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OT: My "old" college roommate
The photo is of my college roommate (from 1972) and me from last night. She was my maid of honor in my wedding and I was one of her bridesmaids in her wedding. It was so much fun to visit. She is another adopted sister and it is always like old times when we get together.
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Having trouble giving up independence--Follow up with Onco
2 months ago I started on a new chemo that is really kicking my butt. I have it 2 weeks on and then 1 week off, then 2 weeks on and the cycle continues. By Thursday night or Friday morning the effects kick in headache, neuropothy, bone pain, weakness in my legs,and my step is not steady. By Friday, I am pretty much in bed…
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Swollen lymph nodes
I have many swollen lymph nodes around my neck, under my chin and behind my neck. Is this a bad sign of mets developing. I may have liver mets and will find out Monday about my petscan. I don't have a cold. Any one else had this hapeen? I still have alot of indigestion and wake up nauseous in the morning. I still have an…
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Any info on Tamoxifen would be much appreciated
So, I bit the bullet the prescription is in. I am really not looking forward to taking this medication for FIVE YEARS. But then reality catches up with me and says "Eey STUBID (yes it has a brooklyn accent), at least you get ay fighding chance!" I am reaching out to you for any advice on this medication. Hot flashes and…
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My Partner -- High Morning Fever and other symptoms
Hi, all! I decided to start a new thread, because of all that's going on this morning. My partner, who almost never has a fever, woke up today with a temp of 101. In addition, she's got a rash all across her chest and burning in the lower part of her body. I've gotten her to drink a protein smoothie this morning, and…
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can doctors tell by mammos
Do some of you think doctors can tell by mammograms and ultra sound if a lump is suspcious. Years ago it was just feeling the lumps.Then in 2 days the lump comes out.Not today there is a wait time.More tests. I wonder those with the larger lumps get in before those with smaller lumps?? I sm just curious if some had to wait…
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Update: My Rad Simulation is scheduled for this Thursday - what to expect?
Hello my ladies, I am scheduled to have my rad simulation this Thursday and besides the "show" ( in front of people behind a glass), I was wondering what to expect. I had a specific question - the scans they do on you, do those allow them to see what's inside? Also, do they give you thyroid belt for radiation protection?…
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For those on the fence about tamoxifen and ER+....please read
The latest article in The Lancet legitimizes what I have been preaching about tamoxifen being the main reason why I have survived so long. My prognosis was poor back in 1987 without tamoxifen. Tamoxifen was the new kid on the block that ended up saving my life. Now, 24 years later, I am hear to coax you ladies to just do…
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Can You All Please Light A Candle In Memory Of Our Meena?
I had been watching and posting on the thread asking for Meena to post an update for us. It saddened me to log on now and read the post from her daughter about her passing. Please join me in lighting a candle in memory of our dear pink sister Meena. It doesn't matter what time or day, just that we are honoring her brave…
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Ponderisms
PONDERISMS 1. Ever wonder about those people who spend $2.00 a piece on those little bottles of Evian water? Try spelling Evian backwards: NAIVE *~*~*~*~*~*~*~*~*~*~* 2. Isn't making a smoking section in a restaurant like making a peeing section in a swimming pool? *~*~*~*~*~*~*~*~*~*~* 3. OK..... So if the Jacksonville…
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Still dancing the night away, with NED .... Yahoo
F i n a l l y received the call from Oncologist .. blood work could not be located at Lab for 2 days ... ate my way thru 2 bags of 'Lay's' potato chips -- due to my anxiety and waiting. " Markers are great ...everything looks good! " words to dance by ... No need for mammo -- as I am a bilateral ' Princess ', express my…
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juggled 5 appts yesterday
I had blood appt , oncologist, dentist etc...I called for mammo appt and was just short of one year for my insurance to cover it. So I had to back up onocloist to fit in mammo , which meant change my dentist appt (only opening onoclogist could change to) then move blood work so no longer then week away from oncologist…
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Saw my Onc today. Still dancin'
All is well just my 6 month check up. I asked her what my percentage of reoccurance was. Something I had not asked for before but was curious and wanted to know now. 7% to 10%. I will take that. They use some kind of formula that takes in to consideration the stage, size and grade of the the tumor, if there was lymph node…
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ok Traci....Tjhay update
Ok Traci here is the update on me. I had a double masdectomy with reconstruction in Nov, I spent 4 days in icu cause they gave me to many fluids, spent a total of 8 day in hospital, then had another surgery for reconstruction in Dec. Was deported in April, and cause I missed surgery so much had hernia surgery in july. The…
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Favorite Disney Movie
Silly question? Maybe, but I spend a good part of the day watching something disney....... Right now it is Mulan, great movie. Cindy
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Back to work tomorrow!
I am glad to be going back to work. I love my job, the people I work with are awesome and my boss is actually about 5 miles away! (mostly kidding on the last part) I did my CEU's, CPR class, TB test. All I need to do is compliance stuff and get my passwords reset! I will be starting part time till my energy level is up but…
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Stef - Fauxma, how is your husband doing?
Stef, just wondering how Den is doing with the physical therapy. Is he doing lots better I hope? And, how are you, ok? Hugs, Lex
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Second surgery
Hello Everyone! I'm back from a wonderful vacation in Norway! Thank God we were not there during the awful attacks and neither were our family and friends. After three weeks of R&R, I'm back home and getting mentally ready for my second surgery. Since no one knew my lump would be cancerous, the removal at the time was…
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My summer break is over
I drive a school bus and if things are bad, I don't know how I can be able to. Orientation is Tuesday, route pick is the following Monday and school starts the 16th. I'm so worried how I'll do it, I'm so sick in the mornings with my liver ailment, whatever it is. I'm assuming the worst. I'm sure they'll work with me like…
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Eight Years Ago, as of Today...
... I was informed of my diagnosis. In the year 2003. When I hit the 5 year mark - began to refer to myself as a "longER term" survivor. I won't qualify for "long term" until I reach 10 years. During the earliest days of my journey - NOTHING provided me with more HOPE than to meet and speak with women who were YEARS out…
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Chemo number 5 :( Abraxane or Gem/Carboplatin
Hello to all the wonderful "Kindred Spirits" on here and I must say I'm super sorry for worrying you guys :( Thank you New Flower for letting people know that I'm ok, it's hard to get on here sometimes and then when I could get on, something else would come up. I just finished 10 rounds of radiation to the 2 largest tumors…
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A Poem For Meena
Garden In Heaven There Was A Special Garden In Heaven Waiting For Someone As Wonderful As You So, The Master Took Your Hand And Gave You Eternal Life, Brand New The Angels, We Can Hear Them Singing Small Children Are Telling Jesus The News There Is A New Rose In Heaven Picked By God, That Precious Rose Is You It’s Hard For…
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Make room for one more on the dance floor.
I had my Petscan today, and got good news. I am ready with my dancing shoes on. Remission. so lets play my song ( If your going through Hell) i made it to the other side. I need to thank you all, when i was in having the Petscan, i was praying and praying and at one point i thought oh God this isnt going to go well and i…
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All Aboard The Pink Bus For Laurissa On Thursday 7-28-11 For Her Pet Scan
Laurissa, we've got the pink bus gassed up for you tomorrow for your PET scan. Wishing you good luck and praying for you. Post to let us know how it goes. Hugs, Megan
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My ned is getting tired of dancing
Catscan shows 20 lesions on my liver. I went to ER Friday night with alot of pain and vomited bile. I love their drugs. I was pain free in 10 minutes. The ER doc pulled up my catscan results and told me about the lesions. I go for a petscan Thursday, doctor on Monday then a biopsy probably next week. What a kick in the…
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Gotta ask!
There are so many cat lovers on this board. How about a What's your cat's name round??? Mine's LUCCI :) !
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Some happy news....
I kind of hate to post in the middle of the MB's sad news, but, hopefully, my news will bring relief to some others as well. My bone and pet scans show no change at all--this is great news! In fact, the one rib that is still hypermetabolic (used to be 4 ribs that were) is less hypermetabolic than it was in February. The…
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Abraxane and Avastin
Dear All My wife has Stage IV secondary breast cancer ( http://www.clairefaulkner.co.uk ) We have come all the way over from England as the NHS ( National Health Service ) back there have basically told her that there is nothing else they can do, to the Burzynski clinic here in Houston, Texas. The doctors have put together…
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"Our Lost WARRIORS", What I know .....
Our hearts are sad, our lives a little empty -- losing a beloved Sister here on our boards is devastating, and makes no sense in my world. I try to concentrate on this milestones achieved by so many Kindred Spirits here, and memorialize those that have departed our earth, far too soon. I think of these Sisters daily. What…
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Today is KathiM's birthday!
HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR KATHI HAPPY BIRTHDAY TO YOU!! AND MANY MORE...!!! Wishing you Health, Happiness, & Love on your special day & always! ♥ Cat