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BCG treatment Immunotherpy Best Practices Before/During/ After

Stevewin
Stevewin CSN Member Posts: 1
in Bladder Cancer #1

Check with anyone who has had BCG Immmunotherpy treatments. What are the best practices befoe/during/after treatment and foods/supplements to avoid, pain ?

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  • Camilleri
    Camilleri CSN Member Posts: 1
    edited December 2017 #2
    BCG treatment

    Dear Sevewin and ohers.  I am recently diagnosed with bladder cancer that includes both non-invasive and invasive tumors (2).  I am 80 and concerned about BCG treatment and negative effects.  Also, does anyone have any information on survival?

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  • dadspet
    dadspet CSN Member Posts: 7 Member
    edited April 2021 #3
    Camilleri said:

    BCG treatment

    Dear Sevewin and ohers.  I am recently diagnosed with bladder cancer that includes both non-invasive and invasive tumors (2).  I am 80 and concerned about BCG treatment and negative effects.  Also, does anyone have any information on survival?

    BCG about 5 yrs ago

    I had bladder cancer 2014-16 with BCG infusions  durning this period. The BCG infusions were successful and I'm currently bladder cancer free. My urologist does CYSTO every 6 months to look inside my bladder to verify I'm cancer free and I think I'm ready to graduate to 1 every year. The BCG infusions are not  bad and I would say the toughest part is keeping the BCG infusion in your bladder and turning from side to side to move it around. Its not a painful proceedure. But getting use to the idea of someone infusing you takes some getting use to. I would say to myself > there are a lot worst things they could be doing to me and I think that thought process helped. I'm 80 this month, not sure I can say there are negative effects  > Good luck    

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  • rosatt8
    rosatt8 CSN Member Posts: 5 Member
    edited May 2021 #4
    BCG

    I had bladder cancer and had BCG infusions.

    I was told 70% of us get fixed by BCG infusions.

    I am due for CYSTO on 9th June 2021.

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