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Anal Cancer

meeting at sloan kettering...any info???
i was hoping to hear about some hints as to how to handle side effects after chemo and radiation for anal cancer----those of you who went , please tell me what they said about those issues....i am 4 years post and still have bleeding and pain .....the pain is better but the bleeding is still there....also my thinking and…
Home, sweet home!
The trip went well, my wife made a nest for me in the hatchback and I was very comfortable. When we got home it shocked me how colorful our home is after the pale colors of the hospital. We have to rearrange a few things, because I can't sit for awhile and have to roll in and out of the bed. My sister in law made me…
Leaving hospital today.
I have been here a week and as it has been planned they are letting me go home. My brother is coming to get our stuff since my wife has been here with me the whole time we have some laguagge. She will drive us home that will take about two hours. Have to make stops cuz I can't sit yet, so ill be laying down on the back…
Oct. 9 Forum
Would love to see some kind of summary of the Forum discussion of long-term side effects and quality-of-life concerns after treatment. Was this a valuable and informative event? What side effects were discussed, and were there any valuable suggestions made for ways to deal with them?
when choosing
Patient-to-patient volunteer arrangements are commonplace after treatments conclude. Maybe patient-to-patient pairings ought to be offered when helping people make informed decisions regarding their treatments before they begin, pairing people who have had the treatments with those about to embark upon it. Contrary to how…
Update from Laz.
Dear Friends, I'm back amongst the living again. Or shall we say amongst the awakened. Yesterday the sungery lasted between 11 am to 9pm. Everything went really well, I barelly had any nausea and the pain is minimal. I sleep a lot, but they always wake you for something. Everybody is so kind an professional. This afternoon…
Scope results
I had my colonoscopy this morning and all is well. I am still somewhat groggy from the anesthesia, so I'm going to bed!
Good Wishes for Laz
Laz, I hope you will check in here today prior to your surgery tomorrow. I just wanted to let you know that you have been on my mind these past few days and that I am sending good wishes and prayers your way. May tomorrow go well and I hope your recovery is a smooth one. We will be anxious to hear from you as soon as…
Anal Cancer and Radiation
Hello my name is Cynthia and I am new here..hello everyone! I was diagnosed with Stage II Anal Cancer in Feb,2013.I went through Rad/Chemo and about a month after the treatments were over I began to hurt in my hips really bad and as time progressed so does the pain that has ventured into my inner thighs..I called my family…
Rash/hives
Has anyone experienced a rash or hives on their torso? I am 2 years out of treatment and just wondering if it may be caused by radiation. I understand that it could be caused by an allergic reaction or nerves and am being treated with antihistamines and steroid cream, but the cancer demons begin to dance...
Response from EWTN...Not good
I got the following response from Ewtn. So, she meant to say that "the wages of sin" is death by anal cancer for homosexuals only! I am disgusted beyond belief that a woman who cloaks herself in my religion would get on the air waves and be so ignorant of the facts and hateful towards cancer patients. She needs to be…
unscheduled visit tomorrow
Just to recap my last biopsies in the OR were back in June, they showed that my tumor was now microinvasive, I opted to hold off treatment and saw doc every few weeks since, however in August after a good checkup with scope she said she would see me in Nov, I called yesterday since I have been having symptoms again since…
Good to know.....
If I do find out that I have AC, it's good to see the majority of people survive it. Have there been many people here that didn't? And, was it because it spread elsewhere?
If all the NED's left.
I received a lots of different responses to my previous posts about NED's staying or leaving on the board. Both approaches are absolutely acceptable. Everybody has the right to leave cancer behind them. But one realization hit me this morning. What would this forum look like if all the veterans and NED's left it? This…
Spots/nodules on lungs
Hello all. I've been post treatment for almost 6months for stage 3b anal cancer now and was given the all clear on my first scope and cat scan three months ago. They said there was some small marks on cat scan in the lung area but were not too worried about it back then Cause i have a history of asthma and he called it…
Do NED patients tend to leave the forum?
For those of you who have been here for a long time, I'm just wondering if people who get well tend to leave the forum? Also who would be the person who is not around anymore (either passed or got better and left), that left the greatest impression on you? Laz
If Anal Cancer Returns
Hello Everybody! I have a question. I was talking to a man who also had Stage 2 Anal Cancer like myself that lives in my town. We were both saying how we are in complete remission and how we are feeling etc. I then said to him that if the Anal Cancer ever came back they would catch it early since we get checked and just do…
anoscopy report
I posted here in mid-August after I had a routine colonscopy, and the doctor found a suspicious lesion in the anal canal. The pathology report indicated low grade squamous intraepithelial lesion with glandular cells present. I had asked if anyone knew what "glandualar cells present" might mean. I was looking for…
Surgery on the 8th.
Finally the day is set to remove my rectal cancer at the Cedars Sinai in Los Angeles. Will be a bit complicated, because they also have to remove a part of my tail bone and do a flap from my stomach to have a better closure. So there will be the main dsurgeon, a plastic surgeon and a spine surgeon. I will end up with a…
Hair loss
I am taking 2 rounds of 5FU and wonder about hair loss. Ive had one round and start the 2nd in 3 days. My hair is coming out a few at a time and seems like it is suddenly very coarse?
Need hope for recurrent anal cancer.
Hi All - I'm a 47y/o white male in NYC with recurrent anal cancer. My orignal diagnosis was in Feb '09 with stage II. I then underwent surgery and completed chemo + radiation treatment in April '09. After a recent pet scan (23 Sep) my oncologist advised of the recurrence and that the tumor is localised. Now consulting with…
Being married improves cancer survivorship
For all you married folks, there is a new study out showing amazing benefits of being married! http://www.huffingtonpost.com/2013/09/23/married-cancer-survival-marriage-death_n_3977278.html Could it be that love is the best medicine?
Good website for survivors
I just want to share this website with you. It has some good information and suggestions for cancer survivors. I have been reading several books and will share when I have summarized my findings. It sure is hard to sort through all of the information and misinformation out there. This site is recommended by the Farrah…
Working during radiation
I was wondering if anyone can talk about the likelihood of being able to work during the lastar adulation treatments? My radiologist insists it is going to get much more difficult, but up till now (11 out of 30 treatments), I'm still working with a few side effects.
Obamacare insurance rates
This is an article summarizing rates under Obamacare and countering spin by HHS. http://www.forbes.com/sites/theapothecary/2013/09/25/double-down-obamacare-will-increase-avg-individual-market-insurance-premiums-by-99-for-men-62-for-women/
Valarie Harper.....
Valarie Harper has supposedly been told she has months to live with brain cancer and she is appearing on Dancing With the Stars. For some reason, I am finding this disturbing. I am not sure why, but it feels like she is presenting a false image of what most cancer patients go through. Most days, I feel horrendous and there…
My cost on Obamacare
I have figured out that my new individual "Silver Plan" on Obamacare exchange will cost me $10,656. for 2014. This plan has a very high deductible and 20% coinsurance!!!!! That is $888/month The plan I have now has a low deductible, no coinsurance, low copays and cost $ 7800/ year. That is $650/ month. Ugh!
Blood clot in neck
Has any one had a blood clot caused by their port? I was never told to look for an infection or signs of a clot. I woke up one morning with a vein bulging in my neck. I could also see veins spreading out from the port. I googled port and infection, and thought it could be a clot. I went to the doctor, had an ultrasound and…
Hi Martha! It's Official - I'm Published Now on the World Wide Web:)
I always keep my promises:) And I promised you that I'd share the link with you and the group when we finally, officially got one of my stories published. Coping magazine is a major cancer publication for 27 years now, so I'm very proud to have my work accepted by their organization. It's taken me a couple of years of…
Long day
Firstly, thank you so much for the prayers! I met with the pulmonologist today. The growth in my lung has not changed much in 3 month scan comparisons. The doctor does not know for sure, but he suspects it is a neuroendocrine tumor. They won't know for sure until it comes out. It is in a place that is hard to get at. They…

Anal Cancer

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