a wait time.More tests. I wonder those with the larger lumps get in before those with smaller lumps?? I sm just curious if some had to wait…
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Update: My Rad Simulation is scheduled for this Thursday - what to expect?
Hello my ladies, I am scheduled to have my rad simulation this Thursday and besides the "show" ( in front of people behind a glass), I was wondering what to expect. I had a specific question - the scans they do on you, do those allow them to see what's inside? Also, do they give you thyroid belt for radiation protection?…
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For those on the fence about tamoxifen and ER+....please read
The latest article in The Lancet legitimizes what I have been preaching about tamoxifen being the main reason why I have survived so long. My prognosis was poor back in 1987 without tamoxifen. Tamoxifen was the new kid on the block that ended up saving my life. Now, 24 years later, I am hear to coax you ladies to just do…
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Can You All Please Light A Candle In Memory Of Our Meena?
I had been watching and posting on the thread asking for Meena to post an update for us. It saddened me to log on now and read the post from her daughter about her passing. Please join me in lighting a candle in memory of our dear pink sister Meena. It doesn't matter what time or day, just that we are honoring her brave…
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Ponderisms
PONDERISMS 1. Ever wonder about those people who spend $2.00 a piece on those little bottles of Evian water? Try spelling Evian backwards: NAIVE *~*~*~*~*~*~*~*~*~*~* 2. Isn't making a smoking section in a restaurant like making a peeing section in a swimming pool? *~*~*~*~*~*~*~*~*~*~* 3. OK..... So if the Jacksonville…
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Still dancing the night away, with NED .... Yahoo
F i n a l l y received the call from Oncologist .. blood work could not be located at Lab for 2 days ... ate my way thru 2 bags of 'Lay's' potato chips -- due to my anxiety and waiting. " Markers are great ...everything looks good! " words to dance by ... No need for mammo -- as I am a bilateral ' Princess ', express my…
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juggled 5 appts yesterday
I had blood appt , oncologist, dentist etc...I called for mammo appt and was just short of one year for my insurance to cover it. So I had to back up onocloist to fit in mammo , which meant change my dentist appt (only opening onoclogist could change to) then move blood work so no longer then week away from oncologist…
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Saw my Onc today. Still dancin'
All is well just my 6 month check up. I asked her what my percentage of reoccurance was. Something I had not asked for before but was curious and wanted to know now. 7% to 10%. I will take that. They use some kind of formula that takes in to consideration the stage, size and grade of the the tumor, if there was lymph node…
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ok Traci....Tjhay update
Ok Traci here is the update on me. I had a double masdectomy with reconstruction in Nov, I spent 4 days in icu cause they gave me to many fluids, spent a total of 8 day in hospital, then had another surgery for reconstruction in Dec. Was deported in April, and cause I missed surgery so much had hernia surgery in july. The…
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Favorite Disney Movie
Silly question? Maybe, but I spend a good part of the day watching something disney....... Right now it is Mulan, great movie. Cindy
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Back to work tomorrow!
I am glad to be going back to work. I love my job, the people I work with are awesome and my boss is actually about 5 miles away! (mostly kidding on the last part) I did my CEU's, CPR class, TB test. All I need to do is compliance stuff and get my passwords reset! I will be starting part time till my energy level is up but…
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Stef - Fauxma, how is your husband doing?
Stef, just wondering how Den is doing with the physical therapy. Is he doing lots better I hope? And, how are you, ok? Hugs, Lex
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Second surgery
Hello Everyone! I'm back from a wonderful vacation in Norway! Thank God we were not there during the awful attacks and neither were our family and friends. After three weeks of R&R, I'm back home and getting mentally ready for my second surgery. Since no one knew my lump would be cancerous, the removal at the time was…
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My summer break is over
I drive a school bus and if things are bad, I don't know how I can be able to. Orientation is Tuesday, route pick is the following Monday and school starts the 16th. I'm so worried how I'll do it, I'm so sick in the mornings with my liver ailment, whatever it is. I'm assuming the worst. I'm sure they'll work with me like…
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Eight Years Ago, as of Today...
... I was informed of my diagnosis. In the year 2003. When I hit the 5 year mark - began to refer to myself as a "longER term" survivor. I won't qualify for "long term" until I reach 10 years. During the earliest days of my journey - NOTHING provided me with more HOPE than to meet and speak with women who were YEARS out…
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Chemo number 5 :( Abraxane or Gem/Carboplatin
Hello to all the wonderful "Kindred Spirits" on here and I must say I'm super sorry for worrying you guys :( Thank you New Flower for letting people know that I'm ok, it's hard to get on here sometimes and then when I could get on, something else would come up. I just finished 10 rounds of radiation to the 2 largest tumors…