Bag vs. Neo Bladder

neeni
neeni Member Posts: 4
edited March 2014 in Bladder Cancer #1
When originally diagnosed with stage four bladder cancer, we were told the journey ahead would be long and hard. The left kidney was already enlarged due to a tumor encasing the ureter. This resulted in urine retention in the kidney and we were told that a nephrostomy tube would have to be placed in my husband's back connecting to a bag secured with a belt at his waist to relieve the urine collecting in the kidney. His commitment to beating cancer allowed him the will and positive attitudee to accept this as a means to the end of recovery.

Since we have successfully gone thru four months of chemo therapy. Now we have to face the Bag vs. Neo Bladder decision. My husband is a strong and active 69 year old. He wants to return to snow skiing, bowling, gardening and swimming with his five grandchildren. He has handled the nephrostomy tube with a totally healthy attitude. He has been told that he can safely return to all of his previous activities with the "bag". We have read several comments on the Neo Bladder and the recovery and are wondering why so many people are so adamant anti "bag".

Please share why the "neo bladder" with its potentially compromising results and longer recovery should be considered. We really do want to know. Thank you, Neeni

Comments

  • u4art
    u4art Member Posts: 52
    #2
    there are NO reasons why the
    there are NO reasons why the neo bladder should be considered

    there are no restrictions to having a bag .... I have had one for 21years
  • u4art
    u4art Member Posts: 52
    #3
    there are NO reasons why the
    there are NO reasons why the neo bladder should be considered

    there are no restrictions to having a bag .... I have had one for 21years
  • neeni
    neeni Member Posts: 4
    #4
    u4art said:

    there are NO reasons why the
    there are NO reasons why the neo bladder should be considered

    there are no restrictions to having a bag .... I have had one for 21years

    Bag vs. Neo Bladder
    Thank you for your response. We are happy all has going so well for you. That sort of news is very encouraging. Your comment helps emmensely.
  • cakes
    cakes Member Posts: 3
    #5
    neo bladder

    what are reasons for not getting neobladder, anyone?

     

  • cakes
    cakes Member Posts: 3
    #6
    u4art said:

    there are NO reasons why the
    there are NO reasons why the neo bladder should be considered

    there are no restrictions to having a bag .... I have had one for 21years

    I know this is old post, but

    I know this is old post, but husband has to decide. Coul you elaborate why so adimate, no neo bladder?

     

  • Apaugh
    Apaugh Member Posts: 850 Member
    #7
    cakes said:

    I know this is old post, but

    I know this is old post, but husband has to decide. Coul you elaborate why so adimate, no neo bladder?

     

    Cakes

    Not much activity on here.  Go to Smart Patients.  they really helped me figure stuff out.  I am on there too.

    Hugs and prayers for great outcomes,

    Annie

  • Apaugh
    Apaugh Member Posts: 850 Member
    #8
    cakes said:

    I know this is old post, but

    I know this is old post, but husband has to decide. Coul you elaborate why so adimate, no neo bladder?

     

    Cakes

    Not much activity on here.  Go to Smart Patients.  they really helped me figure stuff out.  I am on there too.

    Hugs and prayers for great outcomes,

    Annie

  • bbrookshire
    bbrookshire Member Posts: 1
    edited May 2019 #9
    u4art said:

    there are NO reasons why the
    there are NO reasons why the neo bladder should be considered

    there are no restrictions to having a bag .... I have had one for 21years

    neo vs bag

    My surgery is in a week. I am not convinced about the neo. It seems the recovery time with a bag is minimal comparatively. All the changes in your body with neo do not appeal to me. Discuss? Blessings, bbrookshire

  • GingerMay
    GingerMay Member Posts: 134
    #10
    bbrookshire said:

    neo vs bag

    My surgery is in a week. I am not convinced about the neo. It seems the recovery time with a bag is minimal comparatively. All the changes in your body with neo do not appeal to me. Discuss? Blessings, bbrookshire

    More discussion

    BBrookshire - I hope you find what is needed to be comfortable with this decision. It is not to be taken lightly.  I wanted to just suggest to go to Smartpatients.com and browse "neobladder" and see what you come up with there.  I like this site, but this particular section is not very active and I just wanted to make sure you got the input from others that you are seeking.  I got a few people to respond to me within the same day on that site.  Here, might be a while.  Blessings to you too.      

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