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its that time again.....
By that I mean my scans. I have a CT tomorrow morning. The last couple years it has always worked out that I have one in mid December as Christmas approaches. Its funny how things go, I'm so busy with school finals and holiday prep that I have barely thought about it. Another plus is, I need to pre medicate for a couple…
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Blood clots
I am 9 months out of treatment for anal cancer and am wondering why I am having blood clots after all these months when I should be healing? Anyone else experiensing this?
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Seeking info about Clinical trial for metastasis (mets) called Rigosertib
Hey, I just started this clinical trial I was dx with mets to the lungs about a year ago. Primary was Tonsil I was wondering if anyone here knows anyone who has taken this drug in previous clinical trials the drug / chemo is called Rigosertib. Rigosertib works by blocking cell division in cancer cells and causing them to…
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CT scan
I had my ct scan yesterday and dr. stated NED! Thank you Lord. However, because I have had bleeding during bm a few times in the last 3 weeks he wants me to see a colo-rectal surgeon. He said I should have been seeing cr doc. all along and this is just a precautionary measure. I told him I had colonoscopy in August but he…
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CT Scan for Lung Cancer results - found after anal cancer
Hello, I told Martha I would post my ct scan results after having my yearly ct scan for lung cancer. I originally had anal cancer and completed tx on 6-30-09, well upon scanning for follow up, a lung nodule not related to the anal cancer was found in my lower right lung. Well it was determined that it had to come out. I…
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finished treatment, now lung nodule
I was treated last June for stage 2 anal cancer. It was hell but I got through it and was looking forward to putting it all behind me, so to speak. I went for a routine CT scan a couple weeks ago and it showed a 9.4mm lung nodule which was not there on my last CT scan in July. This week I'll be having a PET to determine if…
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Feeling strangely down..
I am sitting in my hotel room at MD ANDERSON. I have been checked out from stem to stern. The problems I'm having are NOT cancer. They are side effects from chemo/radiation. The mucus, blood and cramping proctitis. I saw the test while it was being done and pictures afterwards. Lots of damage. My teeth are getting cavities…
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Katie Couric's Show 12/4/2013
I saw the preview today for Katie Couric's show tomorrow. She is discussing the HPV vaccine and interviewing a woman who claims her daughter died as a result of receiving the vaccine. I am recording it and thought I would pass this info on to everyone if they are interested in watching the program.
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Still every three months....
Just finished with 2 year check up at MDA and was looking forward to moving on to every 6 months ck up instead of 3 months ck up. It was not to be though. There are some wierdisms on my liver and lung. Most likely nothing but going back in Feb for an MRI. that's as much "talking" as I feel like doing tonight, so will share…
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rectal prolapse, sphincter damage
Hi hope if anyone out there has had a list of radation damage that includes any or all of the following 1 damage tissue to the anus 2 damage to sphincter 3 prolaps of th rectum (ive had 2 surgeries less than a year apart thru the abdomin to pull it up ) 4 pelvicfloor damage 5 extream incontinence (it comes on at any time 7…
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Happy Thanksgiving Everyone!
Mixed feelings this year. Could live without this illness, but once I have it I'm thankful that there are people, medicine and technology that hopefully can help us. I started folfox last Monday so I feel pretty crapy, mainly with this really bad taste in my mouth that nothing seems to take away and with all this yummie…
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New Member
Hi all. I have been reading posts for a few months but finally decided to actually join the discussions. I was diagnosed with stage 3b back a few months ago. I had chemotherapy-5 FU and Mitomycin and 30 IMRT radiation treatments. I had my first PET scan a couple of months ago and everything was all clear! I was/am so happy…
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Encouragement to Stage IIIB'rs
Just thought I would share that my recent CAT Scan and anal exam came out clear..... It's been 1 year and four months since I was declared NED after those brutal treatments. (In addition to the anal area, the cancer had spread to the vagina, rectum, sigmoid colon, along wtih the lymph nodes "lighting up" on the…
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really worried
I have recently been having a little bit of (fresh) blood when I wipe and I originally thought hemmy. Well, it has gotten worse and now there is pain. I had a fissure last year that didn't hurt too much....mostly itched. This is pain. When I have a BM, I feel like it's pure glass. It's the same normal diamater, consistancy…
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3 year post severe radiation damage pelvic organ prolapse= help!
It's been 3 years post ..severe radiation damage. No vag. after treatment but now I am experiencing pelvic organ prolapse. Didn't know your organs could fall out of your body if you have no vagina ! NO doctors will touch me. where do I go to correct this latest problem? Help!
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Opinion Needed - Breast Cyst Follow Up
This isn't anal cancer related, but I have alot of respect for the intelligence of so many people on this board and need some advice. I recently had a breast cyst drained and went for the follow-up visit with the surgeon today. It was biopsied and is not cancer but he wants me to have an ultrasound in three months and of…
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So Thankful
I am so gratful for all of your experiences, input and sharing! May God bless all of you! Have a Happy Thanksgiving! Tracey
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My blog post from Thanksgiving 3 years ago
I thought those of you who are just now facing your battle with anal cancer might find some hope in reading my blog post from Thanksgiving 2010 when I was just beginning treatment and full of fear . . .and hope. Blessings to all! Special **** Diaries: http://assdiaries.blogspot.com/2010/11/ive-been-thinking-lot-about.html
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Three years ago Thanksgiving week . . .
I started treatment 300 miles away from home for stage IIIB anal cancer. Overall, I have thoroughly enjoyed a cancer free life since my treatment ended January 12, 2011. Tomorrow, I will go for a 6 month scan. It is now beginning to feel like it happened in another lifetime. I can honestly say that I am at the best place I…
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Today
It is officially 3 years today since my diagnosis for this cancer. I am so grateful to the doctors who treated me and for everyone that helped me through treatments. I found this site after my treatments were over, but when I needed support the most. I am still battling another cancer, but I am very optimistic that I am…
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study obstructions
http://www.nytimes.com/2013/11/23/health/gynecologists-run-afoul-of-panel-when-patient-is-male.html?nl=todaysheadlines&emc=edit_th_20131123
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Follow up Care
What is the current protocol for follow up care after 3 years? My surgeon wants to continue seeing me every 6 months until 5 years. My oncologist says I am done... no more PET scans. I am wondering, should I push for yearly PET scans until at least 5 years are out? What is recommended? I feel better having a yearly checkup…
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anyone have second round of chem for residual mass?
Went through 6 weeks of treatment - radiation and chemo - second PET scan revealed there is still a mass an it is still active although it is much smaller and much less active. Medical oncologist is recommending second round of chemo - mitamycin booster + higher dose of Xeloda. Trying to avoid surgery. Has anyone else gone…
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Radiation burns
I am posting for my Mom in hopes to get some advice and relief for her. She just finished her last radiation treatment on Tuesday and was admitted to the hospital on Wednesday due to burns and extreme pain during urination. The burns are on her whole underside from front to back. We finally got her to be able to urinate…
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the girl who cried cancer
i had anal cancer 7 yrs ago surgery radiation chemo found out 10/05 all over 2/06 41 yrs old the long term effect due to the radation rectal prolaps due to the sphincter muscle damage ive had 2 prolaps surgerys first in 2009 didnt last second in 2010 rectum not out but the fecal incontinece still very bad pelvic floor…
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3 Years NED
Good news! Pet scan clear! 3 years NED!! I am sooo happy I can't even put it into words. The worry, the concern... a big milestone. 3 years. When I went to the PET scan it all came back up, as it always does. 3 years ago, right before Thanksgiving, i got the bad news. Now, I am having another meaningful Thanksgiving. Life…
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Obamacare and cancer....keeping your doctors
This oped in the Washington Post about the impact of ObamaCare on cancer patients. For those of you who don't think this applies to you, because you are covered by your employer......wait until the law applies to you next year. The Obama administration delayed applicability of the law to employer based insurance until next…
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Anal Cancer Conference-San Francisco
Below is a link to an upcoming anal cancer conference to be held in San Franciso, California I thought I would shae. I got this info off another cancer forum. http://www.sfgate.com/health/article/Anal-cancer-study-offers-hope-of-treatment-4994535.php#page-1 Mike
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Skin care
I have my surgery scheduled and have been told there will be a bit of a scar and of course the area where the colostomy bag is going to go. Is there any special creams that anyone has used to keep the area soft and to minimize scarring? I'm still learning to navigate this site, so if you've written to me or answered some…
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Gearing up for round 1
Gearing up for round 1. Sitting here not being able to go to sleep wish it because I was going to Disneyland on Monday instead of round 1. Port goes in Monday morning and then on to chemo/radiation. Wish I could wake up from this nightmare but guess that would require being asleep first :) . Wanted to thank you all for…